so sorry to hear about infections and exhaustion curedars and cherry. Interesting about lung issues for you Cherry, very good to hear it’s just infection!
Here is a lovely Luna pic to brighten your day
Thanks. Oncologist suggested going to GP to see if I need more antibiotics. Just been and she was able to access Friday and Monday’s blood results online. This joined up care is amazing! Hope these do the trick.
You’ll get there at the pace that is right for your body. We are all on a long journey back to good health here. Hopefully you’ll be good for the beginning of next week.
What a cute puppy. You’re going to have so much fun with them.
Haven’t been on for a few days so sorry for that. Had my second EC on Friday and much more lethargic than the first but forcing myself to get up and dressed and out and about to get the drugs moving around. Had a PICC line fitted which made the whole experience so much easier although the dressing changes and showering with a big plastic sleeve is a little problematic.
I cold capped for the first 2 but hair is seriously on the way off so I’m off with a friend to a wig place tomorrow as no appt has come through from the hospital. I might go purple for the festive season.
Ultrasound booked for 2 weeks time to see shrinkage. Oncologist confirmed it has shrunk by feel alone and then CT mid December to see what had happened to the nodules in my lungs. Not confirmed as cancer as too small but I’ll be happy if they’ve gone regardless of whether they were inflammation or cancer.
it seems weird that there is already another thread with November starters. Does that make us all old timers now?
Yep, we have had a full helping of both experiences today 😝👍🥰Puppy love playing on repeat.
Adorable kathcurtis, enjoy the walks and poop bags but the licks and cuddles will make up for that 😁 😘💕💕✨✨Shi xx
Sorry to hear about the chest infection cureDars.
going to try to attach photo of our new puppy who just came home to us today. Cheering all of us up !
I’m hearing that cyclizine are a great help to many people. Just when I started to feel better - Day9 I acquired a chest infection and this required antibiotics and steroids. Unfortunately there has been no lively 3rd week but am now enjoying food. Bloods taken yesterday and nurse warned me that the oncologist, who I will see on Monday, might decide to lower/delay Round 2. Sorry not been able to encourage anyone but hope that things will improve.
You look lovely.
What a wonderful holiday to keep you focused something positive over the next few weeks. Hope you have a brilliant time x
Oh how fabulous! What a thing to look forward too 😊😊😊
My 3rd dec is next week too although I'm not holding out much hope that my bloods are ok. Ive decided if they delay I'm going to cornwall to get away. That feels pretty big so I'm in total awe of your NYC trip.
I'm in bed today with a cold, but doing some work which feels like a treat!!
And I went out for a thai with my sister last night and felt human!!
I dont get mid-way appt. I have to wait to round 5 for mri and surgeon appt. Hurumph!!
Thank you all for your kind comments. If ever there is a time to experiment with new hairstyles, it's when you have no hair 😂😂😂
We're off to New York 😱 We booked after diagnosis but before it was decided chemo was needed. The plan was to end a **bleep**ty year and start 2020 somewhere special with the kids. I will however still be in chemo (hopefully 4th cycle a couple of weeks before we go) and No. 5 when I get back. My side effects have been very minor so far so I'm hoping it will all be okay. Onc is happy for me to go with white blood cell booster jab beforehand and antibiotics to take with me 👍
Got mid treatment appt with Onc tomorrow then as long as bloods are good Round 3 on Monday.🤞🤞🤞
Hope you're doing ok 💋
Karhcurtis 👭 so sorry to hear you have in your lung too, but pleased your team have picked it up quickly for you and are able to treat quickly 💪💪 everyones here to 👭❤️ You through 💕💕✨✨Shi xx
Aj72 👍👍you look fantastic well picked 👍👍 colour really suits you and looks very natural 👍 glad you are 😁with it 😘💕💕✨✨Shi xx
I've got myself a wig for going 'out out' and a holiday over Christmas and New Year. Gone for something different to my usual colour and everyone loves it !!!
Sorry to hear you have lung cancer but glad to hear both are curable. We are here with you all the way!!!!
You got this Kath! I hope you're doing ok and that you can get started with everything really soon.
Sending love x
You are all so kind and lovely, thank you, so good to be part of this group. And someone asked if it’s connected to the breast cancer - no it isn’t! I have two completely separate cancers within inches of each other! So weird. But it’s nit secondary to breast cancer and both are curable so i will get through this 😊.
love to you all
Hi Kath, so sorry to hear that you've got lung cancer, but so relieved for you that it's been caught very early and that it's curable xx
Sending you all the positive vibes kath. I think this is an amazing group of people. So so supportive of you all to be here for each other xxxxx we got this
Oh Kath!! Thank goodness they caught it early. Totally rubbish its cancer, but after your dark days it must feel good that its curable.
Is it secondary breast cancer? Or completely different cancer ?
At least you can get on getting on now. I feel relief for you, I hope you can at least get some peaceful sleep tonight ❤❤
I am sorry to hear about the lung cancer but so relieved it is curable! I am happy for you, and also on the fact your breast lump has shrunk so much! We always worry the worst outcomes of situations and it can take you to a bad place.. I am glad you finally know what you’re dealing with and wish you all the best for your forthcoming treatment x
How terrifying and positive at the same time?!?! This really is a rollercoaster!!
I love that you are super positive and I'm so pleased it's been found early!
It's definitely a good thing to be positive. Like the saying "smile and the world smiles with you". I find this with positivity too.
Keep it going lovely. The rest of us riding this crazy train are sat beside you!
Sending love and positivity your way xx❤️xx
good to hear everyone’s updates. It sounds like you are all doing super well, especially the boxers amongst us, amazing 😊👌
So got my results today. I have lung cancer as well as breast cancer 😮. Starting a collection! Actually we have caught it super early (stage 1), so will be curable with an op in next couple of weeks! And as breast lump as shrunk so much they may also operate on that and then restart chemo. What a rollercoaster. And i never smoked 😝. But it seems breast cancer has saved my life from lung cancer! Weird. Thank you all for your kind messages. I had some very dark days waiting for the biopsy results but i am now feeling so optimistic 😊
Seasalt handybands have been recommended to me for softness and versatility. Bit like a buff...
I cant post link as it registers as spam
Emzlew I want one for being out and about really, I’ve bought lots of hats and scarfs in preparation. I’m going to “glamorous butterfly” in Cumbria for a wig fitting etc, so I’ll see how it goes on Tuesday. Glad your second round went smoother, I have my second round next Friday 15th, had my sickness meds adjusted so hopefully that will help 😬. I’m off for a marker fitted to my lump this afternoon x
I bought a wig for any bad "no hair" days I might have 🤣 I haven't worn it yet and I'm wearing beanies less and less when I'm and about too. If people don't like it then they don't have to look! It's not our fault 😒
My kids love stroking my head 🤣
It's very strange that all my dark hair has gone and I'm left with an even, all over, almost transparent fuzz?! 🥚👨🏻🦲
Have felt better this time around. No sickness, just super tired for the first week. Went back to my boxfit group on Monday and managed a good 40 mins of exercise. It felt great!!
Round three next week. Bring it on, let's do this! 👍💪🥊
Thinking of you today Kath and sending lots of love, luck and strength your way xx❤️xx
I havent got down the wig route. I think I might have if it was summer but I just cant be bothered tbh. Scarfs and beanies for me.. and baldness!!
Hi Clare, how are you getting on with the hair loss? Mine is defo starting to shed, hoping I can keep it over the weekend as I have my sons athletics presentation & our for a meal on Sunday for my 39th birthday. Appointment to see about a wig on Tuesday. Have any of you ladies gone down the wig route xx
Much love to you and your mum Jasmine. I'm rushing out the door so have nothing useful to say... but you are both in my thoughts xxx
thank you for your kind words.
I am, but trying to keep it together for her and everyone else. She has only just started her original treatment so I’m unsure whether they will stick with this or change? They started the treatment with the thought in mind that it had spread, so I’m unsure.
thank you for the recommendation of the Macmillan line. It’s nice to be able to talk to someone.
i really do hope nothing comes of your lung biopsy, but we have been assured it is still treatable, and with going through treatment who knows how well you will respond! I found it hard to find info on cancer mets from original diagnosis rather than reoccurrence etc.
wish you all the best. X
Jasmine i am so sorry to hear your mum’s news. That’s just so crap! Have they suggested a management regime as yet? You must be in bits. If you need emotional i can recommend Macmillan. Both by telephone and in person I have found them a great help.
thinking of you.
my lung biopsy result on Thursday. Horrible.
just a quick update. My mum has got her blood test today to check all ok to go ahead for second chemo tomorrow.
unfortunately on Friday, we got the news that the cancer has spread to her liver and bones. She was only diagnosed with breast cancer on the 20th sept 19 so this is quite a bit hit for us.
Trying to keep positive, hope everyone has a good week x
I ordered these. Soft on the inside and lightweight for indoors. I often wear of an evening when it's a bit colder. I've nice fur/fleece lined bobble hats/beanies for outdoors.
Thanks for all your advice ladies, will take some paracetamol with me..one more drug in my body will make no difference!
On the hairfront, I went and shaved my hair down to a no 3 day before Chemo. Went to my hairdresser and it made me feel like I was finally controlling something my self. I have 2 soft hats but was wanting a soft cotton beenie for the house...
Heart was pounding last night but reckon it was the drugs from yesterday. No nausea so far this morning, it's rhe heartburn that's getting me...feel totally zonked, hopefully steroids will pep me up.
Welcome to our new ladies 🙂
Quick update from me - I'm on Round 2 of post lumpectomy FEC (given every third week). I have Aprepitant (Emend) and steroids on chemo day and for 2 days afterwards then no further meds. My cycle seems to be queasiness for those 3 days, then indigestion/heartburn for 3-4 days for which I take Gaviscon. I then move onto a dry, tickly cough which results in a sore throat and aching ribs, along with many sleepless nights in the spare room. For this I use a simple linctus and throat lozenges (and good reading materials for the long, nocturnal nights). Although I don't have bone pain I do experience weird, skin sensations. I can only explain it as when you touch a bruise you didn't know you had. It can be quite tender when showering as even the lightest touch of a baby soft sponge hurts. I might add however the eczema I usually suffer has cleared up ! I'm also experiencing an altered sense of taste.
I'm aware things can change very quickly and without warning so I take it a day at a time. I attended my GP to rule out a chest infection (which I didn't have it was just the tickly cough) to discover I had a raging temperature (with no symptoms!) Bloods then revealed very low neutrophils (again with no symptoms!)
I am in absolute awe of all of you in this group and the comarardie, strength and support provided to each other (given that we're all strangers).
We've got this ladies. Let's kick cancer's ass.
Take care and stay well all of you!!!!