Jow - I definitely get more/worse hot flushes in the 7 days after the chemo. On day 5/6 I was angry, too! Especially with my mum who has a knack for saying just the wrong thing. She told me I was very lucky to have such a patient partner as I am very snappy(I was trying really hard to be patient and didn't think I'd done too badly). I think my anger came from frustration at being treated like a child and losing my independence and ability to function normally. Maybe menopausal side effect too! Sorry you have had to miss out on lots of the Christmas activities too. Hope your Mummy guilt isn't too bad - mine is dreadful!
i had a long day out yesterday - 2 hours searching for clues to find Santa in a foggy woodland. This did end with a campfire, mince pies and mulled wine so it did feel rather Christmassy. Unfortunately, on the way home I poppped into Waitrose for some easy pasta for tea and the cars battery went flat. So, another hour hanging about in the cold fog until a kind lady jump started us. So exhausted today. Still no voice, and today's plan involves going to delamere forrest for a Xmas tree. Wet and foggy again. Maybe a lemsip will give me the boost I need to join in the Xmas fun. I do feel like I have a flat battery, too.
Mrs. M - you are right about feeling the pressure to be positive and pretend you are doing well because that's what people expect of you. It definitely gets harder as time goes on.
Hoping all all of you have bearable side effects and enjoyable rest days. Thanks for all of your kind thoughts,
CK - take it easy! You are meant to be resting, not working!!!
Ali - hope you are doing ok, a quiet Christmas sounds blissful! Hope the leg pains have eased.
shi - thanks for cheering us all along.
Sam - try not to worry. A liver scan is use daily to look at the liver for all sorts of things - blocked bike ducts, swelling,etc. Is is a routine investigation of raised liver parameters.
Lots of love xxx
Morning September ladies! Jow, Ali Sorry that hear you're suffering a bit, hopefully the SEs will ease soon for you. I'm not have t just fec all the way through. This will be the first you in my life that I've not spent it with my folks and sister. We've decided to postpone Xmas as a family until the end of march when I've finished treatment. So it'll just be me, OH and the cat this year. I've decided to make this Xmas be about my OH, he doesn't have any family and normally hates Xmas and all my noisy family descending upon us for 3-4 days. He also hates turkey 🦃 so we're having beef instead and spending Xmas enjoying the peace and quiet with some nice yummy food. Mind you he'd probably forego the tree and outdoor lights but I've drawn the line there and said I want this Xmas to be as sparkly as possible so we need even more lights. I'm quite looking forward to it now and planning the food 😋
Anyone heard from Fairydust lately, hope she's ok?
You are amazing CK
in contrast I was in bed all afternoon and evening. Lots of hot flushes, feeling rough, despite my lower dose of T.
Have woken up feeling angry. Maybe this is chemo induced menopausal symptoms! Still very hot.
Have various visitors today but think I need to get out before I get bed sores. Mouth so far is dry but not sore- perhaps the antifungals are helping.
Cathy, how are you? Hope you are feeling a little better.
Raining here today after several days of beautiful blue skies. It’s going to be an effort to get up. I’m day 3-4 of T. Feeling a bit odd and throat is starting to hurt but not been terrible so far. I have fluconazole tablets this time to prevent the oral thrush. I’m on my 10% reduced dose this round so am really hoping I make a better recovery otherwise there wont be many Christmas’s presents - even shopping on line was and effort too much.
Good to hear you are ok Mrs Meow and I hope your daughter arrived safely in India. We went to south India in Feb, but I’m guessing long haul trips may not be likely for a good while now for most of us. I can so relate to your feelings about those people saying, you are nearly through now etc. I’m sure I could have said the same in the past. I guess it is hard to truly understand what it is like to have cancer and this treatment until you are in that position and people just want to make you feel better but sometimes the lack of understanding makes it worse.
And Cathy, sorry to hear you are feeling low. Do hope you have a better day but it’s not easy to feel positive when you feel ill. Yes it is a bizarre season to be having chemo thru, yesterday I missed the Messiah at Bath Abbey (friend had bought tickets ages ago), tonight a friend’s soirée, Tuesday my youngest’s nativity, then middle child’s Carol concert etc etc. I’m not going to any of them. My chemo nurse pointed out that there will be other Christmases, I said I hope so! This cancer does indeed make you realise how uncertain life is. Sam I do feel for you, waiting for tests and results is so hard. I have to wait til March for another CT of my lung nodules and mostly try to push to the back of my head but not that easy,
I have a friend here entertaining youngest kids and then brother coming soon for the day to take them out whilst husband has a bit of respite and I watch tv in bed. This is so not my normal life!
Mrs. M - wow, your daughter has started her big adventure! I wish I was going too! I've never been to India - I probably won't go until the kids are teenagers now so will have to keep dreaming...
Glad you managed the essential chemomoon. I've been feeling a bit like I'm missing out on all the Christmas fun, but you have proven that we don't have to hide indoors and miss out. Glad you enjoyed a few Christmas drinks and treats. I'm grateful we have Christmas to brighten up this time.
I think the docetaxel depression has hit today. Started the day crying into my porridge(despite advent callender fun and Xmas hits CD playing). Spent most of the night coughing or trying not to cough - my throats is so dry and tickly. Still no voice at all - very difficult to communicate! Look and feel like a zombie. Must pull myself together and find my Christmas alter ego - maybe if I cover myself in glitter and tinsel the Christmas spirit will find me!
Hoping this weeks chemoers are doing well. Hope you are ok, Jow, after the allergic reaction.
Inspired by CK, it's fried onion and mushroom omelette for lunch,
lots of love,
im awake and hungry. Put 3llb on in last 3 weeks- too much sugar free granola! Have had banana, carrot, ryvutas and quavers.
eventful chrmo today- had allergic reaction. Wasn’t too terrible cos nurses responded v quickly with iv steroids and Iv piriton and stopped the T before restarting at 10% dose.
sorry to hear you’re not great Cathy- just remember the amazin* days u did get last round. Harder to remember feeling ok when you are rough I know
ive had a zopiclone but not working yet!...lots of hot flushes too.
Hope everyone else sleeping soundly
Hello September ladies!
CK well done on chemo 5 hope your Epsom bath will ease those aches and pains.
cathysid, hope you're feeling better soon. How lucky for you to be done with chemo by Xmas! I bet you're looking forward to that.
I had halfway appointment with onc today. She has said that because I'm handling chemo well and am young they're offering me 5 extra booster rads when I'm done with chemo. So will now have 20 rads instead of 15. Felt like she was offering me some sort of prize for doing well! Wish it was a nice spa voucher instead of more rads though 😂
You September ladies are so inspirational, you're all doing so well! It gives strength to those of us trailing in your footsteps. Wishing you all well ⭐️💫⭐️🦄⭐️💫🕺🏻✨🌟✨⭐️💫💃🏻🦄⭐️💫⭐️🌈🌈🌟✨
Still feeling pretty yucky. Seems to have hit me later and harder this time - day 6. I've also got a yucky phlegmy cough. My partner is pretty good but working long hours this week, so my mum is here to help doing the drop off and school pick ups, and walking the dogs. I've been in bed all morning again and not very functional this afternoon. Just got to get through bath time and bedtime and then can relax again. Hope my voice comes back tomorrow!
Jow, not sure which way I'd go with the Xmas chemo choice. My last is on 14th Dec so hoping to be ok for Xmas dinner. If your partner can keep the kids busy might be best just to plough on and get it over with.
Hope it went well today's chemo ladies,
My vintage shopping was great thanks CK- I got an old log basket, kilner jar and glass cloche thing. I’m usually a bit of a cautious spender and probably need to be not buy8ng anything- I am the main breadwinner for our family and going down to half pay in Feb will be a problem for our very large mortgage). but I think steroids helped my shopping trip plus I’ve got a bit more of that live whilst you are alive attitude!
Ive also booked a cottage in Cornwall with sea and hot tub for end March and was wondering about taking the family to kefalonia in Greece to celebrate our 10th wedding anniversary in June . Didn’t book that one yet as suddenly thought I should check around travel insurance. I gather it is likely to be a problem. Is anyone else attempting to go abroad and do you have any advice please?
sorry Cathy you have had a grim day, do hope you have a supportive partner to help? It is so much easier when the children are at school I find. I’m worrrying a bit about the 17 days of school Christmas holidays with chemo near the start. Some people suggested. Asking for it to be delayed. I can’t decide whether better to ruin Christmas and New Yearlr better to get it over and done with.
heve remembered my steroids but just been reminded by your posts around food that I have forgotten to eat with them
Have a good chemo day those of you on today. Ali is today your first T?
Mrs Meow are you still out there and Blue Lizard? Apologies if I’ve missed your posts.
Hope all goes well tomorrow Ali, Jow and CK. glad you finally turned the corner and felt well again, Jow, before the next round.
Im on day 6 post chemo and was doing ok, but today got woken at 5.30am by my littlest, and just couldn't function at all! I feel absolutely dreadful- dizzy, lights make my eyes dazzled, stumbled back to bed and passed out again till lunchtime. Might try and watch some tv now, then back to bed again. Yuck. Hoping tomorrow might be better.
Geordie - how are you doing?
Hello September ladies! Glad to hear you're surviving rounds 4 and 5 of chemo and on the new regimes. I'm doing fecx6 like Chaffinch but it good to read that you ladies are doing ok as it really helps us ladies following in your footsteps! Good luck with your next rounds of chemo love and hugs to you all! 🤗
Ali, I'll get that 🚂 ready for you for Wednesday!
I haven’t been to bed since I got up today! That’s a first for me on this cycle of T (I’m day 20). I managed a macmillan head massage and a spot of food shopping and I really enjoyed driving around at last. Tomorrow I i am going vintage shopping with a friend. And then Wednesday more chemo of course. Don’t forget steroids tomorrow you fellow Wednesday T ers
Here is the link to the sugar and fat free granola which I have almost polished off. Kids were not so keen.
Basically just 2 cups of oats mixed with 1 cup of seeds/ nuts and a bit of salt and cinnamon. Then fold in 3 beaten egg whites and cook in low oven for an hour
i got Opatanol eye drops today- prescribed by oncologist for my gritty watery eyes. Too soon to say if worked
Sweet dreams all.