66.5K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

October 2020 Chemo Starters

Karen19
Member

Re: October 2020 Chemo Starters

Before my treatment started I was told that everyone reacts so differently to their treatment, but it amazes just how different those experiences can be.

I was diagnosed in July followed by a lumpectomy and lymph gland removal in August. The tumour was 9mm and early stage, but tested positive for HER2. I am having 6 cycles of FEC-T each of which are 3 weeks apart.

My first treatment was a week ago and by the time I got home I had the worst nausea and sickness I had ever experienced in my life which continued for 24 hours before I had to return to hospital for an anti sickness injection and replacement fluids.

The following days were a drug fuelled haze and the nausea was replaced by splitting headaches, dizziness, sore throat, sore mouth, fatigue, raging thirst and no appetite. When I managed to have a small proper meal, I found myself crying into it 😂.

But... every cloud has a silver lining and I finally turned a corner yesterday and started to feel the side effects lessen thank goodness!

I’ve lost 3kg in one week and am averaging 5-6 litres of water intake a day due to thirst. Due to have blood tests tomorrow and will check whether this is normal.

It’s so reassuring to hear from other people in the same boat and really glad I came across this group x

York-75
Member

Re: October 2020 Chemo Starters

Oh SU, I’m so sorry you are feeling so awful. Nausea and sickness was one of my biggest concerns and I would be worse than useless if I had to suffer it. Can you keep talking to your team about this? I think they have lots of different anti-emetics and maybe there is a different combination that would work better for you?

How each of us react to treatment varies so much, and seems to be down to luck entirely. My chemo nurse said to me: please don’t suffer, call us and talk to us, we will do everything we can to make it easier. Fingers crossed they can make it easier for you, because your experience so far sounds awful.

Hugs to you, hang in there! Xx

Strangely upbeat
Member

Re: October 2020 Chemo Starters

I have been reading everyone’s stories re: first chemo and now feel up to sharing mine.  Can I say firstly that I have so much respect for all of you ladies but especially the ones with younger children, I take my hat off to you.  Doing school runs (walks) etc.  I am glad my husband and son are able to do most of my usual jobs (and think they finally realise, how hard this full time working and then coming home cooking, cleaning, washing etc fairy actually does 🤣). 

Anyway back to my journey:  1st chemo was Thursday and I was totally shocked to start feeling nauseous within 4 hours of treatment, this progressed to me throwing up every 30 mins to an hour so had Dr out for stronger anti sickness meds.  I now seem to be in a pattern which is manageable.  I feel nauseous between 4/5am so take meds, sleep is up and down all night, wake up 7/8am have breakfast then it’s an hours snooze time around noon.  Nausea mid afternoon and then a good spell between 8-11pm.  Also having loads of hot flushes and then feeling really cold. 

I am living on cereal, tuna sandwiches, croissants and fruit as that’s all I can face.

One thing that makes me happy is my new super soft pjs from Primarni.  Xx

 

York-75
Member

Re: October 2020 Chemo Starters

Welcome Karen19! 
you are in the right place, glad you could join us.

Well Done for getting the first one under your belt! Hope you are feeling ok, what kind of regime are you on? We all seem to have different journeys, some have had surgery first, some have chemo first. 
I have found this a very useful place to learn tips from the experiences of others, and it is nice to be able to cheer each other on though this strange and challenging time. X

Karen19
Member

Re: October 2020 Chemo Starters

Hi...

I have joined the site this evening and hopefully I am replying in the right place to introduce myself as a new member who started chemo on the 20th October! Have been reading lots of your posts which have been really helpful.

York-75
Member

Re: October 2020 Chemo Starters

SU, you rock!

I think that was a super brave thing.  I was so relieved I don’t need to do thus on my regime, so huge respect to you and the others who have to be so very brave. 😍

LouJP
Member

Re: October 2020 Chemo Starters

Hi

I am not part of the October 2020 starter as such but keep up with all the various messages and hope you don't mind me dipping in on your giving yourself your first injection - mine was back in February and I continued for the 6 rounds of chemo I had - it wasn't the easiest thing to do but sometimes thinking about doing it was harder than it was - I used to on average have to inject for 7 days and had a piece of paper by the fridge (where they were kept) that I ticked off each day and then gave a little cheer as the last one of each cycle was finished.

Taking the sharpie box for disposal at the end was a joy.

Hope they go ok.

xx

 

Strangely upbeat
Member

Re: October 2020 Chemo Starters

I did what I think is my first brave thing today (had the op, had first chemo, been ill etc) but today, I have given myself my first injection, phew!!! I think my next brave is going to be booking the shave and hopefully donating my hair to the #littleprincesstrust

UmLydia
Member

Re: October 2020 Chemo Starters

York-75 was going to shave my head then decided to wait and see. I had long hair and decided to style it myself, since it will all fall out. I have been chopping away giving myself new looks, its quite fun, in a "who cares" kind of why. I bought loads of headscarfs and have been practising and found some nice headwear. 

Unfortunately where I live we have to wear face masks outdoors. During lock down I got blepharitis, its a problem with eye lashes, so i can't wear make up or contact lenses. My eye gets all gungy. Which isn't a big deal but makes looking attractive options limited ha ha ha. But for my little girl i will do my best. 

UmLydia
Member

Re: October 2020 Chemo Starters

Hi Whithers14

Yes I had EC as well. I'm feeling much better. I don't think I can hide feeling bad from the kids. I explained to them that to get better the doctors needed to give me some very strong medicine that would make me feel very tired and sick. The good side is I am off work so will have more time with them. It seems very roller coaster like, so have to make the most of good days.

I didn't cold cap, I live in France and they don't seem to do it here. 

I am trying to go for a walk every day, luckily we are having a break at the sea side and the air is making me feel great and going for walks as well. 

Kids back to school next week so see how long it takes before I need to wear headscarfs etc. New look. Unfortunately we also have to wear compulsory face mask outdoors. Sometimes i think I might as well buy a burka. Not for religious reasons obviously just as a fed up statement. 

When do you have next treatment? 

Take care 

Shi
Community Champion
Community Champion

Re: October 2020 Chemo Starters

Keep eye on mouths for thrush too, it’ll need antibiotics, difflam can help with mouth sores but do phone your units and check symptoms with them always ❤️ They can help keep you safe through chemo. Remember during chemo everything is not like normal you need to check with your units about everything 👍👍please keep safe ❤️💕💕Shi xx

whiters14
Member

Re: October 2020 Chemo Starters

Hi Umlydia

It sounds like we are in a similar position I had my first session on Monday last week, the red one too EC I think they called it. Similarly to you I was very tired the first few days but then started to feel better. I had a real wobble on Friday and phoned unit i have never felt my body ache so much that with a slightly raised temp and being a worrier tipped me over the edge. The unit were lovely and said it was a likely reaction to the jabs. Today I am feeling pretty much like myself.

trying to hide feeling poorly from the kids is what I’m struggling with but like you my husband has been fantastic keeping them busy.

Did you cold cap? I did but I think some hair starting to come out today hopefully not too many 🤞.

I’ve been doing salt water mouthwashes to help with the mouth sores but the dry throat thing feels strange. 

Hope you are feeling okay this weekend take care x

York-75
Member

Re: October 2020 Chemo Starters

Well done NAJ for getting the second one done! I am nervously waiting g fir my hair to start falling out. I think I’ll have to shave it number2 straight away, I think watching it come away in chunks would be harder for me.

But you are there now, and got over another hurdle!

 

UmLydia, glad you have found us here! I have a 6 year old girl, and I can relate to wanting to look normal for her.

I have a wig, but also found some soft ‘hats’ from annabandana which look nice- I figure I could still wear them with some earrings and a touch of makeup.. I haven’t worn any since March! At least there isn’t many chances for me to embarrass her, since we are mainly at home! I best make an effort for the school run or send daddy! 😆

I too had my surgery first, so I’m not sure how fast a tumour could shrink, but I hope it is shrinking already, and that this regime you are going through will blast away at it so there is less to operate away. Xx

Not a jockey
Member

Re: October 2020 Chemo Starters

Hi UmLydia,

Get your GP to give you a prescription to deal with the heartburn/acid reflux.  My GP prescribed Omeprazole and it's been fantastic.  One tablet a day until I stop chemo. 

Feeling nauseous must be the worst.  This is a tough call with kids to consider.  The red chemo was probably epirubicin and it's pretty toxic so they give it first. 

I know what you mean about getting started.  The waiting is tortuous.  I had my op first and I find it interesting how different everyone's experiences are.

NAJ

UmLydia
Member

Re: October 2020 Chemo Starters

I started chemo last week. I am 42 have Her2 postive, hormone positive cancer lump in left breast and at least one lymph node. I have 3 kids under 10. 

I slept for two whole days and nights after a first evening feeling very nauseous. So that wasn't too bad. Luckily my husband took the kids out most of the time. I think I am starting to have piles (never had one before), feel a bit bloated, will try to drink loads more water. I don't feel too tired, the doctors said it is really important to walk and stay active (couldn't the first couple of days i was knocked out sleeping). I had the red chemo and another one, I think quite strong. 

I have painted my nails bright red and obsessed for hours over head ware, I don't want to wear a wig. Hair should start to fall out next week. I don't really care as long as the drugs work. My 5 year old daughter is very upset that I will lose my hair and has asked me if I can wear make up and jewellery to look pretty with my headscarf. Ahhh. Its true for years I haven't made much effort with young kids. Will have to start now. 

I have another 5 months of chemotherapy mixed with the drug for the HER2 protein and hormone therapy, then will need a mastectomy, then radiation . 

I actually feel quite hungry after the first few days of feeling not great. Also was craving protein. Is this normal? 

Also when I swallow it feels a bit sore and need to chew a lot, have a kind of heart burn and have some mouth sores forming. Its nothing dramatic but since its only the beginning hope it won't get much worse. 

Once you start chemo you don't see the doctors much, I had got used to going for all the tests etc. 

I get the impression the tumour is already shrinking, is that possible or just wishful thinking? Makes all the side effects worth while in any case. When I was sitting having my chemo I was more relieved than anything. I had to wait weeks and weeks while they did all the  tests and just wanted to start getting better. 

Not a jockey
Member

Re: October 2020 Chemo Starters

Well I had second chemo on Wednesday and on Thursday morning my hair started to fall out rapidly.  On Friday I had a hideous look where the top of my head was completely bald but I had hair left all round the sides and back.  I got my daughter to shave it off completely and I feel much better.  I got some coconut and argan oil to rub on my head but it's like concrete - had to use a spoon to get it out of the jar.  It was like crayon shavings so it was a bit of a laugh waiting for it to soften so I could apply it.

Anyway I went out shopping and to the allotment in my new wig and people were very complimentary which was a bit of a boost.  Once I knew I was home for the day I took it off - but you do notice the cold!

My daughter says she prefers the 'bald' look to the previous 'skinhead'.  Now where did I put that rubber stamp that says 'Best Before 2020' ........

Take care everyone xx

Shi
Community Champion
Community Champion

Re: October 2020 Chemo Starters

Hi withers no harm in checking temperature as much as you want and it’s good you are and being vigilant don’t forget even with no temperature if wee burns then rapid response it and same for thrush mouth or thrush down below too (chemo can cause this) keep safe 💕💕Shi xx

York-75
Member

Re: October 2020 Chemo Starters

Withers14 I’m sorry you are feeling exhausted. I am OK first thing and then progressively worse from 10.30 onwards. At 8 I could go the school run (walk!) and I took a short drive and if one errand after. At 1pm I walked round the block and felt exhausted and really dizzy. Funny how it affects us all differently and st different times of day. I hope you get a little bit if ‘normal’ time too, gives a boost to feel able to do things even for a short while.

 

I don’t think there is a rule about temp.. I take mine first thing, then only measure again if I feel different in any way. First 2-3 days I probably checked every couple of hours, now maybe once in the morning and once later in the day.

I hope it settles down for you. Xx

whiters14
Member

Re: October 2020 Chemo Starters

Glad you’re feeling ok after your first session. It’s good that you’ve managed some cooking. I haven’t managed to do a morning school run as feeling very tired in the mornings.

Has anyone else got thermometer paranoia? How often should I be checking my temperature. Mine is fluctuating and I phoned the unit as it was 37.5 but I was using my own ear thermometer (which I think I’ve overused giving myself a bit of a blocked ear) I knew my excessive worrying would affect this. 

Allie_A
Member

Re: October 2020 Chemo Starters

I had my first session this Monday.  I did the cold cap which wasn't too bad.  Did get a headache at first and went a bit sleepy.

Sounds like I am getting similar effects to others.  Just tired and a bit nauseous. Not liking the taste of coffee is annoying. Managing to take and pick up my son from school and some cooking but not much else.  

I did the first injection yesterday which I was dreading but was fine.

My treatments are fortnightly so hoping for a few good days before the next one especially as half term next week.  

 

 

Not a jockey
Member

Re: October 2020 Chemo Starters

Hi Chesterbrownbear,

Had session 2 today - only 40 minutes this time and I felt very relaxed about it.  Like you I had 10 days of manageable side-effects and then felt great, though tired, for the next 11 days.  I'm hoping it's much the same this time.

Horror of horrors I seem to be developing a bald spot 😱

My chemo is being moved to Thursdays so I'm on for the Christmas Eve cocktail too!

Think it's you and Linflo tomorrow - hope it goes well for you both.

NAJ

 

linflo58
Member

Re: October 2020 Chemo Starters

Chesterbrownbear 

Had a telephone appointment with the oncologist today. Lasted all of 5 minutes as luckily I had nothing to report. Apart from tiredness in first week I have felt good. I’m currently wearing a cap to try & keep my hair from falling all over. It is a soft turban that I bought last time & didn’t use. It’s definitely coming out with a vengeance, but if that’s my major side effect I can handle it. It’s good to know we have this group for support  throughout this treatment, it will be interesting to see if the chemo will be in our Christmas Eve box! 

We are not missing much with these covid restrictions, hopefully the world will have recovered by the time we do.

Good luck with your treatment x

Linda

Jojo1447
Member

Re: October 2020 Chemo Starters

Hey Mrsquincey

Well done on the first treatment.

I had my first EC treatment last Friday, not doing the cold cap at my hospital due to covid, but to be honest i dont think i could have coped with that.

I was only there just over an hour and a half in total and to be fair I was ok the rest of that day and the following day Saturday, i did keep on top of the anti sickness meds though i hate feeling sick.

Sunday it hit me, i just had no energy at all kept getting up for an hour then back to bed for a couple.

Monday wasn't as bad but still tired.  Managed half day at work.

After that I've felt fine and been to work as normal.  I want to try to carry on as much as i can within reason, i don't want this thing to overtake my life fully.

I had to start the self injections in the stomach last night, was terrified as i'm a real needle phobe, but i numbed it for an hour first and to be honest didn't feel a thing and to my surprise didn't pass out lol only another 4 more nights of that to go till next round, then i'm guessing have to start it all over again.

Hope you're feeling a little better today, take one day at a time xx

York-75
Member

Re: October 2020 Chemo Starters

Good luck Chesterbrownbear and Linda for tomorrow!

2 of 6- a third of the way there! 💪🏻

chesterbrownbear
Member

Re: October 2020 Chemo Starters

Good luck lynflo58, like you I’ve got my 2nd session tomorrow.

babe strong, will be 2 down 4 to go xx 💪💪💪💪💪

 

 

chesterbrownbear
Member

Re: October 2020 Chemo Starters

Hiya not a jockey, like you I’ve got my 2nd session Thursday and I’ve got the willies.  To be fair the last 3 weeks wasn’t too bad, the 1st 10 days were the worst but after that I’ve felt surprisingly good.  Yes it looks like I’ll be having a session on Christmas Eve☹️. Normally as a family we go and pick up the Turkey walk our Labrador and have a meal at a country pub, ( my daughter is 36!) so will have to miss that this year. not heard anything about a wig yet, so I’ll have a word about that tomorrow.  Yesterday had my blood test and then a COVID test, OMG I think the swab touched my brain, perhaps they have to check I’ve still got one 😀😀😀.

Good lunch to you and everyone here, and we will be strong together xxxxxx

Not a jockey
Member

Re: October 2020 Chemo Starters

Hi everyone,

Well done to all those of you who have had your first session this week. I hope you soon start to feel as good as new.

I've got my second Fec T chemo tomorrow.  Fortunately my side effects were not too bad though the acid reflux was horrible and I've felt surprisingly tired.  My hair has not fallen out but I guess it will do pretty soon. 

Having got one session under my belt I'm feeling much more relaxed about tomorrow.

From next cycle it looks like I'll be getting my chemo on a Thursday which would mean one on Christmas Eve.  Hmmm.  Maybe someone else can cook Christmas Dinner this year. 🙂

 

 

 

 

York-75
Member

Re: October 2020 Chemo Starters

Good work mrsquincey on getting through the first one! 💪🏻
I’m sorry you have been feeling rough.

Keep on top of the anti- sickness meds, I hope you don’t have to suffer too much. 
Hugs to you, it can be exhausting to try to stay strong for these little people sometimes, can’t it. Xx

York-75
Member

Re: October 2020 Chemo Starters

Withers14, 

well done on getting your first one done!

fantastic that you still managed school pick up, I feel super pleased with each one I manage. 
Today I did both drop off and pick up, but now I feel pretty broken. So be kind to yourself, we need rest to replace all these cells the chemo is killing off! Xx

jomich50
Member

Re: October 2020 Chemo Starters

Hello everyone I had my treatment plan signed off today and chemo may start November 3rd week or end of next week so thought could sneak in this group.  I am jo had first mammogram mid September and recalled just in time for my 50th birthday  !   So have invasive ductal BC triple negative one tumour 20-24mm approx and a tiny dot one only found after MRI and swollen armpit and some cells grade 3.   Got pre apt next week flu jab done and urgent dents, work next week.  As I am triple they are trying me initialling before any surgery on carboplatin to be done weekly for first half (total 24 weeks) as evidence show this is effective on triple especially with my family history with EC every three weeks. Anyone else has weekly with the EC every three weeks jo xx    

 

 

Jo22
Member

Re: October 2020 Chemo Starters

Hi mrsquincey,

Well done, that's one down.👍 Sounds like you're having a tough time. Rest as much as possible, I slept on and off for nearly a day & a half afterwards.

Thank goodness for cuddles xxxx

Jo22
Member

Re: October 2020 Chemo Starters

Hi Linda,

Yes I think you are the first and I am a week behind you. I feel great now and no side effects at all to speak of. However i had my wig appointment today via the NHS by phone! The lady texted me a couple of days ago with a few ideas for wigs and colours after I'd sent a few pics of me. So they're posting it to me to try. Lets hope it fits and suits me! I had my hair cut short last week just in anticipation of it falling out but I've gone for a long wig more like the person I was. Whether I'll wear it remains to be seen! Will you go for a wig do you think?

Best of luck for Thursday xxxxx

Jo22
Member

Re: October 2020 Chemo Starters

Well done Whiters14, another one past their first session!

Sorry you aren't feeling well. My nurse told me to stay on top of the anti-sickness tablets over anything else as they take a while to kick in. My nausea had passed by day 6 and by day 8 I felt normal again which was such a relief.

Its good you managed to walk & pick up your boys, I'm struggling to motivate myself to get outside now the days are getting colder. All I want to do is curl up in a chair.

Hope you feel better soon xxx

Jo22
Member

Re: October 2020 Chemo Starters

Hi Mrsquincey,

I had my first session on the 8th Oct and just wore some nice jogging pants, t-shirt and long cardigan. I definitely wanted to be comfy & warm as I had the cold cap and it really helped. 

I had a mix of folks in with me but most were older. I offered them all a murray mint & that went down quite well! After that I couldn't get the lady across from me to stop talking 🤣🤣

Best of luck xxx

Jo22
Member

Re: October 2020 Chemo Starters

Well done York75, that's one under your belt!

xxxx

mrsquincey
Member

Re: October 2020 Chemo Starters

Heya all. Had my 1st chemo today. Ec. Was there from 9.30 and didn't leave till 3.20

 

I managed the cold cap it is bloody horrible but if I didn't try I would think what if. 

 

Car journey back and I did feel ropey so bloody ropey. Literally felt like I was in a taxi the night after a heavy night. 

 

Feel a little better now back home. 

 

They told me I couldn't pick my lilun up from school due to infections 😢 but by the time I got in they had a dettol bath and scrub and ready for cuddles with muma

Jo22
Member

Re: October 2020 Chemo Starters

Welcome Buochs!!

Sounds like you have a tricky decision, what do your team think? Usually they do have an opinion one way or another. But as has already been mentioned we are all different and you have to do what feels right for you. It may take a bit of time to get there but you will.

I had 2x grade 3 IDCs and 2 lumpectomies (diagnosed back in June)  & then they found DCIS so now I'm on EC chemo and then a mastectomy. They absolutely do their utmost to keep your breasts or at least that's what I've found anyway.

All the best & you have found the right place for advice, everyone on here is so lovely.

Jo xx

linflo58
Member

Re: October 2020 Chemo Starters

Hello everyone 

I think I am ahead in this group, I had my first chemo on 1st October, apart from fatigue the first week, I have felt remarkably well. Have done some decent walking and had a few G&T’s along the way. My second chemo is this Thursday & I’m ready for it! My hair decided to start falling out on Saturday, quite substantially. Luckily have a very thick head of hair, so not noticeable at the moment, but I was surprised at how easy & how much does ‘fall out’. I work in a school, so they will not allow me to go in, although I did feel up to it. I think we should just take each day as it comes, if it’s a good day, make the most of it, if it’s not, put your feet up & let people look after you ( that’s the hardest bit for me) .

Good luck to everyone xxxx

Linda

 

whiters14
Member

Re: October 2020 Chemo Starters

Hi York75

had my first session yesterday and managed the cold cap it wasn’t as bad as I thought the chin strap was annoying.

was a bit sick during the night and agin this morning feeling tired so had a few naps. My eyes are stinging which is weird. Managed a walk to pick the boys up from school which made me happy. I have a feeling the next few days are going to be unpredictable! 

im glad you are feeling good, I know what you mean about feeling pathetic but I think we’re allowed to take it a bit easier with all that’s going on.

take care everyone 💕

York-75
Member

Re: October 2020 Chemo Starters

Hi there, 

How is everyone doing?

Hope you are all ok. Some more of you starting treatment this week, I think. Hope you are in good spirits and that is goes well.

 

I’m on day 4 of cycle 1 of nab-paclitaxel, and not feeling too bad, although some new symptoms keep cropping up. I now have bleeding gums when I brush my teeth, so time to get those super soft toothbrushes and the salt water rinse out.

I also have a rash on both thighs and itching, so was relieved to find that an antihistamine was allowed. I also use aveeno moisturiser, which seems to help.

In the morning I have more energy, so I have been able to take my daughter to school and do some jobs, but come 10.30 I’m tired and achey and might even need a nap after lunch! I feel I’m being a little pathetic, I’m not used to being ill. 

Gang in there everyone, hope you all have a great day. Xx

 

Shi
Community Champion
Community Champion

Re: October 2020 Chemo Starters

Bouchs123 ❤️ Has your team advised which type of bc you have? Remember your team have seen it all before and will know what to do ❤️ Use the number on here and speak to a nurse they could give you ideas of questions to ask and you can make your decision on what’s right for you ❤️ But do everything for you and what’s right for you, it’s your body ❤️ I had therapeutic mammoplasty so if that’s option do get levelled up at same time, I didn’t and wish I’d had them levelled up all at same time. I can have the other levelled up when I want but my headspace is just about getting there now, I just wanted to go out and enjoy everything after treatments that I didn’t want another op, but you will be surprised how quick your body heals ❤️ It’s amazing 👍 think most people are 😳💩😳💩 when you hear chemo but think of it this way it’s extra doctor on inside 🥊🥊🥊 anything that might have escaped 🥊🥊🥊 break it down into cycles it does make them go quicker and tick them off, I had post it up in kitchen and thermometer nearby and bat phone to rapid response and called them if I had any concerns, your team appreciate you being vigilant ❤️💕💕Shi xx

mrsquincey
Member

Re: October 2020 Chemo Starters

Thank you shi. My family have spoilt me rotton with bits from m and s etc. I was a florist before so no one wanted to get my flowers cos they just arent special like that to me. I have the softest cardy and jumper from marks so i think its gonna be my chemo outfit that i will only wear for that. Thank you so much x 

Shi
Community Champion
Community Champion

Re: October 2020 Chemo Starters

Mrs Quincey I had some nice comfy clothes from Zara and pair of uggs so snuggly comfy during chemo 👍 and make up and I had a perfume that I just wore specifically for chemo one I’d not had before and would not wear again after, didn’t want any of my favourite perfume reminding me of chemo if that makes sense. When having treatments I just used to speak and say has anyone experienced whatever it was I wanted to know about and luckily where I was everyone was more than happy to give tips and tricks everyone was in it together and you pass the knowledge on when others ask ❤️ 💕💕Shi xx

Not a jockey
Member

Re: October 2020 Chemo Starters

Hi Buochs

I was diagnosed in July - the day before my 60th birthday - and I just wanted the tumour removed as quickly as possible with the least amount of messing around, so I didn't opt for reconstruction.  I had surgery in August and at the follow up appointment the pathology results showed it was grade 3 with some cells identified in one lymph node.  I had been told if it was in the lymph nodes I would be taken back in for more surgery to remove them but at the follow up that had been changed to dealing with the lymph nodes via radiotherapy as the outcomes were no different.  I was absolutely certain I wanted a mastectomy and my surgeon was happy to do what I wanted.  The chemo has not been anywhere near as bad as I feared and I was terrified beforehand.

Everyone here will feel differently about their situation and you have to decide what you can live with afterwards.  I haven't been fitted for a prosthesis yet but the 'comfy' I'm using looks fine and no-one would know.  I do have to make sure the dog doesn't see it or she will soon have all the filling out of it.

Get as much information as you can from professionals or other women about reconstruction if that is what you are considering.  This site is great for information.  Try to stay away from google.  Whatever you decide, good luck.

NAJ

mrsquincey
Member

Re: October 2020 Chemo Starters

Hey buochs. 

 

Oh its all so daunting isnt it. I think i can speak for everyone that none of us can tell you what is best for you and your cancer. 

 

I have a grade 3 cancer stage 2b with no spread that is 3.5cm. I also have dcis in the same breast in two other areas. 

 

I will be having chemo first then a Mastectomy  with reconstruction at the same time. Is this the best for me ? im not sure tbh. In my head im like bloody hell cut both of them off and get it over with. However I am starting to trust my team. They are the professionals, they have the best idea. We are special but they have seen our type of cases time and time again. 

 

I am, looking forward to seeing what road you take that you and your heart is happy with x

mrsquincey
Member

Re: October 2020 Chemo Starters

Lol shi I think its the flooring in hospitals that made it worse cos i felt like i was clip clopping for miles just walking to reception. I did try to make eye contact but everyone was reading or chatting to themselves so i just stared out the window.

I did meet a lovely lady whilst i was waiting on my mammogram though but her treatment was over 10 years ago so from what she was saying everything seems to have changed. 

 

I was wondering what to wear for chemo. I normally make an effort but i think i will need comfort more than anything x 

Buochs123
Member

Re: October 2020 Chemo Starters

Hi

I was diagnosed late September and saw my the doctor a couple of weeks ago who informed me I have grade 3 invasive breast cancer with a small spread into my Lymph nodes under my left arm. I was told my options which were ne-adjuvant treatment using chemo to reduce the tumour and so being able to conserve the breast all being well that the tumour shrinks enough for them to do it. The alternative a Mastectomy followed by the chemotherapy. My first reaction was to go for the Mastectomy but I am now beginning to have second thoughts, is it better to go for the chemo 1st so hopefully keeping most of my breast. It's so hard trying to make the right decision. I go for my pre-op on Monday so I am aiming to discuss things with my team, this is the 1st time since my diagnosis I have been able to do any kind of research at all and studying my options a little more than giving my decision straight away to the doctor on that horrible day of diagnosis. Some people seem so clear on which road they wish to go down but unfortunately I don't feel like that at all. I am frightened of chemo and its side effects as I think most people seem to be but that is something I am going to have to accept.

I am hoping over the weekend to come to a more positive decision as my op is scheduled for the 28th October, I am fortunate that I have a very supportive husband who will be there for me whichever road I choose to go down. I am so pleased to have found this forum and I would appreciate any feedback I may get from fellow sufferers.

Shi
Community Champion
Community Champion

Re: October 2020 Chemo Starters

Mrs Quincey 👍for the 4 inch boots, nothing wrong with styling it out 👍 i always had make up on etc during treatments 💄💄 do speak to others if it’s allowed in your unit, everyone is a wealth of knowledge and you find you’ll see same people most of the time during treatments and you are all supporting each other ❤️ It’s like having extra family ❤️ And everyone understands ❤️ 💕💕Shi xx

Not a jockey
Member

Re: October 2020 Chemo Starters

Hi Jojo

I hadn't been warned about the injections either!  Luckily for me my daughter is a teacher and had been trained to inject a diabetic pupil she taught so she popped in every day after school.  I chickened out of doing it myself - I think it's because it goes into your stomach.  I also have three nurses who live within 50 yards of me and I'm sure they would have helped.

Sounds like you had a really stressful day yesterday.

All being well I've got round 2 coming up on Wednesday. 

NAJ

York-75
Member

Re: October 2020 Chemo Starters

And Mrsquincy, I know what you mean about the age range- I am older than you at 45, but have only seen one other lady under 50 in the last couple of days in the unit.

Some are very frail and elderly, and I feel very bad for them having to go through such a rough time when they are not strong to start with.

But on both days I was there I found almost everyone in surprisingly good spirits, positive, joking, supportive of each other, we even had a laugh some of the time. It is a very curious but somehow also uplifting experience to see so many being so positive in the face of quite hard treatments.

Xx