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October 2019 chemo starters

Member

Re: October 2019 chemo starters

Hi ClaireL,

 

im real sorry,  didnt mean to scare you,  everybody is different....i have Bc on both sides of my family including a cousin who had TNBC.

when i was diagnosed in March 2017 i had a lumpectomy and 3 lymph nodes taken.

margins where all clear.  Had 15 radiotherapy session over 3 weeks.

i was offered chemo but said no as the percentage improvement was minimal.   Told me 6% chance of recurrence.

 

fast forward to my mammogram thus February.  Called back to investigate suspicious area which turned out to be scar tissue thickening.  But in that time between mammo and results i had 2 lumps appear.  One was 6 cms n other 3 cms.  After biopsy both were confirmed as TN grade 3.   Shocked or what... 😳😳😳  

Had left mastectomy in April with 3 level 1 axill nodes taken.  Again all margins clear 👍

bcause i had radiotherapy before on the same left side you cant have it again.  12 weeks if chemotherapy which i survived with a few blips inbetween.

 

now i am seeing a bc nurse this friday for a general review and next month i see my chemo dr again.

my hair is starting to " sprout " as are my eyebrows and lashes 🥳🥳🥳 so hoping i will look a bit more normal when we go to The Canaries for a week at the end of next month.

 

any advice/information just ask...i usually catch up on this wonderful website every day.

so stay strong ladies....  we can and will beat this 💖💖💖💖  mini mad xx 💖💖

ps. I'm an older lady,  69 !!

 

 

Member

Re: October 2019 chemo starters

Hello Cherry.. welcome aboard 😘😘

 

Thanks for your kind words ClairL. And interesting about the higher dose if it's more spread out... ( I cant remember who said that, anyone else find the forum hardworking because you cant reply to specific messages? )

 

I seem to have turned a bit of a corner today. Managed to sit up st the table for over an hour. Feel like I'm coming back to myself so its ALL good. 

 

And someone mentioned the filgrastrim? I had 5 self-injected doses to boost nutrafils. They dont hurt if you inject really slowly. Supposed to be no side effects but they whacked me out a bit. But then I'm starting to think I'm a 'whacked out' kinda person 🤣🤣

Member

Re: October 2019 chemo starters

Hi Cherry

Good to hear from you. This is a very helpful resource, i am also very pleased to have come across it.  So many kind and lovely new people to share this ride with!

x

 

Member

Re: October 2019 chemo starters

Hello minimad

Really pleased you joined in.  It sounds like we have similar scenarios with Claire but all slightly different (our ages, how long we had the tumour, how large etc) and slightly different treatments.

 I am 56 and had a clear mammogram in Jan then noticed breast puckering in August and a grade 3 tumour found making its way into my chest wall.

How great to be through the chemo!

It would be very helpful to hear how you found the once weekly chemo. And what is the filgasrim?

How are you doing now?

Thank you 

x

Member

Re: October 2019 chemo starters

Welcome cherry, hope your journey is smooth x

 

Hi mini mad, you have my worst fear. It came back. We're We' triple negative the first time? How did you find it came back? I will have regular scans but mammograms didn't pick anything up for me because I'm too young. 

If it comes back is the treatment the same? 

I'm hoping the acceleration of doses keeps it away. It's harder to know with triple neg. 

 

So many unknowns :-( 

 

Member

Re: October 2019 chemo starters

Hi KathCurtis and Clair

 

hope you dont mind me jumping in here.

i'm from the June 2019 chemo thread and was also diagnosed twice,  2017 and this March as Triple Negative.

I also had 12 paclitaxel, one a week for 12 weeks and carboplatin every 3 weeks for 12 weeks plus tummy jabs Filgastrim  for 3 days after each session.

 

i finished by chemo 7 weeks ago so if you want to ask anything about my journey then please do.   Good luck to everyone...

mini mad xx 💖💖

Member

Re: October 2019 chemo starters

I'm so sorry Lou that you're feeling so bad. I wish I could help more. 

Please keep talking so we know you're as ok as can be. 

I'm sending you lots of love. I hope everything gets easier for you as the weeks go on. 

 

Xx

Member

Re: October 2019 chemo starters

Hi everyone. My name is Cherry and I'm pretty certain now I'll be joining the October gang on Friday 18th. Reading here has certainly helped to calm my nerves.

 

I was recently diagnosed as Triple Negative in just the left hand side and so far it looks like my lymph is clear. I'm going to have chemo first and so have been having an endless assortment of scans which I hope are all proving I caught this early.

 

I found a lump about a month before my routine 50 year old mammogram. I mentioned it at the scan and they called me back for ultrasound and then a biopsy. Had I not mentioned the lump they would not have called me back as apparently my lump is very very shy when it comes to mammograms so I have been telling all my friends to get feeling and not rely on the scans. Hopefully all goes to plan. All I know so far is I will have Accelerated EC-T so 4 lots of 3 weeks and then 4 lots of 2 weeks. Then lumpectomy and then Rads. It's a long road but nice to know there is a friendly bunch here to share the ride with.

Member

Re: October 2019 chemo starters

Hi Purpletrunks and all

I think the Macmillan nurse at our Intro to Chemo talk sad that when you have the more spaced out regime you actually get a higher dose at each treatment, so perhaps it impacts highly initially but maybe you will then pick up again before the next one? Hoping for you!

x

Member

Re: October 2019 chemo starters

Hey, great to hear you dont have too many side effects. I cant imagine having this every two weeks!! My nausea and digestive issues have cleared up a bit but I am totally whacked out. It kind of hit me like a train 3 days post chemo, and 7 days on I'm still very weak. I managed to get to a echocardiogram monday but my husband had to use a wheelchair as i couldn't walk. Yesterday i managed to use my brain in the morning to do some internet purchasing from bed, but by the afternoon I was so weak I couldn't even lift my phone. 

 

Tbf it's not unpleasant, I'm not in discomfort now the nausea is lifting, just surprised at quite how smacked out I've been. 

 

I hated the steroids, they stopped me sleeping, so I'm glad they are done for now. 

 

I'm also losing weight at a worrying rate... but hopefully that will stabilise as I get stronger again. 

 

How are the rest of you getting on? 

Member

Re: October 2019 chemo starters

Hi Kath,

I'm on two weekly doses of EC followed by paclitaxel. Should be about 16 weeks in total. Then radiotherapy I think. They're doing an accelerated regime because I'm young and can tolerate it in theory. 

I'm doing ok at the moment. No more sickness (touch wood). Finish the steroids soon though so not looking forward to anything that is helping. The immune boost injection has been ok, no side effects so far. Just tired mainly. 

Hope everyone else is ok? 

 

Member

Re: October 2019 chemo starters

Thank you for sharing the company details Claire. And I see we are both in the triple negative pot - so we are perhaps/probably having same chemo: Paclitaxel and Carboplatin? I will be once weekly for 12 weeks and then 3 weekly for 3 more.

Hope everyone is doing ok today?

Member

Re: October 2019 chemo starters

I'm triple negative too Kath! 

 

The place I'm going to is hair to ware. They are very good. 

//www.hairtoware.org/about/

It's not quite London but there are very good places around too. Hope this helps!

 

 

 

 

Member

Re: October 2019 chemo starters

Thanks Amanda! You've made me feel much better Smiley Wink. I just need to relax a bit and take each day as it comes. It's nice to know we have each other on here.

 

Annie

 

Member

Re: October 2019 chemo starters

So sorry to hear it’s been quite an ordeal Claire. Hope you feel better soon. Thank you for eyebrow advice. If you are London based would you feel able to provide the name of the service you are using? Please excuse me for asking if that doesn’t feel comfortable and I absolutely understand! Thank you 

Member

Re: October 2019 chemo starters

And just to add to that very specific question: it sounds like you are all being as strong and sensible about looking after yourselves and those you love as anyone can be in these challenging circumstances. I have had chemo start date delayed twice now, once because of lung infection and once to get worked up to join a trial. Seeing oncologist and respiratory doctors on Thursday and hoping to get the go ahead. Really want to start a treatment for this damn thing. Had triple negative mass diagnosed about a month ago after a clear mammogram in January!

Member

Re: October 2019 chemo starters

Hi Kath and everyone,

 

My eyebrows will be microbladed. The first session is Thursday. I am using a salon that specialises in chemotherapy patients. I got my wig from there too. They have been really good with advice and have treated loads of people before me so I have confidence in them. 

 

First treatment was yesterday. They couldn't get the port in properly the usual way so they went through my neck so that is sore. The sedative I had for that completely wiped me out so I couldn't face the cold cap. I feel like I let myself down but I just couldn't go through more pain. 

The treatment itself went fairly smoothly. I had some anti sickness when I got home. I managed to out my boy to bed at least. I was up every hour with nausea and heaving with nothing coming up. Today I feel weak and slept most of the morning. I got out for a bit this afternoon to run a few errands with some help. I even ate a jacket potato!

Here's hoping it just gets better from here.

Sending lots of love to you all x

 

Member

Re: October 2019 chemo starters

Hi Clare

can you tell me about your eyebrows please! I was thinking of getting microblading done but I have seen some advice against this so close to starting treatment because of a risk of infection. Did you go down this route or try some other method? Very grateful for anf feedback you have!

 Thank you 

kath

Member

Re: October 2019 chemo starters


@ajatron23 wrote:

Hi Everyone

 

I am an October chemo starter. I found a lump (turned out to be two) back in May and it all escalated very quickly from there. I have had two lumpectomy operations, and thankfully my nodes were clear. I'm ER+, HER2+.

 

I have felt really strong but now the big day is looming (Friday for me), I'm a bag of nerves and feel totally unprepared. I'm having 4 x EC_Paclitaxel, every 3 weeks, and then 12 more lots every week. I'm having Trastuzumab too.

 

What kit do i need? And what are the must do's and don'ts? Apologies as this is repetitive of lots of peoples questions. I'm going to try the cold cap although I have not been given an overwhelming sense of optimism about this.

 

I have two young kids, and a fantastic husband, family and friends network of support too.

 

Is it strange just to want to get on with it now and know what I'm up against?

 

 


Hi ajatron23

 

Welcome to the October chemo boat !!!!

 

I had my first treatment on 30th Sept and have to say fear of the unknown is the worst thing ever.  Be assured tho the treatment you are about to undergo will

come to an end although the ride may be a little bumpy.  😀

 

I think the biggest thing for me is to have no expectations. I’m taking every day as it comes. I’m keeping life as ‘normal’ as possible, eating well, getting out for walks (not too far obviously), resting and most of all trying to keep stress levels down.  I’ve downloaded a couple of cancer meditation apps (just to zone out and listen to the waves or a soothing voice).  

 

I know chemo has side effects (some unpleasant, some painful and some dangerous) and we have to be extremely vigilant. I would say tho that I find sometimes overthinking these would cause me to have them.  Obviously don’t ignore symptoms but sometimes the art of distraction can be useful.  Go for a short walk, listen to music (have a little dance), listen to a meditation, take a nap to relax and reset your battery.  Sometimes we can become overwhelmed with our diagnosis and the information we’re given and expect the worst.  Optimism and positivity is the way forward !!!! 

 

Your support network is key. As a working mum I found it hard to take a back seat in the household running and not being at work but why shouldn’t we allow ourselves to be looked after?!  We’ll all be back at work and doing the household running again before you know it and complaining we’ve no time 😉 Make the most of the help you can get and accept that people only want the  best for you so you can get better. If your partner, family member or a close friend was ill, you wouldn’t allow them to overdo things right 🤷🏼‍♀️

 

For your treatment session wear comfortable clothes, take food (if you’re there around meal times), snacks, boiled sweets, drinks (no wine or gin 😉), a book, magazines, tablet to play games or listen to music or meditation (don’t forget your headphones 🎧). 

 

I love puzzles however some of my chemo is administered by syringe into my cannula by a nurse. Great cos I get to chat to my nurse for half an hour or so (and she appreciates the half an hour sit down in a very busy unit!). However I’m left handed and this is the side on which I receive my chemo. Typical 🤦🏼‍♀️🤣

 

Try to relax ready for Friday. Do things you enjoy to fill your days and unwind; try not to stress too much. When Friday comes be strong, take a deep breath, relax, look around you at your home and family and remember YOU WILL GET THROUGH THIS !!!!! 👊🏻👊🏻❤️

 

Always here for a chat or a rant😊

 

Amanda 💋

 

 

Member

Re: October 2019 chemo starters

Hi Everyone

 

I am an October chemo starter. I found a lump (turned out to be two) back in May and it all escalated very quickly from there. I have had two lumpectomy operations, and thankfully my nodes were clear. I'm ER+, HER2+.

 

I have felt really strong but now the big day is looming (Friday for me), I'm a bag of nerves and feel totally unprepared. I'm having 4 x EC_Paclitaxel, every 3 weeks, and then 12 more lots every week. I'm having Trastuzumab too.

 

What kit do i need? And what are the must do's and don'ts? Apologies as this is repetitive of lots of peoples questions. I'm going to try the cold cap although I have not been given an overwhelming sense of optimism about this.

 

I have two young kids, and a fantastic husband, family and friends network of support too.

 

Is it strange just to want to get on with it now and know what I'm up against?

 

 

Member

Re: October 2019 chemo starters

Sorry ClaireL

 

I just read back and I see it's your first treatment today!  

I hope all goes well xx

Member

Re: October 2019 chemo starters

Hi Claire

Ok, so it's not me over analysing then?!  My mouth is the same today so I guess it is.. 

 

It is hard work the twins at the moment I think because I'm just so tired.  I've just got them into pre school just for two mornings.  I thought it might help when I'm having treatment but this morning was awful.  My little man didn't want to go.  I know he will be fine but it broke my heart.  All 4 of my children have been out of sorts this weekend and of course it's to do with me.  That's the hardest part is knowing it's affecting them.  We need to do this.  We have to do this so I'm trying to be as normal as I can be.  My wife worked a late last night so my sister came over and helped me get them their tea and ready for bed which was a huge help!  My wife is back on earlies tomorrow so I have to be on form tomorrow to get them all out the door by 8.30!  It's what us amazing women do, we carry on regardless!!

I am listening to my body though.  If I need to have a lay down I will, the washing up can wait!!  My babies need me!! 

How are you doing Claire? When is your next treatment? 

Emma x

 

Member

Re: October 2019 chemo starters

Hi Emzlew

 

I am from the April 19 group and I had four rounds of TC. It had very strange effects on my tongue and sense of taste within hours on each infusion. It was like a strong tingling on the tongue that never stopped for a couple of weeks. I could not taste very many things such as apples and other fruits, sugar, salt etc. I loved tomato ketchup (on toast) and curries. It did fix itself after ca 2 weeks and I could enjoy food again usually for a week before the next chemo. I finished chemo in May and my sense of taste is back to normal. Sometimes I imagine I can feel the tingling again. Not sure that it’s real. 

 

I made a list of my side effects by day as a reference what to expect for the next rounds. To some that might feel a bit unnecessary but it helped me. I found that very similar things happened on the same days post chemo and I was ready for it the second time round. 

 

Good luck everybody. I know you are all going through a tough time right now but there is a point in the foreseeable future when you will feel better. That thought has helped me a lot. 

 

Oots

 

Member

Re: October 2019 chemo starters

Emzlew, 

 

I have a friend who lost her taste and had her tongue effected the same way almost instantly after her first dose. She just finished her treatment recently but I'm not sure what her medication was now. 

How are you finding dealing with the twins? My boy is 2.5years old and I want to be as normal as possible with him whilst this is going on. 

 

Claire x

Member

Re: October 2019 chemo starters

My next treatment is booked for the 25th all being well with bloods. 

I have a PICC line in.  It doesn't hurt having it done and it's not painful at all now.  

I do however have 3 year old twins who like to climb on me a lot so it makes me a little nervous.  That's mainly my reason for wanting a port.  Not the only reason I might add.. 

I believe I'm just waiting for them to send me a date for that now?! 

Have been feeling much brighter today.  Started my injections tonight.  My wife is type 1 diabetic so I can't really complain about injecting myself so that made it easier to do it!  Feeling nervous everyday day about any other side effects that might show up but also positive I will power through!! 

Ooh, my tongue feels funny?!  A bit like I've eaten some really strong salt and vinegar crisps and it's stripped my tongue of much feeling..?  Would that start already or is it me analysing too much??  🙈

 

Member

Re: October 2019 chemo starters

Hi Jasmine 

 

Glad to best you have a support network around your family. 

 

I have my chemo through a syringe via cannula so can’t comment on a ‘line’ but I do believe it is a PICC line.  I saw some patients at my unit with lines fitted and they didn’t appear to be in any discomfort nor did it appear be a nuisance. 👍

 

keep us posted !! 💋

Member

Re: October 2019 chemo starters

I’m back on 21st as long as bloods are ok 🤞🏻

 

A

💋

Member

Re: October 2019 chemo starters

Thank you for your reply aj72. I have recommended her this forum, I believe she is on the Macmillan one at the mo too. 
We have told my sisters school and her teacher has spoken to her as she is actually going through the same (her mum having breast cancer) so she has great support with the pastoral team too. 
We are having a look around on the 8th so will find out more - they said she is having a ‘line’ fitted - would this be a PICC line? Will update after tues x

 

thank you for the birthday wishes x

Member

Re: October 2019 chemo starters

Hi I’m starting on Friday.. slightly nervous how I’m going to feel after the sessions re nausea 😤

Member

Re: October 2019 chemo starters

Awesome, thank you x

When is everyone next up for treatment? 

Member

Re: October 2019 chemo starters

Hi Claire

 

depending on how long your session is you may want to take some lunch or snacks like crackers or biscuits and a drink.  I’ve also been told about sugar free sweets like lemon sherbets or mints to zing your mouth up a little.  I was offered tea and coffee in hospital but it was a bit grim so might take some fruity tea bags on my next appointment 👍

Member

Re: October 2019 chemo starters

Thanks Amanda,

 

Does anyone have any tips for what to take with me tomorrow? I've got my travel sickness bands, headband for the cold cap,a my phone and a book. The rooms in elstree are all single rooms so I won't get to chat much to others I don't think. My husband is coming with me too. 

 

Thanks!

Member

Re: October 2019 chemo starters

Also take a look at PICC lines.  Best decision i made for having my chemo and bloods taken....no sore hands...no cannulas 👍👍👍

Member

Re: October 2019 chemo starters

My hospital doesnt fit portacaths so i had a PICC line put in....  so easy for chemo, bloods, meds... no more cannulas 👍👍👍    Good luck 💖💖

Member

Re: October 2019 chemo starters

Let us know how you get on tomorrow Claire 👊🏻

 

Amanda 💋

Member

Re: October 2019 chemo starters

Havent heard about ports.. will have to investigate 

Member

Re: October 2019 chemo starters

I get one fitted tomorrow. I've only heard good things about having it so that's a positive. Good luck with getting it fitted. 

It's d day for me tomorrow. 

Hope everyone is doing better today. X

Member

Re: October 2019 chemo starters


@kathyx wrote:

@Shi

It's frequently only through using Google that we find out about new developments and breakthroughs, particularly if you're not being treated at one of the big teaching hospitals in the UK. How many people have even heard of having a port installed for chemo rather than risking it wrecking your veins? (And that's just one example.)

 


I'm looking into having a port a cath.  A neighbour recommended it to me so I'm just waiting to hear back.. 

 

Shi Community Champion
Community Champion

Re: October 2019 chemo starters

Kathrynx, no offence meant by saying keep off dr google, we all have done it and yes it is a way to find things out like I have done re the m d Anderson stuff. Sorry I just didn’t want anyone 😳😳😳with out of date info. Everyone can google away to their hearts content, it’s everyones individual journey and you all do what’s right for you, again sorry and no offence meant to anyone 💕💕✨✨Shi xx

Member

Re: October 2019 chemo starters

@Shi

It's frequently only through using Google that we find out about new developments and breakthroughs, particularly if you're not being treated at one of the big teaching hospitals in the UK. How many people have even heard of having a port installed for chemo rather than risking it wrecking your veins? (And that's just one example.)

 

Shi Community Champion
Community Champion

Re: October 2019 chemo starters

Had breast cancer at 44 sorry predictive text 🙄

Shi Community Champion
Community Champion

Re: October 2019 chemo starters

Just also wanted to share with you my gran has breast cancer aged 44 and she is now going to be 95 this week ❤️So good bit of positive for you all to focus on 😁❤️💕💕✨✨Shi xx

Shi Community Champion
Community Champion

Re: October 2019 chemo starters

❤️Keep off dr google, remember treatments and breakthroughs are happening all the time, why just 30 odd years ago aids was incurable, now there are pills that keep it in check. Get those positive pants pulled up and get through the chemo 🥊🥊🥊🥊it’s extra dr on inside giving anything a good battering 🥊🥊🥊 if you do get google fingers head to m d Anderson in the states, they are always making breakthroughs over there and so is cancer research here in the UK, they are unlocking codes and doing new trials when they can get funding and massive thank you to everyone on trials that are the very important part of the research ❤️❤️of your body tells you to rest during chemo then rest, just keep vigilant on se’s and always ring your units 😘💕💕✨✨Shi xx

Member

Re: October 2019 chemo starters


@jasmine1897 wrote:

Hi everyone,

I’ve just read through this thread and it is incredibly positive.

I’m actually here on behalf of my mum, 45, who was diagnosed with IDC grade 3 with lymph node involvement (including ones on side of neck?) On the 20th sept. She is ER-PR- and HER2+. 

she has been given a date for chemo - 14th Oct. Then mastectomy & radiotherapy after. She has had a CT scan Thursday to check for further spread. She has been in a lot of pain and unfortunately can’t move her shoulder/arm on the affected side so she’s unable to work, which as you know when you’re not busy your mind runs wild!

 

She has 4 children youngest being 13 (I’m 24 on Monday!) 

 

Thank you for everyone who has given tips for starting, and I hope for the best for everyone going through this xxx 


Hi Jasmine

 

From a ‘mum’s’ perspective try to keep life as normal as possible.  Since my diagnosis our house has carried on with the same smiles, hugs, sarcasm, wit and arguments. Yes I have an illness and need treatment but it’s not going to beat us.

 

Encourage younger children to talk about how they feel even if it’s just for them to rant at you. Let them listen to you so they know that what they maybe feeling is ok because their big sister feels it too. Please also make their schools/colleges aware as their mood, behaviour and concentration may change and the establishments need to understand why so they can help. 

 

Take at look at these websites:

http://www.riprap.org.uk/ 

 

https://www.maggiescentres.org/cancerlinks/cancer-types/paediatric-childrens-cancers/teenagersolder-...

 

I also called to the Macmillan helpline to chat about my kids (18 and 16) and they were lovely and very helpful.  

 

Don’t let your mum’s illness be a black cloud in your house let it be something that brings you all closer together. 

 

Please ask your mum to join the forum so she can either carry on her journey with us or simply read the comments to seek reassurance. 

 

We’ll be thinking of you all in the 14th but in the meantime have a very Happy Birthday Jasmine and celebrate !!!!  🎊🎊

 

Amanda 💋

 

Member

Re: October 2019 chemo starters

Lots of love to you and your mum jasmine1897 💜

Member

Re: October 2019 chemo starters

Hey Claire 

The dark places our brains now know eh? I could send lots of stuff about focussing on the now, being strong, definitely not googling. But, actually..  I just want to say that I really hear your fears. ❤❤❤❤❤ I'm sure we all have them too in different ways on different days. This is sooo bloody hard. Some days, like today, I really havent got this at all. 

 

I spent the day in a&e today. Tight chest, called chemo unit, sent in via a&e. A blood marker for pulmonary embolism was up so I had a day of scans. When the doctor told me it wasnt an embolism I realised I was actually only worried whether it was the cancer spread. He said is wasnt. I sobbed like a baby and realised that's the underlying fear always now isn't it. Once you have been told that everything isn't ok, it seems so easy and likely that we will be told that again. And managing that underlying fear is sooo exhausting. Especially when chemo'd up!!

 

But one thing I know for sure, there will be brighter days than this one. We will get through chemo and the sun will shine on our bodies and fill them up with life once more. 

 

For today though, its greasy sickness, cloyed head, wired steroid brain no sleep, and bored endless scrolling through innocuous crochet pinterest to avoid dark thoughts and dr google. Come on tomorrow....

 

Member

Re: October 2019 chemo starters

Hi everyone,

I’ve just read through this thread and it is incredibly positive.

I’m actually here on behalf of my mum, 45, who was diagnosed with IDC grade 3 with lymph node involvement (including ones on side of neck?) On the 20th sept. She is ER-PR- and HER2+. 

she has been given a date for chemo - 14th Oct. Then mastectomy & radiotherapy after. She has had a CT scan Thursday to check for further spread. She has been in a lot of pain and unfortunately can’t move her shoulder/arm on the affected side so she’s unable to work, which as you know when you’re not busy your mind runs wild!

 

She has 4 children youngest being 13 (I’m 24 on Monday!) 

 

Thank you for everyone who has given tips for starting, and I hope for the best for everyone going through this xxx 

Member

Re: October 2019 chemo starters

Hope you feel a bit perkier soon Jules. 

 

I'm having a crisis if confidence tonight. Not knowing how I will feel come Monday and because I started reading the book that was recommended 'surviving triple negative breast cancer' and it said 'if it comes back it's incurable'. I'd never heard that so I Dr googled and now I feel like crap. Nothing I read actually confirmed that but everything is so bloody uncertain. 

 

Anyways, I'm so glad you guys are being so strong. Gives hope to the rest of us at these kinds of times. 

Wish I could be the strong woman I always was. 

 

You got this <3

Member

Re: October 2019 chemo starters

Hi Lou,

 

I hope the sickness is improving.  

 

Im just shattered feeling very tired.  Finished the steroids this morning and now giving myself daily injections of lymphocytes....  

 

I’m hoping the tiredness will improve but if not going just going to have to go with it.... 

 

we can do this 👊🏻

 

Xx

Member

Re: October 2019 chemo starters

That sounds similar to me.. I felt sick the next day too but its easing today.