66334members
349583posts
cancel
Showing results for 
Search instead for 
Did you mean: 

October 2019 chemo starters

Highlighted
Member

Re: October 2019 chemo starters

Morning Emzlew,

Wow, how utterly gorgeous and chaotic to have twins after two other lovelies. 

 

Isn't this a weird limbo time waiting for it to start? I already feel below par, not ill just very tired and low in resilience. Not sure if it's the stress or the cancer.

 

I am meeting my oncologist today to find out my dates... bit nervous although I dont know why. 

 

I have to have a marker fired into the lump on weds... did you guys have this? I dont remember my biopsy as they had just told me it was cancer, but I have really struggled to recover from it. Still cant swim 2.5 weeks later. 

Highlighted
Member

Re: October 2019 chemo starters

Hello all

I found a lump on August 6th and was diagnosed with stage 3 BC that has spread to my lymph nodes.  HER2+ 

I am 42, married to my amazing wife and we have 4 children.  18, 5 and almost 3 year old twins. 

It's such a rollercoaster of emotions.  I am so positive and yet it still hits me like a runaway train. 

I am having my PICC attached on the 1st and my first chemo on the 4th.  I'm having 7 rounds HEC-T with Herceptin and Pertuzumab for a year. Followed by mastectomy and radiotherapy.

I have already cut off my hair in preparation and ordered a wig for any bad no hair days. 

I've got most of my chemo kit together (apart from the wipes and anusol 😳)  I'm pretty overwhelmed at the magnitude of it all at the moment and the amount of help I'm going to need with my youngest pair but i'm ready for my fight!!  We've got this!! 💪💪 xx

 

Highlighted
Community Champion
Community Champion

Re: October 2019 chemo starters

Hi purpletrunks, Chemo caddy shopping list as well as baby bum wipes and anosol, thermometer, silk pillowcase if not cold capping, get some lip balm and udderly smooth with extra urea cream from Amazon, it was only thing that quenched dry skin caused by chemo for a lot of us. I did graph chart and monitored my 3 weekly cycles, some people use travel sickness bands. Difflam mouth wash, soft toothbrush, I had a scalp care kit from beauty despit cancer, just one of the many tips mai7 👭passed onto us that were oct17 thread. The look good feel better session is where you get a bag of makeup and a beauty expert in at your Macmillan centre and they show you how to recreate brows, lashes and other great tips too all for free. 💕💕Shi xx

Highlighted
Member

Re: October 2019 chemo starters

Lovely to 'meet' you jules! I wish it was under better circumstances. It would definitely be good to keep in touch through this crazy time we will be sharing! 

 

I'm not 100% sure about work, hopefully I will be able to do a bit from home as I love what I do. Do you work? 

 

I have my appointment with my chemo consultant tomorrow, so will get my treatment dates. I thought my surgeon said the her/pe would be weekly but I wonder from what you said about 18 lots being a year if I will have 3 weekly injections. 

 

@Shi thanks for the wipes/annusol tips. I have my friends pulling together a list of survival tips and products so I will tell them to add it.

 

What's the macmillian feel good session? Will my BCN tell me about it? 

Highlighted
Community Champion
Community Champion

Re: October 2019 chemo starters

And book your look good feel better session with your Macmillan team ❤️

Highlighted
Community Champion
Community Champion

Re: October 2019 chemo starters

Hi mai7 ❤️ I met mai7 2 years ago oct17, she was finishing chemo and I was just starting and she guided me to the forum and her and May17 girls took care of us on oct17 thread. Get a thermometer to keep track of your temp during chemo, keep your units advised if you feel funny or anything during chemo, and on to the lifeboat as mai says, hang onto each other and you will get through and as unlikely as it sounds with a lot of laughs too. Get your wig vouchers from your trust, check out your Macmillan centres they have pre loved wigs too. Get your teeth checked before starting chemo, get some baby bum wipes and anosol (sorry to be so graphic) but the steroids can make it a bit 😲 keep 💪💪and keep 😁😁😁you can do this 🥊💕💕Shi xx

Highlighted
Community Champion

Re: October 2019 chemo starters

Glad we now have 2 people to share the October lifeboat!  I’m still in contact with my chemo buddies and we’ve met up too.

 

It is a rollercoaster of emotions at first and there is so much information to get your head around.  I think we are sometimes afraid of hope but at the same time we cling onto it.  This is why I share my story because I want you to know that even with an ugly diagnosis people do survive and get back on with life again.  The treatment regime feels overwhelming but just take it one step at a time.  Xx

Highlighted
Member

Re: October 2019 chemo starters

Hi Lou

i have only just decided to post on this forum, as it’s taken some weeks for me to come to any sense of what’s happening and strength to do this.

i totally am with you with all your fears and daily struggles.

i had my first mammogram in February this year which came back clear.  This is my 50th birthday year, so I had been enjoying holidays with friends and family, great family and home life, and career.  My husband and I celebrated out silver wedding anniversary in July so us and the kids went to Antigua at beginning of July - life was fantastic....

came back from holiday and I discovered a lump above my right nipple, which the GP thought was a cyst I was referred under two week wait ..ultrasound and biopsy a week later I was told I had 1.2cm invasive ducal carcinoma triple negative .... I was devastated.

since that time I have had the most excellent care by my hospital trust, MRI,s, bone scan, CT etc etc, then told that I am not triple negative but HER2+ I am starting chemotherapy x6 sessions on 1st October and like you herceptin and Ptuzamab x 18 my consultant says my diagnosis is excellent which although I keep telling myself is really hard to sink in to my brain every test is a torture to wait for result. I will have surgery at the end as the consultant has a pro active approach to reduction in surgery.

I think like you when you have been such a strong, positive and pro active person with your life in control something like this has such a massive impact.

i have spoken to ladies who have been through this and they are so encouraging and said you will get through this & some have no problems ... as we are starting our treatment at the same time  we should keep in touch ?

 

what is happening with work ?

with best wishes

jules

xx

Highlighted
Member

Re: October 2019 chemo starters

Good morning 

Seems like it's just little old me at the moment.

21st aug my husband (🙏) found a lump, I didn't worry at all but happened to be seeing my gp that day. She wasnt worried either but 14 days later I was lying, still not worried, on the sonographer's bed and heard the words "looks like blah blah blah I'm afraid". BOOM! God knows what she said, but I had cancer and my life was over. I'm sure everyone reading this has experienced that moment too... when you are catapulted into acute fear, disbelief, shock. You are a million miles from home without a map, and it feels like you will never get home. 

 

2 weeks of scans and contemplating the worst  led me to  my consultants waiting room and the words "its cancer, it's in the lymphs, it hasnt spread". I have a 5.2cm Er+, HER2+ cancer in my left boob. Treating with 'curable intent' (I wrote that down) with 6 x chemo, herceptin/pertuzumab 12months, lumpectomy, Radiotherapy, hormone therapy for 10 years.

 

I am exceptionally grateful that my cancer hasnt spread, but totally and increasingly overwhelmed at the treatment pathway. I'm exhausted, cant seem to do anything, have 0 resilience/patience, and frightened. 

 

I'm 41, and married with two small children in Gloucestershire. I own my own businesses as a fundraising consultant, which I will temporarily close, and a property investor. My business partners and staff will keep this one going and I will dip in and out from home as I feel I can. 

 

 

 

 

 

Highlighted
Community Champion

Re: October 2019 chemo starters

Hi
👋 

This thread is for anyone due to start chemotherapy in October 2019.  I’m sure others will be here soon but please introduce yourself and you can all help one another through this phase of your treatment.  If you have any questions please post away on here and others in the community will watch over you whilst you are getting started.  Once you are into it you'll be pretty good at helping each other.  You can also ask the nurses on this forum if you have any concerns.  In the meantime, the top tip is always to stay well hydrated throughout chemo, aiming for 2 litres of water per day.

 

Here is the BCC guide on chemo:

https://www.breastcancercare.org.uk/information-support/facing-breast-cancer/going-through-treatment...

 

I finished my chemo over a year ago and doing very well again now.  Here is my story which has some chemo tips on how I coped which were collectively shared from others who had gone through the same from this forum: http://lifeafterlola.com/

 

Best wishes xx

Highlighted
Member

October 2019 chemo starters

Hi,

Anyone starting in October? I couldn't see another group?

 

Lou x