Is anyone feeling breathless after T? I only have to go downstairs, and up again, and I'm breathing heavily. Like deep breathing to catch my breath. Am drinking fluids a lot but urine still dark in colour.
i saw my surgeon before chemo finished. My oncologist referred me back. Operation is usually 3-6weeks post chemo. Hope your last chemo goes well.
Yes, I am looking forward to watching it! Big Cats are so majestic aren't they, yet still so cute. Should be a good watch!
Thanks for the thought!
Having a day in bed today after all the house arranging over the past week. Green smoothies and salt baths. Lush.
Cathysid and CK. I feel for you having surgery next. You can do it. It's easier than chemo I agree, if you rest, don't over burden yourselves and take your painkillers. It is a deep invasive operating procedure though so do take note of the risks and ensure you have support.
My legs are still bad too- feel like I’ve cycled 50k (I’ve only once done that, in flat Belgium), when I’ve barely been anywhere. I couldn’t face swimm8ng today. Too tired and too cold.
Eyes also still problematic- the constant dripping, as well as the conjunctivitis gunge. I had a swab today but I’m going to go to an optician to check vision- Ive never been to an optician.
yesterday i I had my radiotherapy planning CT and Tatoos. It was straightforward and the tattooing fine- couldn’t even feel it on mastectomy side , but I did feel a bit emotional in the CT scanner. I had to really make myself get a grip. Bad memories I think- I’ve had a few scans and have another staging one in March which I can’t really face.
today I had my first clinical psychology session. The therapist uses something called ACT. Acceptance and commmitment therapy. Uses mindfulness techniques to help focus on your values. I think!
Yesterday i booked a load of sessions- nutritionist, exercise therapist and beginners yoga at Penny Brohn (our wellbeing centre). Have to wait a few weeks but I feel better for having something planned.
Very happy like you Mrs M and CK not to be getting chemoed this week. And for you lot still going through it, I’m thinking of you, and your carpets and cats!
yes, achey legs here too, easpecially if I walk too much! I think it's the residual effects of chemo - apparently it stays in your body for months!
I had my eyes tested yesterday - my eyesight has not worsened but I am lazier with focussing. I noticed that I had to squint to read things on TVs in the two weeks after chemo. If it's an eye muscle thing it will improve with time, too.
Pre op check tomorrow - must order that post surgery bra too as less than a week to my op!
hope you are all well xxx
Oh, that's a lovely description of the joys of cats, Shi..Will probably watch cat videos on YouTube later, get my fill until make my mind up after rads!! What to do....??!!
I will decide later post rads and see how I feel about my future etc..
Parents coming over today to help sort house out after carpets fitted all over yesterday...So much to consider, do I need or not? Mainly books lol..bit of a boarder of books and documents, must get the shredder out one day for old documentation.
Hi. Thanks so much for all the lovely cat information, Shi, Jencat, CK, I so would like the companionship of a cat, will definitely do more research whilst on rads then make mind up. Glad you had good cats, and CK, I do adore stories about Merlot!! Thanks for your experiences Shi..which I will take into a lot of consideration, and really appreciate. can't always have cats that know what I want I guess, they have minds of their own!!
Tears are understandable CK. You're going through a very emotional bodily impact, and reaching New targets every day, so good to let the emotions out, says me!! Keep most things bottled up unless I'm ranting on here, or in the middle of wine bar at Xmas lol!! Silly of me...doh.
CK, thanks for mentioning your anti-biotics. You reminded me I had not taken mine today yet..!
My final 8 steroids for this cycle.
My metoclopramide x 3 today
My neutrophils steroid injection earlier this evening,
And now just before bed, thanks to your message, my daily antibiotic!
And I have codeine phosphate for if pains get too much, and they also help me sleep.
Hope you all have lovely pain free sleeps.
I got my two from a Rescue Centre when they were kittens (they're 3 now) Shi-apricot boy (a light ginger really!) and his little black and white sister-she's the boss! I'm sure they know I'm not well, especially Oscar, he'll spend ages just sitting next to me on the settee or in the same room 🙂 xx
Fairydust, my cats have been such good company whilst I've been going through chemo, so I'd definitely recommend getting one,or even two! I'm lucky though as far as carpets etc go as my two are lazy and enjoy sleeping and cuddles a lot of the time xx
I completely agree with Shi CK, how you've worked all through chemo is beyond me. 🙂 You are one of a rare breed of superwomen, and I salute you! Please do rest whilst you can though as bodies can collapse when least expected if it has too much to bear. Hate for that to happen to you. X
Thanks Shi, yes, my house smells divine with new carpet smell. It's akin to a new car smell. Just lovely! Cocktails all round at my house one cocktail cabinet arrives! It's an art deco design which I just could not resist. I'm going for a gold theme in my home this time, although carpets aren't gold, more of a pale white silver colour with a bit of sparkle..but very plush with new soft underlay too.
It's a luxury I've been promising myself for years, and thought why not now?
Really sorry you had a bad second t Shi. I hope you get a good reaction to next one after onc discussion. All thoughts are with you for a successful ring of the bell on the 18th x
Wow, post chemo yesterday, I slept more deeply than expected, but still feeling tired. Take my steroids today and metoclopramide anti sickness meds for next 5 days and start injections tonight for 7 days..see how I go!
Have an amazing day! .
Ps still considering a cat CK, but has to wait a while till chemo and rads all over and done with, and if I can get a house trained one who won't wee all over my lovely New carpets...!!!
Ahh I hope the aches and pains are gentler today CK and Cathysid..
Well done on your solo herceptin Cathy, glad it didn't take long and side effects will be bearable. Great news 're The prescription keep fit regime..go you!!
My chemo no 5 today. My neutrophils were 1.6 first time, no delay this time. I put it down to the 7 injections not 5 I had last time..but could be vitamin D I've been taking also. Either way, just one to go..v pleased.
My carpets and flooring started going down today massive upheaval in every room, but looks so glam, so pleased! Should complete tomorrow.
Bough a Julian McDonald gold mirrored cocktail cabinet. Will arrive soon. It will be perfect.
Happy camper today. Gonna eat some pasta before my tastebuds change again..
CK- Glad you are over the worst of the chemo now. I feel similar to you - aches heavy legs, but I think it's slowly improving.
I had herceptin on its own last Thursday. They gave it by slow injection in my thigh. It took 5 mins, then I was free to go! I had it done at my local outreach clinic so it was so much easier than the chemo. I think I felt more tired for 2 days and had a dry mouth for 2 days with some foods, hot flushes have got much worse since the herceptin, also now 4 days on bleeding gums have returned. Theses are just minor niggles though compared to the chemo side effects! Generally I feel quite well.
i went to see a physio on Friday, too. She has given me some exercises to improve the strength and flexibility of my arthritic left hip, and when I see her next month if things have improved I will be getting exercise and swimming, both with personalised exercise plan and coaching, on prescription. Fab. Cant wait to get moving again!
This week its dentist and opticians then pre op checks before my op next week.
hope you have all had a good weekend,
Mishy. I was told it was called 'new' but could only find the one which you dissolve in hot water...is that it?
im going tomorrow to get some as my hair is fine, frizzy etc 3 months after final chemo and still not very thick xx
Ali, I do hope it works out....you could maybe go along for a shorter time, or if quite a trek, stay locally in a b+b so you can escape for a while if need be.....I felt lousy on Xmas day after lunch but had a lie down in a spare room for a while.
love and hugs🦋🦋🦋
i had mild bladder irritation too with T. A bit like cystitis except not so bad and didn’t need to wee all the time
Ali49 - I know with Herceptin they don’t like to miss it. You can only go over by 7 days max( this comes from my chemo nurses) the other chemo drugs stay in your system for 8 weeks. So it’s the Herceptin that’s important. Herceptin alone doesn’t give adverse symptoms and shouldn’t interfere with your celebrations. Still though, speak to your oncologist.
Sue, a wee infection is one of the known s/e from some chemos.and my gp said that passing wee i.e. Getting caught short like that is a typical sign of infection...the bladder loses its usual sensation....drink at least a litre and a half of water a day, ........and avoid caffienr too...just for the moment
Sue W, have had that Sue, when I've had a wee infection, drink loads of water and pop a specimen into your gp or the hospital for testing in case, yes you CAN get a sensitive bladder, but drinking loads of water will help if it's due to the treatment. Also vaginal thrush can make your bladder feel sensitive .....
check out out the quickest way to get a spec tested and go from there xx
I don't have the wee situation any more, but before diagnosis I did. I was peri menopausal then and it was a part of that I believe plus the fact that I eventually learned I have lots of fibroids in / on my womb. I had an ultrasound to diagnose the fibroids. Fibroids aren't cancerous and can be removed but can grow back. They leave my stomach very bloated but won't go away.
. I could be in the car driving after just been to the loo, to be sure I could make the journey, and then need to go! So yes, tenna ladies became routine for me. It was an intense thing, as it would come at no moments notice from deep within. I don't remember sneezing or coughing bringing I on but it was summer mainly when I suffered so didn't cough or sneeze much. My periods when they happened were very very heavy and lasted virtually all month too.
It's stopped now, but hot flushes and cold flushes remain. My hot flushes also are very intense, and I can be soaked in sweat in no to.me. This can happen at any time,anywhere too.
Good job I sleep alone as can't imagine another person's heat in the bed as well...! I tried HRT but for one month only, as it brought on a period which was horrifically heavy, and I decided it was not for me.
My periods have stopped now, but I am advised to see my GP if they return.
So to summarise, check menopausal status first, then fibroid status.
Hope it helps Sue!!