62322members
328058posts
cancel
Showing results for 
Search instead for 
Did you mean: 

October 2017 Chemo Starters

Member

Re: October 2017 Chemo Starters

Thank you peeps...I think at this early stage all help & advice is most welcome 😘 But I'd still rather be a unicorn 😂🦄😱
Member

Re: October 2017 Chemo Starters

Chaffinch its good that you know what your treatment is now. Hope you find a wig you like xx
Community Champion

Re: October 2017 Chemo Starters

Hi Ladies

Just wanted to welcome Karana to the thread. Sorry that you're here, but we try and help where possible.

I had chemo last year, so if you have any questions please ask. I may not know the answer, but I can point you in the right direction of who to ask!

Best wishes

Sue xx

 

Member

Re: October 2017 Chemo Starters

Good luck with the tests SueW. This business really does fill up your diary. I have managed to put a few more fun things in there today like a free head covering workshop at my local Maggie's centre next week and a Look Good Feel Better course in November. Just hope I feel well enough by next Tuesday to go for that and wig consultation which hubby has persuaded me to go to. He thinks with my treatment being ongoing over Christmas that I might want another option for going out. Not sure that I will ever wear a wig I'm a bit freaked out by the idea no idea why. I just keep thinking of the horrible hair that dolls have. I have always found dolls a bit creepy. .. yes I know I'm weird Smiley Wink
At least I found out today what my treatment will be. 6 x FEC 20 rads and Herceptin
Member

Re: October 2017 Chemo Starters

Hi karena23 I was told they like you to wear something short sleeved too so they can get to you arm easier I suppose. I'm not sure I'll tolerate the cold cap as I hate the cold and I'm also a real wimp, but thought I needed a go.

SueW gosh that's a lot of tests poor you! Still it'll keep you busy until chemo!
Member

Re: October 2017 Chemo Starters

Hi ladies just got back from hospital do catching up on you all
Appointments today for enlarged adrenal glands Had blood tests and got to take steroids tonight and go back tomorrow for more blood tests then mri Thursday and then wee in bottles for 3 days for stress hormone tests then meet consultant on 12th
But also got chemo nurses next Tuesday then chemo starts Friday gosh I have a busy life 🤣🤣🤣🤣🤣
Member

Re: October 2017 Chemo Starters

Good luck with your forthcoming chemotherapy karana23.  Had my first fec last Thursday (they sit with you to put that in with a tray of large syringhes) only took a couple of hours and yes just turned up as I normally do, I don't  wear alot of makeup anyway but put a bit on along with some lip gloss.  

Member

Re: October 2017 Chemo Starters

Hi Karana

Yeah I just turned up normally dressed. They need access to your lower arm and hands so would avoid anything that might get in the way. A tip from me would be to wear loose fitting trousers or at least ones without complicated fastenings. If you need the loo during treatment you can go when they flush the lines but you have to take the drip stand with you. Trying to go to the loo when one hand is connected to a drip is tricky. Other than that just be comfortable.

Cassie x
Member

Re: October 2017 Chemo Starters

Me again...I know this maybe a really stupid question but those of you that have already started your chemo did you turn up looking how you normally would on a day to day basis, as in wearing makeup, jewelry etc, I was thinking definitely comfy clothing but just wasn't sure about my face lol!! Xx

Member

Re: October 2017 Chemo Starters

Hi Meesh....no decided against the cold cap...I hate the cold!!!  Have got quite short hair at the minute so have decided that it wouldn't be as traumatic as it wld be if I had lovely long locks, still a bit scary though!! I wore a sea band while on a boat trip on my last holiday as I suffer terribly with motion sickness so will stick that on....being sick doesn't freak me out too much but I hate feeling dizzy xx

Member

Re: October 2017 Chemo Starters

Well done Cassie. I am finding it easy to do injections too. Feeling a bit achy with them so i follow CKs advice. I take them out of the fridge half an hour before and i also take 2 paracetamol half an hour before too.
Meesh, i just have a water bottle that i keep filling up so a bottle is fine too. You will need the sweets as your mouth gets really dry. I have also had ginger biscuits and bland foods to eat i.e. pancakes, plain scones, toast etc. The biontene mouthwash and toothpast are great too - a bit pricey but very gentle on teeth, mouth and gums xx
Member

Re: October 2017 Chemo Starters

You'll be fine Meesh I just found it easier to have a cup rather than a glass that could easily fall over. Mine has unicorns on it that my sister bought me. They're usually for kids but who cares! I just found it easier to have if I didn't feel like getting off the sofa. I know what you mean about too much sugar but no added sugar drinks are ok. I didn't want me teeth to be furry you have to be gentle brushing them.

I had first chemo last Thursday so had my first injection today. Was nervous about doing it but it was fine.

Even if there's something you haven't managed to get before tomorrow you'll be fine. It's something you can pick up for next time.

Good luck tomorrow
Cassie x
Member

Re: October 2017 Chemo Starters

Brave not brace! Stupid phone won't recognise brave!
Member

Re: October 2017 Chemo Starters

That was meant to say brace not brace!
Member

Re: October 2017 Chemo Starters

Oh Cassie, also meant to say well done on administering your first injection! Very brace!
Member

Re: October 2017 Chemo Starters

Thanks Cassie, where did you get your cup with lid and straw? I'll be in a panic now as I haven't got one and start tomorrow morning! I've got some sweets but not keen because of the sugar. I also bought some root ginger so might try eating a bit of that instead. How many days after your chemo are you now? Glad you're doing ok.
Member

Re: October 2017 Chemo Starters

First injection done! Didnt even need to call my sister or help lol.

I've been wearing sea bands. Not sure if they work or it's just the suggestion but I haven't had an anti Sickness tablet since last night so all good so far. This is probably going to sound a bit odd but I have a plastic cup with a lid and a straw. I found this best for having next to you and constantly keep sipping. This keeps you hydrated and keeps your mouth wet as mine has been really dry. Sweets are good though I'm mindful of too much sugar. Comfortable clothes to just sit/lay around in.
Food or drink with stronger flavours as my taste buds have gone a bit weird. I'm on cloudy lemonade no added sugar which is nice. Or ginger beer. Plenty of snack type foods which don't take long to prepare. I find i fancy something now but if I waited half an hour to prep I'd have gone off the idea. Think comfort food.

Cassie x
Member

Re: October 2017 Chemo Starters

SueW, yes boob doesn't look too bad, just where they sewed me up looks a bit weird. They moved some tissue about so was "severely bruised" apparently. My lump was 18mm but they took 26mm as there was a lot of dcis.
Hi karana, sorry you have to join us here but welcome. I bought a few things with ginger in as that's supposed to be good for nausea & sickness. Also bought some travel bands as some on the forum have suggested them. Not sure if the work but any things worth a try! Are you having the cold cap?

Member

Re: October 2017 Chemo Starters

Hi everyone....I'm starting on Wed (4th) 6 sessions of FEC...been ok about it all up until this weekend then been having a few panicky melt downs!! Off shopping today...any suggestions of things I may need 😊 Xx

Member

Re: October 2017 Chemo Starters

Yes I'm to have hormone therapy too. I looked in Holland & Barrett on Saturday couldn't see any. They had chewy ginger sweets so I got some of those, I'll let you know if they're any good.
Member

Re: October 2017 Chemo Starters

Shape not shop lol x
Member

Re: October 2017 Chemo Starters

Meesh my consultant did a lovely job of my boob and the shop not too different just the scar underneath and considering it was a 47mm tumour he has done fab x yours look okay? X
Member

Re: October 2017 Chemo Starters

Yes me too radiotherapy then hormones
I thought I would be scared of chemo but my consultant has been so reassuring that at the moment I now just see it as a means to prevent a return though as it approaches I may get scared x I am going to look on amazon for ginger drops or maybe Holland and Barrett can’t find them in regular shops x
Member

Re: October 2017 Chemo Starters

I had lumpectomy and they also took 3 nodes which luckily were clear. I'm all healed now but did have a haematoma 4 weeks after surgery and ended up in A&E, but was all ok in the end and healed really quickly after that. Was hoping to just have radiotherapy but oncotype test said otherwise! So will now have radiotherapy after chemo.
Member

Re: October 2017 Chemo Starters

Had 2 surgeries lumpectomy then axillary node removal as was in nodes which they didn’t it was originally last surgery was nearly 4 weeks ago so not fully healed but definetly getting there x
Are you all healed ? X what surgery did you have ? (If you don’t mind saying of course x)
Member

Re: October 2017 Chemo Starters

SueW yes I worked up to my surgery in August. It does provide some distraction if only for a brief time. The good thing with that was I was then signed off for 2 weeks so I could tell work. This time it's a bit unknown, but I can only do what I can do! Are you all recovered from surgery now?
Member

Re: October 2017 Chemo Starters

Meesh before surgery (I booked it for school holidays) I carried on working until the end of the academic year and being busy most defineltly helped so hope your job keeps you distracted x have a good day
Member

Re: October 2017 Chemo Starters

Chaffinch17, I know what you mean. Sleep has been a bit on and off for the last week. I now just feel like I doze from about 1:30am and there's no sleeping after 5am. Hopefully it will be better once we've started and not so anxious.

SueW good luck with appointment today, hope all goes well.

I'm off to work in a bit, no idea how I'll keep focussed today and that's without chemo brain!

Member

Re: October 2017 Chemo Starters

Ignore xb in. Middle of that sentence no idea where that popped up from lol x
Member

Re: October 2017 Chemo Starters

Thinking of you lovely ladies this morning and good luck for everyone starting chemo x
I have xb appointment with endocrinologist nurse at 1 for blood tests etc re my enlarged adrenal glands
Before mri on Thursday and kidney consultant next week
Xx
Member

Re: October 2017 Chemo Starters

Best of luck Meesh. I start the following day, can't sleep!
Community Champion

Re: October 2017 Chemo Starters

The injections seem to depend on your type of chemo and which hospital you go to. I had them days 3 through to 7  ( that also seems to vary! ) and are given to boost your white blood cells, which helps fight infection. They are worth having, although they can initially create joint pain. Sometimes you have to do them yourself, but I was too much of a chicken, so a friend did them for me!

Sue xx

Member

Re: October 2017 Chemo Starters

Thanks Ali, I normally have porridge or eggs and was worried they might be too heavy so will try toast.

Member

Re: October 2017 Chemo Starters

Meesh i eas advised to have carbohydrates so i had toast xx
Member

Re: October 2017 Chemo Starters

Thanks Patchwork Girl and Ali49 for the feedback on your first treatments. It's encouraging that you're both doing well and feeling better, even despite your sickness Patchwork Girl. Does everyone have injections? They never mentioned any injections but I've found through this process that they like to drip feed you with bad news rather than give it to you in one hit, so guess I'll find out Tuesday. I'm booked in for 9am and have been told to have a bit of breakfast beforehand, any recommendations of what to eat prior to treatment?

Member

Re: October 2017 Chemo Starters

Good luck ladies having chemo this week. I am on day 4 of first chemo. Not actually been as bad as expected. Left anti Sickness tablet a bit late on first day but learnt to take it at first hint of nausea and it works fine. I was given the one that sounds that don perignon lol. Appetite hasn't been great so just eating what I fancy. Had some hot pot and veg today which was nice. Not a full portion as I don't want to overload my system but it was good to eat a proper meal. Mouth is dry and things taste strange or of nothing. It's annoying but no real issue. Tiredness is my biggest issue it just wiped me out. I start the injections tomorrow which hopefully I'll be able to do ok then should start to feel better.

Cassie x
Member

Re: October 2017 Chemo Starters

Hi Meesh , i had first Fec last wednesday and apart from a bit of nausea, feeling tired and a sore mouth i am doing ok. Have had 1 day so far where i didnt get dressed and just chilled. I didnt have any meds before but was given 3 days anti sickness and steroids to take at home plus 7 gscf injections to give myself at home too (they jave been easy to do). They also gave me an extra 7 days of antisickness in case i need them. Start taking your sachets the day before treatment i would say as they didnt give me any but i have needed them. Drink lots of water and get your ginger biscuits in for nausea. I find if i eat, even if its just a little, i feel better. Re work - i am a teacher so wont be going to work but some people are working through chemo. I think it depends on your job and how you are feeling. I am not cold capping. Good luck xx
Member

Re: October 2017 Chemo Starters

Welcome Meesh73, good luck with your chemo.  I had my first FEC last Thursday went home at 12.30pm and felt fine until 4.30 pm then had severe sickness, couldn't keep the anti sickness tablets down.  I was one sickness bout off heading back to hospital per my symptom sheet given to me by the hospital.  Luckily I had been sent home with a box of 10 anti sickness injections which I couldn't use myself but they left me an out of hours District nurse number to ring.  They came out to me at 10 pm at night and injected me, you can only have 3 in any 24 hours and she told me they are only for severe sickness as they will become useless as your body will get used to them and they won't be so effective.  Think I was just unlucky though with the sickness but when I have my review will see if I can have some intervention in case  it gets like that again treatment 2.  We all seem to come home with different meds.  My hospital won't give us cold caps, my long hair was shedding later that same night after first chemo.  Hope you manage to keep your hair.    

Member

Re: October 2017 Chemo Starters

Thanks everyone, for the advice. I've found it really useful. SueC thanks will give them a call tomorrow although as I'm due to start Tuesday might be a bit late. SueW I really admire you for the shave and well done for the money raised. 

Member

Re: October 2017 Chemo Starters

Good luck with forthcoming chemo treatments Sam34 and Chaffinch17.  Ali49 might be on similar chemo as you Sam34 from my memory if that helps.  Yes best to expect the unexpected Chaffinch17, my sickness was much more severe so now will be asking for help for next time.  All the best to you both 

Member

Re: October 2017 Chemo Starters

Thanks SueW, will definitely get one as go in both stores.  

Member

Re: October 2017 Chemo Starters

Meesh no cold cap for me my sister is doing brave the shave and we are shaving together on 9th October between us we have raised £1200 for Macmillan x
Community Champion

Re: October 2017 Chemo Starters

Sounds like you are organized meesh! Don't know about the ginger. It's not something I used. But I'm sure someone on here will know.

I was given steroids to take... Day before, on the day and day after. Maybe worth asking about those if you haven't been given any. My nurse forgot and had to be reminded! These steroids did upset my stomach though and had to take imodium for a few days.

Sue xx

Member

Re: October 2017 Chemo Starters

Hi Sam34 that's what I thought re: the cold cap. Didn't think I was going to bother with it but had all my long curls cut short last week and love it so much think I'll be more upset to lose it now! Not had short hair since I was 12. Also went for wig fitting on Friday in case it doesn't work or I can't bear it.

Member

Re: October 2017 Chemo Starters

Thanks SueC, I went shopping today, bought ginger everything for nausea and sickness. Couldn't find any ginger drops though what make are they?  OH does all the washing so no worries about that (I'm such a lucky girl)! Just making some soup and I have a journal to keep notes. I've not been given any meds yet (apart from laxative sachets for afterwards as they mentioned they would give me ordansetron which can make you constipated?) is it normal not to have any meds beforehand?

Member

Re: October 2017 Chemo Starters

Hi meesh I start hormone therapy Wednesday and chemo Thursday,yes I'm having the cold cap ( worth a try ) xx
Community Champion

Re: October 2017 Chemo Starters

Hi Meesh and welcome.

You can prepare in some ways. The first week is the most challenging time, so stock up on food, get the washing done, and have all your meds at hand that you may need. Then you can just sit back and rest. Let others look after you if possible.

The chemo goes in cycles, so if you keep a diary of how you feel for the first round, then it tends to follow a pattern for the rest. You may be able to work some of the time during the good weeks and you're find that out as you go along.

Best of luck for Tuesday.

Sue xx

Member

Re: October 2017 Chemo Starters

Sam34, do you also start chemo Tuesday like me?

 

Member

Re: October 2017 Chemo Starters

Hi sueW and sam34, not sure what I'll do about work yet. I'm going to see how I go, the BCN said I'll probably want to dip in and out of work and my employers are fully supportive. I'm lucky (or not depending on how you look at it) I can work from home so may just do that. Are either of you trying the cold cap?

Member

Re: October 2017 Chemo Starters

Hi meesh I've also been advised to stop work from Tuesday during chemo as I work with food and people,and to be honest I'd rather rest and get better I'm sure I'll be off work now till march next year! As I have to operation after chemo xx