Report back when you've been.
Think I might try Clatterbridge instead.
My surgery will hopefully be nxet Feb/March so seems a bit pointless going then doesn't it?
Quick one: I've booked on to the Look Good Feel Better course in Liverpool and the next availble is Feb next year. Anybody been on one yet? Is that a normal wait time or do you think I should travel elsehwere?
So good to be back in action ladies! felt totally poisoned and spaced since last Thurs. Missed all your funny posts - Cathysid totally get how you feel; my 3rd cyce was last Wednesday and today I'm 'normal' ish again without staggering about like an old drunk!The day after chemo last week was bloody amazing - total steroid manic frenzy of super efficiency! I even ironed the back of the boys schools shirts rather than just the front bits. And made a cottage pie! Domestic Goddess. The it all crashed down by the Friday and been pretty much bedridden till today. I know what you mean about not knowing how much of it is due to chemo bingo and how much just lazy- I'm finding it hard to 'read' my body and work out how how much I'm supposed to just get on with.
Can't remeber who asked about the wig when resting!? My lovely hairdresses had one of those old polystyrene heads which she gave tio me: she's called her 'Ave' to complement my wig 'Maria' (Brand name, not specially chosen by me, in vase you think I'm mad; but loving the scouse catholic link!)
Brilliant news about the fundraiser CK - great news. Well done to you! Happy to 'give; if there's a fund raising link. My husband's doing Sober for October - it's killing him!
hugs galore to you all
Well done CK- sounds like you had an amazing night and that your efforts will go towards helping our daughters and others.
I had a lovely chemomoon- was so invigorating to be by the sea, and my cough disappeared.
Despite taking a box load of drugs, I managed to forget the omeprazole. My glass morphine bottle cracked and leaked over everything including my nightcap and wig! And I left my pillow with silk pillowcase at the hotel.
I have my postponed Look Good Feel Better course tomorrow- I was ill last time. I've got such a lot to do though before chemo number 3 on Wed afternoon ( I'm still going through a phase of needing to sort/clean/declutter everything- bit like nesting pre baby arrival but with some notable differences). People still telling me how well I look- despite me not bothering to wear make up anymore. That tanning moisturiser must be working wonders. But sometimes I want to say thanks, but I do feel really rough!
It's been great to have a few days of feeling ok this time round, but I'm still not looking forward to number three. I am so looking forward to being halfway through though.
Hope you are OK Cathy once antiemetics stop and all the best CK and others for tomorrow's chemo-CK have they sped you up (I thought you were a Wed girl like me?)
CK!!!! What a legend!!! 🥂🍾🎈🎊🎉
Glad it was such a rip-roaring success but never doubted it for a second. Still not tracked down my cheque book, one last place to look but if not I'll just do a bank transfer. The wind is really getting up now - batten down your wigs, lovelies!!! 👶🏼💨
Hi CK, sounds like you did an amazing job and had a great evening! Good luck with your 3rd chemo tomorrow hope it treats you kindly. I have my second one next Tuesday (so am intruder from the October forum) did you find much difference between your 1st and 2nd treatments?
It's going to be 70 degrees (in old money) in Liverpool on Monday - guess I'll have to park the fox fur head band for a while!!! Hope we're all taking it easy today xx
Aaawww Jencat, I'm not really much of a crier (well not before all this) but I think I'd have struggled holding it together.
Cherry, loving the sound of the black fox fur headband! I agree in some ways autumn/ winter is best, soon everyone'll be Wearing woolly hats, can't get away with it in the height of summer!
I can imagine it would be difficult to look at those photos at the moment Ali, but as you say, Summer will come round again x
Went into school on Tuesday morning to say goodbye and to watch the Harvest Festival. Not sure how I stopped myself from crying, especially during one particular song! Then I popped into the Reception Class and the teacher told the children I would be away for a little while and to say goodbye! Not sure how I held it together! xx
Just use those holiday photos as inspiration as to how you're going to look post treatment, Ali!!! I console myself that we're lucky to be having our chemo in the Autumn/Winter - who looks that great then anyway?! Well me, once I root out my black fox fur headband. PMSL!!
Be so much worse if we were all skulking around looking total pants surrounded by lithe bronzed Goddesses...
I got my pillowcase from lilysilk.com, 25 momme, which is the most substantial weight I think. Seems good quality and nice and smooth. It's made in China but has a 'Confidence in Textiles' labels so is tested for any harmful chemicals. If you go on the site the US version often comes up first but there is a UK site. I'm sure you can get cheaper ones and they say satin is good too but I wanted a natural fibre given we're warned of possible hot flushes. None of those yet, although my cheeks are doing a good Father Christmas impression again this morning...
Good luck with your event CK, I couldn't even imagine taking on something like that at this point!
Jencat, I've got a silk pillowcase I bought a couple of years back as someone told me they're supposed to be better and help reduce wrinkles. I used it for a while didn't notice any difference so put it away. Anyway, I've dug it out and using it again now. I got mine on Amazon I think, it was about £20
Of course you're part of the gang Cherry! I've posted on here and I haven't even started chemo yet, so if anyone shouldn't be here, it's me! And your posts are encouraging for newbies like me. I'm wondering if I ought to invest in a silk pillowcase now re your hair comment. Where do you buy them? xx
Sorry to hear you've been feeling so rough Fairydust but very well done for sorting your work situation out. Glad that your manager took it well - but jeez, you've got cancer, he'd have to be a complete sh*t to kick off about it!!
Mrs Meow - still chortling at your pink roll on deodorant description!!! CK, if this is you not bubbly and full of energy and confidence then I'm not sure we'd have been able for your pre-chemo self!!! I know that Sunday will go brilliantly for you - and if you can't have a little cry at your own breast cancer event then there's no justice in the world!!! It'll just have them digging deeper into their wallets!! Haaaa xx Jo, have a lovely, relaxing time in Devon. Love it down there, beautiful part of the UK.
Would like to respond to everyone with a personal comment but don't want to be hogging the thread, particularly as I feel a bit of a fraud posting on here anyway with my pretty side effect free cycles. I want to feel part of the gang but don't want to come across as smug to anyone really going through the mill. On the other hand my actual treatment days do tend be my very own personalised version of hell each time. So maybe I've earned my place. Ha!!
🍒 Bakewell xx
Inspired by the chemomooners, we are off to north Devon for a night tonight in a rural pub with rooms. It's not quite Cae Mabon Cathy (looks amazing by the way), and I have literally a box full of drugs and chemo aids to take, but am looking forward to getting away.
I'm also an antibiotics at the moment for my chest as still coughing and oncologist keen to ensure I'm as well as possible before next hit on Wednesday. There was also some concern about my multiple lung nodules seen on my staging CT in July which apparently had disappeared on the recent CT I had for my PE which worried me as if chemo had zapped them potentially they could have been secondaries, The scans have just been reviewed by a third radiologist who says they are still there and unchanged which is good news- hope she is right and the other two radiologists are wrong! Need another CT in March. I've also been referred for ovarian removal- is anyone else getting this?
CK I can't believe you are organising an event for 120 people! I would definitely not feel able to do that at this point in my life. Yesterday I went to a Grayson Perry exhibition and to our TED group in the evening- that is my most ambitious day so far since before my mastectomy. Anyway, I am in awe and slightly confused- have you been running such events even before your diagnosis? I've similarly been a participant in the Breakthrough Geberations study which is exploring risk factors for BC for the last 10 plus years. Maybe knowing a fair bit about the risk factors for BC gave me a false sense of security- I should have been at significantly lower risk than other women my age. I didn't anticipate being diagnosed with a large and aggressive tumour in my 40s.... My fears of outliving all my friends and being alone at age 105 were clearly unfounded!
Im still waking up early (5.30 am) even without the steroids. Annoying but at least it gives me a little time to myself. Theoretically I should have a lot more time but I seem to fill it with seeing friends. I'm not sure if that's always a good thing- I probably need a bit of space to re evaluate a few things in my life whilst I have this 'BC gap year' .
Will stop waffling on now - can hear kids fighting!
Hi cathysid, I normally post on October forum as I'm an October starter (day10 after first chemo), but I pop over to this one to see how you're all doing because you're all ahead of me. I'd like to say a big thank you to all you ladies on the September forum for sharing your experiences and thoughts. It really has helped me enormously through my first cycle.
One question, what do people do with their wigs when they're not wearing them? I collected mine today and its sitting on the table next to the sofa, like some new curly pet. I'm finding it a bit weird and I don't know what to do with it!
Hello everyone. Missed you all but your stories have kept me amused. Slapped chickens all round is it?
I had 2nd chemo on Tuesday and feel so rough. My nose is tingling, headache, exhausted and miserable. Threw up also for first time on chemo. So different from first cycle. But I still worked all week. I still felt guilty. But today I stressed out.
So, thanks to you all for your stern words, I told my manager I can't work any more and he accepted it really well. I still cried though. I felt so awful.
I remembered all your words of encouragement and it pulled me through it.
No more work all through my chemo cycles now.
I need to sleep now. Will check back in with you all later.
You are so amazing
ha ha ha Cherry you really make me laugh! There's nothing wrong with mixing references to slapped chickens with analogies of hair and leaves. In fact it makes it better beautiful poetic analogies and humour what more do we need to deal with all of this! I've just finished my morning yoga and meditation and am now uplifted by humour can't think of a better start to my day! Feels like it'll be a good one even if it is Friday 13th!
Hahaaaa. The Liver Birds!!! Showing our age now, Ali. Good job it's looking like I'm not going to be wearing a wig much, if at all. I'd end up looking like Sandra's mother - the one played by Mollie Sugden or I might be confusing that with her occasionally lilac hairdo as Mrs Slocombe in Are You Being Served?? I must surely be a due a prize for the most 70s tv references. Unfortunately not as beautiful and poetic as your falling leaves/spring flowers/hair analogy... And I sullied it with mention of my slapped chicken too!!! 😲 xxx
Awww Ali. So sorry to hear about your little cry today. But you should be celebrating your lovely smooth legs!! I haven't shaved my legs as I wanted to see if the hair would fall out. Gutted to report that they still look furry, going to have to shave them if I don't want to look like a rugby player. Glad to report that my tufty club is now looking like a slapped chicken. Like it bare down there (far tmi) 😳so that's one less chore to do. Eyebrows and eyelashes still present and correct. Candy floss hair still stubbornly hanging on in there but after nearly 5 hours in the cold cap I'd hope so!!! Now if I could just sort my roots out... xxx
Getting in a pickle with my posts - have posted on the October thread but should probably be here. Apologies to anyone who's already read it over there. (Possibly chemo brain but no doubt just my normal f*ckwittage.) Anyway, here's quick update on my 2nd chemo sesh. Couldn't post yesterday as I went out for dinner after my treatment (yeah, getting a bit cocky now!! 🤗)
As with last time the actual treatment day was somewhat eventful. I had a trainee chemo nurse putting my cannula in, unfortunately she made a bit of a bodge of her first attempt and I nearly passed out!! And cos she'd hurt the first vein she then had to inject the epirubicin (the scary, potentially flesh burning red drug) manually with a big plastic syringe which was pretty uncomfortable too. Not convinced she totally knew what she was doing. When I almost fainted she tried to take my blood pressure on my leg but that didn't seem to work either. I suspect she's actually a trainee at Argos but somehow ended up at Clatterbridge...
The magnificent news for anyone in the Cold Cap Club is that this time the cap was a much less harrowing ordeal. I think my electric throw really helped and I'd upped my painkillers from paracetamol to cocodamol.
Unbelievable really that it wasn't as bad because due to all the faffing about with my newby nurse I must've had it on for 4 and three quarter hours!!! 🙄 I better not lose one single strand this cycle!!!
Today, very little to report. Feel totally normal - not even my rosy cheeks this time. The only low point was having to attend a meeting with a new client and explain that I don't usually pitch up at meetings looking like I'm sleeping in the woods. I'm just glad that during my last oncologist appointment she announced that my lump had shrunk by half a centimetre or I'd honestly question whether the chemo was working!!
Anyway, Hope you're all good.
Cherry Bakewell xx