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October 2019 chemo starters

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Re: October 2019 chemo starter

Hey guys!

 

It's great to hear how well you are doing! I'm really pleased for you!! 

I've just finished week two of radiotherapy and have about 8 sessions left to go! It's gone quickly but I'm a bit fearful of being 'done'.

 

I'm currently just finishing off 36 cupcakes for my little boys third birthday party tomorrow. That's one of the last jobs for the night! 

 

Hope everyone else is doing ok too xx

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Re: October 2019 chemo starter

Hi Leaw

so pleased to hear you are out the other side of chemo and have had a good response. You are on the downhill now!

i am on 3rd chemo round of 7 and doing ok, just getting tireder. Due to finish in June. 

How is everyone else?

love

kath

xx

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Re: October 2019 chemo starter

Hi everyone, just wondering how everyone is doing? Where is everyone upto? I’ve just had my last mri results following chemo completion and my dr was very pleased that there is no sign of cancer on the mri (lump has gone) do I’m booked in for a lumpectomy on 9th March to remove surrounding tissue, then in April will start 3 weeks of radiation. Hope your all feeling ok x

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Re: October 2019 chemo starter

❤️Oct thread ❤️ you are doing amazing keep your eyes focused on the bell in the unit and get ready to ring the heck out of it and the bell in the rads unit too 💪💪💪 feel happy as hair comes back be joyous for each new day ❤️ and if you get chemo curl, get some mini straighteners 👍 you are always beautiful you be proud and be kind to yourselves ❤️💕💕Shi xx

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Re: October 2019 chemo starter

Hey everyone,

 

Firstly, you're all doing amazingly. This whole situation is crap no matter what positive mindset you have and eventually it wears us all down. 

I finished chemo a few weeks back. I then caught the husband's latest viral bug and ended up in hospital with a temperature of 41°C. Get through all that and a pesky bug knocks me down!! 

I'm all recovered from that and will start radiotherapy on Tuesday. 18 sessions, one a day except weekends. I'm also starting to miss the chemo. I knew it was blasting whatever was left and now that has gone I keep thinking, it'll be back now. 

Stupidly though, what gets me down is my hair. Don't get me wrong, I'm not at all a girly girl and I wasnt overly attached to it because it was static and unstylable most of the time! However, it's the most obvious reminder that I'm still here, fighting, trying to get on with life, feeling crap about the world, trying to build a life for my boy and yet feeling mega pissed off this even happened to me. To any if us. 

Tomorrow is a new day. It's still a windy, rainy day but it's another one we are getting up for and telling this crappy disease to do one. 

 

You're all superstars, and I thank each and every one of you. 

Lots of love xx

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Re: October 2019 chemo starter

Hi all

good to hear how everyone is doing. It isn’t straight forward for any of us it seems, and the past few weeks i have been crying at the drop of a hat. It’s still shock and grief. But physically i am recovered well from mastectomy and now fitted with a prosthetic which gives me more confidence even in tighter clothes. I just had week 5 chemo (three week cycles of Carboplatin and Paclitaxel followed by 2 Paclitaxel alone, then i will have three cycles of FEC). I find Carboplatin unpleasant but i am not sick, and the injections for white blood cells can cause pain so i take paracetamol. It’s all a bit crap but better than not having anything to treat the cancer, and i am beginning to think summer will come and this will stop. I am sending love and hopefulness to you all. 
kath

xx

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Re: October 2019 chemo starter

Hi Cherryp,

It must have been so disappointing to get that news. We rely on the oncologists to know what to try next. The waiting for results is awful but all we ladies know that! 
My recent MRI showed little reduction in the actual breast tumour but cancer disappeared from lymph nodes. Will find out this week if there’s any change of treatment.

Good luck tomorrow. 😊

 

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Re: October 2019 chemo starter

I was later i October too and then as EC didn’t do much to my tumour size I got Carboplatin added to the Paclitaxel and had to move to weekly so as of last Friday I am halfway through my 12. I have an MRI tomorrow to see how things are. Fingers crossed. 
hope everyone else is coping ok. 

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Re: October 2019 chemo starter

Hello October ladies,

I was a late October starter so not finished yet. 3 more Paclitaxel.

 

Purple Trunks- I think it must be very normal to feel “not very happy” as you put it. We all can’t wait for chemo to be over but then anxiety about the surgery must takes over. (Then there’s radiotherapy.)  You’ve had a long haul but you did it! Congratulate yourself- and you encouraged others on the way. People try to be understanding of our situation,  but like most things in life true realisation only happens if they’ve been in our shoes. 
Will be thinking of you. Let us know how the surgery goes. 😄

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Re: October 2019 chemo starter

Hi! 

 

Yes, I had my last T on the 7th.  Still feeling a bit ropey but was so pleased to finish my injections last night.  They always make me feel worse.  Have awful taste, my mouth feels like it's been sat in a bath for hours and give wrinkly.  My nostrils are bleeding most of the time and my fingers are so so sore!! But it's the last one hopefully so fingers crossed things ease soon.

I have an appointment with a breast nurse on Thursday to discuss my options re surgery as I'm still so unsure?! 

My surgery is penciled in for the 16th march.  

I'm planning on making the most of the next couple of weeks without any treatment.  

Going away next weekend with the smalls and then the following weekend I'm going away with my wife.  Just trying to keep busy in the coming few weeks pre surgery.  

My fitness has dropped dramatically so I'm hoping to get back out there and gain a bit back before I'm out of action again.  I hate how all this has made me feel.  But I'm determined not to let it consume me.  It's so bloody hard and although I hated chemo I'm now scared I'm not on it... 

It's all such a mind game.   

But just remember, it's ok to not smile.  It's ok to not feel positive.  It's ok to have down days.  Just be kind to yourself.  You have every right to feel any feeling you are feeling.  Just don't let it take over.. 

You've got this! 

We've got this! 

We are doing this! 💪❤️🥊 xXx

 

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Re: October 2019 chemo starter

Hey ladies, how are you all doing? Anyone else finished yet?

 

My lumpectomy and ANC is in 13 days time and I'm starting to turn my energy and attention to that. 

 

I'm struggling a bit to feel happy.. mostly I'm feeling physically good but my mouth has puckered up horrendously and my heart hurts when I do any cardio exercise. Just so tired of having this hanging over my head. People say they get that it's still tough but I'm not sure they get that it feels just as tough, if not worse. 

 

Hope you are all ok xxx

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Re: October 2019 chemo starter

Thank you everyone for your kind messages. I have re-written this message a thousand times but I think all I need to say is thank you. X

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Re: October 2019 chemo starter

Jasmine..

 

I am so so sorry to hear of your devastating news.  Sending you so much love and strength at this ridiculously difficult time xx❤️xx

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Re: October 2019 chemo starter

Jasmine,

Have only just seen your Thursday post. My condolences to you and your family. You were able to support her and that must be a great blessing to you. Look after yourself in the busy days ahead.

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Re: October 2019 chemo starter

So sorry Jasmine. She knew she was loved to the very end and you have been such a kind and thoughtful daughter. Thinking of you and your family. xx

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Re: October 2019 chemo starter

So sorry to hear this jasmine, nothing we can say to make this easier. Your mam fought to the end with you all supporting her at every step. Thinking of you all, god bless x

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Re: October 2019 chemo starter

Oh Jasmine Heart. Much love to you and your family, such a devastating loss. xxxxxxx

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Re: October 2019 chemo starter

Very sad and sorry for your loss Jasmine. Your mum was very lucky to have you so close to help her through all this. You now need to take equally good care of yourself at this sad time. Thinking of you 

kath

xx

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Re: October 2019 chemo starter

That's amazing Jasmine!! Well done 🙂 x

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Re: October 2019 chemo starter

Hi Claire

What kind words, thank you. 
Me and my sister have set up a gofundme for money for Breast Cancer Now as it has helped me and my mum so much. We set it up 2 days ago and already raised £1230! Xx

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Re: October 2019 chemo starter

Jasmine, I am so so sorry to hear this and so sorry for your loss. I've been thinking of you all. 

Please let us know if you need anything at all in support going forward. You have been such a brave and strong pillar of support for your mum and I'm sure she would be so very proud of you and how you helped her (and us!) at such a difficult time. Sending you love and to your family too. 

Claire x

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Re: October 2019 chemo starter

My mum sadly passed away on 03.02.2020 at home with her family by her side. I have been with her from the start and have seen the courage she hold on to for so long, which I have also soon throughout this group.

 

i wish everyone all the best to a healthy and happy future and thank you everyone for your amazing support throughout. Xx

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Re: October 2019 chemo starter

4 EC done that didn’t shrink it very much so carboplatin added to Paclitaxel every third week. Had 3 doses now and 9 to go if mri after 6 shows progress.

 

i’m getting knackered very easily now and took my hair down to a number 2 and I’m missing it. So cold without hair but too hot with a wig! 

sorry to hear it’s now good news all around for everyone. I have a friend with lung cancer that has spread to the brain and she is doing OK so if they can manage it then it may sound scarier than it is and I hope that for you.  

so jealous of those at end of treatment but all of our times will come. 

hoping it’s a successful 2020 for all of us. 

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Re: October 2019 chemo starter

Hi all

Good to hear from people.

Jasmine thank you for letting us know how your mum is doing, I have been wondering. So sad that her cancer has progressed so quickly. Cancer is just **bleep**! How are you all coping? 
Great to hear from those of you completing chemo, makes me believe mine will eventually end (due to complete chemo in May now). 
A bit like you Purple Trunks, i have felt the weight of what I have been through recently. Although I am now very much recovering from the lobectomy and mastectomy. I do feel sad to have lost a breast, more than I anticipated, but at my age (57) I am not sure I will be able to face anymore surgeries for reconstruction or to go completely flat. But it wouldn’t be an option for two years so I may feel different by then. Meantime I am seeing chemo as a finite and final stretch of treatment and beginning to hope i can then stay clear and enjoy life (at least for some time 🤞).

This whole process is traumatic. I hope we can still have a get together later in the summer (including you Jasmine) just to mark the ending of these dark times and celebrate the warm support we have found in each other!

Love to all

Kath

x

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Re: October 2019 chemo starter

So, I'm done!! I had my last Chemo on the 15th January, and I meet my surgeon tomorrow to find out about my op on 21st Feb. The final round has been much kinder to me.. but I am very pleased this part is done with. I have found finishing Chemo very emotional... I feel like I have been in a survival bubble and now Im starting to feel a little more like me its hitting what has happened, and what I have lost. And I can't stop thinking about it all reoccuring. But thats probably life now... I wonder if the niggle will ever really go away.

 

Officially my chemo cycle finishes on the 4th Feb. So on that day I am going for a smeear (THIS girls knows how to celebrate!!!) out for lunch, and then straight on a train to Cornwall to catch up with my business partners and see the sea. 

 

xxxx

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Re: October 2019 chemo starter

Jasmine, thanks for updating us on your mum. Its very sad news to hear that the bastard cancer has spread to her brain. You must all be so sad, please send you mum my love and I have a HUGE hug for you too. No doubt this will be very difficult and little I can say will help that. I hope you have a strong support network around you both xxxxxxxxxxxx

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Re: October 2019 chemo starter

Dear Leaw,

Thanks for posting. I was thinking the same and hoping everyone was doing well. It’s great that you can see the end of chemo in sight. I’ve had the 4th of 9 Paclitaxel and so far it’s treating me kindly. Going for MRI today to see if this chemo is continuing the shrinkage that EC started. Waiting for result of CT thorax scan as a lung nodule was found previously and I’ve read about this on quite a few posts.

 

Leaw- Enjoy the break between chemo and surgery.

October ladies- How are you all?

 

 

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Re: October 2019 chemo starter

Hi all

 

hope everyone is powering through. 

Not so great news from me in regards to my mum. She suffered from a large seizure on nye whilst in a&e after I took her there after a few days of feeling dizzy. Ct confirmed it has spread to brain. My mums cancer is particularly aggressive and it is quite rare for this type of spread in the short amount of time since diagnosis. She had 5 rounds of radiotherapy and was about to start chemo again but unfortunately she has deteriorated too much and prognosis is very poor.

 

I was hesitant to post on here as I do not want to scare people, but it is not to scare people but to update everyone and just shows the harsh reality of what destruction cancer can cause. 

It’s so nice to hear of everyone who is getting through treatment and seeing an end at this dark tunnel. Hope everyone stays well and thank you for your support amidst the dark clouds. 

xx

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Re: October 2019 chemo starter

Hi 

 

just wondering how everyone is getting on. It’s been quiet in here since Xmas. Hope that means your all getting through treatment with not too many side effects!! I meet with my surgeon Thursday to discuss mri I had last week &. Arrange surgery date for end of feb. Final Docetaxel chemo on 7th February. Can’t wait to see the back of chemo. How are you all getting on? 

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Re: October 2019 chemo starter

I wrote a post congratulating you on the achievement Cherry but seem to fail to have pressed send, so this is a bit late but nevertheless- very impressed.

How is everyone - are you all done? I am about to restart tomorrow, same regime as originally planned as apparently it’s also good for the lung c: 12 once weekly Carboplatin and Paclitaxel followed by 9 weeks of once three weekly FEC. Ugh.

On the positive side i am healing very well from right breast mastectomy and beginning to recover emotionally from the loss. Surprising what we can adjust to. And apparently I won’t need radiotherapy - i am very thankful for this. Would love to hear how you all are, hoping you are beginning to recover from your chemo.

love and hugs to all

kath

x

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Re: October 2019 chemo starter

Cherry that's amazing 

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Re: October 2019 chemo starter

CherryP,

Fantastic- great idea! You have generous friends too. 

CureDars

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Re: October 2019 chemo starter

It was my birthday in December so I decided to use the Facebook fundraiser function and asked all my Facebook contacts to donate to Breast Cancer Now. Facebook takes care of all the admin and charges and my

friends said it was easy to donate. I just used their default target of £150 but it really lifted my spirits when it raised £842 ! Felt like I actually achieved something and I’m grateful to BCN for having this forum. 

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Re: October 2019 chemo starter

Dont feel you have to stop wallowing Claire, I will happily just climb in and wallow with you! Most days I can find time to be positive, but really this is wearing right? Did you watch the BBC dracula series? I feel like one of Draculas victims that's slowly having the life sucked out of me! Of course the plan is actually to achieve the opposite but  I'm just so weak. I look terrible! My eyes are sunken and red, my nose is swollen bloody and crusty, I'm really pale.  I think my teeth are even yellower! I dont say this for sympathy, obviously... more in solidarity. 

 

Anyway, achievable goals. I have it in my head that when this is finished I'm going to climb to the top of the highest peaks of the UK. I've no idea if its achievable 😆😆, especially as I also have a hip problem that I'm getting scans for, but I'm going to have a lot of fun trying. And dreaming about them. Once I've done them I'm going to do an overseas challenge and raise  shed load of money for breast cancer... I'm a fundraising consultant by trade (amoung other things) so figured it was the least I could do. 

 

But you did say achievable (and right now I struggle to climb the stairs, so mountains seem ridonkulous!)... so I'm starting small after being so weakened by chemo... I'm going to build up to walking 10k steps every day straight after chemo.

 

What have you thought about goal wise? 

 

And in other news... I may have lost my fingerprints (identity?!! 😆😆), but my hair is starting to grow back!!!

 

And most importantly ClaireL, dont forget that you too are amazing 😊🥰😊🥰!

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Re: October 2019 chemo starters

Third paclitaxel was Mon for me and my phone no longer recognises me either! Thought it was just my phone lol.

 

I'm coughing a lot at the moment. Seems to be a sure effect for me. Really annoying. I'm absolutely shattered today and feeling really fed up. It's one of those poor me days. Hope the steroids have given up stealing my sleep and that will help. 

 

Trying to figure out some achievable goals for this year. So far I just have to not be fat and bald anymore!! Any suggestions welcome. 

 

I shall stop wallowing and just say that I think you're all amazing. You've come so far and you're all doing so well in your own ways with everything. You've all kicked so much ass already despite whatever you have left to go. 

 

I hope the heart rate slows for you both guys and that the next time round it gets easier. 

 

Sending love x

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Re: October 2019 chemo starters

Hey Leaw,

 

Interesting to hear your heart is racing on tax 8 days post. I'm also 8 days post and get the same was worried it's my heart, even though it's been checked loads. 

 

Weirdest side effect to date... my fingerprints have gone 😳😳😳. I noticed that (after 2xdocetaxol) my fingerprint has stopped working on my phone, and I posted on the younger womens breast cancer forum (any of you on there?  ) and is seems its a thing!!!! Weird.

 

Getting really fed up with this now. Come ON spring, when the sun starts to warm us all and we will be moving into nicer territory!!

 

Xxx

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Re: October 2019 chemo starters

I had my 4th cycle last week. First 3 were FEC which made me feel sick and a little tired for a few days after. 4th session was the T (Docetaxel) and I have had no sickness but my energy has been wiped out & heart is racing just climbing the stairs. So worn out and I’m 8 days post chemo 🙈

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Re: October 2019 chemo starters

Hi Cherryp,

 

i Also had paclitaxel and carboplatin for TNBC last year.

if i can help re advice/support please just ask.

good luck mini mad xx 💖💖

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Re: October 2019 chemo starters

I had forgotten the Someone like me option, thank you for reminder Shi.

Cherry your New Year doggie walk sounds brilliant. So pleased you could get out and enjoy it. Good luck with Carboplatin and Paclitaxel. I think i start back on this on 17/01 but see oncologist next Thursday to confirm. 
Good luck all

love

Kath

xx

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Re: October 2019 chemo starters

Luna is such a cutie. She must really lift your spirits when she comes for a lap hug even if you do get a bit squished. Managed a walk along the beach at Camber Sands on New Years Day with my friends Doodle gang. About 30 dogs running bad around their owners and then some of them crashed out in a pub dining room for a group lunch after. It was lovely to blow out the cobwebs. Paclitaxel and Carboplatin start this time next week. Fingers crossed I react well. 

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Re: October 2019 chemo starters

Kath, great photo of you and Luna, can’t believe how quick she is growing ❤️ Don’t forget to use the someone like me option on here and do speak to your bcn. The emotional rollercoaster is one of a kind ride but you are 💪💪 lady who is gripping tight 👭 and everyone on here is gripping tight of you ❤️ Keep 😁💕💕shi xx

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Re: October 2019 chemo starters

Whoops, didn’t mean to post that twice 😮

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Re: October 2019 chemo starters

A2CA5318-1697-41D5-8B19-17679A96620B.jpeg

Me and Luna who no longer really fits on my lap😮

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Re: October 2019 chemo starters

Oh Kath what a gorgeous pic!! Sorry, yet not surprised to hear your op has left you feeling sad. We are going through so much. General anesthetics drugs can also cause sadness I think? Not that you need any more excuses.

 

My son to be 11 year old with probably want to do anything that's linked to gaming 🙄!! And spending my dwindling funds!!! Bless him, like most kids he is generally planning his birthday all year round 😆

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Re: October 2019 chemo starters

A2CA5318-1697-41D5-8B19-17679A96620B.jpeg

Me and Luna who no longer really fits on my lap😮

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Re: October 2019 chemo starters

Hi all

so exciting to hearing you are getting to the end of chemo Claire and PurpleTrunks. It is a huge step completed and definitely will need marking and celebrating probably a few times over while you process that it’s done! 
i am recovering well from the mastectomy and lung surgery. It’s crap to go through, and i am suprised how sad it has all made me, but I am also pleased to be rid of the tumours and moving forward. My chemo is due to start again on 17/01 so i still have it all to face. But hearing your experiences has me better prepared and somehow hearing that you are coming to the end also makes it feel more  manageable - like all this treatment can eventually come to an end hopefully!

Enjoy the kids birthdays - they are so precious 

love

Kath

xx

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Re: October 2019 chemo starters

I feel a bit odd! I think I've come to get used to the routine and I know I'm fighting it by having the treatment so I'll kind of miss it in a weird way. 

Looking forward not having a life back after rads but then it's the uncertainty of it all still with coming back etc. Think I'll need some counselling or something to help with that bit. 

 

11 is such a great age! Does your son have any idea what he wants to do for his birthday?? Xx

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Re: October 2019 chemo starters

Whilst it's been the hardest thing I've ever done, and it feels like it's gone on FOREVER it weirdly feels like it wasnt tgst long too. Does that sound very weird? 😂😂

 

I also have more treatment to come... surgery in feb, shed loads of radio, then h/p til oct and hormone treatment until forever. But chemo has been so crappy I want to do something to mark this bit ending before I start the next bit. 

 

3rd birthday eh?! Sounds fun ( and exhausting !). I was reminded by my son that his 11th birthday will be about the time I finish active treatment this week. Will have to put some energy aside for that!!!

 

How are you feeling about chemo ending Clare?

 

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Re: October 2019 chemo starters

Happy new year everyone! So glad this time was easier for you Lou! 

I had my oncologist appointment today and I finish on the 13th as planned which is great but I'll have a four week break then three weeks of radiotherapy (every day) followed by three targeted radiotherapy sessions so not quite at the finish line. 

 

I was thinking the same though, I need to do something to mark the occasion. 

Little ones 3rd birthday is on the 1st march so we are having a party for that. My celebration may have to come later when I am back to my old self a bit more!! 

I need to schedule my review with my consultant too in the next few weeks! Already at the stage they want to start monitoring me. At least they are though! Hope everyone had as good a Christmas break as possible xx

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Re: October 2019 chemo starters

Happy new year! How are you all?

 

I'm one week after my second round of docetaxel/h/p. They halved the dose so ive faired better and nowhere near a hospital so far!!! I have the date for my final chemo... 15th jan. Been thinking how to mark it, and I think lunch on the third week when I'm officially out of side effects.

 

Xx