Cathy you are sounding very stoic. Refilling grapefruit and more surgery sounds tough. Good that the tumour shrunk to just 1mm though. 29 nodes- wow! Latest NICE guidance is a bit more relaxed about what you can and can’t do post LN surgery. I had been feeling a bit guilty sneaking into steam room and hot tub.
Fairydust how are you feeling on day 4? Hope this round is easier.
Off to the pub once I’ve got spotty boys in bed. For a Diet Coke.
Oh Cathy, so sorry you need another op, chin up and know we're thinking of you still. Your serial sounds tricky, would put me off grapefruit...Lol
Ali, hip hip hurray for you. V good news. Hope the herceptin goes well!
CK, glad you're out and about. Go you!
Jo, you're juggling a lot. I feel lazy compared to you. I chill all day alone. But you take care, spend some time to think of your mum. You're amazing.
What a lovely surprise Ali- you must be delighted!
CK you sound well, and glad to hear Merlot is still loving your bald head!
Cathy my optician reckoned it was Blepharitis causing the watery eyes. She did stain them but didn’t specifically mention the tear duct. I’ve got some expensive lid cleaning stuff plus continuing lubricating drops. I think if I have no resolution by the time I see onc in early March I will ask to see ophthalmologist- that will have been 4 months of crying by then and I will be truly fed up! Hope you appointment is ok today- do let us know.
I'm just off to the eye hospital now with my youngest who failed his eye screening at school. But of a logistic conundrum as 7 year old covered in chicken pox and I also have radiotherapy this morning,
My my mums birthday today, always a sad one (she died 6 yr ago) but she would have hated see me go through this.
Have a a good day all.
Hi Cathy, thank you. Am teary with relief but am all prepared for side effects..reduced dose I think is showing so far. But not taking for granted.
I am thinking of you for tomorrows results. What times your appointment? Will send good vibes through the ether...as will we all.
Keep working on the cording exercises when possible,but appreciate seroma makes that difficult. Gosh, it's hard this isn't it!?
Hi MrsMeow, good to hear from you! Still can't believe your daily 4 hour round trip for rads. Well done you! Glad you have more strength post chemo. Please rest when you can though.
Ali, so sorry about your rash. Hope you can get some relief tomorrow. 😞
Well done Fairydust- a major milestone passed and well done for going ahead with it.
i know you have the side effects to get through but I think it still feels good to know you won’t have to do it again. The fluconazole really helped my mouth so hope you don’t suffer so much this time.
I’ve been looking at old photos- perhaps not the best idea but at least I looked ok once upon a time in a previous life! I had my first ever trip to the optician today. They suggest reading glasses and various things for my watering eyes. I tried a few on but not sure I can bear to buy any.
I then sat next to another bald woman in radiotherapy - she was wearing an amazing pink floral coat and pink DMs. and looked fantastic. I’m not sure if that made me feel better or worse!
Ahh, I bet you all are being harsh on yourselves, and don't look as bad as you're stating! You may have a warped chemo view of your gorgeous looks. I have brown skin, and I see a brown round snooker ball when I look in the mirror.. the steroids have made my face round and I have put on put on 2,stone on steroids. But everyone says I look great, not sure I believe them though, but hope they're not lying to me.
I got through my last chemo yesterday, long arduous day but onc reduced dosage by 15%, hope that reduces se`s for me this time. Almost didn't do it, but after a long weep I got on with it. Lucky had a friend with me to keep me there. Have been prescribed fluconozole this time, which should avoid mouth thrush this time and still got antibiotics and filgestrim injections to take plus steroids. But no more chemotherapy..Feels great. Thanks so so much for your support on this forum in getting me to this stage. So much appreciated.
So radiotherapy next in 3 weeks time or so.
My original oncologist suggested ovarian removal.
He thought aromatise inhibitors (AIs) were more effective than tamoxifen (poss more side effects though) but you need to made post menopausal for an AI. He said most people find zoladex injections for a few years (2-5) can be hard going . I’m very happy to lose my ovaries- my aunt and mother in law (neither related) both died young from ovarian ca and it’s another hormone dependent cancer. I’m not in the running for more kids!
I am not seeing gynae though until end of month so still need to be approved by her (but my current oncologist agrees) and I would only have done if it is possible laparoscopicly as I need my tummy for reconstruction.
By the way. new NICE guidance is apparently out in draft but I’ve not read it yet. I’ve also not checked up between AIs and tamoxifen but seems like the team prefer the AIs here.
Yes my chemopause hot flushes are still pretty bad too. I keep needing to whip my hat off, which can give some people a bit of a shock- I’m still pretty bald.
Oh Cathy that does sound a bit rubbish- the seroma and the facial hair and the nails. Are you on any hormone treatment?
Fairdust are you in today for final chemo? And Ali, hope you are bearing up ok- it does feel like this chemo goes on forever......I gather there is an end to it eventually.
Im halfway through the radiotherapy. It has been fine but by the end of last week I was so totally exhausted. Went to friends for dinner and ate the food and then was in a deep sleep for the whole evening, even when they talked about me! . My skin is coping well so far but apparently like chemo, the effects continue for a few weeks after radiotherapy has finished. I’m also starting the zoladex later today- it’s an injected implant which lasts 28 days, plus letrazole. Zoladex is a temporary measure whilst I await ovarian removal. I’m really not looking forward to more side effects. Especially not more weight gain.
This is weekend I went on a Younger Women Together event organised by Breast Cancer Care. It was really good to meet with other young (ish) women- well worth doing if you get the chance. I got to meet Vee78 who was also on this forum initially which was nice. Most women were further down the treatment line, and I think the emotional efffects take over from the physical ones after a while..... . Cathy, I did notice one woman there had a lot of facial hair.
I have 7 year old at home with a temperature today. Hoping it may be chickenpox brewing. I managed to get myself locked into the chemo den this morning- thankfully my poorly son eventually woke up and was able to unscrew the door handle from the other side and remove the broken mechanism to allow me to escape. He was truly delighted to be the hero. I was very grateful. It is not a pleasant experience to be trapped on 2nd floor of a tall house- it only was for an hour. Can’t imagine what those Grenfell Towers people went through.
Fantastic news CK! ( I’m not sure my surgeon has every smiled!). Makes all that grim chemo worthwhile.
Im going to toast you with a glass of kombucha!