I'm sharing because others shared with us, back in June (and July and August... and November). Happy to add another link to the chain. Or I should say, add a hand to Shi's bungee cord!
In fact, I ought to have also noted that I also learned to better accept care and support from others -- from people on the forum as well as the folks at hospital. A super important life lesson that I learned a bit late. Still able to learn new tricks!
p.s. @Aneeebel, another voice here nudging you to call with a temp of 38C. The risks associated with an infection during chemo are just too serious, and a fever is one of the few clues that something serious might be going on. Maybe not, but better to let someone check. Please call. Stay safe.
Hi, October starters! I'm from June 2018, and wanted to empathize with and encourage you through those experiencing the terrible T. I too found it hit me harder, and a few days later, than FEC -- fatigue greater, but worse were the aches and pains, which sometimes felt debilitating -- for me, mostly my shoulders/back, thighs, and esophagus. My last two cycles (I had four cycles of T, because of getting HER2 antibodies, too), I was practically laid up in bed for 1.5 to 2 days in week 1. However, I rebounded by about the end of that first week, and was back to doing country walks of 5 to 10 miles by week 3, before starting the whirligig again.
The "listen to your body" mantra is important, though. I suspect that some of you are like me and try to overdo it, in an attempt to maintain some "normalcy". (Just a guess based on your posts, strong ladies!) Keep an eye on things -- the combo of weakened immune system and stress delivered a case of (suspected) shingles and a couple weeks on antivirals, on top of everything else. After my final cycle, I also got blisters on my feet from just my usual sort of mile-long daily walk -- a known docetaxel side effect, which felt odd to first encounter so late in treatment.
By 3.5 weeks from last infusion, I was still a bit achey and less than 100% stamina, but I'd recovered enough for surgery and my hair has grown to a thick fuzz. All of which has helped me say farewell to chemo. And according to my post-chemo MRI, the T and HER2 antibodies were super-effective for me. Just as important, over those 5 months or so, I learned how strong and resilient I am, how I am able to accept and give myself room on my low and bum days as well as on my good ones, and to take care of myself, to make sure I stay safe.
So in the end, I don't remember the pain and aches and limitations and other awful side effects, except as something I recorded in my journal on a particular day -- I remember the good stuff, and I'm thankful for the results. And I found sharing here -- smiling and laughing and crying and venting through it all with my chemo-mates and those who had travelled this road before us -- helped make that possible. 💖
Back from the oncologist and passed fit for my 4 th Chemo on Tuesday. I am to have my last Docetaxel, Herceptin plus Perjeta. After Christmas I change to 3 x EC. I can’t believe that I will be over half way!
I understand that nausea is much worse with EC, whereas I haven’t felt sick at all with the docetaxel. My oncologist says that as docetaxel is made from yew trees some people are less tolerant to it. I feel I have been lucky so far. However, each cycle has been harder than the previous one in terms of tiredness and other, mainly annoying SEs.
Good of luck everyone having chemo, and see you all on the other side.
Thankyou ElliesMum... Everything is crossed for both of us!
And anyone else who's undergoing chemo of course... 😘💗 x
Yippee.... Half way through Mrs fingers.... Hope you feel well x 💗💪🏼
Take care everyone x 😘🎀💗💐
Morning everyone, hope we are all ok this morning.
Elliesmum, I absolutely get about having a plan. I have my oncologist meeting next week for bloods etc prior to cycle 4 YES cycle 4, I can’t believe how fast the time is going. I hope that all is OK even if it means I will feel rubbish over Xmas.
Fiona, treat yourself to a sofa day to relax after your chemo, you know you deserve it!
I am not sure if my nails are starting to change colour, but they are very sore. I am finding picking things up and getting pills out of their packets really challenging. It feels like I have squished my nails and they are bruised, if that makes sense. I will ask my oncologist about it when I see him.
Has anyone got a mottled red rash? My hands, face and chest is covered in a rash that has little red spots that bleed? I think it’s to do with the docetaxel but it is very itchy and on top of everything else is getting me down!
I also had a call from the hospital to say that my uterus ultrasound has throw up a problem that need further investigation so I now have to have a Hysteroscopy! They decided to to an ultrasound as part of the whole women’s heath thing! Blimey, all I need is something to go wrong with my bladder and I will complete the set of nether region investigations, perhaps I should sell tickets for anyone else who wants to have a look!
Finally, some good news! Tina Turner was fantastic, the actress playing the part was really good, it’s a huge part, so I was most impressed with her stamina to do the show twice a day. We had a lovely time in London, we stayed over so I could get some rest, and on Friday we had lunch in a little fish restaurant in Brough Market which was lovely. DH has no problem finishing my food when I’ve had enough! But I did manage to eat all of my dressed crab, delicious😋