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October 2019 chemo starters

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Re: October 2019 chemo starters

Morning,

 

Glad to hear it's not treating you too bad Julesintheweald.

 

I'm struggling alot with nausea and sickness..  was awake all night last night. Just hoping it passes soon.

 

Lou

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Re: October 2019 chemo starters

How are you doing Lou ?  I started Tuesday and Wednesday ....  suffering a bit with back ache but that’s the type of chemo I am on.  Wasn’t as bad as I expected and no sickness !

 

hope u r ok x

 

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Re: October 2019 chemo starters

Claire ❤️ You will all soon get into a routine with it and you’ll all be rowing that boat together 💪💪sometimes someone will nip off for a coffee break and a bun then jump back on a rowing seat 💪💪💪 keep focused the Hawaiian beech is on the horizon you just keep paddling in the boat and hit any sharks with your oars that have any other ideas of getting any of you out the boat 👭👭👭stick together 👍👍💕💕✨✨Shi xx

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Re: October 2019 chemo starters

Hey,

How is everyone doing? Purpletrunks, do you feel any better today? 

I start my treatment on Mon and am having my port put in the same day. I spent the last few days gathering some essential items, picking out a wig and booking an appointment to have some eyebrows drawn on! Things I never expected to do. 

Trying to be as normal as possible whilst feeling so far from normal it's mad. 

My thoughts are all over the place and I guess it's mostly the unknown. 

Hope everyone is doing ok. 

 

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Re: October 2019 chemo starters

Purple trunks ❤️👭please ring your unit to check all ok, chemo can make everyone have different se’s So alway better to keep safe and ring and check 😘💕💕✨✨Shi xx

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Re: October 2019 chemo starters

Hey,

 

So I'm 24 hours post. Had an awful evening... nausea built and built alongside a headache and then I was very violently sick. But it did give me some relief and I managed to sleep. 

 

I just started my stetroids this morning. Really hoping they will give me a boost. Anxiety is definitely playing a part but I'm fairly sure it's not psychosomatic. I was sure I'd be fine until 3-4 days post, and generally I'm not a sicky person. 

 

I have been wearing my anti sickness bands. I took them off last night to get ready for be and that's when my sickness got really bad.. dont know if it's a coincidence.

 

Anyone else get a headache? I think it must be the anti sickness meds. 

 

 

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Re: October 2019 chemo starters

Aj72, you’re straight in on the sickness med gold standard then!  Anxiety may be at play as having chemo it’s quite a big thing psychologically to start with.

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Re: October 2019 chemo starters

Thanks Mai

 

I've been given Emend which ends today.  I’ve also now ‘when needed’ sickness meds to take so I’ll see how tomorrow goes 🤞🏻  Not sure whether it’s psychological too. I know it’s a side effect so is my brain telling me I should have it  🤷‍♀️ Who knows ? 

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Re: October 2019 chemo starters

The Emma hannigan books were inspirational too ❤️ Amazing brilliant lady ❤️ 💕💕✨✨Shi xx

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Re: October 2019 chemo starters

Aj72, if your anti sickness meds aren’t working effectively don’t hesitate to ask for an alternative.  The top one is Emend, apparently, but it’s more expensive so you have to ask for it.  I didn’t need it as the one I was given was enough.  Hope the queasiness wears off soon.  I found ginger tea and gingernut biscuits helped.

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Re: October 2019 chemo starters

Hey Lou 👋 

 

How’s your day been so far?  I hope it all went well. 

 

I’m on day 3 and other than feeling little waves of queasiness (not all the time) I’m ok so far. I’ve invested in travel sickness bands to see if they help. Last day of steroids tomorrow so the ‘wall’ may be looming 😀

 

Keep us posted as to how you are doing 💋💋

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Re: October 2019 chemo starters

Hopefully I will be starting this Friday. Had a lung infection that needed antibiotics first and getting that checked tomorrow. Hoping (and dreading) I will be good to go! 

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Re: October 2019 chemo starters

I'm jumping in the boat today 😳

 

Anyone read the book Room? She coins the phrase 'scave'... scared but brave. Seems about right.

 

 

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Re: October 2019 chemo starters

Sorr get your oar ready, sorry it changed to par, it’s not the waltons 😁xx

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Re: October 2019 chemo starters

❤️Mai7, May17 and july17 threads guided us through back in oct17 as you will do to threads that follow you ❤️❤️ mai7, blog is amazing please read it ❤️ good luck today anyone who’s jumping in the boat with aj, get your par ready 👍💕💕✨✨Shi xx

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Re: October 2019 chemo starters

Glad we have a few of you helping each other now.  Shi was an Oct 17 starter and has lots of good tips as she was looked after by our May 17 starters.  Heart  I created a blog to share.  It has all of the tips we gathered so I wouldn’t have to keep saying the same thing over again.  Here it is if you want any suggestions for chemo prep: http://lifeafterlola.com/

 

Hope all goes well.  Just take it one step at a time.  You can do this. I had 8 rounds of chemo and I’m still here! Just be vigilant with your temperature and don’t hesitate to call the chemo helpline at your hospital if it spikes.

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Re: October 2019 chemo starters

Thinking of you all as you start chemo, I was in the Oct'17 group with Shi. One thing that I found that worked for me was wearing the travel sickness bands during chemo and for a few days afterwards x

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Re: October 2019 chemo starters

Aj 👍 you’ve jumped in front seat of the boat for the Oct 19 crew, who’s next jumping in with aj 👍 bit of old Hawaii 5 O theme tune playing in the boat, oars at the ready 👍 Drink lots of water, keep vigilant, ring your units if you don’t feel right even with no temp 👍 rest when your body tells you to and anyone still with rapunzel tresses, think about donating your hair to little princes trust they make wigs for children ❤️❤️ 💕💕✨✨Shi xx

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Re: October 2019 chemo starters

Hi Purpletrunks, my login wouldn't work this morning so I'm now Rubyblue2! 

My daughters are 10 and 7 so pretty much the same as you Smiley Happy

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Re: October 2019 chemo starters

Hi Everyone

 

So had first FEC today.  Had to wait an hour or so over appointment time but once we got started it was fine.  Saline drip whilst waiting for the anti sickness meds to kick in. Then 3 syringes of a pretty red drug then 2 of a milky substance and then a drip bag of the third drug for 30 minutes finished off with a 10 minute saline flush.  Altogether about 2 hours. 

 

When the drugs were syringed in I could feel the liquid go up my arm - it was just a cold feeling tho not painful in any way. 

 

Left then hospital and went to the pub for tea. 😀

 

All in all it it wasn’t a bad experience and the staff were lovely but as we know it’s the side effects rather than the actual infusion.  So bring it on let’s get this October party started. Hair loss will commence in around 2 weeks time but I’ve made the decision to shave off my ‘mum bob’ much to my daughter’s delight and she can’t wait to do it 🤣🤣🤣. 

 

I feel fine although a little tired but it has been a long day of sitting around and waiting. Off to bed now - let’s see what tomorrow brings !!!!

 

Goodnight and good luck October ladies. I’ll check in again tomorrow - we’ve got this

💪💪💪💪

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Re: October 2019 chemo starters

Weds 0915. Nerves are getting up, but I just want to get on with it  


@julesintheweald wrote:

Hi Lou

 

when do start your treatment?

 

best wishes

jukes

x


 

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Re: October 2019 chemo starters

Hi Lou

 

when do start your treatment?

 

best wishes

jukes

x

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Re: October 2019 chemo starters

Hi Rubyblue,

 

I'm 41 with two kids two. Mine are 8 and 10 ... how old are your daughters?

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Re: October 2019 chemo starters

Hi. I'm 41 with 2 young daughters and was diagnosed with IDC at the start of August after finding a small lump- it's ER+ PR+ HER2- . I had surgery at the start of September and although it was only small was found to be in my sentinel lymph node so I need the full works of treatment starting with chemo- no date yet but my appointment with the oncologist is next week. Dreading chemo I have to say with fear of the unknown I think as much as anything but I've been reading up on lots of tips from other threads on products to use for nails etc and started buying a couple of bits. Got an appointment for a wig fitting at the end of the week to make sure I'm prepared xx

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Re: October 2019 chemo starters

Hiya !

 

good luck with your treatment today I am starting tomorrow with the targeted drugs and the chemotherapy on Wednesday I am apprehensive but just want it to happen now so we get this gone.  

 

I am am going to try the cold cap but if too uncomfortable I am going to embrace my bald head. I have the wig lady coming round this pm to discuss one but I have ordered some nice beanies & scarfs.

 

lets kick this ladies ! 

 

Jules

xx

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Re: October 2019 chemo starters


@Purpletrunks wrote:

Good luck for tomorrow Amanda, let us know how it goes 😊😊😘

 



@Purpletrunks wrote:

Good luck for tomorrow Amanda, let us know how it goes 😊😊😘

 


Thanks Lou 

 

Had a busy weekend disinfecting the house to try and lower infection risk. 

 

Hubby and I went for a ‘new patient’ chat at the chemo unit on Friday and all went well. Nurses were lovely.  Room was very relaxed and patients who were having treatment seemed unfazed by it all. 

 

I’m starting to feel nervous but more about the side effects than the treatment.  Just wish the first one was over so I know what to expect next time.  

 

I’ll report back tomorrow evening and Tuesday to let you know if I’m beginning to experience anything strange 🤣

 

Good luck ladies. We’ve got this 💪💪💪

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Re: October 2019 chemo starters

Good luck everyone else here too. 

 

Just for those who night already know, how do you even go about getting a wig? I'm trying the cold cap but my hair is fine and falls out anyway so I'm not holding out much hope! 

 

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Re: October 2019 chemo starters

I'm from the Oct'17 group with Shi. Thinking of you all and just wanted to confirm what Shi said about the travel sickness bands. I wore them whilst having chemo and for a few days afterwards and wasn't sick at all. I don't know if it was definitely due to the bands, but they might be worth a try x

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Re: October 2019 chemo starters

Hi emzlew ❤️ Loose comfy clothing, sleeve that will easily roll up, all ask to soak your arms in warm water in sharps bin if your trusts don’t do it and ask for heat pad on arm while they administer it 👍 I sucked ice lollies while they put the red one in, it helped preserve mouth for me but others didn’t do it and we’re fine. Drink water and then get 2-3 Litres through a day during chemo. The red one will turn you wee pink for a bit, if it’s pink still be next day just ring your units to check 👍 chemo is an extra dr on the inside 💪💪 if your antisickness meds don’t work, ring your unit, they will try different combinations till they get you sorted, main thing is to do everything your teams tell you ❤️ They know exactly what to do 👍👍to help you navigate through 👍👍 you can take a magazine, but you find you’ll chat to others having it too and before you know it, the nurse says done and off you go home 😁 you’ll find it’s more like having a get together each time with friends as you all chat away each round in your trusts 👭👭❤️❤️You’ll meet amazing people and make some fabulous friends ❤️❤️ 💕💕✨✨Shi xx

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Re: October 2019 chemo starters

Hello again !  

How are we all doing? ❤️

This week has been a strange one.  I've been a bit wobbly, a little up and down with my emotions.  I guess it's just starting to get a little closer to beginning treatment and the magnitude of what's to come is a little more real...

I had my ECG and echo on Thursday last week and I'm having my PICC line attached this Tuesday.  I will be beginning FEC-T on Friday the 4th.

I have babysitters organised for both days and now just anxious to find out how I will be after treatment?! 

I'm collecting my wig on Tuesday too for just incase.. 

I will have a go with the cold cap but seeing someone with it on last week made me think I'm really not so sure I want to bother?!   

Can anyone tell me what I should take to my first session?  

I've had a lovely chemo gift bag given to me which was really thoughtful but what do I actually need with me on the day apart from a puzzle book or my iPad?! 

I'm so anxious but I'm still super positive!!  💪🥊❤️

Lots of love and strength being sent to us all xx

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Re: October 2019 chemo starters

Hi, I'm 61 and married with two sons of 21 and 23. I was diagnosed in July with invasive breast cancer ER - HER2+ .

I had SNB and WLE in August with clear nodes and margins. The tumour was only 7mm but high grade so I have to have chemotherapy. I start soon on Paclitaxel every week for 12 weeks plus  Herceptin for a year. Got heart scans and pre-assessment booked for the next week or so. No date but it will be October.

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Re: October 2019 chemo starters

Good luck for tomorrow Amanda, let us know how it goes 😊😊😘

 

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Re: October 2019 chemo starters

A thermometer too keep a check on your temperature during chemo. Any pee burning but no temp ring your rapid response, it’ll be a uti and will need treatment, no drinking a bit of cranberry juice not while on chemo. If anyone gets thrush mouth (lots of us had it from the chemo) make sure you get fluconzole don’t get fobbed off with drops. Always ask your oncs when you have appointments for bottle of difflam too. If you get sickness, then ring your unit, they will tweak meds till they get combination right for you, no need to try and battle through. Others have had seabands and it’s worked fine. The girls on the thread I was on that cold capped only washed their hair once a week and both did well 👍this is your journey you do what’s right for you every step of the journey. Trust your team, they’ve seen it all before and they will take care of you and support you. ❤️💕💕✨✨Shi xx

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Re: October 2019 chemo starters

Thank you! I've got to get a shopping list together next week I think!! 

:-)

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Re: October 2019 chemo starters

Hi Claire, sorry you find yourself on here. A good book I had was Patricia prijatel surviving triple negative breast cancer. Please use the someone like me option and ask the nurse option on here it will help about your little boy. There have been lots in same place you are right now and they will be able to help 😘 keep of dr google. Get your teeth seen to before starting, tell dentist you are starting chemo and they will get you in. Oral hygiene is important during chemo. Get soft toothbrush, some difflam, baby bum wipes, anosol, senokot or movicol or something as the steroids block you up on ec or fec then on t you can get hurricane bum. Please don’t worry 👭👭👭great people on this thread will 👭👭👭you through all together because together you are 💪💪💪💪. Get yourself booked on a look good feel better at your Macmillan centre too gives you something nice to look forward too and about £200 free makeup and how to apply lesson from a professional 👍💕💕✨✨Shi xx

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Re: October 2019 chemo starters

Hi everyone,

I'm 35, married with a two year old son. I was diagnosed with idc in July 2019. It was by complete luck that I found it. It was the other side I was initially worried about! 

I've had a lumpectomy and removed 5 lymph nodes. Margins and lymph nodes have been clear which is great. Unfortunately mine is triple negative. I had a meeting with my oncologist yesterday and we start an accelerated regime (14 weeks) of chemotherapy on 7th Oct (EC and taxol). 

I'm planning on trying the cold cap. I'm having my portcath fitted on the 7th too so it's going to be a busy day. 

Biggest worry is how my little boy will be and how much I will be able to look after him. 

Dreading the whole process to be honest. 

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Re: October 2019 chemo starters

Gosh, you have been busy with treatment already! 

 

This will be my first treatment... so the damn thing is still in there Smiley Mad

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Re: October 2019 chemo starters

I too just want to get it started !

 

I’m 47 year old, married and mum of an 18 and 16 year old. Hubby, kids, family and friends have been great about my diagnosis and are all very supportive.  

 

I found a lump and was diagnosed with a Grade 2 IDC in May. Had a lumpectomy and SNB in June then further surgery to clear the margins in July. Saw surgeons in August who said tumour site was clear and was then referred to Onc in mid September.  The time between each follow up appointment has been 3-4 weeks so it seems to be dragging on. 

 

I am ER+ and HER2+ and need 6 cycles of FEC followed by 4-5 weeks of radio with Herceptin injections every 3 weeks for around 18 months; then anti hormone tablets. 

 

I have a heart Echo and bloods to be done tomorrow the visit to the Chemo Unit on Friday morning. No doubt I’ll be given loads more information to digest over the weekend 🤪🤪🤪

 

We’ll be fine once we get that first session under our belts !!!! 💪💪💪💪

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Re: October 2019 chemo starters

Hi Amanda,

 

Good to have you here! 6 days to go huh? How are you feeling?

 

I worked out all my dates earlier, and if they stick to every 3 weeks my 5th chemo will be on Christmas day!!! Woman Surprised 

 

Really wish I could just get on with it, although dreading it at the same time!

 

Lou x

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Re: October 2019 chemo starters

Right looks like aj72 is jumping in the lifeboat first for oct19 thread 💪💪💪 bit of n-trance set you free on chemo jukebox to get you all 💃🏻💃🏻🕺🕺💃🏻💃🏻 Through 😘💕💕✨✨Shi xx

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Re: October 2019 chemo starters


@Purpletrunks wrote:

Hi,

Anyone starting in October? I couldn't see another group?

 

Lou x


Hi Lou 👋 

 

I’m actually due to start FEC on 30th September but thought I’d join the October group rather than join the September party really late !!!!

 

Amanda x

 

 

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Re: October 2019 chemo starters

Just jumping in here - I didn’t get a list of chemo no’s or yes’s of any kind so have carried on as normal, including swimming. No problems to report.

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Re: October 2019 chemo starters

Got my dates today..

 

1st Fec oct 2nd 😬😬 

 

3 x FEC then 3 x something else with herceptin/pertuzumab.

 

Feel like the lump has grown today, but maybe it's because I've come off my period and they are less swollen. 

 

 

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Re: October 2019 chemo starters

I painted my nails black during chemo as did mai7 and we kept our nails ok, the chemo can impact your nails, other ladies have used a cuticle oil (sorry can’t remember name of it) but that’s worked well too 👍💕💕✨✨Shi xx

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Re: October 2019 chemo starters

You all need to check with your onc’s too About supplements, I had to stop turmeric, match powder (type of green tea), rosehip tablet, so please check with your oncs what you can and can’t take during chemo 👍 💕💕✨✨Shi xx

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Re: October 2019 chemo starters

Thanks for caring Shi ❤❤. Already got swimming on the NO list for chemo time. 

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Re: October 2019 chemo starters

Purple trunks please check about swimming while on chemo ❤️Keep safe 💕💕✨✨Shi xx

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Re: October 2019 chemo starters

Morning Emzlew,

Wow, how utterly gorgeous and chaotic to have twins after two other lovelies. 

 

Isn't this a weird limbo time waiting for it to start? I already feel below par, not ill just very tired and low in resilience. Not sure if it's the stress or the cancer.

 

I am meeting my oncologist today to find out my dates... bit nervous although I dont know why. 

 

I have to have a marker fired into the lump on weds... did you guys have this? I dont remember my biopsy as they had just told me it was cancer, but I have really struggled to recover from it. Still cant swim 2.5 weeks later. 

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Re: October 2019 chemo starters

Hello all

I found a lump on August 6th and was diagnosed with stage 3 BC that has spread to my lymph nodes.  HER2+ 

I am 42, married to my amazing wife and we have 4 children.  18, 5 and almost 3 year old twins. 

It's such a rollercoaster of emotions.  I am so positive and yet it still hits me like a runaway train. 

I am having my PICC attached on the 1st and my first chemo on the 4th.  I'm having 7 rounds HEC-T with Herceptin and Pertuzumab for a year. Followed by mastectomy and radiotherapy.

I have already cut off my hair in preparation and ordered a wig for any bad no hair days. 

I've got most of my chemo kit together (apart from the wipes and anusol 😳)  I'm pretty overwhelmed at the magnitude of it all at the moment and the amount of help I'm going to need with my youngest pair but i'm ready for my fight!!  We've got this!! 💪💪 xx

 

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Re: October 2019 chemo starters

Hi purpletrunks, Chemo caddy shopping list as well as baby bum wipes and anosol, thermometer, silk pillowcase if not cold capping, get some lip balm and udderly smooth with extra urea cream from Amazon, it was only thing that quenched dry skin caused by chemo for a lot of us. I did graph chart and monitored my 3 weekly cycles, some people use travel sickness bands. Difflam mouth wash, soft toothbrush, I had a scalp care kit from beauty despit cancer, just one of the many tips mai7 👭passed onto us that were oct17 thread. The look good feel better session is where you get a bag of makeup and a beauty expert in at your Macmillan centre and they show you how to recreate brows, lashes and other great tips too all for free. 💕💕✨✨Shi xx