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October 2019 chemo starters

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Re: October 2019 chemo starter

Hi ladies how are we all doing? Guessing we’re all in 12 week isolation at the minute. How is everyone coping & managing to stay sane?. In other news had my lumpectomy 2 weeks ago and 2 lymph nodes removed, got my results back yesterday’s and it was good news, no cancer found at all, clear margins - al tough as the chemo was it had done it’s job 🙌🏻🙌🏻 Radiotherapy to complete now apparently it will be condensed into one week rather that 3 (I’ll just get a triple dose each day) then I’m going to be on tamoxifen for 10 years. Best news I’ve had since October - hope everyone else is doing great 👍🏻 x

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Re: October 2019 chemo starter

Thanks Cherryp and Purpletrunks. I have been lucky during chemo that my bloods have been good. Your replies have lifted my spirits from the point of view that- somebody cares. 
x

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Re: October 2019 chemo starter

My haemoglobin has gone down every week since I started chemo and as it has dropped I have gotten more and more breathless especially on stairs and hills so it could well be your bloods.   

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Re: October 2019 chemo starter

Oh Curedars, its just endless isn't it?! Could the breathlessness be low red blood cells/ iron? I suffer from that even if I am on the cusp of anemia and had it throughout chemo. I am sure that one of your test will highlight if you levels are a bit low here. 

Fingers crossed for you that it doesn;t delay surgery xxxxx

 

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Re: October 2019 chemo starter

Hi Purpletrunks,

Thanks for ALL the useful information today- and for giving us permission not to celebrate the end of chemo. ( in your reply to CherryP.)

Unfortunately, although chemo finished last week I have started with one swollen ankle and leg, and breathlessness on walking uphill.  GP has initiated various tests. Naturally I am worried and hope surgery won’t be delayed but it has certainly taken the edge off my celebrating. Any advice anyone?

 

x

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Re: October 2019 chemo starter

and by the way ladies, have you seen the official advice come out regarding cancer folks and coronoaviris? 

 

One Cancer Voice, a group of charities which includes Breast Cancer Now, Macmillan Cancer Support and Cancer Research UK have issued the following guidance for people with cancer:

https://mcusercontent.com/68b588bc5847cde662b4ac613/files/8db9f41b-81bd-4b3f-acee-be58024601c0/One_C...

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Re: October 2019 chemo starter

Hi CherryP

 

What a mixed bag of emotions for you!  I had all 6 of mine, but the scan was after no.5, and when I commented that perhaps it would shrink more after the 6th he said probably not because for some reason the chemo works more in the middle of treatment for some reason. So you have had the most important bit!

 

I too felt very mixed up about the next bit at your stage, so sending much love. 

 

I am starting to feel better after surgery and have gone back to work today. I work for myself so thats pretty easy to sit at home at my laptop. This last 13 days since surgery have probably been the most emotional and i have been processing the whole thing a lot - a lot of tears and they come at the slightest thing. I started a blog, which has really helped me. ( You can have a look here if you like: https://newshinyoldfaithful.wordpress.com/). I get my results next week on Thursday to find out if they got it all. So I could be sat here cancer free right now! But I am trying to keep it in my mind that they might need to go back in so that it doesn't feel like a blow if they do.

 

I also have an appt with my onc next week to get back on the Herceptin and plan the radiotherapy. Feels like this will never end!

 

Oh, and more positively I have signed up for some free coaching through https://workingwithcancer.co.uk/.  My mentor is 5 years free of BC, and its really good to get help with how my life might look afterwards. AND I got in touch with a new Breast Cancer Dragon boat team. Its nice to start thinking about how I might build myself back up on the other side of this. If you haven't read about Dragon boating for breast cancer survivors then take a look at this.... https://en.wikipedia.org/wiki/Breast_cancer_survivors%27_dragon_boating

 

And btw CherryP, don't be pressured into 'celebrating' the end of chemo if you don't feel like it. I didn't! Although I did mark the end of the cycle with a nice low key lunch. I am saving the celebration for when its gone, and this nightmare is over. 

 

xxxxxxx

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Re: October 2019 chemo starter

Saw my oncologist yesterday and due to the problems with my fingers and toes continuing I am only going to have carbonplatin in my cycle 4. I I only get paclitaxel weekly that means tomorrow is my final chemo treatment! I feel a bit disappointed that I am unable to handle the last two paclitaxels but I don't want permanent damage and I still have surgery and radiation. Hopefully the fact that I've completed just over 7/8th of the treatment will mean I've done enough. Two less trips to the hospital is certainly good at this point in time with people looking to sneeze on us from all directions or so it seems sometimes. 

Felt a bit tearful as I enter the stage where we do less to get better. It's strange isn't it? It's nice that we are all getting towards the end and looking forward to the next stage and hopefully all being cancer free. 

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Re: October 2019 chemo starter

That’s so good to hear. And hopefully we will all get our energy back eventually 👍

xx

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Re: October 2019 chemo starter

KathCurtis,

Many thanks. Psychologically, I feel great to have got chemo behind me- as you will do in time. Physically, I’m not full of energy but  it is very early days. At least I’ve started thinking about things I’d like to do as opposed to jobs in the house I should do!

Keep on posting.

 

Clare x

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Re: October 2019 chemo starter

Fantastic Claire, so pleased for you. How are you feeling? Have a great day 

kath

xx

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Re: October 2019 chemo starter

Hi Purpletrunks,

How kind of you! Thanks. 
Just been writing in my chemo diary- “. A Sunday WITHOUT the usual Monday”! 
Tomorrow we are going to a lunchtime concert at The Bridgewater Hall followed by a meal. Our official end of chemo celebration!

How are you?

 

Clare x

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Re: October 2019 chemo starter

Hey CureDars,

 

How does it feel to be finished? 

 

Lou x

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Re: October 2019 chemo starter

Hi Cherryp,

When my EC was reduced by 10% I was concerned I wasn’t giving myself the best chance but it reduced my tumour 40%. We really have to trust the oncologist and perhaps you will get some answers tomorrow. Great that there’s been some shrinkage and you are only halfway through. Tiredness/chemo fatigue has been a big problem for me, too. Final

pac for me tomorrow.

Let us know how you get on.

 

CureDars

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Re: October 2019 chemo starter

Hey ladies, good to hear from you all. Fantastic news Leaw that you had a complete response! I had a complete in my lymphs, but tumour was determined! Although it did shrink to 1/8 of the size so I was happy with that. 

 

I definitely found more energy between chemo and surgery although the chemo side effects remained.. my bottom and mouth were very sore and the last of the ulcers is still hanging around 6 weeks later. 

 

I had my op on friday. I went for a wire guided therapeutic mammoplasty, and had a full node clearance too.

 

My 'new' boob is fabulous! Although it sits at least 10cm high than my old Faithful, so I look very funny without a bra. Its painful but totally manageable after chemo. I was out the same night and able to go to the farm shop yesterday. Can't lift anything so need help getting out the car etc, but otherwise I'm pretty ok, just tired. Just got the 2/3 week wait until pathology results now. They take a little more flesh on a mammoplasty than a lumpectomy so I'm hopeful, but also popped that they might have to go in again.

 

Hope you all stay well xxx

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Re: October 2019 chemo starter

I’m on week 7 of 12 of 3 weekly paclitaxel/carboplatin cycles. They had to reduce my paclitaxel dose on Friday as I have numbness in my fingers and toes and thy don’t want to cause any permanent damage. Very sleepy a lot of the time now but recent mri showed some shrinkage so it’s heading in the right direction and I am meeting a surgeon tomorrow to discuss what’s next. 
Good to hear we are all still making it through despite the ups and downs of this thing. 

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Re: October 2019 chemo starter

Hi kath,

Good to hear you are making your way through chemo. With 1 more session myself I can’t believe how quickly it’s gone. I too, have found the fatigue increasing and am looking forwards to the weeks before surgery when there might be more ‘energy in the bank’! This forum has helped a lot and now I’ll be looking at the helpful posts re surgery. Keep smiling!

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Re: October 2019 chemo starter

Hi Leaw,

Delighted you’ve had such a good response. I have one more chemo and then lumpectomy in six weeks - April. Let’s hope we both get those good margins they talk about.

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Re: October 2019 chemo starter

Hey guys!

 

It's great to hear how well you are doing! I'm really pleased for you!! 

I've just finished week two of radiotherapy and have about 8 sessions left to go! It's gone quickly but I'm a bit fearful of being 'done'.

 

I'm currently just finishing off 36 cupcakes for my little boys third birthday party tomorrow. That's one of the last jobs for the night! 

 

Hope everyone else is doing ok too xx

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Re: October 2019 chemo starter

Hi Leaw

so pleased to hear you are out the other side of chemo and have had a good response. You are on the downhill now!

i am on 3rd chemo round of 7 and doing ok, just getting tireder. Due to finish in June. 

How is everyone else?

love

kath

xx

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Re: October 2019 chemo starter

Hi everyone, just wondering how everyone is doing? Where is everyone upto? I’ve just had my last mri results following chemo completion and my dr was very pleased that there is no sign of cancer on the mri (lump has gone) do I’m booked in for a lumpectomy on 9th March to remove surrounding tissue, then in April will start 3 weeks of radiation. Hope your all feeling ok x

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Re: October 2019 chemo starter

❤️Oct thread ❤️ you are doing amazing keep your eyes focused on the bell in the unit and get ready to ring the heck out of it and the bell in the rads unit too 💪💪💪 feel happy as hair comes back be joyous for each new day ❤️ and if you get chemo curl, get some mini straighteners 👍 you are always beautiful you be proud and be kind to yourselves ❤️💕💕Shi xx

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Re: October 2019 chemo starter

Hey everyone,

 

Firstly, you're all doing amazingly. This whole situation is crap no matter what positive mindset you have and eventually it wears us all down. 

I finished chemo a few weeks back. I then caught the husband's latest viral bug and ended up in hospital with a temperature of 41°C. Get through all that and a pesky bug knocks me down!! 

I'm all recovered from that and will start radiotherapy on Tuesday. 18 sessions, one a day except weekends. I'm also starting to miss the chemo. I knew it was blasting whatever was left and now that has gone I keep thinking, it'll be back now. 

Stupidly though, what gets me down is my hair. Don't get me wrong, I'm not at all a girly girl and I wasnt overly attached to it because it was static and unstylable most of the time! However, it's the most obvious reminder that I'm still here, fighting, trying to get on with life, feeling crap about the world, trying to build a life for my boy and yet feeling mega pissed off this even happened to me. To any if us. 

Tomorrow is a new day. It's still a windy, rainy day but it's another one we are getting up for and telling this crappy disease to do one. 

 

You're all superstars, and I thank each and every one of you. 

Lots of love xx

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Re: October 2019 chemo starter

Hi all

good to hear how everyone is doing. It isn’t straight forward for any of us it seems, and the past few weeks i have been crying at the drop of a hat. It’s still shock and grief. But physically i am recovered well from mastectomy and now fitted with a prosthetic which gives me more confidence even in tighter clothes. I just had week 5 chemo (three week cycles of Carboplatin and Paclitaxel followed by 2 Paclitaxel alone, then i will have three cycles of FEC). I find Carboplatin unpleasant but i am not sick, and the injections for white blood cells can cause pain so i take paracetamol. It’s all a bit crap but better than not having anything to treat the cancer, and i am beginning to think summer will come and this will stop. I am sending love and hopefulness to you all. 
kath

xx

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Re: October 2019 chemo starter

Hi Cherryp,

It must have been so disappointing to get that news. We rely on the oncologists to know what to try next. The waiting for results is awful but all we ladies know that! 
My recent MRI showed little reduction in the actual breast tumour but cancer disappeared from lymph nodes. Will find out this week if there’s any change of treatment.

Good luck tomorrow. 😊

 

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Re: October 2019 chemo starter

I was later i October too and then as EC didn’t do much to my tumour size I got Carboplatin added to the Paclitaxel and had to move to weekly so as of last Friday I am halfway through my 12. I have an MRI tomorrow to see how things are. Fingers crossed. 
hope everyone else is coping ok. 

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Re: October 2019 chemo starter

Hello October ladies,

I was a late October starter so not finished yet. 3 more Paclitaxel.

 

Purple Trunks- I think it must be very normal to feel “not very happy” as you put it. We all can’t wait for chemo to be over but then anxiety about the surgery must takes over. (Then there’s radiotherapy.)  You’ve had a long haul but you did it! Congratulate yourself- and you encouraged others on the way. People try to be understanding of our situation,  but like most things in life true realisation only happens if they’ve been in our shoes. 
Will be thinking of you. Let us know how the surgery goes. 😄

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Re: October 2019 chemo starter

Hi! 

 

Yes, I had my last T on the 7th.  Still feeling a bit ropey but was so pleased to finish my injections last night.  They always make me feel worse.  Have awful taste, my mouth feels like it's been sat in a bath for hours and give wrinkly.  My nostrils are bleeding most of the time and my fingers are so so sore!! But it's the last one hopefully so fingers crossed things ease soon.

I have an appointment with a breast nurse on Thursday to discuss my options re surgery as I'm still so unsure?! 

My surgery is penciled in for the 16th march.  

I'm planning on making the most of the next couple of weeks without any treatment.  

Going away next weekend with the smalls and then the following weekend I'm going away with my wife.  Just trying to keep busy in the coming few weeks pre surgery.  

My fitness has dropped dramatically so I'm hoping to get back out there and gain a bit back before I'm out of action again.  I hate how all this has made me feel.  But I'm determined not to let it consume me.  It's so bloody hard and although I hated chemo I'm now scared I'm not on it... 

It's all such a mind game.   

But just remember, it's ok to not smile.  It's ok to not feel positive.  It's ok to have down days.  Just be kind to yourself.  You have every right to feel any feeling you are feeling.  Just don't let it take over.. 

You've got this! 

We've got this! 

We are doing this! 💪❤️🥊 xXx

 

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Re: October 2019 chemo starter

Hey ladies, how are you all doing? Anyone else finished yet?

 

My lumpectomy and ANC is in 13 days time and I'm starting to turn my energy and attention to that. 

 

I'm struggling a bit to feel happy.. mostly I'm feeling physically good but my mouth has puckered up horrendously and my heart hurts when I do any cardio exercise. Just so tired of having this hanging over my head. People say they get that it's still tough but I'm not sure they get that it feels just as tough, if not worse. 

 

Hope you are all ok xxx

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Re: October 2019 chemo starter

Thank you everyone for your kind messages. I have re-written this message a thousand times but I think all I need to say is thank you. X

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Re: October 2019 chemo starter

Jasmine..

 

I am so so sorry to hear of your devastating news.  Sending you so much love and strength at this ridiculously difficult time xx❤️xx

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Re: October 2019 chemo starter

Jasmine,

Have only just seen your Thursday post. My condolences to you and your family. You were able to support her and that must be a great blessing to you. Look after yourself in the busy days ahead.

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Re: October 2019 chemo starter

So sorry Jasmine. She knew she was loved to the very end and you have been such a kind and thoughtful daughter. Thinking of you and your family. xx

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Re: October 2019 chemo starter

So sorry to hear this jasmine, nothing we can say to make this easier. Your mam fought to the end with you all supporting her at every step. Thinking of you all, god bless x

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Re: October 2019 chemo starter

Oh Jasmine Heart. Much love to you and your family, such a devastating loss. xxxxxxx

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Re: October 2019 chemo starter

Very sad and sorry for your loss Jasmine. Your mum was very lucky to have you so close to help her through all this. You now need to take equally good care of yourself at this sad time. Thinking of you 

kath

xx

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Re: October 2019 chemo starter

That's amazing Jasmine!! Well done 🙂 x

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Re: October 2019 chemo starter

Hi Claire

What kind words, thank you. 
Me and my sister have set up a gofundme for money for Breast Cancer Now as it has helped me and my mum so much. We set it up 2 days ago and already raised £1230! Xx

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Re: October 2019 chemo starter

Jasmine, I am so so sorry to hear this and so sorry for your loss. I've been thinking of you all. 

Please let us know if you need anything at all in support going forward. You have been such a brave and strong pillar of support for your mum and I'm sure she would be so very proud of you and how you helped her (and us!) at such a difficult time. Sending you love and to your family too. 

Claire x

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Re: October 2019 chemo starter

My mum sadly passed away on 03.02.2020 at home with her family by her side. I have been with her from the start and have seen the courage she hold on to for so long, which I have also soon throughout this group.

 

i wish everyone all the best to a healthy and happy future and thank you everyone for your amazing support throughout. Xx

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Re: October 2019 chemo starter

4 EC done that didn’t shrink it very much so carboplatin added to Paclitaxel every third week. Had 3 doses now and 9 to go if mri after 6 shows progress.

 

i’m getting knackered very easily now and took my hair down to a number 2 and I’m missing it. So cold without hair but too hot with a wig! 

sorry to hear it’s now good news all around for everyone. I have a friend with lung cancer that has spread to the brain and she is doing OK so if they can manage it then it may sound scarier than it is and I hope that for you.  

so jealous of those at end of treatment but all of our times will come. 

hoping it’s a successful 2020 for all of us. 

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Re: October 2019 chemo starter

Hi all

Good to hear from people.

Jasmine thank you for letting us know how your mum is doing, I have been wondering. So sad that her cancer has progressed so quickly. Cancer is just **bleep**! How are you all coping? 
Great to hear from those of you completing chemo, makes me believe mine will eventually end (due to complete chemo in May now). 
A bit like you Purple Trunks, i have felt the weight of what I have been through recently. Although I am now very much recovering from the lobectomy and mastectomy. I do feel sad to have lost a breast, more than I anticipated, but at my age (57) I am not sure I will be able to face anymore surgeries for reconstruction or to go completely flat. But it wouldn’t be an option for two years so I may feel different by then. Meantime I am seeing chemo as a finite and final stretch of treatment and beginning to hope i can then stay clear and enjoy life (at least for some time 🤞).

This whole process is traumatic. I hope we can still have a get together later in the summer (including you Jasmine) just to mark the ending of these dark times and celebrate the warm support we have found in each other!

Love to all

Kath

x

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Re: October 2019 chemo starter

So, I'm done!! I had my last Chemo on the 15th January, and I meet my surgeon tomorrow to find out about my op on 21st Feb. The final round has been much kinder to me.. but I am very pleased this part is done with. I have found finishing Chemo very emotional... I feel like I have been in a survival bubble and now Im starting to feel a little more like me its hitting what has happened, and what I have lost. And I can't stop thinking about it all reoccuring. But thats probably life now... I wonder if the niggle will ever really go away.

 

Officially my chemo cycle finishes on the 4th Feb. So on that day I am going for a smeear (THIS girls knows how to celebrate!!!) out for lunch, and then straight on a train to Cornwall to catch up with my business partners and see the sea. 

 

xxxx

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Re: October 2019 chemo starter

Jasmine, thanks for updating us on your mum. Its very sad news to hear that the bastard cancer has spread to her brain. You must all be so sad, please send you mum my love and I have a HUGE hug for you too. No doubt this will be very difficult and little I can say will help that. I hope you have a strong support network around you both xxxxxxxxxxxx

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Re: October 2019 chemo starter

Dear Leaw,

Thanks for posting. I was thinking the same and hoping everyone was doing well. It’s great that you can see the end of chemo in sight. I’ve had the 4th of 9 Paclitaxel and so far it’s treating me kindly. Going for MRI today to see if this chemo is continuing the shrinkage that EC started. Waiting for result of CT thorax scan as a lung nodule was found previously and I’ve read about this on quite a few posts.

 

Leaw- Enjoy the break between chemo and surgery.

October ladies- How are you all?

 

 

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Re: October 2019 chemo starter

Hi all

 

hope everyone is powering through. 

Not so great news from me in regards to my mum. She suffered from a large seizure on nye whilst in a&e after I took her there after a few days of feeling dizzy. Ct confirmed it has spread to brain. My mums cancer is particularly aggressive and it is quite rare for this type of spread in the short amount of time since diagnosis. She had 5 rounds of radiotherapy and was about to start chemo again but unfortunately she has deteriorated too much and prognosis is very poor.

 

I was hesitant to post on here as I do not want to scare people, but it is not to scare people but to update everyone and just shows the harsh reality of what destruction cancer can cause. 

It’s so nice to hear of everyone who is getting through treatment and seeing an end at this dark tunnel. Hope everyone stays well and thank you for your support amidst the dark clouds. 

xx

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Re: October 2019 chemo starter

Hi 

 

just wondering how everyone is getting on. It’s been quiet in here since Xmas. Hope that means your all getting through treatment with not too many side effects!! I meet with my surgeon Thursday to discuss mri I had last week &. Arrange surgery date for end of feb. Final Docetaxel chemo on 7th February. Can’t wait to see the back of chemo. How are you all getting on? 

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Re: October 2019 chemo starter

I wrote a post congratulating you on the achievement Cherry but seem to fail to have pressed send, so this is a bit late but nevertheless- very impressed.

How is everyone - are you all done? I am about to restart tomorrow, same regime as originally planned as apparently it’s also good for the lung c: 12 once weekly Carboplatin and Paclitaxel followed by 9 weeks of once three weekly FEC. Ugh.

On the positive side i am healing very well from right breast mastectomy and beginning to recover emotionally from the loss. Surprising what we can adjust to. And apparently I won’t need radiotherapy - i am very thankful for this. Would love to hear how you all are, hoping you are beginning to recover from your chemo.

love and hugs to all

kath

x

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Re: October 2019 chemo starter

Cherry that's amazing 

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Re: October 2019 chemo starter

CherryP,

Fantastic- great idea! You have generous friends too. 

CureDars