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October 2017 Chemo Starters

Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Morning ladies 😘😘😘bit of it ain’t what you do by fun boy 3 on the jukebox 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻💃🏻Early 😎😎again for me. Hope you all have a lovely day 😘😘💕💕shi xx
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

🛎🛎🎉🎉🛎🛎💃🏻💃🏻🎉🎉🕺🕺🛎🛎🛎💃🏻🕺💃🏻❤️💃🏻😁😁😁😁👏👏👏👏👏💋💋💋well done meesh 💕💕shi xx
Meesh73
Member

Re: October 2017 Chemo Starters

Evening ladies! 🎉🎊🎉🎊🎉🎊🛎🛎🛎🛎🛎🛎💃🕺🏻💃🕺🏻💃I'm done yippee, wahoo, whoop whoop! Final rads session was delayed so didn't get home until 9pm. The last tune they played during rads was I feel good by James Brown and it finished just as they lowered the bed 😂🤣😂

 

Kitchen refit is ongoing as they've found some of the work tops were warped and so are having to order more, which due to the snow will take a while as they have a backlog due to stopping production for a week ☹️I'm really pleased with how it's looking though so can't wait for it to be finished.

 

Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Hi Buddyfan, I’ve only been using the lush new bar on its own. Hope everyone ok, meesh 🎉🎉🎉🎉🛎🛎🛎🛎🛎for your last 😎😎😎today 😘😘😘💕💕shi xx
SueW
Member

Re: October 2017 Chemo Starters

I don’t buddyfan but I do still use coconut wax on my head but I haven’t got much hair yet xx
buddyfan
Member

Re: October 2017 Chemo Starters

Lush ladies, do you use conditioner with the Lush shampoo soap?
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Meesh and Karana how about a bit of Madonna - jump for a tune for meesh finishing 😎😎tomorrow and for the 🚂we need to get some 💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻In 🤪🤪🤪💕💕shi xx
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Thanks mai 😘😘 thank you again for taking me under your wing on this journey and a thank you to you and all the May ladies and tatyana and mishy for all the guidance for us Oct 🚂 we’d have been 😳😳😳without you all and our wonderful ladybowler who’s love and guidance has been amazing also. Love you 💕💕shi xx
SueW
Member

Re: October 2017 Chemo Starters

Mai that is a fab blog xxx
Mai7
Member

Re: October 2017 Chemo Starters

Ladies, Shi asked me to share my story with you. Here it is: http://lifeafterlola.blogspot.co.uk

Whatever stage in your treatment you are at, I hope you find something helpful from my blog.

Xxxxx
Claire-bell
Member

Re: October 2017 Chemo Starters

Hope you all have a peaceful and lovely Mother's Day with the people you love and those who have been able to Mother you over the years andcparticularly recent months. Sometimes it's not possible to have a mother who can do all that but we are gifted with female friends who possess that mothering instinct! Buddy - sending you lots of love today. I know it's really hard to see the positives when faced with your diagnosis. My auntie lived with a terminal diagnosis for three years- she lived to experience the changes in modern medicine which meant a cure was found via previously unavailable Radiotherapy. She has been cancer free for three years. Finding things to be happy for and making the most of each day is good and I commend you for your inspiring approach. We are here for those days when you can't find it in you to smile and carry on. Am sending you warm hugs and a few fist pumps for good measure! Lots of love xx
Jencat
Member

Re: October 2017 Chemo Starters

Hope everyone has a nice day Smiley Happy I still can't taste anything much, (2&bit days after last chemo-when do taste buds come back?!) so eating out is a bit of a waste! My girls and I are going to the cinema this pm instead and then tea with my dad Smiley Happy xx

SueW
Member

Re: October 2017 Chemo Starters

Hi all and happy mother’s day x
karana23
Member

Re: October 2017 Chemo Starters

Morning lovely ladies and to those of you that are Mothers a big Happy Mothers Day to you 💖💖

 

Got my boys coming over to the pub today and my Mum, Dad and brother so that will be nice 😊 

 

Hope you all have a lovely day 😘😘😘

Meesh73
Member

Re: October 2017 Chemo Starters

Buddyfan, it's a little insensitive of the course to have that statement in there, although it looks like in scrubbing it out you found a solution to that particular problem 😂

Mishy18
Member

Re: October 2017 Chemo Starters

Really pleased you could share with your MIL as it will be good for you to talk about things when you need to especially if you are feeling a bit fragile Don't ever apologise for feeling like that sometimes you are not a robot these courses can trigger some feelings like that too but keep going Buddy 💖
buddyfan
Member

Re: October 2017 Chemo Starters

Ali, I think you're right. I did feel better after. I am going to scrub that line out in my HOPE folder though, as it is definitely a trigger.
Ali49
Member

Re: October 2017 Chemo Starters

Buddy i think sometimes we need to have days where we can let things out and 'wallow' in what is happening to us. It does us good! You obviously needed to tell someone and it sounds like your mum in law was the perfect person!

When it does come out it is so raw! We never know what will trigger it either!

I find it very hard to share how i am feeling with others and its usually when i am at a low ebb, tbat i do!! Afterwards i usually feel more able to get myself sorted, pick myself up, dust myself off and carry on as normal!

Sending you a hug Buddy and hoping you feel better xxx
buddyfan
Member

Re: October 2017 Chemo Starters

Thank you ladies, it is appreciated.💖💖
DizzyBrummie
Member

Re: October 2017 Chemo Starters

I didn’t get given anything from my unit either, again, only if they think there’s an issue.
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Cassie my trust let’s you get creams yourself and only prescribe something if they think your skin needs it 💕💕shi xx
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Buddyfan 👭 and big hugs and ❤️❤️Wrapped round you. So pleased you have spoken to your mil and been able to have some love, understanding and most importantly someone who listens to you. Friends mean well but they don’t always listen and also they engage gob before brain is actually functioning too, unlike the wonderful ladies on here who listen and support with unwavering compassion and love 👭you know you always have us 💕💕shi xx
Runnerbean
Member

Re: October 2017 Chemo Starters

Cassie the hospital gave me a big tub of something called aqua max which is like spreading lard on my body but my skin still looks Ok. Another case of hospitals all doing things differently I guess xx
Meesh73
Member

Re: October 2017 Chemo Starters

Cassie, the hospital didn't supply me with cream but advised e45 and also had aveeno and aloe Vera (99.9%) on the list too. I think I had a reaction to aveeno during chemo when I got that chest rash so I've avoided that. I was a bit worried the e45 might do the same so that's why I also bought the aloe Vera. I'm glad I did as that really works for any itchy spots.

Meesh73
Member

Re: October 2017 Chemo Starters

Buddyfan, as the others have said there is no need to apologise, this is a space where you can vent your worries, anger, frustrations and anything else you choose. We are here for you and it sounds like your mil is too, she sounds like she will be there to support you as and when you need it too. I know what it's like I moved here to be with OH nearly 10 years ago and whilst I have a few friends it's been hard especially since diagnosis and being away from my family. I think you are doing amazingly well I have no idea how I would cope with what you're dealing with. My friend bought me a thankful journal for Xmas and I have been trying to use it but find it difficult 😕 At least on 22 March we can both be thankful for our meet up 😊Sending you ❤️ and 🤗 

Runnerbean
Member

Re: October 2017 Chemo Starters

Buddy you don’t need to apologise for venting that’s what we are here for to support each other in whatever way we can. Your mil sounds like a great woman and I’m sure she will be a massive support to you now you have spoken to her. I’ve moved around a lot for work so know how hard it is living away from family and friends even before diagnosis. We are here whenever you feel the need to vent . Sending you a big hug 🤗💖xx
karana23
Member

Re: October 2017 Chemo Starters

Buddy please don’t apologise for having a vent....that is why we are all on this forum so we can air our concerns and try and help each other thru the low points! I’m glad you talked to your mil...she does sound a lovely lady and I’m sure will be great support for you 😘😘

 

im feeling very tired today....had a late night last night....was chatting to OH TIL the early hours and getting off my chest (excuse the pun!) how he had made me feel earlier in the week!  Hopefully I can put that behind me now!!

 

Really fancy going out for an Indian tonight....trying to persuade OH, trouble is we ha e staff in this eve that he’s not too keen leaving!!

 

Hope ur all enjoying your Saturday 

 

Jencat
Member

Re: October 2017 Chemo Starters

Dear Buddy, sending you a big virtual hug and please don't apologise for having a bit of a vent, that's what this forum is for x 

It must be very difficult for you not having close friends nearby to talk to. It's a shame your friend started the conversation the way she did, otherwise you might have been able to open up to her. I'm glad you were able to confide in your MIL, it sounds like she is a good person to chat to and to be able to have a cry with if you need to.

Yes, we all need to enjoy life and appreciate each day, but it is easier said than done at times. I'm so sorry you've found yourself with secondaries Buddy, I think you're handling it much better than I would. It's 'good' (not the right word, but hopefully you know what I mean) that the bone mets are slow growing and more treatments are being discovered all the time, which hopefully will help you xx 

 

SueW
Member

Re: October 2017 Chemo Starters

Buddyfan
Your mother in law sounds like a lovely lady who will love and support you and offer you strength when you need it. They say a problem shared is a problem halved and I sincerely hope having this extra tier of support will help you though I acknowledge it’s your diagnosis and there will be times it is difficult to get your head around and stay positive but thinking of you
Sending you love 💕 and hugs 🤗 xx
buddyfan
Member

Re: October 2017 Chemo Starters

Sorry, a bit of a vent. I broke down in this week’s HOPE course when I read the line ‘there is a solution to any problem’. I plainly don’t think so, in my case. I find talking about my cancer very difficult without crying. It’s only since the mets raised their head. I think it’s partly because I’m worried about their reaction. I don’t have any close friends nearby as we moved from Hertfordshire nearly five years ago. Thursday evening I went to see one of my friends in Herts. I really feel I want to tell her but her husband died about 9 years ago of a very rapid cancer. One of the first things she said was that her perception of cancer is just a downhill route. However, she quickly followed that by saying it was irrational as her mum had breast cancer and lived 40 years, to v. old age. And I’m thinking, but she didn’t have secondaries and there’s no way I can tell her. Anyway, I don’t know if those two situations influenced me but I told my mil about my secondaries yesterday (my own mother died years ago). I hadn’t told her before as she has enough worries with her daughter having chemo for a relapse of myeloma. However, she has already been through all the emotions with her husband who is now, a very healthy 82 year old, having had prostate cancer with lung and kidney mets, both successfully operated on. They live, independently and separately, at the other end of our house. I’ve been finding it increasingly difficult not to dissolve when she pops along to see me as she plainly expects me to start getting better. Anyway, yesterday I told her. I’m very glad I did, she’s a very matter of fact lady and it helped talking, or rather, blubbing to her. At least I know she’s there if I want to dissolve. I know I need to enjoy life, not mope about what might be. Easy to say, hard to do.

On a more positive note, it prompted me to go back to the inspiring stories I’ve copy/pasted from forums. I know the bone mets are slow growing and I can last years with them. So I think I ended the day in a better way, psychologically. One of the HOPE techniques is to think of three things you at grateful for. It might be a simple as being grateful that you took an umbrella with you when it rained. I’m going to dig out a notebook and try to do that.

Sorry to be a bit down. Rugby later, I may go and do a little gardening now.
Have a lovely warm weekend!


DizzyBrummie
Member

Re: October 2017 Chemo Starters

I’m using Aveeno as it was on offer 🙂 All is well so far and I’m 9 in. Glad to have the rest over the weekend though.
SueW
Member

Re: October 2017 Chemo Starters

I was told e45 which was free on prescription from docs x
I also but moo goo after recommendation from the others x
WhyteFawn
Member

Re: October 2017 Chemo Starters

For rads do the hospital give you any cream or do you have to buy your own? I have my planning appointment on Tuesday. Hoping rads will start asap after.
No dancing this week. I am going ghost hunting tonight and then horse riding tomorrow. What's everyone up to? X
SueW
Member

Re: October 2017 Chemo Starters

Morning ladies so sorry to have you worried

I just forgot to come on so will catch up with all the threads asap (just lately forget loads think it’s lingering chemo brain)

I have found rads quite tiring and 3 hour naps takes up a lot of time ha ha x

Love to you all xxx
Meesh73
Member

Re: October 2017 Chemo Starters

Morning ladies!

 

Just to let you know Sue is ok, she's part of our Fitbit group so I've heard from her. Not sure why she's not been on the forum though. 

 

Jencat, I've just got one more booster to go. My nipple and part of my boob was very sensitive after about 4-5 sessions (almost felt like chaffing) and like Shi I used a silk scarf I had and tucked it in my vest. I've not worn a bra since starting rads I try to wear loose tops or a normal cotton vest. I've also been slapping the cream on using e45 morning and night before bed, aloe Vera lunchtime and moo goo about an hour after rads and I also try and air it as much as possible. Showering I've not used any products on my boob or armpit, they suggested letting tepid water run over it and that's what I've done. I can see the area they've treated as it's now lightly tanned and I have a tiny itchy bit and rash just under my collarbone but other than that skin looks good at the moment. I find the aloe Vera helps best with the itching and rash but they've also given me some hydrocortisone cream. 

 

I'm off to town today to get some cards and 🎁 as I'm down to see my family Thursday and Friday next week I can't wait 😊 

 

Loving the theme tune today Shi 💃🕺🏻💃🕺🏻💃🕺🏻🕺🏻💃

Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Hi jencat, I know it’s Un sue like so I hope she and family ok. I’ve done 3 weeks now jencat just 4 booster 😎😎to go, been drinking 2-3l a day mainly water and slapping the cream on like a 🤪🤪🤪so glad I copied Mrs meow with silk square in vest, it’s helped skin for sure when I’ve had to wear vest. I’ve been wearing a flimsy kaftan top thing at home when airing 🥓🥓bap. Have you got your 😎😎start date yet? 💕💕shi xx
Jencat
Member

Re: October 2017 Chemo Starters

Hope Sue is ok Shi, it's not like her not to be on the forum. How are you doing after your 2nd (?) week of rads? xx

Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

Morning ladies 😘😘hope you all have lovely things planned for the weekend❤️❤️Bit of surfin USA by the beach boys on the jukebox 💃🏻💃🏻🕺🕺💃🏻💃🏻🏄‍♀️🏄‍♀️🏄‍♀️🏄‍♀️💕💕shi xx
Meesh73
Member

Re: October 2017 Chemo Starters

Definitely a circle to dance in but I never used a handbag until I got old! 💃🕺🏻💃🕺🏻💃🕺🏻💃No music for me today in rads ☹️

Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

😂🤣😂🤣😂 this generation don’t know what they are missing now most of the nightclubs are shut 😂🤣😂🤣😂and read yesterday that raves are re-surfacing too 🤪🤪🤪 wasn’t social media back then to get the word out 😂🤣😂🤣😂🤣
DizzyBrummie
Member

Re: October 2017 Chemo Starters

There was always a circle to dance in 🤣
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

🤪🤪🤪dizzy 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻it’s karana and Cassie who’ve been the dancing queens 💃🏻💃🏻💃🏻💃🏻 this last week or so, the rest of us need some practice to catch up 😁😁😁😁 Handbags in the middle of the floor and form a circle round them and 💃🏻💃🏻🕺🕺💃🏻💃🏻🤣😂🤣😂🤣anyone else remember doing that or was it just a weird local custom from this bit of the uk? 😳😳😳💕💕shi xx
DizzyBrummie
Member

Re: October 2017 Chemo Starters

Had rads today and just before it finished Whitney Houston - I Wanna Dance with Somebody. Made me think of you Shi. 80s disco classic 🕺🏻💃🏼🕺🏻💃🏼🕺🏻💃🏼
Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

😘😘keep going jencat. Has anyone heard from sue? Sue hope you are ok and 😎😎going well. Meesh, physio won’t see me till I’ve finished those blood thinning jabs for that blood clot in superficial vein, so I’ve just been doing the post op exercises and 🤞🤞that it eases off a bit, hope yours starts to ease off soon too, it’s a 😤😤😤not being able to reach high up clothes in the shops as easily 😤😤😤💃🏻💃🏻🕺🕺💃🏻💃🏻🕺🕺got to be tight fit - lion sleeps tonight on jukebox for our tight chemo arms 😂🤣😂🤣😂💕💕shi xx
buddyfan
Member

Re: October 2017 Chemo Starters

Meesh, Karana, I've replied to pm by putting both your names in 'to' box. So not sure that works.
Meesh73
Member

Re: October 2017 Chemo Starters

Runnerbean that's another off for you! Hoorah no more jabs.

 

Shi, how're you getting on with yours, how's your arm now? Mine is slowly recovering I think although still feels a bit tight when I twist my arm🙁

 

Buddyfan, Karen, I've managed to get 22March off, wahoo so we're good to go!

 

How's everyone else doing?

 

Jencat
Member

Re: October 2017 Chemo Starters

Thank you Meesh x Got genetics meeting on 14th and first meeting about rads on 16th, so getting there! x

Shi
Community Champion
Community Champion

Re: October 2017 Chemo Starters

🎉 🎉 the end of your jabs runnerbean 😘😘Jellytot ❤️ early one for me again 😎😎booster no 1 today 🤪🤪🤪 meesh glad your kitchen is coming on now 👍👍Karana hope you’ve got your tummy sorted with dr🤞🤞hope everyone has a great day 😘😘💕💕shi xx
Runnerbean
Member

Re: October 2017 Chemo Starters

Hi Karebear, I had my PICC line removed on the day of my last chemo but I was on my hands and knees begging them to take it out. The sooner it was out the sooner I could stop the blood thinner injections. I had the last one of them last night so it was a big celebration! Hopefully the bruises on my stomach can heal now 🙂🙂xx
Meesh73
Member

Re: October 2017 Chemo Starters

Oh also meant to say happy international women's day to all of you, you are the 💪🏻💪🏻💪🏻💪🏻Ladies I know! 😊