My local centre offers the reiki for free so thought I'd give it a go. Getting the full experience of the nasty stuff may as well get the good too! Will make donation though as these centres are so good and really need all the help they can get. Also helps give us nice little things to look forward to, rather than just more chemo and nasty SEs
Meant to say that I think reiki is fine whilst on chemo as it's just for relaxation. I haven't had it but there are no chemicals and depends on the practioner but I don't think they even touch you much.
SueW, you like to keep busy! Let me know how the reiki goes, I've got some sessions booked through my local cancer centre but couldn't get a first appointment until 24 Nov so a little way off. I'm also booked in for the look good feel good session which they're running on 26 oct (2days after next chemo session, so I'll need to see if I'm up to it). Ours also run reflexology which I'm used to having but they said I couldn't have that whilst having chemo, so will have to wait til after. Hope your scan goes ok!
Yes the meds are a nightmare. My nurse gave me a printed sheet listing each drug and how many to take and how many times a day, but only the steroids had instruction of exactly when I should take them. Seems I have slightly different meds! My steroids are dissolvable and I take them all first thing. I'm happy with that as it means that I shouldn't need to worry about them keeping me awake!
Meesh, I got into a right old muddle with my pills - trying to figure out when to take the one 30/60 minutes before food was a bit tricky, since I didn't know when I'd want to eat. I ended up sticking silly reminder tones on my phone for each pre-meal pill, ate tons of bananas when the banana reminder went off, then more pills post-bananas. I guess my potassium levels look pretty good!
I had the dexamethasone steroids - was told they were part of the anti-nausea drugs, helped with any other allergic reaction and stimulated appetite. The nurse advised to take at breakfast and lunch, as they can keep you up (although I turned into a night owl anyway). They gave me a nice rosy glow! Yay for toast and honey! xx
Are your steroids dexamethasone? If so they are for antisickness. Everything I was given was for antisickness! I was instructed to take these first thing with food, mine are dissolvable in water (tastes horrible) but I just glug it down in a few mouthfuls and follow it with some breakfast. hope that helps Karana? Luckily I've been sleeping fine which I also think is a big help. Going to get showered and dressed today and go out for a short walk later. I've also been spacing my meds out over the day too (not sure if that's right) but it seems to help.
I don't really know what the Steroids are for...can anyone enlighten me? Have managed small amount of toast & honey...go me!! Xx
Good morning everyone.
Good luck today Sam34!
Karana and chaffinch sorry to hear you had rough nights. I took my ordansetron on the first day at about 5:30 with my dinner as they advised me to take meds with food as much as possible. They also gave me lorazepam for the first few nights it's a small dose but it also an antisickness med and helps you sleep. My main issue has been constipation (sorry tmi, I know) but I have managed to go this morning. Does anyone know if I should carry on with the laxido until I finish taking the ordansetron?
Ali, poor you hope you feel better soon!
mikala, how are you doing after your first treatment yesterday?
Sorry for lack of posts last night....I really did feel fine until about 6pm then went down hill rapidly, tried nibbling ginger biscuits and made a ginger tea but couldn't swallow anything, pounding headache and felt very nauseous!! By the time my hubby came up (we run a pub and live above it!) I was lying in bed rocking!! Was determined not to be sick as thought if I was I wouldn't stop and managed not to be...took ondansetron at 7pm but didn't do anything! Drifted in and out of sleep all night and got up at 2am to find gavascon as felt like acid was trying to escape from my throat!! On a plus note I feel a lot better this morning, just had more anti sickness in anticipation that it'll work before I feel sick again and got a biscuit & tea, still got bad headache tho....gonna to wait a bit before taking steroids. Hope your feeling ok this morning Chaffinch! New this journey wasn't gonna be a fun one but fed up already!!! Much love and positive vibes to you all xxx
Well done Karana and Chaffinch, glad it went well for you. I too feel felt spaced out afterwards yesterday. Had a bit of dizziness on and off today and head still feels a bit weird. Have spent day on the settee, only just realised I'm still in my pjs! Other than that have been pretty good. Lucky my tastebuds seem to be holding up. Take things easy and get others running round after you!
Karana and chaffinch.....sounds like it went well. You will feel a bit spaced out for a while. If you are currently taking steroids, then you may find the fatigue kicks in once you stop. Take it really easy for a few days. Karana, youre not suppose to be doing anything!! And let others look after you.
Sending a hug
Well done Chaffinch & Karana, take it nice and easy.
Runnerbean & SueW - go v pillows!
Ali, really glad to hear you're feeling almost normal on Day 8. Same for me, on Day 9.
Big hugs xxx
Well done Karana glad things went well for you. Know what you mean by the sheet of paper telling you about the meds. I had to call the nurses today and ask them to clarify. So if you're not sure just do that. I too had a bit of a headache and its still coming and going today. Hope your recovery is ok, I've been just sitting watching TVs today but feel ok. Might try a short walk tomorrow if I still feel ok.
Well I'm home and it all went quite smoothly...bit of trouble getting cannula in but that's quite normal for me!! I've put my sea band on but feel ok at the minute...just a bit of da dizzy head!!! Just got meds out of my bag and all quite confusing....a sheet telling me what and when I need to take stuff may have been helpful but got nothing!!! Been told to take a anti sickness (Ondansetron) later today and start on Steroids (Dexamethasone) tomorrow then have Domperidone & Dioctyl if I need them!!! I'm hoping I've got that right??!!! Just had my first bright red wee!!
Hows everyone else doing?? Xx