Nice to meet you Linda and Beaglesmum. 😊
I'm not sure if I am doing this right, replying to Linda’s post, this is my first go!
I will be joining you in starting chemo in October.
I was diagnosed with a grade 3 breast cancer in August. I had my surgery (lumpectomy and removal of 4 lymph nodes) at the end of August, and have been impatiently waiting for my first oncology appointment which was yesterday.
My tumour was small, just 11mm, and lymph nodes clear, ER+, Progestrone positive, and HER2+.
Because it is HER2 positive I need chemo, and I will be starting Nab-Paclitaxel when all the test are done. I will have 4 rounds every 3 weeks instead of the standard 12 weekly Paclitaxel, because of Covid. I’ll have Herceptin alongside- injections every 3 weeks for a year. After chemo there will will be radiotherapy, and then 5 years on tamoxifen.
So now I am waiting impatiently for the appointments to start rolling in, heart check, chemo nurses, maybe a bone density scan? Hope it can all fall into place quickly, the sooner I start chemo the sooner I will be finished.
Do the rest of you know what you are having yet?
Hope we can help keep each other’s spirits up and share tips. I am finding it hard to concentrate on work at the moment - but trying to be useful for as long as I can.
I hope anyone else who is starting chemo in October will join us. 😃
I start chemo on 1st October, having had a mastectomy & lymph node removal 6 weeks ago. I am feeling extremely well, and going into this positively. I had chemo 4 years ago & coped fairly well. I lost my hair gradually but quite enjoyed wearing a wig, in as much as having a new look & no fuss with washing, styling etc. It grew back almost identical to how it was before. I’ve suddenly decided at the last minute to try the cold cap this time. I have long thick hair, so will see how it goes. I did have constipation last time, which wasn’t pleasant, so will be armed with plenty of laxatives. Also, the steroids increased my appetite considerably & I did put weight on, although I think I used that as an excuse to eat all the cakes/pies/pizza that I’d been denying myself for years 🤣. This time is a different cancer treatment, so I know I cannot directly compare. Good luck to everyone else joining me on this ‘journey’ in October.
Beaglesmum ❤️ Sorry you find yourself here but glad you’ve found breast cancer now, everyone is here 👭. Take it one day at a time, get thermometer to keep check on temp during chemo, anosol And senokot or something (Chemo steroids can block you up), drink plenty of water during chemo, If your antisickness meds don’t work let you unit know they will tweak till they get right. If your wee burns like a uti but no temperature ring your rapid response it will need antibiotics not just a bit of cranberry juice during chemo. 👭 please use the someone like me option on here ring them number it might help you too ❤️ Ask away, everyone takes care of each other 👭 here. Remember it is your journey do what’s right for you and even if you don’t feel like you are in control you are 💪💕💕✨✨Shi xx
Thank you for this site. I was told that I have grade 2 duct breast cancer (triple positive) 2 days ago and am still a bit dazed. I start my chemo first in October and am starting off by going cold turkey off my HRT patches, which is a traumatic beginning. So here I am at 4am unable to sleep....
This thread is for anyone due to start chemotherapy in October 2020. I’m sure others will be here soon but please introduce yourself and you can all help one another through this phase of your treatment. If you have any questions please post away on here and others in the community will watch over you whilst you are getting started. Once you are into it you'll be pretty good at helping each other. You can also ask the nurses on this forum if you have any concerns. In the meantime, the top tip is always to stay well hydrated throughout chemo, aiming for 2 litres of water per day and get a thermometer and check your temperature every day.
Here is the BCN guide on chemo:
Here’s an excellent article for anyone concerned about hairloss. That’s pretty much everyone starting chemo: https://pinklotus.com/powerup/breastcancer101/chemo-hair-loss-and-menopause-hair-too/
Here are some apps which can help to keep you on track:
I finished my chemo in October 2017 and doing very well again now. Here is my story which has some chemo tips on how I coped which were collectively shared from others who had gone through the same from this forum:
If you decide to set up a private group its good to stay on here also during treatment as I know from experience there are some people who watch but don't immediately pluck up the courage to join in. Your conversations can be a real comfort to others.