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October 2017 Chemo Starters

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Re: October 2017 Chemo Starters

Well done Runnerbean! Take it easy for a few days! Hope you manage to get a good nights sleep.

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Re: October 2017 Chemo Starters

Hi Sam have a restful weekend x
Runnerbean we will get to the end of our treatments soon enough
Ali how you feeling now
Chaffinch hope you are rested and a bit more mobile now
Cassie hope your day been good
Karana hope your okay too
Marg and Mrs sims 1 week to our turn
Hope I not missed anyone xx if I have apologies xx
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Re: October 2017 Chemo Starters

Hi chaffinch17 I'm resting now all weekend xxx
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Re: October 2017 Chemo Starters

Hope you feel better soon Ali49. I’m back at home now after my first session and don’t feel too bad. Just kind of sat here waiting for something to happen now but I have plenty of pills for all eventualities! Got a bit upset as a woman was ringing the bell for her last treatment and i just really wanted that to be me but it will be in January which isn’t too far away. Xx
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Re: October 2017 Chemo Starters

Yes chaffinch hubby and daughter had cold. I am day 10 today. Felt great day 8 but went a bit awol yesterday. Hope you are ok x
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Re: October 2017 Chemo Starters

Well done you! I can barely leave the sofa today, I did feel ok for a few hours yesterday afternoon though and I think you are a day behind me. Don’t overdo it.
Make sure that you drink enough, it does help and flushes away the nasties too.
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Re: October 2017 Chemo Starters

Thinking of u Ali49 hope ur better and home soon xxx

day 2 after chemo,got my shopping done feeling tired now,but my gosh my mouth is dry and feels weird lol xx
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Re: October 2017 Chemo Starters

Ali49 sorry to hear you are in hospital, hope you feel better soon and good to get it sorted asap. We are all thinking of you! 

 

I had a friend pop round today, she didn't stay long but it was nice to see her. First person I've seen that I know, other than OH. Was a bit worried about it beforehand but was glad she came in the end. You just need to do what feels right for you, others will understand. 

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Re: October 2017 Chemo Starters

Sorry to hear that you are in hospital Ali49, wasn’t it your family that had colds? Hope that you feel better soon. What day are you on?
I can just about cope with hubby provided that he quiet. Can’t even stand radio or tv at the moment. I normally love music and thought one of the advantages of this would be spending my time discovering new stuff on Spotify.
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Re: October 2017 Chemo Starters

Ali thinking of you xx
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Re: October 2017 Chemo Starters

Ladies friends will understand if you are not up to visitors. Be strong and say no if that is how you feel x
I am actually quite comfortable in my own company as long as I have access to my kindle and phone lol
Now I sound like a teenager x
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Re: October 2017 Chemo Starters

Ohcwell after th8nking i was doing well i now find myself in hospital 9n an antibiotic drip! Didnt have a temp but felt fluey and had awful back pain. Have low white blood cells so beingvtreated for an infection - and this is after 7 GCSF injections. The joys xx
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Re: October 2017 Chemo Starters

Chaffinch it's not just me then!! Just had a friend say can she pop in and see me tonite and to tell her to go wen I've had enough but that's not easy is it!! I'm quite enjoying my own company which really isn't me!!! You feeling ok today? Xx
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Re: October 2017 Chemo Starters

I would be guided by how you feel. I am finding it tough to talk to people at the moment even hubby at times. I just want peace and quiet and to be able to do only what I feel like at the time. We have a lot of family problems at the moment especially with my lovely MIL just having been diagnosed with dementia. There were a lot of phone calls last night a couple of which I had to answer and I found that hard. I struggle to put sentences together at the moment and my tolerance is lacking. I gave a cold call lady a bit of a mouthful this morning she actually put the phone down on me!!
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Re: October 2017 Chemo Starters

Hello ladies....actually had a good nites sleep last nite...only waking a few times...took steroids & donperignon this morning and gonna take second lot of steroids soon...feeling ok just a bit dizzy and no headache today so far thank god!!  A friend popping over today with a cheese and potatoe pie...I'm looking forward to that although finding once I get something in front of me I don't then fancy it!!  I'm not sure what to do this eve...obviously running a pub a lot of people are asking after me...do I pop down to say hi or stay away??  Is anyone else finding it difficult to make decisions!!  

 

Its so good being able to talk to you lot for advice and support....just wanted to give you all a high five  

 

keep fighting xxx

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Re: October 2017 Chemo Starters

Yes thanks Cassie, it's reassuring to know that you were ok after you stopped the meds. 

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Re: October 2017 Chemo Starters

Thanks Sue w and Chaffinch 17 for the hair info . Bravely booked myself to the hairdressers 2 days before treatment starts on 13 for hair cut and wig try out 😳. Good to know Friday 13 has brought lots of lovely things your way Meehan 73 and Sue w hopefully the same will apply for us ladies . Hello mrs rims we are both going through it on the same day as Sue w . We,ll all imagine holding hands together on this journey and ... stay strong for each other . Thanks to everyone for the drug advice & lovely support and am off now to buy sea bands and linseed . Hope all is well for you Runnerbean thinking of you xxxx

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Re: October 2017 Chemo Starters

I would rather have every fact possible to be prepared x thanks for updat Cassie xx
When I see you lovely ladies doing okay it gives me strength x
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Re: October 2017 Chemo Starters

Yes sorry maybe tmi for some, but I think it was on the September thread that I read some of them had a terrible time with being bunged up, so I did as I was told on that front and haven't had any real problem. Others had diarrhoea so I prepared for both and just waited to see which way I went! I also listened to the drinking water advice (2-3litres) day before chemo, on day and day after and I think that's really helped too.

 

 

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Re: October 2017 Chemo Starters

I had chemo Thursday 28th and my crash came at about 8pm. I only had steroids before chemo and didn't have any to continue at home. I also wasn't sure when the steroids and anti sickness were going to wear off. I started feeling a bit sick which quickly turned into a dash to the bathroom. Once anti sickness kicked in I was fine. After that I took them at the first hint of nausea and wasn't sock at all. The last one I took was Sunday night before bed and haven't took any since. Sea bands came off Tuesday. Not on any meds now. Appetite was poor for a few days not helped by dry mouth and everything tasting weird. Taste buds are still a bit muted but eating normally again.

Anyone feeling rough today don't worry it will get better

Cassie x
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Re: October 2017 Chemo Starters

Meesh fab info sharing I am monitoring this constantly ready for next week and you are all so encouraging and give practical advice on dealing with side effects 👍👍👍👍👍 you are all great x
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Re: October 2017 Chemo Starters

Good luck Runnerbean, hope it goes well for you today!

 

mrs rims, I also was told that it's the drug ordansetron they give you for antisickness that bungs you up and was given laxido by oncologists to start taking day after chemo if I didn't go as normal as they said it's best to get on top of it straight away. They also advised golden Linseeds/ flaxseeds which you can get in holland and Barrett (ground is best) although you need to be careful as they can be quite strong.

 

I'm day 3 after first chemo session and I my foggyhead is mostly gone now and I feel ok. Last day of meds today so hope I don't have a crash tomorrow. Cassie, Ali49 how did you feel the first day after stopping your meds, did you still need to use the donperidone at all? I've been told I can use that if I still have any nausea.

 

chaffinch, glad you're doing ok. I also find I get a bit jittery after the steroids in the morning.

 

Karana, Sam34 and mikala, hope you're all fairing well this morning.

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Re: October 2017 Chemo Starters

Chaffinch you are doing fab keep smiling hun xx
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Re: October 2017 Chemo Starters

Good luck Runnerbean.
I had a baby on Friday 13th and she’s a star.
I slept pretty well last night. Woke up for a wee a few times but otherwise ok and no nausea. Feeling tired and a bit nauseous this morning and I think the steroids make me a bit panicky for the first few hours after taking them.
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Re: October 2017 Chemo Starters

Good luck runnerbean x
Hoping everyone has s restful night big hugs x
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Re: October 2017 Chemo Starters

Mrs rims me and Marg start Friday 13 th too but I met my hubby on Friday 13th 33 years ago so when this Friday 13 th gives me 33 years I will be 83 so all good xxx
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Re: October 2017 Chemo Starters

Good luck tomorrow Runnerbean. Chafginch i hope you have a better night. You are doing great although you might not feel like it. Mrsrims my advice is to get movicol from your doctor and take it from the day before chemo - if you are having fec that is - as the tablets do bung you up. Otherwise all the advice and tips on the september thread are amazing and have helped me through my first FEC xx
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Re: October 2017 Chemo Starters

Hello, I am due to start my chemo on Friday 13th October, great day to start that eh! 

 

I am nervous about the side effects, not bothered about losing my hair, its just the anticipation of the other side effects. 

 

I have looked on the Sept 2017 thread for things to get in & take with me to chemo, has anyone else got anymore hints & tips not mentioned on that thread? 

 

It's not so nice to have joined the forum becuase if the circumstances which has brought us here,  but it's so lovely to read all the encourgament & help.

 

Claire xx

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Re: October 2017 Chemo Starters

I’m just off to bed ready for first chemo tomorrow. Just wondered if anyone else starts tomorrow as well? Hope you are all as well as can be expected and any side effects are easing off xx
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Re: October 2017 Chemo Starters

I have been weeing all afternoon too! I also wish that I’d had my hair cut earlier because I also got loads of positive comments.
Started to feel sick again at about 6:30 but managed to eat a plain omelette and half a slice of bread and that had helped. I have been watching the football but it’s quite boring to might head off to bed in a bit.
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Re: October 2017 Chemo Starters

SueW this journey is all Rock n Roll!! Karana i took my steroids with breakfast and 2nd dose no later than 1pm as the can stop you sleeping. Do take them though as they are important and only for a couple of days. After a great day yeaterday i have been shattered and have felt fluey today. Had my last injection today too so will hopefully see further improvement now. Hope everyone gets a decent sleep xxc
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Re: October 2017 Chemo Starters

Ha ha Karana you made me laugh about the weeing, as I've just said to OH that's all I seem to do too and I also had a headache on day one, mines worn off a bit today although still feel a bit dizzy at times.

 

Marg, I also had long hair and cut it off about 1 1/2 weeks before I started chemo. Wished I'd done it years ago, everyone loved it and thought it made me look younger.

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Re: October 2017 Chemo Starters

Marg yes we start together my shave is Monday with my sister and my sister donating her hair to little princess trust
If you go to brave the shave it tells you how to donate your hair x you don’t have to sign up to get the details of that part x me and my sister now up to £1375 for brave the shave xx
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Re: October 2017 Chemo Starters

Not posted in a while so just catching up on the conversations ; really good to hear your first chemo went well Sam also lovely to read such up beat comments from all the rest of you lovely ladies - I start next Friday 13th !,,😳along with Sue I think . Anyone  else starting then also ? trying very hard not to be superstitious. Painted my nails  but not done the hair cut yet ...... dreading that as have long hair atm . Have read that hair can be donated to charity has anyone done that and if so ...... who would want it ? Xx

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Re: October 2017 Chemo Starters

Well done Sam....it's funny how we all get different advice and meds depending on areas we're in...you would think it was standard!! I've had my sea band on since yesterday!! Feeling ok today just bad headache and I can't stop weeing!  Now in bed watching TV, think I'm gonna put footy, mad I know!!  Xx

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Re: October 2017 Chemo Starters

Sam34 great to hear your chemo went ok and you managed the cold cap. Karana and chaffinch glad you're also doing ok day one after chemo. Chaffinch, I've also found the sea bands a bit uncomfortable at times but still persevering. Cassie good to hear there is hope without the sea bands lol. I went for a walk to the local Tesco (about 30 mins) to get more ginger nuts (OH quickly ate them all up after I gave him permission to have one)!

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Re: October 2017 Chemo Starters

Start of that should have been hope you are all coping from earlier treatment this week x
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Re: October 2017 Chemo Starters

Well done Sam and hope you are all coping from each pier in the week
I just got back from mri scan had to lie on my back with my legs elevated (no rude comments please 🤣) on cushion things and do some deep breathing (again no rude comments) 😂 was a weird sensation but time went quickly and not painful x felt a little disorientated when brought out the machine but a glass of water sorted me out xx
Hope this evening finds you all well and in good spirits xx
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Re: October 2017 Chemo Starters

Fantastic! That’s handy to know for Christmas time 🍷
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Re: October 2017 Chemo Starters

I have Sea Bands now, hubby bought some this morning, not very comfortable if you are trying to write but otherwise ok and I haven’t felt too bad since I have been wearing them.
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Re: October 2017 Chemo Starters

That’s one of the list Sam34 🙂
We were told that the odd glass of red if we felt like it would be fine, will be interesting to see if I do. I like my red wine usually.
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Re: October 2017 Chemo Starters

Hi Reboot
Yes, allowed one now and then but Ive gone off it. Might try a shandy tonight.x

Well done for those whos had first chemo tnis week.xx
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Re: October 2017 Chemo Starters

Well done Sam! Everyone seems to have come away with loads if drugs. I just got some anti sickness but nothing else. Not currently taking anything tho and don't have sea bands on anymore. Onwards and upwards!

Cassie x
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Re: October 2017 Chemo Starters

I was worried they’d put us in Halloween make-up! 👻
Oh, are we allowed alcohol?! I thought it was on the forbidden list?
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Re: October 2017 Chemo Starters

Chemo went well today 👍

Cold cap was ok abit painful for 1st 20min but I managed it..,,

Hopeing I don't get a lot of side affects but got a bag of tablets to help incase!

1 down 5 to go xx
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Re: October 2017 Chemo Starters

Only started chemo yesterday so haven't had any yet but really don't fancy it!  I usually have at least a glass of red a day and more at weekend!! Xx

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Re: October 2017 Chemo Starters

 
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Re: October 2017 Chemo Starters

Karana
My staff wont allow me into the kitchen because of the cooking fumes! Thats ok by me as then my wig wont get smelly.
Ive totally gone off alcohol, had one guinness since chemo started 4th Sept.
Are you off the alcohol?x
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Re: October 2017 Chemo Starters

I really shouted at my husband last night...he'd had a few pints with the locals downstairs then came up to cook himself Thai prawn fish cakes and there was me feeling as sick as a pig and he couldn't understand why I was angry 😡 bloody men!!! The sandwiches for the pool team cld be interesting as that's normally my job and I've delegated! 

 

Still feeling relatively Okish today although I'm scared I'm gonna end up feeling bad again later!!! Hope everyone else is doing ok xxx

 

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Re: October 2017 Chemo Starters

No, not Doxatol for me but I had read about the nail varnish thing before I knew which drugs I would be having so decided to do it anyway. It will keep them looking nice and hopefully hold them together..