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October 2019 chemo starters

KathCurtis
Member

Re: October 2019 chemo starters

Thank you aj72 for this info re Boots, will look into it!

 I started chemo yesterday and survived the cold cap. No nausea yet. Hurray! I did sleep 17 hours straight afterwards though 😮. It feels such a relief to be getting on with treatment at last, two months since I went to GP with lump! Actually the health service has been great - kind and efficient, I just got delayed because I had a lung infection, bad timing that!

hope everyone is doing great today x

 

aj72
Member

Re: October 2019 chemo starters

Hi all

 

As well as the pampering sessions, check out your local Boots store as they may have a Macmillan Beauty Advisor who can offer advice on hair, makeup, nails and skincare ...  I’m going to mine after my head shave 💋

 

https://www.boots.com/health-pharmacy-advice/macmillan/feelmorelikeyou

 

 

ajatron23
Member

Re: October 2019 chemo starters

I will let you all know on the course. It comes right before my next round so no doubt I’ll need it by then!!

 

not to scare you all but please keep an eye on your temps. I ended up in a and e last night (not bad for less than 24 hours into your first round 😳). I’m fine and they were amazing but never think you are being a nuisance. We all need fast action if it’s ever required. 

I feel much better now btw!

 

annie

jasmine1897
Member

Re: October 2019 chemo starters

My mum has her PICC line fitted yesterday ready for her treatment on Monday. She said it wasn’t painful, and the procedure took about 50 mins. She then went for an X-ray and the line needed pulling out by 2cm and then all was well and good.  She is having Pertuzumab on Monday and then Herceptin and Docetaxel on Tuesday, so will update on this. 

I did a fundraiser for my birthday and raised £167.00 for breast cancer now - I’m glad this will be going towards this charity as it helps so many people, and it’s amazing to hear first hand experiences. 

jasmine1897
Member

Re: October 2019 chemo starters

Hi Annie

 

I’m glad your first chemo went well, and the cold cap was not as bad as anticipated! 

my mum has breast cancer and starts chemo on Monday. I have mentioned to her about the look good feel better course (I go with her to all the appointments/ tests so I can pick up info that she misses). It would we great to hear your feedback on the course! I’ve heard really good things from it. 

x

Shi
Community Champion
Community Champion

Re: October 2019 chemo starters

Emzlew please let your unit know ASAP if you suspect you are starting with a cold. You can’t be complacent during chemo, please keep safe 💕💕Shi xx

ajatron23
Member

Re: October 2019 chemo starters


@KathCurtis wrote:

Dear ClaireL and Emzlew

it’s a hell of a rollercoaster. Some days are just crap. Lots of low points and tears for me. But then I have also experienced kindness and love from friends and family and that has warmed my heart hugely. I think we just have to let the feelings wash through us and trust that it won’t always be like this. It’s hardest when you still have little kids and need to put yourself together for them, very tough.

Just heading out to my first chemo. It’s like jumping in the deep end when you don’t know how to swim!

wishing everyone as good a day as possible x



@KathCurtis wrote:

Dear ClaireL and Emzlew

it’s a hell of a rollercoaster. Some days are just crap. Lots of low points and tears for me. But then I have also experienced kindness and love from friends and family and that has warmed my heart hugely. I think we just have to let the feelings wash through us and trust that it won’t always be like this. It’s hardest when you still have little kids and need to put yourself together for them, very tough.

Just heading out to my first chemo. It’s like jumping in the deep end when you don’t know how to swim!

wishing everyone as good a day as possible x




Hi all

 

just had my first round of chemo. I had the cold cap and i found it’s surprisingly ok 😃. We just have to wait to se if it works. I’ll keep you posted. 

I feel fine now. Relieved 😅.  I’m sure the fun is all to come but one step at a time. 

is anyone else going to a look good feel better course? I’ve booked on one just before my next round by which time I should have an indication of the degree of hair loss I can expect. 

keep strong everyone. 

annie x

KathCurtis
Member

Re: October 2019 chemo starters

Dear ClaireL and Emzlew

it’s a hell of a rollercoaster. Some days are just crap. Lots of low points and tears for me. But then I have also experienced kindness and love from friends and family and that has warmed my heart hugely. I think we just have to let the feelings wash through us and trust that it won’t always be like this. It’s hardest when you still have little kids and need to put yourself together for them, very tough.

Just heading out to my first chemo. It’s like jumping in the deep end when you don’t know how to swim!

wishing everyone as good a day as possible x

ClaireL
Member

Re: October 2019 chemo starters

Hey emzlew,

 

I feel exactly the same. I haven't slept all night tonight for some reason. Just lying here. Feel like my chest is playing up but it's not. I fear that every day. I try not to lie on the port side in case it digs in and does something to me. 

My little boy has a bug at nursery so I'm terrified he will get that now too. He brings all bugs home for the weekend every time. 

I too hope it passes for both of us because I just feel I have a black cloud following every move I make. Like my life isn't mine anymore. 

 

Take care my lovely, you're never a pain to rant here. 

 

Good luck with the fundraising Amanda x

aj72
Member

Re: October 2019 chemo starters

Evening all

 

Hope everyone’s doing ok and be going to feel better.  Thinking of those in the group getting ready for their first treatment. Try not to worry too much and remember we’re here to listen and help 🤗

 

I’m having FEC and so far have felt ok.  It’s Day 11 in the first of six cycles so still a long way to go - no signs of hair loss yet despite my hubby giving it a jovial tug daily. 👩🏼🤣

 

It’s Breast Cancer Now’s Wear It Pink day on Friday 18th and I’ve arranged a little fundraiser at my village pub and I’m shaving my hair off !!!!  If it’s gonna go may as well make it worthwhile 👩🏻‍🦲👩🏻‍🦲

 

Amanda 💋❤️

 

 

Emzlew
Member

Re: October 2019 chemo starters

Hi everyone

 

Yes Jencat, I'm on FEC-T 

I have 3 of FEC and then 4 of the Docetaxel with Herceptin and Pertuzumab. 

7 rounds in total and I had my first one last Friday (4th) next one due on the 25th

 

I just wondered if it got worse or much the same but I forgot that things change halfway.. ?! 

 

Does anyone else get the hot flushes?  Is that a thing? 

 

I'm feeling like I'm getting a cold tonight.  My little ones have had one and my wife so it's bound to happen.. 

Just typical it all happens at the very start! 

 

I hate how this has made me feel.  I'm such a positive person.  Always see the bright side.  I hate how this has made me into someone who is scared of their own Shadow...  I really hope this feeling passes!!  I'm scared to get a cold.  I'm scared of any ache and pain in my body.  I thought my heart was playing up on Monday (pretty sure it was indigestion).  I hate how is made me fear my beautiful children and what they might pass on to me!

I hate what its done to me!! 

 

I need to take a breather and regroup!  

I need to start to relax try and find the old me somewhere!  

Please tell me it's just a phase and it's all part of the process.  It will pass. 

 

Sorry to rant!  Just getting sick of the sound of my own voice (in my head) because I'm too scared I'm going to be pain to everyone if I keep talking about it!! 

But I need to talk about it.... Aaargh!! 

 

Is anyone from around Reading area?  Are there any good support groups you know of?

 

Thanks for reading this far... 🙈❤️💋💕💗

 

 

 

KathCurtis
Member

Re: October 2019 chemo starters

Good to hear from people. Really sorry to hear PICC and Ports have been so horrible to set up! But good to hear about cold cap working, going to give it a try!

i don’t think i am seeing all messages btw as some replies refer to ones I don’t think I saw. Do you all just look at October starters thread or is there another/better way to view? Anyhow hope we all get a good nights sleep.

Sending all good wishes

Susanmanchester
Member

Re: October 2019 chemo starters

I used the cold cap and it did work . Good luck ! 

Jencat
Member

Re: October 2019 chemo starters

Hi Emzlew,

I found FEC seemed to follow the same pattern, although I might have got a bit more tired as it went on. Docetaxol was the reverse, the first one was the hardest. I don't know if you're having the same, (sorry I can't remember what chemo everyone is having) but other chemo's might be different. Glad you're feeling brighter today x

Jencat
Member

Re: October 2019 chemo starters

Sorry to read about the problems with your PICC line today Annie and hope your chemo goes well tomorrow x

Jencat
Member

Re: October 2019 chemo starters

Hope your chemo goes ok tomorrow Kath x

Jencat
Member

Re: October 2019 chemo starters

Hi Claire,

I'm from the Oct'17 group and had FEC-T. I found that the 3 sessions of FEC seemed to more or less be the same, but with T I found the first one harder and the next two seemed easier, maybe my body had adapted by then to the change of chemo x

ajatron23
Member

Re: October 2019 chemo starters

Hi claire

 

like you I’ve had my eyebrows done. They were really dark but I’m really pleased how they have worked out now. 

I had two nurses try around 4 times each to sort my picc. Cried when I got home. I just need a good nights sleep to prep me for tomorrow 

 

I’m going for the cold cap. Anyone else doing the same?

ClaireL
Member

Re: October 2019 chemo starters

Hi all,

 

Had the eyebrows put on today. Currently look like a supervillain and the boy asks "what that on you mummy" as soon as I get him from nursery!! Straight out of the mouths of babes! They will get lighter and I'm pleased with what they have done.

My port has been my biggest pain so far apart from my first night after my first treatment. 

I'm sorry the picc line took so long to go in Annie! That sounds horrendous and I think I would have lost the plot!! 

I've heard cycles can be the same whilst you're on the same drug. Not sure how much changes when you switch though. 

 

Glad you're doing a bit better emzlew, been thinking of you all. Good luck with the start dates tomorrow and next week everyone. 

 

 

ajatron23
Member

Re: October 2019 chemo starters

Hi everyone

 

i have had my picc line put in today ahead of first treatment tomorrow. 

can I swear? Good lord. 2 hours to get it in (insert smutty innuendo here). 

tomorrow should be a breeze by comparison!!!

 

how’s everyone else holding up?

 

annie

KathCurtis
Member

Re: October 2019 chemo starters

Hello Emzlow

Good to hear you are feeling a bit better. Was that your first chemo? What’s your regime?

Tomorrow  I start 21 weeks of chemo, once weekly for 12 weeks then 3 weekly for another 9 weeks. Glad to start treating this tumour but not looking forward to the process.

hope everyone else is doing ok

xx

Emzlew
Member

Re: October 2019 chemo starters

Hello lovely ladies! 

 

How are you all?? 

 

I'm feeling much brighter today after feeling utterly exhausted all week! 

 

Do the symptoms follow a pattern each time after each chemo?  Do they differ?  Do they get worse?? 

 

Does anyone else keep checking their hair?  I keep expecting to wake up with my scalp on my pillow next to me?! 🙈😬

Purpletrunks
Member

Re: October 2019 chemo starters

It certainly will... I will walk every day now and be back up on the hills next week. Not much that stops me getting out into nature 😊😊😊😊

aj72
Member

Re: October 2019 chemo starters

Go Purpletrunks !!!!!!

 

glad the sun was shining too 🌞

 

gentle walking will help with fatigue, getting your energy levels back up, sleeping and your state of mind. One foot in front of the other - it’s what we do to get through this 👊🏻👊🏻👊🏻

 

Keep up up the great work 💪💪💪💪

 

Amanda 💋

ClaireL
Member

Re: October 2019 chemo starters

You are quite possibly a superhero! Well done lovely! You got this!! 

Purpletrunks
Member

Re: October 2019 chemo starters

Had to share lovelies... I just walked around the block. 🎊🎉🎊🎉🎊🎉🎊🎉 and the sun shone on me 😊😊😊. Its such a huge difference from yesterday and I just know I will be able to go a little further each day. It's a small win, but I'm taking it!!! Onward, upward ( until round two 🤣🤣🤣)

KathCurtis
Member

Re: October 2019 chemo starters

Thank you minimad. Very helpful feedback on chemo 🤗. I see respiratory doctor re my lungs and oncologist tomorrow. If all is ok i start chemo this Friday or on Monday next week. Xx

ClaireL
Member

Re: October 2019 chemo starters

That's amazing Lou, 

 

You're doing so well. Keep taking each day at a time. Thinking of you. 

 

Thanks mini mad, I'm hoping the chemo will keep it at bay with no recurrence. Time will tell. 

 

Claire

mini mad
Member

Re: October 2019 chemo starters

Hey KathCurtis

 

yes i am sooo relieved to be done with the chemo but even now i still have aches and pains and the fatigue/tiredness is pretty awful.  But i am finding that each day i walk my dog is getting quicker 👍👍👍

 

the chemo i found doable once you get into a routine at your chemo unit and getting your bloods checked everytime.  I had a PICC line put in as my veins in my hand arent too good after the first attempt with a cannula....  side effects are different for everybody,  i had most of them but not all at the same time.   You will be given premeds before your chemo and the nurses keep a close eye on you.   I saw people fast asleep whilst having their sessions.

the Filgrastim injections help keep your neutrophil levels healthy.  You will gradually learn all this as you go along.

what i will say is dont be afraid to ask about anything,  i was full of questions !

do you have a start date yet ??    Take care  mini mad xx 💖💖

 

 

 

mini mad
Member

Re: October 2019 chemo starters

Hi ClaireL,

 

im real sorry,  didnt mean to scare you,  everybody is different....i have Bc on both sides of my family including a cousin who had TNBC.

when i was diagnosed in March 2017 i had a lumpectomy and 3 lymph nodes taken.

margins where all clear.  Had 15 radiotherapy session over 3 weeks.

i was offered chemo but said no as the percentage improvement was minimal.   Told me 6% chance of recurrence.

 

fast forward to my mammogram thus February.  Called back to investigate suspicious area which turned out to be scar tissue thickening.  But in that time between mammo and results i had 2 lumps appear.  One was 6 cms n other 3 cms.  After biopsy both were confirmed as TN grade 3.   Shocked or what... 😳😳😳  

Had left mastectomy in April with 3 level 1 axill nodes taken.  Again all margins clear 👍

bcause i had radiotherapy before on the same left side you cant have it again.  12 weeks if chemotherapy which i survived with a few blips inbetween.

 

now i am seeing a bc nurse this friday for a general review and next month i see my chemo dr again.

my hair is starting to " sprout " as are my eyebrows and lashes 🥳🥳🥳 so hoping i will look a bit more normal when we go to The Canaries for a week at the end of next month.

 

any advice/information just ask...i usually catch up on this wonderful website every day.

so stay strong ladies....  we can and will beat this 💖💖💖💖  mini mad xx 💖💖

ps. I'm an older lady,  69 !!

 

 

Purpletrunks
Member

Re: October 2019 chemo starters

Hello Cherry.. welcome aboard 😘😘

 

Thanks for your kind words ClairL. And interesting about the higher dose if it's more spread out... ( I cant remember who said that, anyone else find the forum hardworking because you cant reply to specific messages? )

 

I seem to have turned a bit of a corner today. Managed to sit up st the table for over an hour. Feel like I'm coming back to myself so its ALL good. 

 

And someone mentioned the filgrastrim? I had 5 self-injected doses to boost nutrafils. They dont hurt if you inject really slowly. Supposed to be no side effects but they whacked me out a bit. But then I'm starting to think I'm a 'whacked out' kinda person 🤣🤣

KathCurtis
Member

Re: October 2019 chemo starters

Hi Cherry

Good to hear from you. This is a very helpful resource, i am also very pleased to have come across it.  So many kind and lovely new people to share this ride with!

x

 

KathCurtis
Member

Re: October 2019 chemo starters

Hello minimad

Really pleased you joined in.  It sounds like we have similar scenarios with Claire but all slightly different (our ages, how long we had the tumour, how large etc) and slightly different treatments.

 I am 56 and had a clear mammogram in Jan then noticed breast puckering in August and a grade 3 tumour found making its way into my chest wall.

How great to be through the chemo!

It would be very helpful to hear how you found the once weekly chemo. And what is the filgasrim?

How are you doing now?

Thank you 

x

ClaireL
Member

Re: October 2019 chemo starters

Welcome cherry, hope your journey is smooth x

 

Hi mini mad, you have my worst fear. It came back. We're We' triple negative the first time? How did you find it came back? I will have regular scans but mammograms didn't pick anything up for me because I'm too young. 

If it comes back is the treatment the same? 

I'm hoping the acceleration of doses keeps it away. It's harder to know with triple neg. 

 

So many unknowns 😞 

 

mini mad
Member

Re: October 2019 chemo starters

Hi KathCurtis and Clair

 

hope you dont mind me jumping in here.

i'm from the June 2019 chemo thread and was also diagnosed twice,  2017 and this March as Triple Negative.

I also had 12 paclitaxel, one a week for 12 weeks and carboplatin every 3 weeks for 12 weeks plus tummy jabs Filgastrim  for 3 days after each session.

 

i finished by chemo 7 weeks ago so if you want to ask anything about my journey then please do.   Good luck to everyone...

mini mad xx 💖💖

ClaireL
Member

Re: October 2019 chemo starters

I'm so sorry Lou that you're feeling so bad. I wish I could help more. 

Please keep talking so we know you're as ok as can be. 

I'm sending you lots of love. I hope everything gets easier for you as the weeks go on. 

 

Xx

Cherryp
Member

Re: October 2019 chemo starters

Hi everyone. My name is Cherry and I'm pretty certain now I'll be joining the October gang on Friday 18th. Reading here has certainly helped to calm my nerves.

 

I was recently diagnosed as Triple Negative in just the left hand side and so far it looks like my lymph is clear. I'm going to have chemo first and so have been having an endless assortment of scans which I hope are all proving I caught this early.

 

I found a lump about a month before my routine 50 year old mammogram. I mentioned it at the scan and they called me back for ultrasound and then a biopsy. Had I not mentioned the lump they would not have called me back as apparently my lump is very very shy when it comes to mammograms so I have been telling all my friends to get feeling and not rely on the scans. Hopefully all goes to plan. All I know so far is I will have Accelerated EC-T so 4 lots of 3 weeks and then 4 lots of 2 weeks. Then lumpectomy and then Rads. It's a long road but nice to know there is a friendly bunch here to share the ride with.

KathCurtis
Member

Re: October 2019 chemo starters

Hi Purpletrunks and all

I think the Macmillan nurse at our Intro to Chemo talk sad that when you have the more spaced out regime you actually get a higher dose at each treatment, so perhaps it impacts highly initially but maybe you will then pick up again before the next one? Hoping for you!

x

Purpletrunks
Member

Re: October 2019 chemo starters

Hey, great to hear you dont have too many side effects. I cant imagine having this every two weeks!! My nausea and digestive issues have cleared up a bit but I am totally whacked out. It kind of hit me like a train 3 days post chemo, and 7 days on I'm still very weak. I managed to get to a echocardiogram monday but my husband had to use a wheelchair as i couldn't walk. Yesterday i managed to use my brain in the morning to do some internet purchasing from bed, but by the afternoon I was so weak I couldn't even lift my phone. 

 

Tbf it's not unpleasant, I'm not in discomfort now the nausea is lifting, just surprised at quite how smacked out I've been. 

 

I hated the steroids, they stopped me sleeping, so I'm glad they are done for now. 

 

I'm also losing weight at a worrying rate... but hopefully that will stabilise as I get stronger again. 

 

How are the rest of you getting on? 

ClaireL
Member

Re: October 2019 chemo starters

Hi Kath,

I'm on two weekly doses of EC followed by paclitaxel. Should be about 16 weeks in total. Then radiotherapy I think. They're doing an accelerated regime because I'm young and can tolerate it in theory. 

I'm doing ok at the moment. No more sickness (touch wood). Finish the steroids soon though so not looking forward to anything that is helping. The immune boost injection has been ok, no side effects so far. Just tired mainly. 

Hope everyone else is ok? 

 

KathCurtis
Member

Re: October 2019 chemo starters

Thank you for sharing the company details Claire. And I see we are both in the triple negative pot - so we are perhaps/probably having same chemo: Paclitaxel and Carboplatin? I will be once weekly for 12 weeks and then 3 weekly for 3 more.

Hope everyone is doing ok today?

ClaireL
Member

Re: October 2019 chemo starters

I'm triple negative too Kath! 

 

The place I'm going to is hair to ware. They are very good. 

//www.hairtoware.org/about/

It's not quite London but there are very good places around too. Hope this helps!

 

 

 

 

ajatron23
Member

Re: October 2019 chemo starters

Thanks Amanda! You've made me feel much better Smiley Wink. I just need to relax a bit and take each day as it comes. It's nice to know we have each other on here.

 

Annie

 

KathCurtis
Member

Re: October 2019 chemo starters

So sorry to hear it’s been quite an ordeal Claire. Hope you feel better soon. Thank you for eyebrow advice. If you are London based would you feel able to provide the name of the service you are using? Please excuse me for asking if that doesn’t feel comfortable and I absolutely understand! Thank you 

KathCurtis
Member

Re: October 2019 chemo starters

And just to add to that very specific question: it sounds like you are all being as strong and sensible about looking after yourselves and those you love as anyone can be in these challenging circumstances. I have had chemo start date delayed twice now, once because of lung infection and once to get worked up to join a trial. Seeing oncologist and respiratory doctors on Thursday and hoping to get the go ahead. Really want to start a treatment for this damn thing. Had triple negative mass diagnosed about a month ago after a clear mammogram in January!

ClaireL
Member

Re: October 2019 chemo starters

Hi Kath and everyone,

 

My eyebrows will be microbladed. The first session is Thursday. I am using a salon that specialises in chemotherapy patients. I got my wig from there too. They have been really good with advice and have treated loads of people before me so I have confidence in them. 

 

First treatment was yesterday. They couldn't get the port in properly the usual way so they went through my neck so that is sore. The sedative I had for that completely wiped me out so I couldn't face the cold cap. I feel like I let myself down but I just couldn't go through more pain. 

The treatment itself went fairly smoothly. I had some anti sickness when I got home. I managed to out my boy to bed at least. I was up every hour with nausea and heaving with nothing coming up. Today I feel weak and slept most of the morning. I got out for a bit this afternoon to run a few errands with some help. I even ate a jacket potato!

Here's hoping it just gets better from here.

Sending lots of love to you all x

 

KathCurtis
Member

Re: October 2019 chemo starters

Hi Clare

can you tell me about your eyebrows please! I was thinking of getting microblading done but I have seen some advice against this so close to starting treatment because of a risk of infection. Did you go down this route or try some other method? Very grateful for anf feedback you have!

 Thank you 

kath

aj72
Member

Re: October 2019 chemo starters


@ajatron23 wrote:

Hi Everyone

 

I am an October chemo starter. I found a lump (turned out to be two) back in May and it all escalated very quickly from there. I have had two lumpectomy operations, and thankfully my nodes were clear. I'm ER+, HER2+.

 

I have felt really strong but now the big day is looming (Friday for me), I'm a bag of nerves and feel totally unprepared. I'm having 4 x EC_Paclitaxel, every 3 weeks, and then 12 more lots every week. I'm having Trastuzumab too.

 

What kit do i need? And what are the must do's and don'ts? Apologies as this is repetitive of lots of peoples questions. I'm going to try the cold cap although I have not been given an overwhelming sense of optimism about this.

 

I have two young kids, and a fantastic husband, family and friends network of support too.

 

Is it strange just to want to get on with it now and know what I'm up against?

 

 


Hi ajatron23

 

Welcome to the October chemo boat !!!!

 

I had my first treatment on 30th Sept and have to say fear of the unknown is the worst thing ever.  Be assured tho the treatment you are about to undergo will

come to an end although the ride may be a little bumpy.  😀

 

I think the biggest thing for me is to have no expectations. I’m taking every day as it comes. I’m keeping life as ‘normal’ as possible, eating well, getting out for walks (not too far obviously), resting and most of all trying to keep stress levels down.  I’ve downloaded a couple of cancer meditation apps (just to zone out and listen to the waves or a soothing voice).  

 

I know chemo has side effects (some unpleasant, some painful and some dangerous) and we have to be extremely vigilant. I would say tho that I find sometimes overthinking these would cause me to have them.  Obviously don’t ignore symptoms but sometimes the art of distraction can be useful.  Go for a short walk, listen to music (have a little dance), listen to a meditation, take a nap to relax and reset your battery.  Sometimes we can become overwhelmed with our diagnosis and the information we’re given and expect the worst.  Optimism and positivity is the way forward !!!! 

 

Your support network is key. As a working mum I found it hard to take a back seat in the household running and not being at work but why shouldn’t we allow ourselves to be looked after?!  We’ll all be back at work and doing the household running again before you know it and complaining we’ve no time 😉 Make the most of the help you can get and accept that people only want the  best for you so you can get better. If your partner, family member or a close friend was ill, you wouldn’t allow them to overdo things right 🤷🏼‍♀️

 

For your treatment session wear comfortable clothes, take food (if you’re there around meal times), snacks, boiled sweets, drinks (no wine or gin 😉), a book, magazines, tablet to play games or listen to music or meditation (don’t forget your headphones 🎧). 

 

I love puzzles however some of my chemo is administered by syringe into my cannula by a nurse. Great cos I get to chat to my nurse for half an hour or so (and she appreciates the half an hour sit down in a very busy unit!). However I’m left handed and this is the side on which I receive my chemo. Typical 🤦🏼‍♀️🤣

 

Try to relax ready for Friday. Do things you enjoy to fill your days and unwind; try not to stress too much. When Friday comes be strong, take a deep breath, relax, look around you at your home and family and remember YOU WILL GET THROUGH THIS !!!!! 👊🏻👊🏻❤️

 

Always here for a chat or a rant😊

 

Amanda 💋

 

 

ajatron23
Member

Re: October 2019 chemo starters

Hi Everyone

 

I am an October chemo starter. I found a lump (turned out to be two) back in May and it all escalated very quickly from there. I have had two lumpectomy operations, and thankfully my nodes were clear. I'm ER+, HER2+.

 

I have felt really strong but now the big day is looming (Friday for me), I'm a bag of nerves and feel totally unprepared. I'm having 4 x EC_Paclitaxel, every 3 weeks, and then 12 more lots every week. I'm having Trastuzumab too.

 

What kit do i need? And what are the must do's and don'ts? Apologies as this is repetitive of lots of peoples questions. I'm going to try the cold cap although I have not been given an overwhelming sense of optimism about this.

 

I have two young kids, and a fantastic husband, family and friends network of support too.

 

Is it strange just to want to get on with it now and know what I'm up against?

 

 

Emzlew
Member

Re: October 2019 chemo starters

Sorry ClaireL

 

I just read back and I see it's your first treatment today!  

I hope all goes well xx