Hi ladies, some great tips and tricks here - thank you! I'm on Day 8 EC (one down, 7 to go) and feeling nearly normal. I was all stocked up for sickness and diarrhea (such glamour..) and instead got heartburn and constipation. Both passing now, thank goodness, thanks to bicarb, making a big old nest of pillows to raise my head up at night and Sennakot, which I checked out with the BCN. She said it was often the smallest things that were the most worrying - how true. I'm still wide awake at 3.30am but no longer noshing in the wee hours - well, not much anyway! All the best to everyone starting and continuing this week.
Thank you Whytefawn and SueC, planning on a few days on the sofa and see how I go. Whytefawn the colouring sounds a good idea, a couple of people bought me those adult colouring books a couple of years ago for Xmas and after the initial excitement I'd completely forgotten about them. Will have to dig them out as Daytime tv is pretty awful.
Hi SueW also meant to say lovely of your mum to knit you a hat and that's the good thing about having chemo over the winter hats knitted hats don't look out of place! I crochet so made a couple last year never imaging I'd need them for chemo!
SueW, I agree. I wasn't really worried about having the chemo (apart from the cold cap as wasn't sure I'd tolerate it as I really am a wimp and if I can do it then anyone can) but that's because everyone has shared their experiences. What worries me more is the next week or so and coping with the side effects! Fingers crossed I can cope, I have lots of good ideas from the forum to help and also know there are others sharing the experience (as much as none of us would like to). You seem very prepared and knowledgable on everything you will be fine next week. Hope your tests all go well.
Thanks SueW, I didn't realise that. Also meant to say they didn't give me any injections so I guess they're going to see how I go with my blood count. They've also given me anti sickness to take before my next session so I won't have to have it through the drip next time. Head just feels a little woozy not sure if that's the cold cap or the chemo!
Hi everyone, back from first chemo treatment. All went ok apart from sitting with the cold cap on for about 15 mins before realising it wasn't working! They had to switch machines but after that it was ok. For all those cold capping this week it isn't that bad. The first 5-10 mins are the worst then after that it was ok. I just couldn't talk for those 5-10 mins and concentrated on deep breathing. I took 2 ibuprofen and 2 paracetamol an hour beforehand and I also took a blanket and a scarf as the back of your neck gets quite cold. I also managed to have lunch there which was ok although I did let OH eat the jam sponge and custard. Hope I don't regret it later. Now just relaxing on the couch.
Whytefawn, I thought I'd have to pay for a wig as I didn't think I'd qualify for one on the NHS, but the oncology dept asked if I wanted a wig consultation which is done through a cancer charity centre located at the hospital and when I went they said I would get a free one. So I'm getting one even though I probably won't wear it all the time. I'll probably be going into work so may want it then.
Good luck for tomorrow Karana and Chaffinch!
I went with scarves.... wigs just weren't for me. After the initial awkwardness, I got quite used to them. Definitely need one at night because the initial shedding makes quite a mess, and then you need something on to keep warm. If cost is an issue, scarves are much cheaper. And bear in mind that this is only temporary. 4 months after chemo, I had a full head of hair.
Oh no Ali49, so sorry to read that! I am hoping the nausea doesn't revisit me. I am Day 5. Was given a good mouthwash by the oncologist, it can be a bit strong but you can dilute it, been using that and my mouth isn't too sore. When I get out of bed (not felt tired until now and boy has it hit me today) I will look the name up for you if needed. My left ear still feels watery and painful, had trouble with new second thermometer, honestly me and these thermometers are not friends at the moment I am buying ones with good reviews too lol, awaiting last shot from nurse for white cells today. Hope the mouth feels less sore as the day wears on.
Brilliant, will try that SueW, not as bad on waking today but not tried to eat anything...did manage some crumble last night oh did enjoy it lol, but the tiredness has finally caught up with me since waking today I keep falling back to sleep and the legs are really aching today! Have a good day yourself x
I tried sucking a couple of mints last night Ali49 but this morning awoke with heartburn stuck in my back at 3.30 am and it stayed a few hours. I think I am full of wind, if I eat I start to hiccup, probably after all the sickness. Isn't it strange about no longer wanting to drink the tea and coffee. Tonight I have had a sip of Feverfew Tonic water and that went down okay, half of a small bottle, will see if I pay for it later.
Thanks Ck x
Don't know if I've mentioned this before.....but I had a craving for sausage sandwiches, round about midnight! Weird.
I remember my chemo nurse said to me at the start.....just eat what you fancy, whenever you can. She said you need to take on the calories, mainly making up for those days when you really don't want much. Fortunately, I didn't suffer from sickness at all. Unfortunately, I carried on eating as if I did need to eat extra! Consequently, every time I went for my weigh in, I just put on more and more weight! Oh well, it was the least of my problems at the time.
Good luck with all the tests SueW. I am going for a wig fitting on Thursday afternoon myself. The other salon I went in only had one longer haired wig to actually try on but they have ordered some more in. Hair has started to shed more at Day 4 post chemo. Awful heartburn here (wasn't given anything for this symptom) seems stuck in my back and still can't eat much, I start to hiccup, so sticking with plain things, though I did manage to make an apple and berry crumble for the family today, then tried a spoonful and heartburn reared its head so gave up. Drinks are a problem too, used to love my cups of tea and coffee but can only sip warm water or the coconut water when my neck swells with the bone injections. Sleep is eluding me, awake around 2.30 am most nights but don't feel tired in the day strangely. I am trying a home made beef stew tomorrow, wish me luck probably one spoonful and it is back to the dry cracker. Can't believe how hard it is to enjoy food or try to eat it. Best wishes to all