Good to hear that you have finally started looking after you and it looks as if your wonderful daughter is going to be covering your back to make sure you are able to continue to do so. Perhaps yoru cousin will think more about the impact she has on others in future
Mishy I can recommend Biofine: https://www.amazon.co.uk/Biafine-271164-Emulsion-hydratante-186g/dp/B017NMJKL2/ref=sr_1_1_a_it?ie=UT...
I was having 15 rads and 8 boosts and when I found out that they give you this only if you burn I treated myself to it and never did get any problems. Well actually I got a break in the skin under my arm BUT that was my fault because I did not know the beam went there so did not apply the cream there! You are supposed to rub the cream as high as your collar bone, under your arm and a handspan beneath your breast.
Hi CK, glad you feel back human again. Really hope the blotches disappear when the antibiotics kick in. They sound awful for you and so not what you need right now. Glad you and your daughter have some giggles though. I adore Merlin. Glad he's looking out for you in his own cat way.. he's probably all confused, poor little cat.. 🙂
Cathysid, I do feel for you too. I need quiet at all times these last days, and so I can understand how you feel in a house full of people. Go to the loo and stay in there with headphones on perhaps...if I could I'd send some noise cancelling headphones to you..
Evening ladies! Had fec 5 on Wednesday, terrible acid that night even with my omeprazole, then got up in the morning and realised I'd forgotten to put on my seabands after I'd bathed the night before 🙄 Still not sure if they make a difference, but have been ok since then.
Sorry to hear some of you have been having a rough time if things.
CK, hope your cheeks and eyelids get better soon.
Fairydust, I sometimes think it's better to rant on here than to our loved ones who don't understand but are just worried about us and trying to do their best.
Cathysid, I hope you find some peace and quiet to get the recovery you need. Ali's idea is a good one, is there someone who could have your kids fir a sleepover to let you and OH get some rest.
Jow, enjoy your Indian vegan banquet and Mrs Meow the venison leg sounds 😋😋😋
My cat has not been quite so attentive this time round ☹️obviously bored of the nursing job now! 😂🤣😂🤣😂🤣
Thanks Shi, Mishy, MrsMeow.
I honestly didd need to let it out and as Shi says, no-one except you wonderful ladies and all the other ladies on here will possibly understand as your replies have confirmed.
Had a good sob to myself and feel like I've got a weight off my shoulders now. I am an emotional, steroid filled, chemo brained misery today, but that's just part and parcel of our mystery journey.
Night all and sleep as well as you possibly can.
MrsMeow, a venison leg sounds enormous! If that doesn't help your red blood cells nothing will. You go girl.
But what I also want to say is that I agree, with what you say about permissions to refuse visitors or to visit others. It is so empowering but makes me feel guilty too.. No matter how I try, I cannot explain to my family how chemo makes me feel. I've given out the Macmillan books but it's not got through. I don't need food being cooked for me when I have no tastebuds or everything tastes rubbish,. I don't want to watch movies with people when all I want is to be alone in my own home near my own toilet. I am not lonely when I'm alone. My stomach ache isn't because I ate too much ice cream which is all I can eat today. I don't want to talk and be entertaining, nor do I want to be entertained. I can't make plans week's or even days ahead as I don't know how I will feel in the next hour. I don't want everybody queuing up to go to chemo or hospital visits with me and looking at me disappointingly when I say I don't need anyone with me all the time at every appointment. I don't know why I can't explain how I feel. I seem to hurt people by not wanting to talk.
It's my cancer but I can't share it about equally so everyone feels they are helping me and can feel good about themselves. I can't help being irritable sometimes. When I say No to something, I don't need convincing to change my mind.
I can't educate on chemo se`s, but please listen to me even when I don't speak.
There, I've said what I can't say to my family. Feels a little better..
Wow- what a trip Geordie, and well done for surviving it, and how sweet of your husband.
CK my face was similar last round. I ended up using a variety of creams- antifungal, hydrocortisone, fucidin (antibiotic) and moisturisers. It did get better but who knows which helped. Hands and feet also went red but just used urea based moisturiser on those. My skin is ok so far this round. Nail beds are hurting tho.
Ive also found this 6th round pretty gruelling . Thankfully I wasn’t too bad on Christmas Day and managed a good lunch and some hoovering, but I have slept loads and been in bed a lot, including now. Really hope I can recover a bit more by New Years Eve- we have 3 sets of friends coming to stay for a vegan Indian ‘banquet’ (sounds better than buffet!)
Reassuring that others feel a bit fed up with appearance. I still wear my fake tan moisturiser but eyes too teary for make up. I’ve tried to get out each day but wear hat plus hoodie and coat with enormous hood so really only my watery eyes are on show. I wonder how long it takes to look ok again after this ordeal.I really don’t like my podgy pink face! It does feel hard to have to deal with looking rough on top of dealing with the cancer diagnosis.
Sounds like you had a great Christmas Cathy. Oh how I wish I fancied prosecco! Drinks are a real problem for me at the moment- nothing tastes nice. Husband has just bought me Pepsi and ginger beer so I’ll try those in a bit. Despite taste being off, I’m still eating a lot- mainly biscuits and chocolate. Partly out of boredom I think.
Glad it all went ok for you Ali yesterday. Hope we haven’t scared you about this T. On a positive note, it’s good to know from the advance party of Geordie and Cathy that you do get better .
Thanks CK. I will not venture anywhere near them nor anyone else for that matter. Now Xmas is over, my hatches will be battened I think. Not venturing out anywhere not treatment related. Nor accepting visitors if I can help it. Better safe than sorry.
Sorry about your burns CK. Best get it checked out I think. Sounds so not nice so I do worry for you. May it be stress related? You have been a busy bee all through your chemo treatments. Please try and relax!
QOooh Geordie up North, I thought I heard the tinkle of bells up here...must have been you and OH as you twinkled past up to Newcastle. 🙂
Such a lovely thing to do to surprise your family like that..you are truly loved..
I know how overwhelming it must have been and hence emotional for you, as you say. But you made so many people smile, cry happy tears and created a memory they will never forget..
Also, thank you for your advice 're chicken pox. Duly noted and appreciated. It does scare me!
Thanks Shi, thanks Mishy. I agree with you both. I will stay away.
Talk to my goddaughter via Skype..
Hi. Over Christmas I learned from my mum that I never had chicken pox as a child. My sister's partner has a granddaughter with chickenpox. He intends to see her this week. Does this mean I can't go near him or my sister and her children. She lives with her partner and together have 2 children. One is 30 (they started young) and the other only 7 (quite an age gap I know), and has never had chicken pox either ..yet!
Looking online, I'm confused. I see my oncologist on 2nd Jan and Will ask him the question. But in meanwhile will stay away from them all! Sad cause the 7 year old is also my goddaughter. Was looking forward to seeing her lots before she went back to school.
Hi Cathysid, the roof of my mouth feels like it's being burned, although it hasn't. Makes eating and taste very difficult. So not enjoying food, Christmas dinner and leftovers had no enjoyment at all.
All except ice cream and jelly and foods that melt in the mouth which are good. Am trying wotsits at the moment with limited success. I have a milkshake named Nourishment for sustenance, as otherwise belly would grumble which is also annoying. Thank goodness or milkshakes!
Oh how serendipitous MrsMeow. Bulbs growing, hair growing. Amazing how nature and life go hand in hand. Time to smell the flowers and enjoy all nature has to offer.
Hi CK. Well done on your last injection. You're brave and strong. Be proud! Merlot the cat must be protecting you. Being sure to see you come to no harm. I also saw the original Titanic this morning. Was an emotional movie. I almost always prefer the original to a remake. I love classic old movies and musicals, even the odd western where the brave soldier or cowboy saves the town from bandits and gets the girl.
BlueAsh, thanks so much. I have some clarityn, but thought it may not be strong enough for my pain hence the codeine. Is it ok to take them both together do you think?
Ali, you are a saint. I am not one who can entertain and feed people however, my anxiety would go through the roof, and my cooking and serving skills are non existent. I salute you for doing so much. I personally would not accept an invitation to another's house for Christmas as I would not be able to reciprocate. That's only fair I think. Perhaps a quiet word in your friend's ear might make them realize they are taking you for granted.
Cathysid, again, cooking for 22,would do me in. Well done you. Both you and Ali need to rest. Let others look after you from now on. Please do this as you will likely burn out. I promise I will have more bath soaks. Not a difficult promise to keep. I do love baths. I will make it my treat after a walk which I don't like so much! Hope your little girl feels better.
MrsMeow, glad you enjoyed your beer and bubbles, I have struggled with tastebuds this week, but am thinking of you enjoying all the Christmas delights as you should. Sorry about your throat and bone pain. It is terrible isnt it? But we can do it. Thanks for your support. It helps me a lot. Hope your parents enjoyed Christmas too!
I haven't eaten today so going to attempt some Christmas dinner leftovers my parents gave me. I know it's late but better late than never. Then I'll dose up on codeine and go back to sleep. Been sleeping all day..
Enjoy the rest of your evenings...
Those of you getting bone pain must get some claritin hay fever tablets, here's why:
I do try and tell everyone but some of you have obviously escaped!!
I finished my chemo last year but I still lurk around and help where I can. This will soon be behind you xxx