MrsMeow, I'll certainly look into the wig tape, although still trying to remain optimistic about not needing to use it 🙂
Sounds like been through the mill a bit re: surgery and your wounds. Seems like it's probably the chemo affecting it then and perhaps that's what's also happening with me, I'll let you know as my bruised feeling had gone prior to round 2 so I'll see what happens over the next few days.
hope you enjoyed your pizza!
I've only just had chemo 2 and normally post on the October thread but like to read all you ladies experiences as it lets me know what to expect further on, so thank you for your amazing insights and support it really has helped me! Anyway, I'm 44 and also pre-menopausal and on my first chemo round I also experienced some hot flushes usually in the evening 9-10pm and then again during the night. It was after I'd long come off the steroids days 10-13 of the cycle, I also wondered if it was early menopause but mentioned it to the nurses at my chemo session this week and they said it was normal and that I'd probably still have my period which is due this week. Don't know if that helps?
Hi Meesh - surgeries were late June then late July - my physio says i look like they were 3 weeks ago not 3 months - I actually even had a haematoma with the original biopsy and had 2 seromas drained post op so guess I am just a leaky individual. Gentle pilates has helped and range of movement good though chemo definitely makes it all more inflamed. Am emerging from the worst of round 3 - love getting to day 8 even with all the bits falling off.
I can recommend wig tape - I put tiny bits around the front top but is enough to really be reassured that there will be no sudden scalpings! Does anybody else still have hair that is hanging on in there? I didnt cut mine short, didnt cold cap and have almost lost it all but have these weird long combover bits and they seem to be staying - I dont really want to cut it as this is the natural way I have been left and am quite proud of the straggly bits but my husband certainly thinks they dont add to the picture - sort of a cross between Trump and Casper the friendly ghost!
Just made and eaten an enormous pizza - so much for losing weight this time around oops. xx
MrsMeow, when did you have your surgery? Mine was 7 August, my skin still has some discolouring I assume from the bruising. I had severe bruising (apparently) where they moved the breast tissue about. I called the bcn last week because I did feel some bruising below my armpit to the side of the boob (although the skin wasn't discoloured) just felt bruised to touch. I've started doing some gentle yoga again and thought it might be that. She said it could be or it could be the chemo affecting that tissue as everything's still healing in that area. Don't know if that's a help to you or not. Sucks not to be able to drive though especially as you're so reliant on it too! Hope you can get it resolved soon 😊
Ha ha MrsMeow, perhaps now I understand the purpose! It's probably not such a mad idea as my own healing seemed to take forever and I couldn't see any change. Although I did end up with a haematoma week 4 after surgery (think it'd been there from the start personally as the swelling didn't go down at all in that time) ended up bursting with a trip to A&E but all was well in the end and it cleared up really fast after that. So perhaps if I'd taken pictures I'd have known there was no progress! How's the healing going?
ChasnDave, I realised that but it reminded me of my friend asking I'd taken pictures of my own boob after surgery, i mean who wants to do that? Who would you show it to as I doubt anyone else would want to see it!
CK interested in your Chi Gung 18 steps, where can I find out about that? I've been meditating and doing yoga to combat the anxiety I felt after stopping all my meds on day 5 of my first cycle. Would be interested in trying that too. Also what is the coconut wax you refer to is that different to coconut oil?
I'm day 2 chemo 2 now and doing ok after feeling a bit rough after chemo yesterday.
hope everyone is having a good day!
CK, just scrolled down and read your post! Well done you! When I was diagnosed I wondered how I'd cope as I don't have a huge support network (my family all live 2 hours away apart from OH). I have been surprised how many people have rallied round though.
Ha ha ChasnDave that made me laugh 😂 and reminded me that a friend of mine had a melonoma removed just before my op in August, after my op she showed me pictures she'd taken of her leg and scar and asked if I'd taken a picture of my boob after the op 😮 Not sure who she thought I'd be showing it to!
Talking about being teary. I do feel for all of you with tears over this..however I appreciate being teary as to destresses me a fair bit. I don't talk about my cancer or treatments face to face with anyone by choice, so every now and then I give myself a hug and allow my emotions out to myself. I still question why I agreed to chemotherapy as it completely wipes me out for only a 7% increase on a low base, but you guys give me strength to carry on. Thanks for all your advice, help, support on this forum, and I hope to be of some support to you too.
You're all amazing.
So. One of my near neighbours knocked on my front door today, and I just rushed to put a hat on to cover my baldy head before answering.
We had a conversation, had a joke and a smile and I shut the door.
Go upstairs again, happen to glance in the mirror and see my hat still on but the label showing mid way down my forehead..
So silly..gotta laugh though. My neighbour never said a word. Must have wondered what was going on..
Just read Victoria Derbyshire`s book on her breast cancer experience. Wow, what a read. It's raw, emotional, and has hints of all you guys experiences.
Read it in one weekend. Unputdownable, even though my cancer is different from hers it resonates.
Ck, glad to hear you're doing so well after chemo 3! I love it that your cat follows you, obviously doing nurse duties and making sure you're ok! Pets are such a comfort when you're not feeling great. The week after my first session my cat loved having me at home all day especially as I spent most of it in a blanket on the sofa and she rarely moved from my lap. The second week she brought me a shrew (obviously thought I needed it to build me up or perhaps as her equivalent of giving me a box of chocolates)!
Have a good day even if the weather is lousy!
MrsMeow, thanks for the curly wig tips! The wig consultant didn't think she'd be able to match a wig to my hair, so she let me order 3 (2 curly and 1 straight). I think she was a bit worried as she'd never had to provide a curly wig before. None of them looked like the pictures I ordered from, 1 was no good, she didn't even get it on me properly before I said no! Looked like an old lady with a dodgy perm! The other curly one was pretty good and was much curlier than the picture but a bit too bouffanty on top. She did suggest I could get a hairdresser to cut it for me, which I think I'm going to do. The straight one was a nice wig but just wasn't me and thought I'd then end up with way too many comments and questions from people. Will have to look into the wig tape if the cold cap doesn't work 😕
Good thing about bout curly hair is that you can fluff it up a bit to hide any thinning patches (well I'm hoping anyway) 😊
Meesh, yeah - what is it with wigs?! They all seem to have far too much hair
(not that I'm one to comment!! 😜) I think they'd look so much more realistic if they weren't quite as bouffant.
Yep, I'm secretly hoping that my wig stays on the shelf. Although it would be nice to have decent looking hair for special occasions...
Hi Meesh!! No, Raquel is still on her shelf in the shop on Penny Lane. After my matted tangled scenario when I last washed my hair I've hardly lost a strand so still don't think the wig will fit on. Great news that the cold cap seems to be working for you too. Have a lovely weekend xx