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October 2018 Chemo starters

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi Fi get that holiday booked โค๏ธโค๏ธโค๏ธWe even managed a few days in the lakes between chemo finishing and rads starting sending you โœจโœจโœจโœจโœจโœจfor results next week ๐Ÿ˜˜๐Ÿ˜˜ elliesmum hope your little one is on the mend and you are keeping safe. โค๏ธโค๏ธEveryone ๐Ÿ’•๐Ÿ’•โœจโœจโœจShi xx
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Community Champion

Re: October 2018 Chemo starters

Morning all, how are we today?

Aneeebel, I hope you're starting to feel a bit better and your temperature is staying in the right area. How was your granddaughter' s sleepover?

Sar_ah, I hope you're ok after this week's chemo ๐Ÿคž๐Ÿป

ElliesMum, well done on a day at work. Since changing to T I seem to have lost the confidence to go to work. I'm supposed to go in next Wed but we'll see how I feel, I may chicken out.

Badboob, sorry to hear you're feeling the effects of EC. I wonder if it's the change to EC (or T or anything else) that makes us all so tired. Our bodies have got used to one form of abuse and now have to deal with some other form of domestic.

As for the nails issue, I've been using vitamin e oil (like Bio-oil but cheaper from Superdrug) and also Palm oil. Nails seem to be ok but 3 are still painful on left hand. I'm trying to keep them fairly short too.

So I had my gynae appt yesterday. Yay, I've got fibroids ๐Ÿ˜‰ I have to say I was relieved to hear that. I'll have another scan in 6 months but they don't want to do anything as they'll likely shrink with chemo induced menopause (if that ever happens).

Are we all getting lots of hospital appointments coming through now as we approach the end of chemo? I've got onc and chemo next week, genetics (results hopefully) the following week, then breast care consultant then back to Onc and last chemo ๐Ÿคž๐Ÿป A busy 4 weeks. I don't know about the rest of you, but I'm going to take hubby away for a weekend in March just to celebrate the end of this grim stage (once I'm past the danger zone).

Well, Ladies, I hope you all have a lovely weekend. Stay safe and warm and ๐Ÿ’ช
๐Ÿ’œFiona xxx
Member

Re: October 2018 Chemo starters

FYI, I'm now 8 weeks since last docetaxel infusion (June 2018 starter), and I've kept all of my fingernails and toenails -- including a bunged-up toenail that my BCN was quite sure I'd lose because it was already so damaged! I did get Mees lines (white horizontal lines) on my nails during FEC, but these are growing out, and they were at times sore, but they haven't become loose.

 

I kept my nails trimmed short, especially right before each chemo infusion. I applied OPI cuticle oil every day, including during FEC. (I got mine from Nail Direct, but you might be able to find it cheaper elsewhere.) I painted my nails a very dark brown for the first cycle of T, but because my nails tended to be dry/brittle and prone to breaking before chemo, I was worried about not being able to moisturize them, as well as the effect of nail polish remover. So in week 3 of T no. 1, I stripped them and started applying Polybalm, which was trialed at Bedford Hospital, Cambridge, at least daily; I also applied sunblock if I planned to be outdoors without gloves/mittens. I kept up the Polybalm for 5 weeks after my 4th and final T infusion, and still use what's left once or twice a week, when my nails look a bit dry. ๐Ÿ’…

 

I don't know how much any of this helped, if it helped at all; it might also be that I kept my nails because my T dose was reduced to about 80% because of other side effects.

Member

Re: October 2018 Chemo starters

Hi Badboob, I didn't use any oil on my nails, I think that might be buddyfan as Shi has said. I did use plasters though to try and stop my nails breaking too much! It didn't look great, but it did stop my nails from breaking too low down and being painful and it prevented me from catching them on anything.

I was on FEC and like you, found it made me feel exhausted and I slept alot too! x

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi badboob, think a lot of us found either fingernails or toe nails did one on the t, think some people did use plasters and stern strips to aid fingernails, itโ€™s pot luck as to whether you manage to keep them, not useful I know but youโ€™ve got to try whatever you can. I think jencat or buddyfan on oct17 thread also rubbed some type of oil into cuticles too, might be worth jumping on that thread and asking? ๐Ÿ’•๐Ÿ’•โœจโœจShi xx
Member

Re: October 2018 Chemo starters

Morning everyone,

 

lโ€™ve been lying low since my 5th chemo on Tuesday. But have been catching up with everyoneโ€™s news on here. Gosh we are all going though this arenโ€™t we! I hope those of you who have changed to Docetaxel are doing ok.

 

I have found EC to be a totally different experience. Boy has it wiped me out. I had a funny turn while they administer it and had to call the duty doctor, who when she arrived was even more stressed than I was.  I suppose the up side is that I can sleep! Just that I canโ€™t stop sleeping! I am just so thankful that I only have two sessions to go. How many more is everyone having, we must be getting to the end of this poop.  

 

Very impressed Elliesmum that youโ€™ve been to work, and completely sympathise with your sentiments about what people say to you! I work freelance and have turn down loads of work as I canโ€™t guarantee the quality as chemo brain is a bit of a problem at the moment and is driving me mad! Hope your little one is soon over her HFM infection. 

 

Anyone starting to lose their nails? Mine are very sore. I rang my BCN yesterday who was sympathetic but explained that all fast growing cells are affected by the chemo, and yes I could lose some or all. She suggested using plasters and sterristrips to hold them down! 

 

Stay strong ladies we are all getting there, slowly........

Hugs xx

 

 

Community Champion

Re: October 2018 Chemo starters

Great to hear, Sar_ah, that chemo number 5 is done! ๐Ÿ‘ Sorry to hear that your little one is unwell - it makes everything so much tougher. Fingers crossed you can catch up on some sleep today and the side effects are kind to you. ๐Ÿคž๐Ÿ’•

Good work on the hilly walk, Fiona, but make sure you donโ€™t overdo things (says the stubborn person whoโ€™s not good at taking her own advice)! ๐Ÿ™ˆ I survived my day at work yesterday, but will need to spend most of today in bed to recover. Very pleased I managed to avoid lashing out at anyone! ๐Ÿ˜‚๐Ÿ’ช It was a super productive day, actually. Yay! First day I made it in to the office since mid-Dec; Iโ€™ve otherwise been working from home as and when I felt up to it. A little surprised at how totally wiped-out I feel today. I guess I should take my own advice and take things a little easy...๐Ÿ˜‚

Aneeebel, sorry again that youโ€™re continuing to feel so rough. ๐Ÿ˜ž I really hope your team can change something to help you through this rubbish. Are you scheduled to have one more round of chemo? Youโ€™ve done so well to make it this far with all the horrible side effects youโ€™ve had to deal with. I hope your granddaughter had a lovely birthday. Itโ€™s great to have some little things to celebrate, and 10 is indeed a โ€œbigโ€ birthday! ๐ŸŽ๐ŸŽ‚๐Ÿฅฐ

Xox ๐Ÿ’•๐Ÿ‘Š๐Ÿ’
Member

Re: October 2018 Chemo starters

Sorry me again!! Doesnโ€™t post for ages then twice!!! As you can guest found the rest of the messages!!
Aneeebel so sorry you are having such a rough time! Youโ€™re made of strong stuff to keep going and getting though!
I hope your granddaughter had a lovely birthday and the sleepover went well Smiley Happy
Elliesmum mum thatโ€™s so positive to hear youโ€™re finding things better but sorry to hear about your daughters hfm!! I should imagine thatโ€™s very tricky to say the least!!
Itโ€™s been a long night here, three hours sleep,very unsettled daughter good thing the steroids are on top form and keeping me very awake ๐Ÿคฃ theyโ€™re got there good points!!
Member

Re: October 2018 Chemo starters

Hi, hope you are all well, for some reason I can only see up until the 4th! Iโ€™m sure there has been messages since!
Fiona Iโ€™m hoping your home now! Such good news the chemo is doing itโ€™s job Smiley Happy Iโ€™m so pleased for you!
Elliesmum how are you feeling now?
I had my 5th today, feeling ok at the moment but no sleep in sight!
Love to you
Community Champion

Re: October 2018 Chemo starters

So pleased you're feeling a bit better Fiona... ๐ŸŽ€๐Ÿ˜˜ ๐Ÿ’ช๐Ÿผ
I can't walk and breathe either without nearly passing out....I just hope no one ever expects me to speak at the same time or I could possibly keel over!!! The Doc said that it's because my body is at such a low ebb with all the drugs -that's how it affects me! I wonder if you're the same!

I've been so unwell/rough again today.... My temp is still up and down! I actually cried today... I've had enough now... I'm seriously considering telling my Oncologist I don't want any more ๐Ÿ’ฉ chemo!!!
But then I think....am I being dramatic!!!! ๐Ÿ˜ณ

Keep smiling everyone (says she! ๐Ÿ™„)๐ŸŽ€ X

๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—
Community Champion

Re: October 2018 Chemo starters

Afternoon Ladies

How are we all today?

ElliesMum, I hope you got through work today without bopping anybody ๐ŸฅŠ I know what you mean though. For me, losing the eyelashes seems to be worse than the hair. And how's your little girl doing with her HFM ?

Aneeebel, I hope your granddaughter has a lovely birthday ๐Ÿฐ. How are you? Temperature behaving itself yet? Do take care, you're so close to the finish line, we don't want you being poorly between now and then.

Sar_ah, is chemo on this week? ๐Ÿคž๐Ÿป let's hope we're celebrating another one down.

Mrs Fingers, how are the bones today? I've got the issue with fingernails too. My first T affected 3 nails on my left hand which still hurt and 2 on my right which seem to be better.

I went for a walk today. Nothing unusual in that, except it was up a little hill. I think I went a little bit too high, felt sick and dizzy when I got to the top and thought I was going to collapse. Hubby will go mad when I tell him. I jyst had to push myself that little bit extra. Stupid girl ๐Ÿ˜ˆ

Other than that and always feeling like I could sleep for England, I feel a lot better than this time last week ๐Ÿ˜

Not much longer to go, Ladies, on this ๐Ÿ’ฉ

Take care and stay safe and ๐Ÿ’ช๐Ÿ’ช
๐Ÿ’œFiona xxx
Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Ellieโ€™s mum compeed patches for cold sores, but again please ask your unit too itโ€™s all about minimising infection risk and keeping safe ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ’•๐Ÿ’•โœจโœจShi xx
Community Champion

Re: October 2018 Chemo starters

Thankyou ElliesMum.... Hope you get on okay at work, I haven't got the energy to walk down the street, never mind go to work! You're obviously made of good stuff!! ๐Ÿ’ช๐Ÿผ
Try not to hit anyone....we don't want you to be arrested!! ๐Ÿ‘ฎ๐Ÿป
What a shame that you're getting cold sores/ulcers...I've been lucky up to now.. Not been affected by those and my eyelashes seem to be intact! You can buy some skin coloured patches to go over cold sores, like little round plasters, but I can't remember the name of them! Perhaps they may be worth getting!
Hope you have a good day, and Thankyou for thinking about me... ๐Ÿ˜˜

Our beautiful Grandaughter is 10 today...๐ŸŽ‚she is sooooo excited! She's in 'double figures' at last...and she's having a sleepover tomorrow which is even more exciting! I'm not sure her Mum will say that when they're still awake at 2 am!! Hahaaaa! ๐ŸŽ€

Hope all you other Lovely Ladies are doing okay... Thinking of you all! ๐ŸŽ€

๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—
Community Champion

Re: October 2018 Chemo starters

Iโ€™m sorry to hear youโ€™re still having such a rough time, Aneeebel! The effect that chemo has on us is really horrible. I tried to look half-decent this morning (make up on, wig, nice clothes) as I have an important day at work. I felt so depressed looking in the mirror! Face is pudgy and swollen, almost no eyelashes, skin breaking out, ulcers, cold sores... I feel like a mess! And yet, I bet that at least one colleague at work will tell me how โ€œwellโ€ I look. ๐Ÿคฆโ€โ™€๏ธ I will try hard to resist the urge to hit anyone! Keep your chin up, and keep mentioning how youโ€™re feeling to your team. Can they offer any other medication, or review your treatment schedule? I hope today is a better day! ๐Ÿ’•๐Ÿคž๐Ÿ’

Thanks, Shi, for the advice. I will call my team this morning to ask about how to try to avoid catching HFM from my little one! Xox
Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Ellieโ€™s mum, so sorry to hear about your little one, please do ring your unit to ask their advise darling, you canโ€™t put yourself at any risk please, chemo is not like normal, Iโ€™m not teaching you to suck eggs just want to ensure you are safe ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ’•๐Ÿ’•โœจโœจโœจShi xx
Community Champion

Re: October 2018 Chemo starters

Fab news that you're feeling better this time around ElliesMum.... ๐Ÿ’ช๐Ÿ‘๐Ÿ’•๐Ÿ˜ Good luck with the hand, foot and mouth disease!!

My temp is fluctuating a bit actually... but I also feel so rough and unwell and nauseous! Several times today I have declared that "I'm not having any more chemo! I've had enough now!!" ๐Ÿ™„๐Ÿ˜๐Ÿ˜ซ
I went to my allotment for half an hour this morning...not to do anything as such, just to supervise my hubby... I'm struggling to walk and breathe at the same time! I looked like I was attempting the 3 minute mile by the time I got there... I mentioned it to the Doc the last time I was at the hospital and he said because my body is at such a low ebb health wise with all the drugs I'm taking.. this is how it affects you!!
I'll be using a motorised wheel chair before long!! ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

Hope all you lovely ladies are doing well...stay strong! xx ๐Ÿ˜˜๐Ÿ’—

๐Ÿ’—๐Ÿ’ช๐Ÿ’—๐Ÿ’ช๐Ÿ’—๐Ÿ’ช๐Ÿ’—
Community Champion

Re: October 2018 Chemo starters

How are all of you lovely ladies getting on? Are you well enough for chemo this week, Sar_ah? Feeling ok after your spell in hospital, Fiona? Temp still under control, Aneeebel? ๐Ÿคž๐Ÿ’•

I hope youโ€™re doing alright now, Mrs fingers, and you too, Badboob! ๐Ÿ’ช

The good news is that Iโ€™m feeling pretty well, all things considered. The reduced dose has made such a difference!!! The bad news is that my little girl has come down with hand foot and mouth ๐Ÿ™ˆ... I think Iโ€™ll need superpowers to comfort her whilst trying to avoid catching it myself! Lots of antibacterial hand washing! ๐Ÿ˜‚

Love to you all. Xox ๐Ÿ’•๐Ÿ’๐Ÿ˜˜๐Ÿ‘Š
Member

Re: October 2018 Chemo starters

Jencat thatโ€™s good to hear. My first fec was worse than the second two as well so maybe itโ€™s a body shock thing.
As several of you have described itโ€™s an out of the blue racking crushing pain. Paracetamol didnโ€™t touch it. I ended up doubling up with ibuprofen. Iโ€™m trying to avoid codeine as it has unfortunate effects on my rear end ๐Ÿ’ฉ
The worst of the bone pain has now passed though my limbs and joints still feel knackered. Bone pain has been replaced with horrible indigestion. I feel like Iโ€™ve swallowed a golf ball and my stomach is so sore and bloated. A couple of other weird things...the soles of my feet feel really tender and are painful to walk on. And also my fingernails feel painful like theyโ€™ve been hit with a hammer and are about to fall off. All very random! ๐Ÿ˜ซ
So far Iโ€™m finding T more challenging than fec...itโ€™s much more physically debilitating whereas I was ok and about doing daily walks on the fec.
Ho hum...not long to go and this will all be over...
Wishing strength to everyone to power through! ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช
Member

Re: October 2018 Chemo starters

Hi Fiona, I'm from Oct '17 chemo thread. Just wanted to say that like you I found T hard and had a lot of pain on the first one. (I wasn't sick at all on FEC, so I didn't find that too bad) I was given liquid morphine by the doctor, which helped. However the second T wasn't as bad, so wanted to reassure you. I think I read somewhere that our bodies have to get used to it. Also, I don't know if you have to have the daily injections, but I had to have 5 with FEC, but 7 with T and I always thought that I felt worse when I had them. I managed to negotiate with my onc that if my blood test was ok before my 2nd T that I could go back to 'only' having 5.

Hope you managed your stroll, it's been sunny here in Kent too x

Community Champion

Re: October 2018 Chemo starters

Hi ElliesMum... I still feel a bit wishy washy to be honest! And my temp is going up again! ๐Ÿ™„๐Ÿ™„๐Ÿ™„ The hospital are due to ring me at some point today so I'll mention it to them when they call!!! Fingers crossed they don't ask me to go up!! ๐Ÿค’

I hope you're all doing a bit better today.... I haven't had any bone pain as I'm on a different regime to you! Must not be a side effect on my chemo or I would definitely have got it.....my body doesn't like medication, it comes out in all sorts of side effects!!!!

Thinking of you all X ๐ŸŽ€

๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—
Community Champion

Re: October 2018 Chemo starters

Oh Mrs Fingers, just try and get through each day๐Ÿ’ We all know what you're going through and are here for you ๐Ÿ‘ญ๐Ÿค— I wish I could wave a magic wand and get rid of this ๐Ÿ’ฉ we're all going through.

I felt pretty much the same too after my first T, my body hurt so much I couldn't sit or lie down without being in pain. But then about day 5 I think I felt "normal" again, aside from all the other s/e I had. I'm absolutely dreading T number 2 next week.

๐Ÿคž๐Ÿป I hope everybody has a good day today with no temperatures, reducing pain from s/e, no emergency hospital visรฌts etc.

It's going to be a good day weather wise here in Derbyshire so I'm going to attempt a short stroll I think.

Thinking of you all ๐Ÿ’๐Ÿ’๐Ÿ’ช๐Ÿ’ช๐Ÿค—๐Ÿค—๐Ÿ‘ญ๐Ÿ‘ญ
๐Ÿ’œFiona xxx

Community Champion

Re: October 2018 Chemo starters

I love the โ€œbriefโ€ 2 hour nap, Fiona! Iโ€™ve had my fair share of those too! ๐Ÿ˜‚๐Ÿ’• I hope hubby acquitted himself well and prepared a lovely dinner!

Mrs fingers, I too was totally unprepared for the physical bone aches that took hold a few days after T. I ended up back in the unit and they gave me oral morphine, after codeine didnโ€™t touch it. I didnโ€™t need much, but it took the edge off the pain. I recommend asking for it, or for some other form of strong painkiller if your team havenโ€™t suggested it yet. Iโ€™ve had a reduced dose of T this cycle and, as Iโ€™m sure youโ€™ll be pleased to hear, Fiona, the side effects have definitely been kinder to me thus far!!! ๐Ÿ‘ Iโ€™m not out of the woods yet, and I still feel a bit crap, but compared to this time last cycle itโ€™s a massive improvement. ๐Ÿ’ช๐Ÿ’•๐Ÿฅฐ

How are you this morning, Aneeebel? I hope your feeling a bit better and that your temperature is behaving! Xox ๐Ÿ’๐Ÿคž
Community Champion

Re: October 2018 Chemo starters

Mrs Fingers...Sounds awful.... How are you feeling today? Thinking about you xx ๐Ÿ˜˜๐ŸŽ€

Hope all you other Ladies are doing ok today xx ๐ŸŽ€

Stay strong x ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ

๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—
Member

Re: October 2018 Chemo starters

Well I thought I was getting away with it on fec. All I can say I can say is sweet mother of god, 3 days after my first T I was hobbling around like a 90 year old. I had to crawl to bed on my hands and knees. It feels like all my bones are being crushed in a vice, with an occasional stabbing for good measure. I have no strength to stand up or walk properly. To top it off Iโ€™ve just spent the day in hospital with a fever. I hope this is just a blip!
Community Champion

Re: October 2018 Chemo starters

Aneeebel, well done on keeping an eye on your temperature. Fingers crossed there's no movement on it tonight other than downwards safely. 

 

ElliesMum, I hope your s/e aren't too bad. I'm hoping that my onc will reduce my dosage next week after this incident so I'm keen to hear how you're getting on. 

 

Ive just had a nice little nap. It was only going to be for 30 minutes but 2 hrs later I'm just about awake again! And hubby is preparing dinner ๐Ÿ˜ƒ I'd best go and supervise, or maybe not ๐Ÿ˜‰

 

Take care Ladies, big hugs ๐Ÿค—๐Ÿค—

๐Ÿ’œFiona xxx

Community Champion

Re: October 2018 Chemo starters

Good work calling in your raised temperature, Aneeebel!!! Very pleased they checked you over and will follow-up tomorrow. Best to be pro-active and nip things in the bud as soon as possible! ๐Ÿ‘๐Ÿ’•

Iโ€™m feeling ok, thanks ladies. Side effects are starting to kick in, as anticipated, but it hasnโ€™t been terrible so far. Fingers crossed the reduced dosage helps! Xox ๐Ÿ˜˜๐Ÿ’๐Ÿคž
Community Champion

Re: October 2018 Chemo starters

So pleased you're home Fiona... ๐Ÿ˜€๐Ÿ˜€๐Ÿ˜€๐ŸŽ€๐ŸŽ€๐ŸŽ€ x

My temperature went up gradually today so I've been up to the clinic...I felt quite grotty actually! Luckily my bloods were fine and no obvious signs of infection so I had one lot of antibiotics intravenously and they let me home!!
They'll ring me tomorrow to see how I am!
I must say... They're on the ball at the hospital! ๐Ÿ˜ท๐Ÿค•๐Ÿค’

Hope you're doing well ElliesMum xx ๐Ÿ˜˜

Love to you all xx ๐ŸŽ€

๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—
Community Champion

Re: October 2018 Chemo starters

Thank you Ladies for all your kind words and warm wishes ๐Ÿ’

I have to say it is sooooooo nice to be back at home and to have had a decent night's sleep without any machines bleeping or obs being taken etc. Being at home is so good mentally for a person to heal, isn't it?

I was a bit anxious last night, being away from that safety net of hospital care but I'm getting there. I now know how the system works and am already getting the bag packed in preparation for another visit.

How are you all? I hope you're all good and s/e are being kind to you all.

Take care, stay safe and warm and ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช
๐Ÿค—๐Ÿค—๐Ÿค—
๐Ÿ’œFiona xxx
Community Champion

Re: October 2018 Chemo starters

Yay Fiona, woohoo! So glad youโ€™re back at home. ๐Ÿฅณ

I hope you are all feeling ok. Big hugs! ๐Ÿ’•๐Ÿค—๐Ÿ’
Member

Re: October 2018 Chemo starters

Welcome home Fiona! Phew! 

x

Community Champion

Re: October 2018 Chemo starters

Yippeeeee.... Fabulous news ๐Ÿ’œFiona... ๐Ÿ‘๐Ÿผ๐ŸŽ€๐Ÿ˜˜๐Ÿ’ค
Hope you had a lovely sleep in your own bed! ๐Ÿ˜ด๐Ÿ˜ด๐Ÿ˜ด
Take it easy xx ๐Ÿ’—

Hope all you other Ladies are well... Thinking of you all!

๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—
Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰Fi ๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜great news โค๏ธโค๏ธโค๏ธymca on the ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ•บ๐Ÿ•บ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿปall round, have a lovely nights sleep back in own bed ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ’•๐Ÿ’•โœจโœจShi xx
Community Champion

Re: October 2018 Chemo starters

Hooray, they're letting me out tonight ๐Ÿ˜๐Ÿ˜๐Ÿ˜

๐Ÿ’œFiona xxx
Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Hi Fi ๐Ÿ˜˜๐Ÿ˜˜yes it can feel like a long time especially over a weekend are you in the goldfish bowl or did you manage to bag your own room? If you get own room you can pretend itโ€™s hotel room (basic) but still less noise ๐Ÿ˜˜๐Ÿ˜˜ keeping ๐Ÿคž๐Ÿคž๐Ÿคžyou get home tomorrow, on the plus side you are being kept safe and monitored which is exactly what you want so you can ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ•บ๐Ÿ•บ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐ŸฅŠ๐ŸฅŠ๐ŸฅŠ๐ŸฅŠ๐ŸฅŠcelebrate ringing the chemo bell (hope your unit has one) ๐Ÿ‘๐Ÿ‘any requests for the chemo jukebox for us all to dance at the bottom of your bed to tonight? ๐Ÿ˜๐Ÿ˜๐Ÿ’•๐Ÿ’•โœจโœจShi xx
Community Champion

Re: October 2018 Chemo starters

Thanks Shi and yes I'm old enough to remember Agadoo. I'm more positive today fortunately and ha e accepted that it will be tomorrow at the earliest. They've only got the one 8 hr drip planned for me, nothing for tonight as far as I'm aware.

If I'd have known how long it might take I'd have accepted it easier but I didn't really get much feedback.

Fingers crossed for tomorrow's blood test.
๐Ÿ’œFiona xxx
Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Oh Fi itโ€™s frustrating. Glad you are getting on ok with oral antibiotics and good to see your team taking brilliant care if you and getting you dripped up ๐Ÿ‘๐Ÿ‘best to have the full works to keep safe no matter how ๐Ÿคฌ๐Ÿคฌ๐Ÿคฌit is โค๏ธโค๏ธYou wonโ€™t be ymcaโ€™ing with the drip go join me and the girls in a quick agadoo (hope you are old enough to remember that one) ๐Ÿ˜๐Ÿ˜๐Ÿ˜keep ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช๐Ÿ’ชweโ€™ve got hold of you ๐Ÿ‘ญ๐Ÿ‘ญ๐Ÿ‘ญ๐Ÿ‘ญ๐Ÿ’•๐Ÿ’•๐Ÿ’•โœจโœจโœจShi xx
Community Champion

Re: October 2018 Chemo starters

Afternoon ladies

I'm so pleased to hear that you're both doing well, Aneeebel and ElliesMum

I'm still in I'm afraid. My neuts were up to 7 something yesterday but blood test today says something called kracken (I'm not sure this is the right wird) which forms the bloid molecules isn't quite there yet. So I'm back on the drip for 8 hrs. Oral antibiotics started last night aรฑd pleased to say no adverse reaction. Blood test again in morning.

Take care ladies, enjoy your Sunday.

๐Ÿ’œFiona xxx
Community Champion

Re: October 2018 Chemo starters

Hi Ladies...

How are you feeling Fiona? Any news on your discharge day yet? Good news that your bloods are improving! ๐Ÿ’ช Keep your chin up! ๐ŸŽ€๐Ÿ˜˜ x

Elliesmum... how are you doing after chemo on Friday? ๐Ÿ’—๐Ÿ’ช๐Ÿ˜˜ x
I'm sooรฒoo tired...I feel fairly well up to now, albeit a bit qweasy! Let's hope it stays this way!

Hope all you lovely ladies are okay.... stay strong!
Have a good day xx ๐Ÿ˜˜๐ŸŽ€

๐Ÿ’—๐Ÿ’ช๐Ÿ’—๐Ÿ’ช๐Ÿ’—๐Ÿ’ช๐Ÿ’—
Community Champion

Re: October 2018 Chemo starters

Sorry to hear youโ€™re being kept in for a bit longer, Fiona. ๐Ÿ˜ž Big hugs! Hopefully the extra day in hospital helps get you back on track. Fingers crossed for some smooth sailing for the rest of this cycle! ๐Ÿ’•๐Ÿคž

How are the rest of you ladies getting on? Iโ€™m ok so far after my second T chemo on Friday, although Iโ€™m still bracing myself for the side effects to kick in over the next few days. Iโ€™m hoping the reduced dosage (and extra meds) will help me tolerate things better this time around!

Love and hugs to you all! Xox ๐Ÿ˜˜๐Ÿ’๐Ÿ’•
Community Champion

Re: October 2018 Chemo starters

Noooo it's just not fair. Potassium was because my kidneys weren't performing so well. Blood count has reacted to the ๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒand is 7.something. great news. Bad news is they will swap me to oral antibiotics but want to keep an eye on me for at least 24 hrs. So I guess I'm not home until Monday ๐Ÿ˜ฆ๐Ÿ˜ข

I wouldn't mind so much if they'd have given me an idea of what might happen and how long it could potentially take.

Stay safe and warm ladies ๐Ÿ’ช๐Ÿ’ช sending you big hugs from Casa NHS ๐Ÿค—๐Ÿค—๐Ÿค—

๐Ÿ’œFiona xxx
Community Champion

Re: October 2018 Chemo starters

Iโ€™m sorry you have to stay in hospital a little longer, Fiona, but good that your team are doing something about your low potassium while youโ€™re there. Could you get your husband or a friend to bring you a goody bag to make your stay more tolerable? Iโ€™m thinking eye mask, headphones, decent food, proper coffee (if your taste buds have returned). Maybe binge on Netflix or iPlayer box sets? Watching โ€œThe Good Placeโ€ got me through my stay - perfect blend of light-hearted/easy viewing whilst still being interesting. Thinking of you! Xox ๐Ÿ’•๐Ÿ’๐Ÿคž
Community Champion

Re: October 2018 Chemo starters

Thanks ElliesMum. I don't think they'll let me go today. I don't know what my blood count is but I'm low on potassium so they've put me on a drop for 8 hrs. So much for me feeling positive.

I hope you all have a good day ๐Ÿ’ช๐Ÿ’ช
๐Ÿ’œFiona xxx
Community Champion

Re: October 2018 Chemo starters

Thanks Fiona, and so pleased that youโ€™re starting to feel better. Shiโ€™s neutrophil dance ๐Ÿ’ƒ has been super effective in the past, so fingers crossed it works for you! I hope your blood counts jump up very soon and you make it home today. ๐Ÿก๐Ÿคž

Keep your heads up, ladies. We are over half way through chemo now. We can do this! ๐Ÿ‘๐Ÿ˜˜๐Ÿ’๐Ÿ‘Š๐Ÿ’•
Community Champion

Re: October 2018 Chemo starters

Morning everyone ๐Ÿ˜€

๐Ÿ’œFiona... So pleased your feeling better this morning.... When you're feeling poorly everything seems so horrid doesn't it!
Fingers crossed your bloods are improving! ๐ŸŽ€ X

 

Shi.... Thankyou for thinking of us xx ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜

Hope all you Lovely Ladies are doing well x ๐ŸŽ€
Stay strong ๐Ÿ’ช๐Ÿผ๐Ÿ˜˜ x

๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—

Community Champion

Re: October 2018 Chemo starters

Morning Ladies

I'm so pleased to hear that yesterday went well for you on chemo, Aneeebel and ElliesMum. Let's hope the s/e's are kind to you both this time round๐Ÿคž๐Ÿป

Shi, thanks for your kind words. Let's hope those dances work. I feel loads better, actually slept til about 2 this morning. My temp is good and behaving itself. ๐Ÿคž๐Ÿปfor the bloods later this morning. I'm feeling positive.

Wishing you all a lovely Saturday ๐Ÿ’ช๐Ÿ’ช๐ŸฅŠ๐ŸฅŠ๐Ÿค—๐Ÿค—๐Ÿ‘ญ๐Ÿ‘ญ

๐Ÿ’œFiona xxx
Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Fi darling weโ€™ll get a neutrophils ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ•บ๐Ÿ•บ๐Ÿ•บ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐ŸปGoing for you and we are all doing it to I want to break fee by queen for you ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ•บ๐Ÿ•บ๐Ÿ•บ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐ŸปImagine us dancing at bottom of your bed making you ๐Ÿ˜๐Ÿ˜๐Ÿ˜we will give you extra points of you can do a ymca dance with the arms each time you go to the bathroom too ๐Ÿ˜๐Ÿ˜๐Ÿ˜keep ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ชweโ€™ve got you ๐Ÿ‘ญ๐Ÿ‘ญ๐Ÿ‘ญ๐Ÿ‘ญand the 5 โœ… gang ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘lovely feeling isnโ€™t it, bell ringing next time ๐Ÿ›Ž ๐Ÿ›Ž๐Ÿ›Ž๐Ÿ›Ž๐Ÿ›Ž๐Ÿ›Žkeep focused amazing beautiful strong kind lovely ladies you are great โค๏ธโค๏ธโค๏ธ๐Ÿ’•๐Ÿ’•โœจโœจโœจShi xx
Community Champion

Re: October 2018 Chemo starters

Yes ElliesMum... No.5 'done and dusted'..
I said to my hubby that it feels a bit strange knowing I only have one more chemo to go after it seeming such a long journey when it all started! Fingers crossed the S/e are kind to you xx ๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ˜˜๐Ÿ’

Love to all, stay strong! ๐Ÿ˜˜

๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—๐Ÿ’ช๐Ÿผ๐Ÿ’—

Community Champion

Re: October 2018 Chemo starters

I hope youโ€™re feeling better too, Sar_ah! Xox
Community Champion

Re: October 2018 Chemo starters

Oh Fiona, how frustrating for you! As Badboob and Aneebel have already said, weโ€™re all thinking of you and hoping that you recover as quickly as possible! Fingers crossed youโ€™re well enough to go home tomorrow.๐Ÿคž๐Ÿ’•๐Ÿ’

Yay Aneebel, we have crossed off chemo #5.๐Ÿ’ช๐Ÿฅฐ I survived spending almost 7 hours in the chemo unit (actually, I took my laptop with me and was surprisingly productive!) and didnโ€™t suffer any adverse reactions to the herceptin.๐Ÿ‘ Good news!

I hope you all have a fabulous weekend. Let us know how you get on, Fiona! Xox ๐Ÿ’•๐Ÿ’๐Ÿ˜˜
Community Champion

Re: October 2018 Chemo starters

Oh no Fiona...
At least your bloods are improving!
Keep your chin up!!
We're all rooting for you! xx ๐Ÿ’ช๐Ÿผ๐Ÿ˜˜