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October 2018 Chemo starters

Community Champion

Re: October 2018 Chemo starters

Well done Kateday... 💪🏼✂️🎉 I bet your hair feels so much better... I actually love mine (I had a no.2) -I even said I might keep it quite short when it grows back...probably a bit longer than a no.2 tho! 😂✂️

💜Fiona, I have an appointment with the genetics clinic but mine isn't until December...I could have gone sooner but the appointment clashed with my oncologist appt so I rearranged it!
Hope you and Erica were okay at work!

Hope all you October ladies are doing well...
Keep smiling and stay strong! 💪🏼

💗💪🏼💗💪🏼💗💪🏼💗

Shi Community Champion
Community Champion

Re: October 2018 Chemo starters

Kate day 👏👏👏👏well done braving the shave, It is emotional but strangely liberating as you feel like you have taken control back of something 💪💪💪get yourself off to boots/Debs makeup counters if you can’t get on your Lgfb session and the ladies on the counters will help show you the ‘tricks’ of how to apply makeup while through chemo 😘😘😘it’s amazing how your eyes will pop when they show you ❤️😁😁💕💕✨✨✨Shi xx
Community Champion

Re: October 2018 Chemo starters

Morning lovely October ladies, how are we all today?

I'm a little bit nervous as I'm going into work today, first time for 3 weeks. I'll have Erika with me though, my lovely wig 😁 Like you Kateday my head is still sore and on rubbing it gently this morning I now need to hoover the carpet 😉 Bald patches are appearing (on my head, not in the carpet 😉).

It's a busy week this week, yesterday was genetics clinic (The answer is a blood test today which takes them about 10 weeks to analyse), routine blood test today, biopsy and onc tomorrow and FEC session 2 Friday 😕

Hope you all have a lovely day. Lou, good luck with the PICC fitting, I'm sure you'll be fine.

Take care 🤗
💜Fiona xxx
Member

Re: October 2018 Chemo starters

So I braved it and did the shave number three all over, few tears along the way
But it’s done and I don’t think it will be long before the rest goes as my head is sore
Xx
Member

Re: October 2018 Chemo starters

Aneeebel
Glad you feeling a bit more normal, its strange how it makes us feel isnt it i felt like a zombie for days, i got my number 3 tuesday ,

Thanks i sure i be fine like you say it will be more easier once i got that ,

Lou 💕

Community Champion

Re: October 2018 Chemo starters

I finally feel a bit more 'normal' at last Lou45 thanks... Just in time for chemo no.3 on Friday!!!! 

 

Youll be fine tomorrow... Just think how easy your treatment and blood tests will be! 💪🏼💗 

Member

Re: October 2018 Chemo starters

Thanks aneeebel,

Thats made me feel bit better about it anyway, my mom said she will come in with me if i want her to so i might let her,

Hope you doing okay too ,
Lou 💕💪
Community Champion

Re: October 2018 Chemo starters

Hi Lou, glad you're feeling a bit better... And you're allowed to ramble! 💗

 

Yes, I have a picc line too... I had a local anaesthetic when the nurse put it in so you don't feel anything...

My daughter was in the room whilst I had it done and she said 'It was pretty cool how she did it!!' Made me chuckle!

You have an ultra sound on your arm first to check your veins...but it was quite straightf orward -I'm very squeamish so I was panicking a bit but there was nothing to worry about! 

There isn't anything you can't do except swimming I suppose... You're encouraged to use the arm as normal so it keeps the blood flowing... And it's so much easier than needles! 

The district nurse comes to flush it out once a week and change the dressing

 

Good luck....you'll be fine I'm sure x 🤕

 

💗💪🏼💗💪🏼💗💪🏼💗

Member

Re: October 2018 Chemo starters

Hi k
Thanks for that info much appreciated, i know it will benefit me because they have trouble getting a vain and even doing my bloods now is a nightmare,
Lou 👍
ktk
Member

Re: October 2018 Chemo starters

Hi Lou, I’m from the June thread and I had a Picc Line throughout. It is easy to fit. It all looks a bit clinical but completely painless. The give you an X-ray to check it is in place and that is it! It is kept in place with a clip and an adhesive cover so almost impossible to dislodge! I put a bright cover over the top too, which was nice for the summer. You need to cover it in the shower. Cling film is fine or you can use a Limbo sleeve which some hospitals give you or you can buy from Boots or Amazon. Once fitted everything else s done through the Picc, bloods and chemo. And it is removed easily and painlessly too!! Good luck. Kx
Member

Re: October 2018 Chemo starters

morning lovely ladies,

 

i not been on here for a couple weeks to be honest its been a bit of a rollercoaster ive had so many emotions flowing, just wanted to give up and do a runner, but i okay now had a couple of issues ive had a pain in my arm for a few days rang hostpital they said it normal its where the chemo has gone through my arm, a bit of a swollen gum, and been very tierd ,

 

anyway enough of my rambling i have seen a few of you have braved the shave , well done ,when i did mine few weeks ago it felt so good i actualy feel quite liberated and i am so used to it now, i did have a wig but to be honest i not sure about it and when i do put it on i just dont see me so i just opt for a hat, 

 

hope you are all doing okay and feeling fine ,

 

i have got my picc line fitting tomorrow and i a bit nervous to be honest, anyone who has one can you give me any advise especially on do's and dont's when i have it in, i keep thinking i cant do much incase it comes out, 

 

anyhow have a good day all,

lou Heart

Community Champion

Re: October 2018 Chemo starters

ElliesMum... Your little one will want to do it all the time won't she! Lol! 👧🏼

💜Fiona... I bet your hair feels much better doesn't it! Did you have a glass of vino to celebrate? 🍷✂️

I'm meeting my eldest daughter for lunch today... I'm excited to see her! Don't see each other that often so it'll make a lovely change! 💗💗

Have a lovely day everyone.... xx

💗💪🏼💗💪🏼💗💪🏼💗

Community Champion

Re: October 2018 Chemo starters

And job no 2 for the day is done, a no 3 all over. Blimey, I really am grey underneath it all 😲✂️
💪🥊
💜Fiona xxx
Community Champion

Re: October 2018 Chemo starters

Fabulous to hear how many of us have now braved the shave and feel all the better for it! Go us! 👍💕😘

One note of caution is to take care when carrying little ones around in public. My daughter has managed to remove both my wig and a beanie when I was carrying her out and about - much to the surprise of those around us! 🙈😂 She seems to think it is a game...🙄🤷‍♀️🤦‍♀️ Luckily I found it amusing and wasn’t concerned about it, but had I been at work I would have been mortified! You have been forewarned! 😂🤞
Community Champion

Re: October 2018 Chemo starters

My allotment was fine thanks Fiona.. not much left in it now! We only got it in Jan and it hadn't been worked for years so we're just about on top of it!!


Mrs fingers...yes, good exercise... Although, I didn't do much today except dig about 12 shovels of earth in a new bed I want!! Lol! Then I sat down and ate a banana!!! 😂😂

Badboob... Well done!! 🎉🍾🍹
Doesn't it feel better! I couldn't believe how pleased I was to have no hair!! 😂
Yr hubby was very sweet.... 💙💗

Take care everyone x

💗💪🏼💗💪🏼💗💪🏼💗

Member

Re: October 2018 Chemo starters

Hi Kateday,

 

Had my first dose of demestos on 16th October, hair started to go on day 14, my second chemo was last Tuesday. On a three week cycle of 7. So five more to go.

 

Hugs x

 

Member

Re: October 2018 Chemo starters

Well done badboob
When was your first chemo xx
Member

Re: October 2018 Chemo starters

Afternoon all.

 

The deed is done! ⚡️🚀🍾👏👏

 

I cant believe how much better I feel. My lovely hairdresser gave me a number 3. And sorted out my woeful NHS wig that it now looks more Liza Minnelli in Cabaret and less Ked Dodd with his tickling stick! I even wore it around town to test it out! Nobody batted a eyelid.

 

He he was also complimentary about my other wig which I got from the specialist shop and he gave that a little tidy up as well.

 

DH was pleasantly surprised when I got home and said he would still ask me out on a date! Sweet isn’t he! 

 

So so the drinks are on me! 

 

Hugs x

Member

Re: October 2018 Chemo starters

Snap Aneeebel, I went to put allotment for the first time in ages yesterday. It was a gorgeous day. There’s so much work to do there but I just snapped off a few sprouts for dinner, much to my husbands disgust 😂😂 Hopefully I can spend a bit more time there if I’m not feeling too bad. It will be good exercise anyway 👍
Community Champion

Re: October 2018 Chemo starters

You're more than welcome 😉 I discovered red wine is fine for me in week 3, no heartburn and tastes just like it should 👍🏻So I might have to celebrate the shave with a cheeky glass 🍷

I hope all is in order at the allotment 🌱 And you're right, all that matters is you got out and about.

Take care ladies and big hugs to you all 🤗💪
💜Fiona xxx
Community Champion

Re: October 2018 Chemo starters

Ooooh, can I come to the party please!! 🍹🍸🍷 Even though I had mine done last Thursday!! (I had a no.2 but even that is fabulous...and yep, it's still falling out but doesn't seem as bad as it was!)

Here's to us all!!! 🍹🍸🍷🍻🍺🍾
I've had a walk round to my allotment this morning...it's the 1st time I've felt well enough to go for a while.... I didn't do much but at least I was out in the glorious sunshine! 🌞🌞

Have a lovely day x

💗💪🏼💗💪🏼💗💪🏼💗
Member

Re: October 2018 Chemo starters

Right, those of us going for the shave today should have a little party to cheer ourselves up. I would have a glass of red, but with my taste buds it just tastes like vinegar! So I will raise a cup of tea to US and our hairless state. Wiggy wig is beckoning...........

 

Good luck everyone however and when you decide to do the deed.👴👶👳‍♂️✂️✂️✂️

Community Champion

Re: October 2018 Chemo starters

I've definitely got to shave my head tonight. I think enough came out in the shower to provide bedding for a bird's nest 😲. It's time to go ✂️ Hubby can get me back for all the times I've put a bar code on his head when shaving him 😁 We'll be two baldies together 😁 matching anoraks soon 😲
Member

Re: October 2018 Chemo starters

Hi
Someone else said to try antihistamines which I will if they don’t change it
This whole journey is a funny old thing
Well done for braving the shave
I don’t think I will be far behind mine seems to leave a trail where I go , keeping me fit with the hoover though hehe x
Community Champion

Re: October 2018 Chemo starters

Badboob, I know how you feel with the Ken Dodd look. I was hoping to get to the end of my shampoo bottle but I don't think it's worth waiting that long, I won't have enough hair left to wash 😀

I feel quite fortunate that I haven't had many side effects, unlike some of you and i feel a bit guilty about that ☹It felt like a slight hangover for the first 2 days and apart from falling asleep by 9 every night and waking at 5 each morning (thank goodness for the Kindle) that's about it. I hope it continues in that manner 🤞🏻

So, I've done my run. Well, I wouldn't actually say run, more like a jog shuffle but nearly 3 miles of it, with maybe 20% (alright more like 25%) walking. I feel so proud of myself, it's like I've just done the London marathon 💪😁🏅🏃‍♀️ Now it's time to clog up the shower (for the last time) and go all Kate Humble curly as I let my hair dry naturally for the first time ever 😲

Have fun ladies, it's going to be a good day today, I can feel it in my bones (or is that just my white blood cells?) 💐
💜Fiona xxx
Member

Re: October 2018 Chemo starters

Who mentioned my back passage! OMG Elliesmum it’s been a nightmare but thank you for asking. Still going about three times a day and sooooooo sore! I even had a cry about it the other night. I start my antibiotics tomorrow and I am just hoping that that might help. It is interesting how common piles are, so many of us suffer but on top of the chemo and my frigging hair it’s just the pits.

 

On a different subject I have been prescribed 10days of injection, just shows the different  policies of Trusts/oncologist. To be frank I haven’t had a problem with the injections or any SEs. A  nice spare tyre to grab hold of, and when DH had his hip replacement last year I had a months worth of practice on him! He seems somewhat reluctant to return the favor😂😂😂. 

 

Anyway, must get the hoover out AGAIN, thank goodness the Ken Dood look is going to be replaced with a skin head today.

 

Hugs xx

Community Champion

Re: October 2018 Chemo starters

I hope you’re feeling better, Sar_ah! My next cycle is on the 23rd, so one day after you. I’ve decided I’m quitting the day after both cycles so far, but have reconsidered by the end of the first week both times. It is a tough process to go through! As others have reiterated, we’re all here with you! 😘💪💕

Badboob, how is you, ahem, back passage? It’s so hard to get the balance right with these things. My oncologist is taking the cautious approach, but even mild constipation has meant my piles are back with a vengeance. Feels like I’m passing glass! 🙈 So painful! I need to ask for some suppositories as anbesol isn’t touching it anymore. Apologies all for the TMI! 🙈

Best of luck with the run and the haircut, Fiona. You can do it! 💪😊💗

I’m off to work today! A bit ambitious, but excited to be doing something “normal”!

Love to all you fabulous October ladies! Xox 😘💐
Community Champion

Re: October 2018 Chemo starters

Haha Mrs fingers, Aneeebel and Kateday, you’ve made me laugh! I’ve been lucky not to have any side effects from the daily GCSF injections - aside from my husband managing to stab himself with the needle more than once. Apparently even automatically-retracting needles aren’t husband-proof. 😂 I have one injection a day for 7 days. I’ll have to thank my daughter for my “mummy tummy” so there’s enough fat to pinch and inject into. I didn’t realise that would be a benefit! 🤷‍♀️

Kateday, if you’re not offered the wizz-bang single injection option, perhaps ask if there is anything you can do to prevent the side effects. A friend (who is in the medical profession, but not an oncologist) told me to take antihistamine alongside the GCSF injections. I would definitely check with your team to see if they recommend this, but it might be worth asking about in case it helps.
Community Champion

Re: October 2018 Chemo starters

Aneeebel that's so funny 😄.  I have one injection for 5 days from day 5 each cycle (well, presumably, as I'm still on C1). I think it depends on how much fat you grab hold of to start with as to whether you feel it, but as I've got a fair bit that's not too much of a problem 😉. One day I didn't click the plunger thingy down enough so pulling the needle out wasn't the best thing I did that day 🤔 However, by day 5 I'd actually learnt how to hold the fat, the needle and the plunger (yes, I do appear to have only 2 hands when really I could do with 3) and do it successfully with my eyes closed 🙃 (Only kidding, I had one eye almost open) Oh, it's all good fun, isn't it? 

 

As for side effects from the injection, I had sore knees for a couple of days but not sure if that was the injection or the walking uphill I'd done the day before! 

 

Im going to attempt a short run this morning. Mad or what? I've missed running this year, not that I'm an avid runner, more a sometimes willing jogger really 🏃 But I can feel the weight going on already from sitting around too much so need to do something while the energy levels are good. I've not done much this year because I've felt so tired, which was perhaps a sign that something was wrong, I just didn't know how wrong 😟 But positive mental attitude is the key to working through this so running gear on and off I go. Well, in a bit 😜 I don't want to rush out there just yet 😜

 

And ive decided to brave the shave,as I'm already fed up of losing so much hair each time I touch my head. I only have to think about it and I see loads of hair on my jumper or the floor. So the sooner I face it the quicker I can deal with it. Tonight is the night 💇🏻 💪💪

 

October ladies, hope you all had a good and safe weekend, and enjoy your Monday. Don't forget we're all one day closer to the final day of treatment 🍾🎉🎉 (I'm still counting my days down 😃)

 

💜Fiona xxx

Member

Re: October 2018 Chemo starters

Aneeebel - lol! 😆😆😆
Member

Re: October 2018 Chemo starters

Someone mentioned the book that liz oriordan wrote (the breast surgeon who got bc). On her blog she talks about the injections under the chemo section and how she switched from daily to single injections. Here’s the bit from her blog:

“I then talked about the headaches and severe bone pain, and it was suggested that it could be the GCSF injections I'd been having. A lot of women can't tolerate the full week of injections, apparently. Because I'd had a problem with them and had such bad side effects, they could justify giving me a different injection. It's only given once, instead of the 6 days, with fewer side effects, but it's double or triple the price of the weekly course, which is why it's not given routinely to patients at my hospital”.
Community Champion

Re: October 2018 Chemo starters

Mrs fingers... I must have lots of fat too because I can't feel much either!!
I have to have 2 injections once a day for 5 days... I must be too fat for one!!! 😂🐷
The first time I did the injections I didn't realise the needle sprung back into the plastic case....I thought the flipping thing had stuck inside one of my stomachs!! 😂😂

 

Hope you're feeling better Kateday x 💐

💗💪🏼💗💪🏼💗

Member

Re: October 2018 Chemo starters

I have five days in a row
I see my oncologist ok Friday so will definitely be asking
Thank you xx
Member

Re: October 2018 Chemo starters

@kateday are you having one gcsf injection per cycle or is it several? I’m having just one (lonquex) and I hear this has less side effects than the version with several injections days in a row. Might be worth asking about it.
Member

Re: October 2018 Chemo starters

I will try that I was advised to do them at night
The injection itself no problem
I just experienced really bad bone and joint pain one day was particularly awful
I actually called the ward I was in pain everywhere she said it can be a side effect and it could well happen every time I have them , I just keep saying the next cycle when done will mean I’m half way through the EC
Today my hair is starting to come out sepecially on my erm lady garden haha no more trimming xx
Member

Re: October 2018 Chemo starters

Curious. I did the gcsf (Filgrastim) injection and it was completely painless. I was sh@*tt&*g myself about doing it though. Maybe I just have a lot of fat on my stomach? 😆😆
Community Champion

Re: October 2018 Chemo starters

Hi Kateday, just popping in to offer support. The injections are called Filigrastan , and they do kick start your bone marrow, and can be unpleasant. District nurses came in to do mine and this is the routine I was given:

* get the injection out to warm up, otherwise it stings

* have a light breakfast before the injection, and rest

*have lunch after

* then walk if possible - which I did every day until the final chemo, which floored me.

 

I managed the injections fine following this advice, but as the SE of chemo are cumulative these did become worse, so I was jolly glad of the injections. 

And of course you have them in alternating sides of your tum!

It is doable, and we are here to prove it. The very best of luck. X

Community Champion

Re: October 2018 Chemo starters

Kateday, I have those injections but I've been fine with them... What a shame you've been unwell! 🌻

I think the cycles are meant to get easier as you go along... I haven't had much luck with my first 2 but the 2nd time I did recover quicker! (If that makes sense!)
Anyway, I'm not being ill or having any side effects this time after No.3...I've decided!! Haha!
Or I'm DEFO not going back for no.4!!!! 😂😁

We have to keep going Kate...no other option! We will all do it together..hold each other's hands.. we're made of strong stuff... we'll come out the other side... x 💪

💗💪💗💪💗💪💗
Member

Re: October 2018 Chemo starters

Hi
I think they were call Frigrstimin something like that , to boost your bone marrow to create more white blood cells
You know I felt the same not wanting to go back after just one cycle and you really have been through the mill
I think I’m frightened as felt so poorly first few days then got them awful aches
Does your body get weaker each time this is my concern x
Community Champion

Re: October 2018 Chemo starters

Sar_ah....at the wig place I went to they had a lot in stock so you could take it away if they had one that you were happy with!
Have you got your voucher from the NHS?
Thanks for your kind words about me being positive 💐

Hi LindA... Welcome to the October group, hope everything goes well for you on Wednesday! x

Kateday....so glad you're feeling better at last! Which injections are making you feel so poorly? (If you don't mind me asking!)

I've had 2 treatments so far....1st time I ended up in hospital with an infection... 2nd time I had a dangerously high temp and had to go onto the day unit for intravenous antibiotics and then oral antibiotics for a week! I felt so ridiculously unwell! I swore I wasn't going again! 🤔🤔🤔 Its C3 on this Friday coming and I must admit, I'm feeling 'slightly apprehensive'... I'm keeping everything crossed I'm not poorly this time!! 💪🏼

Hope you and all the other October ladies are having a lovely day....
It was pouring down here this morning but the sun finally got his hat on and it's turned into a beautiful day now!

Take care everyone and keep your chin up!!

💗💪🏼💗💪🏼💗💪🏼💗
Member

Re: October 2018 Chemo starters

Hi
All
The effects of injections have worn off now thank goodness
I’m absolutely dreading the next cycle
My hair is starting to shed too
Welcome Linda I’m a fellow triple negative
I haven cold capped
I really hate being even slightly cold
Hope others are doing better
Badboob I hope your skin is repairing itself xx
Member

Re: October 2018 Chemo starters

LindaA LindaA Member
11:36 AM
Hi ladies
I was just reading this forum and the support from you all for each other.
I due to start my 2nd cycle of AC this Wed, l finally got confirmation that I have Triple negative breast cancer, it been along road with many biopsy’s ,but at least now l know the plan ahead . I’m day 18 from my first cycle and today l notice hair starting to fall out,my skull is very sensitive and feel sore in places. I had the cold cap so I’m hoping it may only just get thinner.if not then l gave it a try . I haven’t sorted a wig yet but will sort that out after this next cycle.
Sending you good wishes x
Member

Oct chemo started

Hi ladies
I was just reading this forum and the support from you all for each other.
I due to start my 2nd cycle of AC this Wed, l finally got confirmation that I have Triple negative breast cancer, it been along road with many biopsy’s ,but at least now l know the plan ahead . I’m day 18 from my first cycle and today l notice hair starting to fall out,my skull is very sensitive and feel sore in places. I had the cold cap so I’m hoping it may only just get thinner.if not then l gave it a try . I haven’t sorted a wig yet but will sort that out after this next cycle.
Sending you good wishes x
Member

Re: October 2018 Chemo starters

Aneeebel thank you for sharing Smiley Happy) you’re so positive Smiley Happy i think I’m getting to the point now where I want it gone, I’m losing so much I have to hoover the mattress every morning now 🤦‍♀️. I’ve got a wig appt Tuesday so when I know how long that all takes I’m booking it in, hoping to do it before the next cycle on 22nd.
How a lovely day all, we’re already up and making cakes!!
Community Champion

Re: October 2018 Chemo starters

Hello to all you lovely October ladies...

Sar_ah, hopefully you'll start feeling a bit better soon! I know what you mean about feeling emotional...I was exactly the same for some reason! I just wanted to cry too....
My hair started falling out about day 17 of C1... Made it to day 13 of C2 and finally gave in and went to the hairdressers and had a No.2!! I can't believe how pleased I was...I even msgd my two daughters saying I can't believe how pleased I am to have no hair!! Haha! 🤔✂️ What's left is obviously coming out but so much easier!
How strange that you're having the bladder problems too!!

💜Fiona... Yes, my scalp was very tender in places but it seems to have worn off in some areas now! Do you think you're going to wait until after your parents have been before you go to the hairdressers? ✂️💕 x

Mrs fingers....hope your cold clears up and you start to feel better soon x

I've actually been so chuffed about my hair I even went to Sainsbury's without my little hat on...got a few funny looks but Hey Ho....I'm really not bothered! Considering how upset I was last week about my hair I'm remarkably proud of myself!!!!! 💪🏼😇


Have a lovely day everyone... Stay strong!!

💗💪🏼💗💪🏼💗💪🏼💗


Member

Re: October 2018 Chemo starters

Hello FiMillan

Just to let you know that a tender scalp is quite common when you start to lose your hair though it will stop once you've either shaved or your hair has dropped of its own accord. I decided not to rush to the shave and so was halfway through my third cycle before I did it - I was just soooooo fed up of looking like Golum. But it was a relief once I'd done it and I could stop going around the house with one of those sticky tape style clothes brush contraptions picking up stray hairs - my wig went on much easier too!!!

Sue xx
Member

Re: October 2018 Chemo starters

Hi Everyone, 

 

Been interested in how everyone is getting on with all this rubbish. A little break always sounds like heaven but a distant dream for me.

 

So a quick update, 2nd chemo last Tuesday took 6 hours as I had my first Zometa infusion. Felt pretty rubbish for a couple of days but now on the way up! My main problem has been my bowels. In trying to solve my constipation my oncologist caused the opposite problem, probably not helped by the chemo and I was wake all night on Thursday with what I can only describe as extreme nappy rash! Nothing soothed it and in desperation I rang my GP who gave me an emergency appointment. To cut a long story short, I think my GP was a little shocked by what the oncologist had given me and told me to stop everything and let my system settle, he also prescribed some suppositories 😲 and cream. It’s still burning like mad but at least I got some sleep last night.

 

Fiona, I am a little ahead of you in the hair loss race. On day 14 I noticed my hair starting to drop. Now on day 25 it’s getting thinner and thinner, and to be frank is driving me mad! It’s everywhere. So I rang my hairdresser and he is going to sort it out on Monday as I can’t go on like this much more. I even went out in a hat yesterday, as I still can’t face wiggy wig! 

 

Anyway, as I am feeling more human today I might get out in the garden later and do something useful.

 

Hug to all.

 

x

 

Community Champion

Re: October 2018 Chemo starters

Hi Sarah and all the October ladies.

Sarah, we're all here for you holding each other's hands while trying to get through this 👭💪

I'm losing more hair each time I touch it. I was hoping to get to next weekend but now I'm just not sure. The top of my head is so tender, is that what everyone else has gone through? It's day 16 for me and I think I want to get this next milestone done of shaving.

As for a treat afterwards, we're supposed to be going to gran canaria in July with my sister and nieces, but I'm hoping hubby will take me away for a nice weekend between chemo and surgery 🤔 I think to be honest I'll just be relieved to have got through chemo but that's too far away at the moment so just one day at a time. I think a good walk is called for today 😁

Take care ladies, stay safe and warm and think positive happy thoughts. We will get through this 💪💪💪🥊🥊🥊

💜Fiona xxx
Member

Re: October 2018 Chemo starters

Cornwall sounds lovely! I keep looking but can’t decide Smiley Happy
I found my hair stayed in until this cycle. Fingers crossed it works for you, I’ve heard lots of positive it just wasn’t for me.
Member

Re: October 2018 Chemo starters

Sorry to hear you’re felt rubbish Sarah. I’m only in my first cycle and found day 4-5 worst. Such a brain fog and I couldn’t cope with noises (so especially the kids lol!).

It’s all passed now and this week my main lergy is a cold which has left me feeling bunged up and with a sore throat.

I’m reading all your hair stories. Now rapidly approaching day 14/15 and waiting to see if the cold cap has worked. To be honest if it hasn’t it’s one less faff on chemo day and I’ve got my wig and some scarves lined up.

Totally hear you on booking something to look forward to at the end of this. I’m looking at a week in may half term in Cornwall. Thought about abroad but it’ll be tricky to book in advance what with the insurance. Also not sure how much energy I’ll have, like you say fatigue is a factor.

Have a good weekend all! X