October 2017 Chemo Starters

[Mishy18]

Me too Jencat!! My phone is not bad but the storage is full cant install it have twitter but had that because of work and have lits kf useful organisations on there!
Well enjoying whats left of he mild weather as apparently we are getting artic weather up north next week 😨 getting the Christmas shopping done now visiting a few Christmas markets etc this next week and our local Maggies Xmas fete 🎅
Love to you all xx

[Jencat]

Lovely Oct ladies, hope you're all doing well and sending lots of love to you all. Think I need to buy a Christmas present to myself and get a decent phone and then I'll be able to join you all on our Whatsapps group xx

[Shi]

Hi Ali ❤️❤️❤️Hope you are ok and please send ❤️❤️❤️To cherry b, hope she’s still doing well 😘😘Got some honey queen or something like that balm stuff from lush to tame the frizz, but it smells like moth balls 😲😲😲meesh need your curl cream recipe please 🤗🤗 I here everyone is ✨✨✨✨up for next meet up, sorry can’t get, dizzy and jellytot hopefully we’ll meet next time at another get together mum of the thread sue arranged 👍👍 weekend by the sea near the 🤪🤪🤪 trio out in the arse end of nowhere if buddyfan is having another summer festival? Big ❤️❤️❤️And 👭👭👭to everyone 💕💕💕✨✨✨✨Shi xx

[Ali49]

Hi Ladies. Hope you are all doing well and managing your hair problems. Mine is growing and looking more frizzy- i think!
I have just stopped letrozole for a month (eeek) as i now have arthritis in both shoulders - stopped the let to see if it makes a difference!
Got 3 herceptin injections to go - last ono on Dec 26th!
Getting there, at last zz8

[Chaffinch17]

I loved my clown hair Buddy, I even waxed it and ruffled it up. It’s flopped now and I have a straight old lady look now which I hate. I’m hoping that the top is now long enough for my hairdresser to style it like she did with my pre chemo cut which was a nice compromise otherwise I’m going pixie again.
It was me who asked about amitryptaline, haven’t taken it yet, I’ve been managing by reducing things that set it off like citrus and caffeine and have stopped drinking cranberry. I like a few glasses of red at a weekend and I will only stop that if the pain outweighs the pleasure. Hope you are doing ok after all your exciting adventures x

[Mishy18]

Buddy i used the curly wurly shampoo from lush then honey bee styling wax its a bit heavy so only used a little to define the curls and waves and an alice band was my vest friend at times when it was getting longer it does drop down just takes time, i hope i haven't lost mine since the cut i heard tgat can happen??? I felt strange when the girl dried it straight kind of used to it now oh and all the funny white ends are gone too my hair is very dark now alot darker than before unfortunately i still have the pure white mallan streak at front!!!!! Good luck with the hair Buddy and hope you are well atm with any treatment you are having xx

[buddyfan]

Oh well, Doris it is then. Any tips for encouraging it to drop rather than grow straight out?

Helena, sorry I missed that you'd had an op. Hope you're on the mend now.

Someone was asking about amitryptiline. I was on it many years (10 or 20mg) for neuropathic pain from my paralysed arm. I eventually had to move on to Pregabalin as the pain increased. Talk about rattling, I need a suitcase just for all the pills I take.

[Mishy18]

Yeah Shi thats right my doris do was really getting me 😝 and even though i was so grateful to have hair i longed to look more like me if that made sense so keep it up ladies keep growing the fro and soon you can also have a proper haircut not ling now!!!!! Its very liberating i promise 👍👍👍

[Mishy18]

Buddy i persisted im almost worried that i may have lost mine in the cut as it grew down they became more of a curl/wave my advice to you all is once the mullet at the back gets too much get it tapered in the continue growing it buddy my hair stsrted coming back in January in August i lost the mullet then Yesterday was able to have a proper style so its a slow process and it tends to grow out and in thickness i even had to have mine slightly thinned in places!!!

[Shi]

😘😘😘hi sue, so glad you are having a recharge during half term 👍👍it’s full on when you are back full time and you’ve done really well ❤️❤️hi buddyfan, we have to do the clown, Doris from bingo, mullet look if we are aiming for a nice bob, I just would like it long enough to get the straighteners through it, having my 94 year old gran admiring my (shampoo and set look) telling me how nice it is, isn’t doing it for me. But hey we’ve got hair 😁😁😁and this time last year we would have been delirious with this much hair. Not hard enough like meesh or dizzy were doing the cold cap. Hang on in there, mai7 didn’t cut hers and she’s rocking a right coco Chanel now ❤️❤️love to everyone, jencat are you ok darling? Ali, hope you are ok too sweety 💕💕💕✨✨✨Shi xx

[buddyfan]

Ladies, reminding you that you were two months ahead of me losing hair, do I persist with the clown hair in the hope that eventually it will become heavy enough to drop down. I want the curls but not the clown hair look!

[SueW]

Hi all
After working full time for an 8 week half term I am now off for a week and making the most of it .. I even stayed in bed until 10 yesterday which is unheard of for me x
Hope each and everyone of you lovely ladies are well
Love and hugs xx

[Mishy18]

I promise its worth it in tbe end Shi i nearly caved and got it chopped off back short short as it was getting me down but my girl who cuts it was no wait it will def be worth the wait!!! No mire Doris from the bingo!!!!!
Halloween party was great Ella looked so cute was baby dancing at the disco it was fun I'll not be scaring the kids with my uncle fester look this year when the come for the trick or treats i still laugh about that sometimes or when i scared the neighbour coming in from night-shift looking oht the window at 2 in mirn 😂😂😂😂😨👻
I need to get some decs bought im having a new tree the whole shibang this year Christmas jumper and everything haha xx 🎄🎁🌟

[Shi]

Mishy 🍾🍾🍾🥂🥂🥂🍾🍾🍾🍹🍹🍸🍸🍸celebrating your hair cut beautiful that’s another jump you’ve now hurtled over giving us all a kick up the bum to keep 🏃‍♀️🏃‍♀️🏃‍♀️🏃‍♀️Through our mullet, mops, footballers 1980’s dos 🤣😂🤣😂🤣😂🤣good to know this phase will be worth it. Hope you and Ella Bella have great Halloween too. Meesh, bought some Christmas decorations yesterday 🤪🤪🤪🤪and sparkly cardi (well mum bought me that) so ✨✨✨✨✨✨✨✨✨is it too early to get a bit of boney m and Mary’s boy child on 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻💃🏻💃🏻Love to everyone and hope everyone’s hair doing ok 👍👍💕💕💕✨✨✨Shi xx

[Mishy18]

Hey ladies had my first Proper haircut i mean an actual style not just bits trimmed away to make a kind of style irs a pixie_Bob can be worn straight or my curly wurly she had to dry it straight but i think it will look more funky and on trend curly wavy im so chuffed no evidence that my barnett was tge result of chemo something to look forward to ladies for thise of yiu still experimenting with different things to do with the hair its definitely worth braving it oht as long as you can i did have the mullet bit removed in August but braved it out rather than keep getting it chopped offand pleased now i waited 👍 i will add i don't think im going back to my long hair im quite liking the shorter look ii have been told i look younger!!!!
Meesh good to hear from you Sue buddy Shi chaffinch jencat and all you other Oct girls have a great Halloween

[Meesh73]

Hello ladies!

Buddyfan, Jencat, Mishy how're you all doing? Work at the moment is manic for me, but I'm managing. We're thinking about doing some renovations to our lounge as well recarpeting upstairs but it won't be done before Xmas now. Is everyone planning lovely things for the festive period? I know I am after missing out last year 😊

Hope youre all doing ok 🤗🤗❤️❤️😘😘

[Shi]

Meesh 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻Was there any on the tables I know what a 🤪🤪🤪🤪influence Karana has in us all and you and whytefawn love a 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻So pleased you all had lovely afternoon 😁😁😁 ❤️❤️❤️To everyone, I’ve been dishing out a few pairs of our gold hot pants girls 🤪🤪🤪sometimes it just calls for gold hot pants doesn’t it💃🏻💃🏻🕺🕺💃🏻💃🏻😁😁😁😁💕💕💕✨✨✨✨Shi xx

[Meesh73]

Shi, it most certainly does! Had lovely meet up with whytefawn and karana yesterday for afternoon tea 😋😋 It's good to see everyone looking so well 👏🏻👏🏻😊

[Shi]

Hope everyone is enjoying this glorious autum weather 🌞🌞🌞felt more like spring day today 🌞🌞🌞🌞sure beats this time last year. 💕💕💕✨✨✨Shi xx

[Chaffinch17]

Hi rabbit28, my symptoms are bladder spasms that are quite uncomfortable. It feels like the inside of my bladder is sore. It usually gets worse as the day progresses but is okish again by the morning. It can hurt to wee or immediately afterwards but nothing like when I had cystitis in my 20’s. I have tested positive for infection a couple of times and have been given a few courses of antibiotics which have done nothing. I’ve read into it quite a bit and it seems that there are a few common triggers that make it worse. Tea and coffee even decaf, alcohol (boo), citrus fruit, tomatoes and chilli peppers. All my favourite things 🙄. The other thing to avoid is cranberry juice which I’d been having loads of thinking it was an infection but apparently it is a big no with this. Hope you find something that helps, I’ve reduced my tea and coffee intake, stopped the cranberry and only drink a couple of glasses of red at the weekend and mine is manageable at the moment. I’m holding off taking the tablets if I can avoid it, I take enough already x

[Ali49]

Hi Jencat, i have been off this week sick with a sore throat etc so i havent actually managed a full half term!! Its good being back though - loving the banter and getting my brain working again! Hope you are ok xc

[rabbit28]

Hi Chaffinch, can I ask what symptoms you has with the bladder syndrome. I'm experiencing issues since chemo and starting tamoxifen which oncologist believes is linked to low oestrogen levels. Hope all you October ladies are keeping well xx

[Chaffinch17]

Good to hear that you are recovering well Helena. Take it easy though xx

[Chaffinch17]

Glad that you are doing ok Jencat, I don’t think that any of us have the stamina of before. Working part time is a good idea xx

[Jencat]

Hope you're recovering well Helena, thinking of you xx

[Jencat]

How are you now Ali? I'm very impressed that you're working full-time, I'm worn out working part-time! xx

[Jencat]

Thank you for the poem Runnerbean xx

[Jencat]

It's a year ago today that I started chemo, that doesn't seem possible! I've still got some neuropathy in my fingers and toes and lack stamina, but otherwise I'm ok. I'm back at work now, but on a Phased Return, which has helped. I was worn out by playtime the first week!

Love to you all xx

[Ali49]

Great to hear from you Helena. Glad all went well. Take it easy lovely lady xx

[Runnerbean]

love this poem, makes me think of all you lovely ladies and the bond we have 💕💕

---

@Sue C wrote:

Hi Ladies

This thread is for anyone who is about to start chemo next week.

Hopefully you can all help and support each other as you go through your treatment.

I had chemo last year, so I will try and help as much as possible. If you have any questions please ask and if I don't know, I can at least point you in the right direction of who to ask!

Best wishes

Sue xx

---

[Mishy18]

Lovely to hear from you Helena sending you a big virtual hug and hope you have a speedy recovery 👍

[ladybowler]

Hiya lovely ladies

Just popped in to say hello.  Recovering well from my hysterectomy and had my staples out today so that is another milestone.  Having a very very lazy Sunday as it has exhausted me plus I didnt have a good night sleep last night.  Got to remember it is not even a week since I had surgery, patience Lady B patience.

Hope you are all having a lovely Sunday.

Helena xx

[Shi]

meesh 🤣😂🤣😂🤣😂chaffinch I’m not sitting next to you next time we all get together you might want to genital hug us 😂🤣😂🤣😂🤣sooooo funny chaffinch 😁😁😁thanks for the 😂🤣😂🤣😂🤣💕💕💕✨✨✨Shi xx

[Meesh73]

Chaffinch, 😂🤣😂🤣😂that was a hilarious blooper and yes very wrong on a few levels. Never been on amyliptriline (I know that's spelt wrong but I can't be bothered to look it up and correct it) I hope it works for you.

Buddyfan, good to hear from you. How're your curls doing now, are they raphelite yet? I also think I have slightly different intensity of SEs with different brands of tamoxifen. I seem to be on one that makes my legs ache at the moment, it's not too bad unless I go up a few flights of stairs 😱 The flushes are relentless nothing natural I've tried works (magnet, sage) so I'll just have to live with them as I'm not taking anymore meds.

Hope everyone is getting on ok, sending ❤️ and 🤗

[Chaffinch17]

I love horse racing Shi, my son has just got a job in the industry. He. Like his dad and grandad has great knowledge of it. We have a few good meetings in Cheltenham every year. I would probably avoid the main Gold Cup meeting and New Year’s Day though because they are crazy.
Having said that Aintree could work too because we have family up that way. Xx

I’ve just been diagnosed with painful bladder syndrome and am to take a low dose of amitryptaline for the nerve pain. Anyone else ever taken it? I’m a bit reluctant as I already rattle 🙄. GP thinks it’s been triggered by very low oestrogen levels following menopause then made worse by anastrazole taking them to rock bottom. I’ll just be happy to get some comfort back though 🙄

[Chaffinch17]

Hope all is well with you Helena and you are recovering well. A nice pair of lovely soft big pants and a gentle hug to you. .....that was a close one, my phone autocorrected gentle to genital 😱. That would have been inappropriate on so many levels 🤣. Seriously though wishing you a speedy recovery xx

[buddyfan]

Ali, I had a horrible couple of weeks of aches and pains before realising that the shape of the pack of letrozole was different to whatecer I was using before. switched back to another pack I had and within a day I felt better. Try different makes, for me, I now know not to have Cipla. Accord seems ok, but everyone is different.

[Mishy18]

Helena hope you are feeling OK after the op sending you my best wishes for a speedy recovery mate with a little recovery dance!!! 👍💃💃

[Ali49]

Sending lots of love & best wishes Helena. Get well soon xx

[Meesh73]

Helena,

hope it all went ok today. Just to you know we're thinking of you 🤗

[WhyteFawn]

Hi all!!
Helena hope everything went ok today. Let us know when you can xx
What's you all been up to?
Cassie x

[Shi]

Girls we are doing our version of river dance in our gold hot pants at the end of ladybowlers bed tomorrow 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻💃🏻😁😁😁😁runnerbean 😘😘 its like we’ve been in a hurricane and then spat out the other end isn’t it and now it’s strange to Prosecco it, but massive 🥂🥂🥂🥂🍾🍾🍾🍾to our Oct thread 👭👭👭💃🏻💃🏻🕺🕺🕺🕺💃🏻💃🏻💃🏻Thanks for all the ❤️❤️❤️🤣😂🤣😂🤣🤪🤪🤪💃🏻💃🏻💃🏻🕺🕺🕺and most important our beautiful friendships ❤️❤️❤️Blooming love you all amazing 💪💪💪💪😁😁😁ladies 💕💕💕✨✨✨Shi xx

[Runnerbean]

Sorry Helena it’s Tuesday not Thursday, I still blame chemo brain 🤣

[Runnerbean]

Good luck for Thursday Helena hope it all goes to plan. Not been on here for a while busy trying to get back to “normal” life. I’m feeling OK at the minute physically but still struggling with getting my head around what we have been through over the last year. Hope your all doing OK, can’t believe it’s been a year since we first came on this thread. Love to all 💕💕

[Ali49]

Good luck for Tuesday Helena. Sorry i didnt know you were having problems and surgery. Yes its a continual rollercoaster ride!

You get your op out of tbe way then lots of rest and recuperation! Not had any kind of work assessment but work isnt makjng my shoulder worse.

You will be in my prayers on Tuesday and sending you lots of love xxc

[ladybowler]

Meesh

Thank you darling xx

[Meesh73]

Hi Helena,

Good luck for the op on Tuesday, hope it all goes ok. 

[ladybowler]

Ali

You moan away mate.

Know what you mean, because of what we have been through they are always ultra careful with us but that only causes us to go into panic mode and think the worst xxx

I am ok. I am going into hospital on Tuesday again for a hysterectomy, the last time was cancelled because I had a chest infection, so fingers crossed for Tuesday.  I am having similar fears, what if it is something more than the tamoxifen has made the lining of my womb thicker etc., but I just have to get myself back in check which is not always easy xxx

Have you had DSE assessment done on your working environment to make sure that it is nothing there that is causingexascerbating the discomfort in your shoulder.

Let me know how you get on, I am going to be in hospital for 2/3 days but will keep in touch with the forum whilst in there

xxx

[Ali49]

Hi Helena, lovely to hear from you. I have been great and went back to work full time in Sept. 5 weeks in though I am shattered and struggling with very sore shoulders - my right shoulder - surgery side - being the worst. I cant fasten my bra etc. I rang my BCN this week to ask for physio but instead she sent me for a bone scan! This has freaked me out a bit and now the usual low lying panic while waiting for results!

I am absolutely choked with cold, had my 14th Herceptin on Wednesday, still taking letrozole every day and have just had a bit of a low week!

Moan over!!!

How are you Helena? Is everything still going well?
Xxx

[ladybowler]

Ali

Have are you doing xxx