Thanks Ali, thanks Cathy. I see my oncologist tomorrow...gonna be strong and insist he do something! (gulp).
CK, wishing you so much love and luck for today. Bless.
Thanks Meesh. I am thrilled for all you October ladies getting through chemo so bravely. You are all super women and w onder women rolled into one..I still am so worried about my next T which will be my last. I have sought advice about it, hope the onc will allow me to at last resort have one more FEC rather than T, as although also hated FEC, I hate T even more .
I envy you having a new kitchen, that will be great!! What colour scheme?
I have my rads set up session on Wednesday, where I get positioned and tattooed. I'm sure you will hear about your rads shortly, or else phone your bcn perhaps, and ask her to sort if for you if she can...
Morning September ladies! Just checking in to see how you all are doing?
Cathy sounds like the op went well hope you're now recovering. As others have said just take it easy, do your exercises but don't overdo them. I had a WLE and SNB prior to chemo and was in and out the same day, I didn't gave a drain so can't comment on that. They kept me about 30 - 45 mins after recovery enough time for a drink and sandwich and then discharged me.
CK, good luck for your op tomorrow hope it goes well for you. We'll be thinking of you!
Fairydust, house sounds amazing, I'm planning my own redecorating starting with our kitchen and utility refit 26 Feb, which is bound to clash with rads but we've already delayed it once! Then want to decorate the lounge and get new carpets. Although bit worried as our cat has a habit of peeing on them. Do hope you get a cat, you might find getting a cat that's a year or so old a better move as my kitten did climb the curtains!
I had my last chemo on Friday! 🎊🎉🎊🎉🎊🎉🎊🛎🛎🛎🎉🎊just need to get over the SEs now and meds then it's off to rads for me, although no dates set yet.
hope you all have a good Sunday and CK rest up prior to op tomorrow! Just like to thank you wonderful 💪🏻💪🏻💪🏻💪🏻ladies fir all the knowledge and advice you've provided us October ladies with! 😘😘🤗🤗
Morning ladies. Snowing here, looking pretty. Won't last, but a nice wintry outlook and start to the day.
Cathysid, just wandering how you are a few days post surgery? Hope dealing with drain ok still, and resting up as required, maybe even being pampered a little by your OH.
Once drain removed, try to do all your physiotherapy exercises every day. They're so important even if a little tedious!
Thinking of you this weekend...don't worry about surgery, you'll be in very good hands I'm sure.
Cassie, that charity event takes some organising, good on you! Both you and CK have so much enthusiasm for fundraising, it's exceptional.
Yes Cathy, MrsMeow is right, there is so much that can be done in a shady area, even real looking artificial plants and wall or fence coverings, for realistic lush greenery without the effort! I have to confess I only have artificial plants indoors as I am no good with real plants. They do look real though.
Thanks for the pinterest idea MrsMeow, again a v good idea. That will be my weekend then, spent online researching. I'm in no hurry to do the build just as long as it's done sometime this year I think. I have a new bath to fit first as my existing one has really had it unfortunately.
Ok. MrsMeow, I can't believe you have a 4 hour roundtrip for daily rads. I so feel for you. Will you get help with travel costs at all? I do hope so. Glad it went well for you. Thanks for keeping us updated on your progress and advice and tips on what to do. It must be a v strange feeling. I've never even had a ct scan before (I think). Quite interested in the experience though.
Ensure to rest now MrsMeow, the roundtrip alone must tire you out.
Take care of you.
Hi Cathy. So pleased you're not sore and are draining well. Strange the fluids our bodies isn't it?
Great that you're relaxing with a good book. My fave past time.
I don't remember being given steroids and antibiotics after my ops, but sounds like a good thing I didn't. 🙂
Take care of you. x
're The orangery, it will be amazing. I have a sunny garden which is laid to lawn and is very muddy a lot of the time. It's clay soil so difficult to grow things, although some things randomly grow really well like my neighbour's bamboo which is all over the back of the garden but actually looks great all lush a d green year round.. I need to use the space for internal use instead as I never can use the lawn so may as well build on it. It's not huge, just large enough. The bamboo and wooden gazebo I had built can stay though as can 2 trees I have. It's going to take a clever builder to work around what I want to keep and what I want to build on!
Hi Ali, oh your poor thumbs! We don't know how much we need them till we don't have them. Please take care. Don't slice your bread maybe, just tear chunks out of it as they do traditionally in France!!
Thanks for the orangery idea. I like that idea! Never occurred to me. I will look into it.
I hope everyone has a lovely day. The. Winter sun is streaming through my Windows and clearly shows they need a clean. Have to find a window cleaner.
Many congratulations on your 1st rads. Wishing you a great nights sleep now and all rested for tomorrow. At least you get a weekend break soon to take stock. All best to you! I won't be looking for you floating past in your nightie lol. 🙂
Great news 're The benefits conversation. Can't be easy for you having that work stress along with bc treatments. It's so not fair, but please do all you can to ensure you get all you are entitled to, and can get some financial peace.
I have phoned breast cancer care helpline for support, and will be ok now I think. Feel so much better for my decision. I have been sleepwalking into this chemo regime, now I've woken up and started to take control.
Yay, Cathy. So pleased you're doing well. Really thought you'd be home by now. My hospital couldn't get me out quick enough..about half an hour or so after recovery from surgery!
My home is only a two bedroom newbuild, but I'm trying to make it more me after all these years. It's cause I'm not working through chemo so now finally have the time to plan, organise and change things. I'm no big spender but the lack of investment in the property over the years is showing, so it's time to get it up to today's standard so to speak. I've spent all my time here working early, getting home late if in the office, travelling to different offices in the UK. No time to spend on the house. I ultimately want an extension or brick built conservatory, and a new kitchen and boiler, as these 2 are very out of date.
I was hoping to move before my bc diagnosis, but now may stay and develop it instead. It was only meant to be a starter home, but never met Mr Right to move to the next level with!
I called the breast cancer care helpline to discuss my chemotherapy decision. They Will try to connect me with someone else who did this and they may call me before my oncologist meeting on Monday. Will keep you posted.
Hope you had a really deep sleep Cathysid, and are all set to go him today. Straight back to bed and sleep some more if you need, otherwise drink fluids, eat what you want and just relax. Your body is under trauma and now the healing begins x
Jow, happy birthday for this week! Enjoy your chemomoon. As long as your cozy London hotel room is big enough for 2 and sumptuous, don't worry about the size! Enjoy your lovely food too.
I have been on full-doze T Jow, and my onc refused to lower it when last I spoke to him, I don't know why he won't listen to me. He did say he would have to throw the second most aggressive chemotherapy treatment at me, but surely he has to take into count my reactions to it. I'm sure radiotherapy will do all it can to remove any particles in me without one more T. Let's see how I go. I see my onc on Monday, then my radiotherapy planning meeting to get tattooed etc on Tuesday.
On a lighter note, I'm in need of a new bath, and am searching online for the perfect Victorian bath, cause I love that style. Rolltop with feet and lovely old fashioned taps and shower head. A bit incongruous in a house that's only 21 years old, with a cozy bathroom, but it's what I want, so why not! Need tiles too...it all adds up doesn't it?!
Be happy all.
Oh glad it went well Cathy and that you’re not in pain. Sounds rather nice- M and S food and a magazine- hope u enjoy it and a bit of enforced rest.
Sorry T is so grim for you Fairydust. I can’t remember whether you have been on full dose or not, because another option may be to go for a reduced dose so side effects not so terrible?
Ive been celebrating my birthday this week, so lots of tasty food, but sadly no karaoke! Husband’s birthday too this week so we are off to London with the younger boys staying in daughter’s student house and we are in a trendy hotel. The room is described as ‘cosy’. Guess it will be small. Not sure if this is a chemomoon or a pre radiotherapy moon but hope I have the energy to enjoy it,
Been offline for a bit or would have checked on you before now. Glad you got through it. Brave lady!
Shame about the guide wire but really pleased it turned out successfully, and that you're not in pain. The glu is amazing isn't it. You think you need at least one bandage but no...Just glu. How's your drain?
Glad hubby is looking after you and will be there for you. 🙂
I'm so used to being alone I can't let people look after me. I just manage but put my foot down when something's too much. So, my onc best watch out. 🙂
Sleep well. And rest rest and rest some more.
Hi CK. Glad you're doing ok. Sing your heart out! What's your best song? I'm a terrible singer but still sing to myself in the shower sometimes!
Hope your pre-op goes well. I'm sure it will though. 🙂
I have been on the October thread recently. I've not been a happy lady this week with my T side effects. I'm not going to have my 6th one. It's taking too much out of me. See what my onc says, but I'm adamant I want to go straight to rads now. Chemo is too much. And my breathlessness is terrible. I can hardly walk up and downstairs and living alone, I need to be able to do things by myself. One more T might tip me over the edge where I can't move, so hope he accepts my decision.
Thinking of you Cathysid. 🙂
I was last in I think for my surgeries, but had a really nice sunny waiting room to sit in in my gown and slippers, rather than a ward. However, nursing staff were v friendly, but didn't fuss over me too much which was good! Wasn't able to eat of course, but they gave me a very small cup of water to sip on eventually.
Are you having an SNB, sentinel node biopsy? This is a blue nuclear dye they put in your boob to see where it goes in your lymph nodes. This turns your boob blue and takes ages to go away but isn't v painful.
After surgeries, they made me tea and toast which was amazing to eat! Best tea and toast ever! Then went home!
I had my WLE and recon ops as day surgery. Home same evening, but all hospitals are different.
The drain itself for me was about the same size as a pint of milk in a plastic bottle from supermarket. You may be given a jug type syringe to symphony the fluid out from the drain and it as measurements on the side so you can record how much you drain each day. Then just flush the fluid down the loo. Wash everything out and put the air back in the drain and good to go again!
I was given a cross body cotton bag to put the drain in and made it easy to carry around. This goes under your t shirt or shirt or pjs and hung down to my hips. Be careful not to sit on the drain whilst on the sofa etc..
Your front fastening bras sound ideal. I got soft sport bras in really bright colours as it was summer when I had the drain, so looked quite nice under a vest top sometimes.
Wow, I've come a long way since then. I hadn't told my family I'd had bc at that point so went through it pretty much alone by choice. They would have fussed too much and now they do know, it's a bit overwhelming with all their fussing...but can't be helped. I could use a holiday!
Good luck for Wednesday Cathy.
After my op, I was able to wear loose t shirts or oversize shirts. Just be careful when you pull your t shirt down to straighten it, that you remember the drain hose underneath. The number of times I pulled the t shirt and caught the drain too.... it's uncomfortable/painful, as the stitches holding the drain hose to your body are easy to pull and feels like they could come lose, so be very gentle please.
Sleeping with the drain is doable, but be careful. I think I used a pillow to protect the drain and stop me turning over and pulling the drain out in my sleep.
I had the drain for 7 or 8 nights I think, blessed relief when it was finally removed!
You sound very brave about the surgery ahead. Remember it's normal to have worries and concerns so, as Fairydust says, feel free to off load on here. Lots of love xxx
Oh ChasandDave, I'm impressed at your humour and attitude, that will stand you in good stead. It's still a tough operational procedure you are undertaking, so if you need to rant or query anything, just say. I had a wle pre chemo, so you're going through more than I did, but I can appreciate the thoughts that may occur as the time draws near for you.
We will be thinking of you, and will be with you in breathless spirit, if that makes sense. 🙂
Goodbye for now, Mrs.Meow,
hope the rads are ok and the long round trip not too exhausting. A friends mum who had rads last year said that the tiredness tends to hit you around day 10, so be ready for it! Also she said it's a walk in the park compared to chemo :-). Hope all your residual side effects lift soon, cx
Hi Cassie. My surgery is the 8th Feb, which will be 4 weeks from last chemo. Bizarrely looking forward to finally getting 'Chas & Dave' lopped off for good! (I'm sure I won;t be saying that the night before!). I am reassured though by how many ladies comment on how easy it is compared to chemo.
Fairydust - I too am breathless - just doing every day things: putting a wash on, walking up the stairs, putting shopping away etc..It does scare me and I just hope it eases before the surgery.
Love to all of you, hoping the last chemo session is a relief. I wasn't as elated as I thought I'd be, but I think it's just because I had a round of side effects to get though! For many of us on here, we're moving on to another phase of our weird journet, so good luck to us all, Jacqui xxx
Oh, thanks MrsMeow, I guess being out of breath takes over us all at some point, but your heart rate must be a concern. Hope it remains settled for you as time progresses. You've been a great support on this thread.
Well we will miss you as you pop over to rads, hope they look after you there and maybe we'll join other ladies there later. Take care of you and yours. 🙂
Ps: Will update on kitten news later in year after my rads recovery..
Thanks Ali. Yes, your reply makes sense. Good to know it's a known reaction, and I can just accept it and hope to deal with it. It's an unusual feeling running out of breath for something so day to day. Thanks again.
I have very achy bones now too, just started as of last night. Feel as if I'm being internally kicked or punched all over randomly, but put this down to injections which I now take at night. And jaw and head aches too. But temperature ok. 36 at last check from 35.8 so getting better.
Will take strong painkillers at some point, once I can find them. Bit of a random sleep night in meantime, with weird dreams, but also time to reflect and consider after upheaval of last few days.
You ladies keep me together.
Hope all ok with you all.