Hi JoW, good on you for getting back in the pool. That first swim must have been tough, hopefully it'll get easier the more you go. I'm impatient too but there are different types of yoga some faster than others. I quite like the slow yoga actually and have been doing it for a couple of years (but only once to twice a week prior to chemo). I'm not very bendy but started it to help combat stress. I decided to do it every day as my folks sent me an article they'd read that daily yoga was supposed to help breast cancer patients through chemo by assisting with energy levels and mood and I was willing to give anything a go. I do think it's helped and I have become more supple since practicing every day I haven't been doing my post op exercises but I think the yoga has done the same job. I also think it's helped reduce scar tissue as I'd also read it can help with that.
Fairydust, hope bloods are good enough for chemo Monday and that you get your house ready for carpet fitters, new carpets I can only dream!
Cathy, that dinner sounds yummy, hope it goes well for you. I keep thinking about what I want to do as a thank you to my friends and family for helping me through chemo but not sure what that will be yet but have a few more weeks to think about it.
Mrs Meow, hope you start to feel more normal soon.
Geordie, I've worked through chemo too because I have felt well enough to do so and I also think it has helped my energy levels and mental wellbeing. Don't let anybody make you feel that you shouldn't you need to do what is best for you. Perhaps you just need to get the balance right if you're finding it tiring now.
Hope you ladies have a good weekend!
Must remember to take steroids on Sunday. Even if chemo on Monday might not go ahead. I'll be even less likely to fight exhaustion....Oh dear..
How is it possible to sleep from 10pm to 8am and still feel exhausted! I also had a wind bubble in my throat and could not get rid. Drank ginger tea and ended up throwing up. I have stinging eyes too. No energy but must take decs down today and prepare for new carpets being fitted next week. Have to remove all ornaments and books from shelves etc so that the fitters can move furniture, rip up carpets, remove underlay and replace with new, all in 2 days. Gonna be a big upheaval, but needs to be done.
Cathysid, I haven't heard about my bloods, I expect I'll hear on Monday morning if chemo can go ahead later that day or not. Gonna be a busy Monday if so, as carpet fitters arriving at 9.30 and chemo at 15.05. I'll have to kick them out so I can get to chemo on time if it goes ahead. They said it would take Monday and Tuesday to fit the whole house except one room which they will do next month. Good job as I can use that room to store all my stuff!!
I can't believe you're throwing a dinner party Cathy, well done you. Your menu sounds very foody, and delectable. A lovely way to thank all those who've helped you too. Hope you have a great time both cooking and eating.
Hope everyone ok. Moijan, that conditioning treatment sounds amazing. Let us know how it feels if you try it!!
this is what lush said about 'New'
This spicy scalp and hair hot oil treatment gets right to the root of your desire. Jojoba and olive oils hydrate hair, add shine and improve tensile strength while refreshing nettle and rosemary absolutes bring balance to unhappy scalps. Bay, cinnamon leaf and clove bud essential oils warm and stimulate the scalp to increase blood flow and improve hair growth. When water is added, an infusion of freshly ground peppermint and nettle leaves is created which stimulates hair follicles and reduces the rate at which hair is lost. A whole new world of strong, healthy hair awaits.
Fill a mug with boiling water (leaving a little space at the top) and simply stir in your hot oil treatment until it has completely melted. Allow the treatment to cool for 20 minutes before applying to dry hair. Sit back and relax for 20 minutes before shampooing out.
Made too much? Keep in the bathroom for a moisture top up as often as you need for up to 4 weeks.
well, I'm game to test it..I forgot to mention that I went to lush and was given two free samples to try of a couple of conditioners last week. I'll let you know how they go.
Hi, thank you so much for the lush soap tip. My hair is coming back after 3 months off Eribulin, but I'm guessing fulvestrant will keep it thin maybe...it is just as Cathy described, fluffy thin and rather grey just now...previously it was a kind of ash blonde grey, now it's a steel grey, very disappointing!
will look up that soap on line too as all lush stuff is in online catalogs.
fairydust - how were your bloods? Hope they were ok for your chemo.
Ali - I personally would worry about a 2 week delay between doses. Only because I know if the chemo didn't work I would have then blame myself. It would seem like such a shame to miss the family gathering though. Follow your oncologists advice.
Mrs M - so kind of them to give you the soap for free! Hope it's not too stinky!
Jow - glad you are enjoying your juices. Add a thumb of ginger root and a clove of raw garlic to fight off infections/colds. I like beetroot, carrot, apple and ginger. Cucumber is meant to be good for strong nails so throw some of that in any juices, too. My fingertips were numb too, but they have slowly improved so hoping yours do too. I do think you were so brave going swimming. Think I would sink with my heavy legs! I'm a bit scared of being seen bald by anyone I know, too. I feel naked without a hat/wig on. Only my family have seen me bald. I can't wait to have a covering of hair. I really must get braver as I won't be able to cope with hats and wigs in summer!
Well, I'm being adventurous and having a dinner party this weekend. 8 guests who have all helped with childcare And supported us during the chemo, and a celebration of the end of chemo. I've decided to do a healthy menu. Harissa salmon with Moroccan couscous and watercress, orange and pomegranate salad, followed by raw vegan dark chocolate chesecake(made with avocado not cheese!). I've just made the cheesecake and it tastes amazing. Hope the guests don't freak out about the avocado content!
I had my physio appointment today. My left leg (with the hip arthritis) is much weaker than my right so I have exercises to do to improve strength. At my next check in 3 weeks if all is going well I might get an exercise plan on prescription(free!) at the local gym and swimming pool. Must remember to do my exercises every day.
Not allowed to run or do Zumba so couch to 5k is off for now. Not sure how to halt the weight gain - looks like I might have to eat less and stop eating my daily chunk of dark chocolate if I can't burn it off with exercise!
Well, bedtime approaches. Herceptin on its own has given me a dry mouth and I'm a bit tired but no other obvious symptoms so far thank goodness.
goodnight All, x
Hi Joe, sadly once we have had chemo, we (mets ladies)aren't eligble under NiCe's ruling. Although it's true some might get onto a trial.
i felt really strongly about this...and have written to them, having read all their blurb about how good it would be to help people avoid chemo as it would add to their quality of life. I worked for most of my life in the NHS and although money is not infinite, I feel that there is now a two tier system for mets lafies, which is very unfair.
Fairydust, yes do speak to your onc and do make your own choice.. because whatever you choose...must be your own decision...not influenced by us.
.it wouldn't mean you should miss the event either way, would it? I was on chemo when my niece got married and I was just careful to use first defence...as I said that has always worked for me when needed. But I get it, that you might feel more well if you had a break.
Ali, I would ask your oncologist for the evidence for her comment. I think there is some eveidence that delaying initiation of chemo after surgery can have a worse outcome, but can’t find anything easily that suggests that having a delay mid chemo is a problem. Would be a shame to miss such a big family event.
Glad your temp has settled Meesh- I had the same problem this round. In fact temp has gone up every time but this round was much higher at 38,9. No cause found but still gave me domestic type antibiotics.
Gosh Cathy that doesn’t feel fair putting on weight when you have barely eaten at times. Let’s hope this weight gain is all fluid and miraculously disappears. I can’t face weighing myself after my 5kg gain. The thought of having to diet (more to ensure clothes are comfortable and vanity) fills me with dread and didn’t stop me devouring a large slice of chocolate and hazelnut vegan roulade left over from NY. Who knew vegan cake could be so tasty. The ‘icing’ was made from dark chocolate mixed with silken Tofu. I was sent a juicer this week from a generous friend. It is huge and powerful, I think I now need a kitchen extension! Anyone got any good juice recipes? We’ve tried. Carrot apple and ginger and cucumber mint and lime. Both v nice although I dont like the washing up of the machine!
Im day 17 of my last T and definitely feeling better but the fatigue has been considerable this round. My eyes are terrible still so starting on antibiotic drops now. Hands and feet are peeling. Finger tips are a bit numb and nails hurt but are intact so far (gather they can fall out later). Not sure if any hair has grown back as I still have some hair left that didn’t fall out.
I have been swimming- first time in 5 months! Had to go one boobed and bald as friend hasn’t finished altering my costumes but I must say having no hair does make the getting changed afterwards so much quicker. I was a bit chilly though and could only manage a couple of lengths before muscles became v fatigued and I had to rest- quads were the worst. I’ve never tried yoga but think now my breathing is better that I should see what it’s like- so many people I know love it. I think I’m a bit impatient Meesh for yoga and meditation but there again maybe I need to have some enforced slowing down. This cancer has certainly helped that!
Christmas tree is coming down tomorrow - think I’m ready for that. Younger boys are back at school and daughter back at medical school and I got sent some beautiful spring flowers today . Just a couple of chilly months to get thru plus a bit of radiotherapy and ovarian surgery and then hopefully life can become a bit more normal and sunnier.
Is anyone going into the PALLAS trial by the way- for this new drug paclociclib which NICE recently approved for metastatic bc?
Ali, hopefully a week wouldn't matter..but I have had three chemo fail eventually and during two I had had short breaks....cancer can become resistant to them sometimes, ask the onc more questions....but you could try using first defence up your nose for added protection...has worked for me now for over 16years
(check with the pharmacist re your drugsfirst)
Meesh, you a powerhouse, working, yoga, meditation. You are an inspiration. 🙂
Ali, yes I have had a week delay on one of my FEC treatments. As it was due to neutrophils, there was no choice. It was riskier to have chemo with low neuts than not have if at all. My oncologist did up my injections from 5 to 7 but nothing was said by nurses or onc. Just accepted as one of those things. I did ask my onc once (jokingly) for a delay over Xmas but he said no, of course!
Morning ladies! Luckily I avoided a stay in hospital and they let me go as bloods showed it wasn't bacterial temp was still up yesterday but has gone back to normal today 😊 although now temp is normal the hot flushes are back 😔
Ladies re: exercise I've been doing yoga and meditation every morning since starting chemo (sometimes miss day after chemo) even if I only do 15-20 mins. I have found that it has helped with my energy levels and my well being too. Just thought it might be something that might help raise your energy levels that is easy to do at home.😊
Hope the herceptin is not bothering you too much Cathysid, and physio went well. Gotta do the homework though, exercise, exercise, exercise. I so want to go back to the gym but can't see it happening. Gonna suspend my payments I think.
MrsMeow, what a bittersweet thing to happen 're the soap. There are some lovely people on this earth.
Bloods for me today before 2nd T on Monday. Hope my neutrophils behave and are up to par. Must remember to take my steroids on Sunday too.
Hello ladies! Happy new year to you all! Good to hear you all in good spirits. My start to 2018 has not been a good one as spent New Year's Day afternoon/ evening in A&E with a temperature 🤒 They finally let me go but ended up back at the chemo unit again yesterday still with high temp. They took more bloods and confirmed it's not bacterial so probably viral but have given me injections to do as precaution as was only day 8. Thought I'd been doing so well through chemo too as haven't had any major problems, this has scared me though and I'm not looking forward to the next one 😔 even if it is my last.
Hope you all have a good day! 😊
Hi CK. Can imagine you doing the YMCA! Am glad you had a love New Year celebration! Glad you weren't working too hard though.
Glad your cough and cold has eased off. Keep warm and keep napping, as that is what your body needs after your busy exciting new year.
Well, I'm tired today so staying all warm in bed. Not watching TV today, just reading and napping.
I should eat but maybe later. Family are staying away due to coughs and colds and the chicken pox issue. So am very chilled with no visitors.
You've prompted me to start looking around this forum at other threads CK. I found the other Fairy Dust. Hope she's ok. US fairys are everywhere, it seems. I will stop off at other threads more often, learn more from other experiences.
Enjoy your day.
Thanks Mishy, strange about your hair. I had course curly hair, now I have thin straight hair I think. May change but am liking it, will learn to love the grey I guess. Yes, it feels like a buzz cut. Very very very short but nice.
Will look out for the soap. Thanks for the tip. I will keep the secret from them.I do like Lush. The smells are amazing! Not using anything at the moment just my shower gel, but it is Molton Brown. I truly didn't think about soap or shampoo since New hair is still so short, but best look after it. It's a sign of getting back to a new me. A new me.
I wonder who I'll be after this.. 🙂
I hope you all have a restful sleep.
Hi MrsMeow, thanks and well done on proving your oncologist wrong 're T. You're clearly a determined lady. To be applauded! Yes, you're right. I believed in my oncologist when I signed the chemo consent form, but you don't know what you don't know I guess. They're not trying to kill me at least..unlike the bc.
I would so love to walk on a beach, you're so lucky MrsMeow. Luxury hotels at New Year, walks on the beach..You have a lovely life. If you're happy as you are, stay as you are. Losing weight is miserable. Don't do anything to make yourself miserable....Just be.
My hair is growing back..much straighter than before. Alas, there are definite shades of grey..not great for an under 50 year old, but at least it's hair..!
CK!! You worked for how long?!
Well, I hope you were on light duties! Glad you're feeling more like you.
Today was the visit to my oncologist. Just no way to know if chemo is doing its job when you have it post surgery. Hope I'm not going through all this for nothing. As I've not been hospitalized through chemo (thankfully), and my side effects are terrible but managed, he"'ll keep me on my current 100% dosage of T treatment plan. I know some ladies have had their dosages reduced but I will stay on full. I know that's best, but I'm dreading the next one already. There is nothing I can do. My life is controlled by my oncologist. As are we all.
If I could stop, I think I would. If only I could tell if it's worth it.
Moijan, Your cat looks very wise to me. Beautiful and calm. Thanks for sharing your picture with all of us. I adore cats and intend to get one when all this treatment is over..unless I upsticks and travel the world lol...
To All you beautiful ladies. Happy New Year to one and all. 2018 has entered peacefully and quietly into my life. I will do all I can for it to stay that way. I am grateful for my family still being together all over the UK and the world and remaining strong and healthy, for my friends who keep me in tune with the real world outside of my treatments, and my virtual friends on this site who keep me in tune with the various types of treatments possible for cancer and respond to it all with humour, poise, style and of course glittery sparkles..
Thank you ladies, you're friendships from afar are appreciated, welcomed and very supportive and helpful to me, allowing reflective thinking of what I want from my life in the future, however long or short that may be. With no ties I am free to do as I please, and always was, but didn't. Career took over and I lived to work. Those days are long gone. Of course I will work for as long as I care to, but I must also live to.....do something extraordinary maybe..who knows what..I shall continue to reflect...
Cats are great aren't they? I lost mine several years ago, but still miss her...she looked after me through. My.chemo.xx I loved her so muchxx
CK good to hear you're taking care of yourself and resting! You would think your cousin would understand that you might want to be at home rather than in a noisy place, but you told her! 😂Good job daughter has your back! I'm not sure if the sea bands work and I wear mine ne for the first week but I think it was coz it was the first night and not used to wearing them again, that I had my bath and completely forgot them😱 😳🙄won't be doing that in a hurry! As I've been fine since with them on.
Hope you've all had a lovely day ladies! ❤️❤️🤗🤗🤗