Sorry to hear you’re lighting up like a Christmas tree but Good news that it’s not spread further than the bone mets. Hopefully the rads and chemo pills will keep it under control and improve things for you. What SEs do you get with the chemo 💊 surely they can’t be as bad as what we went through with chemo? Hopefully no 🏄🏻♀️ 🏄🏻♀️ and 🚂 🚂
Hi buddyfan ❤️ Glad to hear no further spread even if you are our Christmas tree on the bone front. Hope the rads on spine zap the tree lights to pieces, when are you starting rads? And 🤞all ok on the chemo pill and you get on with it ok ❤️ Hope your mil’s dialysis goes well for her too. ❤️💕💕✨✨Shi xx
Hi buddyfan hope you got on ok today ❤️ I think jencats having a weekend away with her family ❤️ I’m sure she’ll pop on to see how you’ve got on today ❤️ 💕💕✨✨Shi xx
We had a trip out to Harry Potter world was supposed to be returning at 4 but they didn’t get back until 5 because of traffic
the parents were moaning loads the trip was delayed coming back but the trip was totally free as it was a reward trip no pleading some people x
hope you are managing to stay positive xx
The farm was good Sue and a nice distraction Only problem was there was an accident on the motorway, so instead of a 20 minute bus journey back to school it took an hour and a half! Great fun with a lot of noisy children! I thought they'd have been more tired after a busy day! x
Hope the farm was a distraction for you jencat x
buddyfan sounds like they don’t know their ars* from their elbow I honestly thought now everything was computerised the info would be available
bug hugs to you and you so rock them gold pants x
Morning lovemama, thank you for taking the time to send me such a reassuring message. Really good to hear that things that lit up on your scan didn't end up being sinister. It wasn't my consultant that asked for the 3D scan after the bone scan, it was the person checking the bone scan pictures who said she wanted a closer look at my spine/chest area because there was a 'funny bone' that needed a closer look at.
I have got a meeting on the 11th to get my results, an appointment I'm dreading in case I get news I don't want to hear!
You're right about the sleeping and eating, but I'm finding both difficult at the moment. I'm helping on a school trip to a farm today, so perhaps sleeping will be easier today! xx
Sorry you had such a palaver at the hospital yesterday buddyfan! Hope you're wrong about the spread of bone mets and the antibiotics make a difference to your cough. Thank you for your support xx
Blooming heck buddyfan, you’ve been pulling the whole blooming train with those worlds strongest men being left in the dust 😳what a day bet you were 🤬🤬🤬 think you should complain to pals and take it higher, you should not have to run around like that, the nhs are there to do that. Hope you get on better tomorrow. I can see you giving short shrift if you get mucked about tomorrow. Sending big ❤️❤️💕💕✨✨shi xx
Hello Jencat, in Oct 2018, I was dx bone met to my sternum. On my bone scan, it showed a lit up on my sternum. On my CT scan, the radiologist made a comment something like that "1cm disruptive tissue at both vertexes of a lesion on my sternum and this co??? with metastasis".
In Jun 19, on my most current bone scan , it showed a lit up in my rib bone and the head of my spine in my neck. On the CT scan 1 week following the bone scan showed 'nothing'. I told my onco there was an injury to my rib 2 days before bone scan. My onco then said the area might be healing and we would see in further scans. For the lit up in my neck was mostly arthritis. In both the Sep and Dec CT scans did not show anything in the two areas. In my file I saw my onco had put 'injury' and 'Fibroxxx' for that bone scan.
Though your CT scan result most probably is ready (usually 5 days in CAN), I guess your consultant (no such position in Canada) may not have a chance to look at your CT scan and his request for another scan is simply due to a doubt basing on your bone scan.
Though I understand your anxiety, I think you may be a bit early to guess if it is bone met, 8-) even before your team's review 8-) I am thinking may be you can try to eat healthy, sleep well to prepare for the treatment. Love
Thank you Whytefawn and Shi xx Love to all the Oct'17 girls xx
Thank you daisydi for taking the time to message me and for your reassurance x You're right, there could be other explanations why the 3D scan was needed, but I've managed to convince myself that the news next Tuesday isn't going to be good x
Jencat a nuclear medicine bone scan is very non specific. It identifies bone activity but cant distinguish between things so sometimes they just need more information to make a proper diagnosis. Try not to worry yourself too much, easier said than done I know x
Hi Jencat when do you get results from all your scans you’ve had last week and this week? It’s good you bumped into your bc nurse, they have seen it all before so I hope you took a bit of comfort from that. Please ring the number on this site tomorrow there will be someone who will be able to speak to you with more informative reassurance ❤️We can only hold onto you gold hot pants and be an ear for you 👭 everyone sends their ❤️❤️To you and the girls 💕💕✨✨shi xx
Thank you for all your good wishes x The scan was horrible! I've got a feeling the cancer might have spread as they also did a 3D scan on my chest/spine area as the consultant wanted to have a closer look at a 'funny bone'. The girl doing the scanning did say that this is often done and it doesn't necessarily mean it's cancer, it could be arthritis etc, but I'm not so sure! She also said that the consultant checking the scan is very through.
Fortunately because it's World Cancer Day, Macmillan had things going on and I bumped into my BC nurse and explained what had happened and had a long chat with her and she was very reassuring. She did say perhaps the 3D was taken because I moved, but I said I didn't think I had! She didn't give so much of an explanation after I'd said that. She said I will definitely be having a mastectomy, but it depends on the results whether it will be before or after chemo. If it has spread, she said I'd be on chemo tablets afterwards and said that she's known women to be on them for years. I'm not sure if that's right, but YD said the nurse should know more than me! As you can imagine, I'm anxious and feeling that the cancer must have spread xx
Thank you all for your good wishes xx Just off to the hospital 😞 Thank you for holding onto my gold hot pants and hope lady bowlers big knickers are on there way! xx
Jencat, I’ll be thinking of you tomorrow, I hope it goes ok and that you get the results quickly 😘😘
Buddyfan, hope you’re doing ok sending hugs 😘😘
Jencat 👭for tomorrow’s bone scan ❤️❤️ Glad you’ve sorted out the ct scan error, everything sends you into orbit, it’s natural ❤️ Ladybowlers big pants are flapping for you and the rest of us have firm grip on your gold hot pants ❤️💕💕✨✨shi xx
Thank you buddyfan and lovemama for your helpful emails. I phoned the CT scan dept this morning and the CT scan this Friday was a mistake! Like my cousin, who was a nurse had said, because last weeks scan had been arranged verbally over the phone I hadn't been taken out of the system! Logically I thought that was probably the case, but there was still a part of me that wasn't sure!
I've got my bone scan tomorrow, which I'm feeling very anxious about! To the point today where I didn't 'feel right'-my legs felt like jelly and my head had a tightness around the back. I was beginning to think that perhaps something was seriously wrong as I've felt a bit like it all weekend, but I think it started actually when I received the letter on Saturday about the scan, so I think it's probably stress and I'm on heightened alert at the moment about everything and have been for quite a while now+add to the mix lack of sleep and not eating properly! I don't feel so bad this evening, I'm trying to distract myself a bit! I need lady bowlers gold pants and big knickers for tomorrow though! xx
A typo in my previous post, IORT is for lumpectomy incision.
Hello Jencat, I am just wondering if you can clarify with your onco (not sure, or your consultant) re the arrangement of CT scan. (I live in Canada) In Canada, only the doctor can order the CT scan. In my case, my first CT scan was ordered by my GP and it covered only my chest area. After I was referred to cancer clinic, my onco immediately ordered another full body (including head) with dye contrast CT scan for me. So, my personal view this is only a mistake if the same doctor had ordered it. My understanding the dr usually order other scans like PET scan, MRI if any doubt.
Besides, In this couple weeks waiting time, you may like to take some study if there is any trial may be suitable for you. (CT7001? immunutherapy ? plasmaMATCH ? etc. My understanding most of the trial is only available for 1st time treatment after diagnosis. If chemo is required, you may not be able to get the same regime as last time, within 2 years. Furthermore, you may also want to ask your surgeon if you can be offered IORT (?? radiate to the tumor bed during surgery??) during mastectomy surgery.
Finally, wish you all the best in your scans and sorry for the popping in. love, MelMel
I've got the bumph for both buddyfan. The CT scan last Wednesday was arranged over the phone, so I was told verbally and got given bone scan info when I picked up the letter myself after the CT scan. Yesterday's CT scan letter for next Friday contained all the info with it. I'm hoping there's been a mistake and I've not been taken out of the system! Two nurses have told me that they're sure that's the case. Why would I have the same scan twice, surely if there was a problem they'd want a different scan?
I hope you don't mind me asking, but did you have bone pain before you were diagnosed or did a scan pick it up? The trouble is I'm 60 now, so bound to have some aches and pains, especially if I've been bending over the computer for too long! x