Cathysid, sorry to hear you're suffering with SEs hope it passes for you soon. On a positive note at least you know it's the last time though.
Fairydust, I was going to ask about the cat! Glad to hear it's still in your plan.
CK your fundraising amounts are amazing and you have been such an inspiration on this journey.
September ladies you are all amazing and I would like to say a big big thank you, as like Ali I've been following your thread starting from my lead up to chemo when I also was very afraid and your posts gave me hope and courage to face this journey. It also inspired me to join the world of social media for the very first time and join the oct thread in the hope that my posts would do the same for other ladies following behind me. Love ❤️ 💕💕💕and 🤗 🤗🤗🤗🤗to you all.
I love the festive toilet, Mrs.M! Hoping Xmas is not too much of an emotional rollercoaster for you this year, and that you are out of the side effects by the big day.
Dont know why, but I'm having a rough one with side effects this time. Tired, very achey in all my bones, and the dreaded nausea is back again. Yuck. It's day 6 so hoping day 8 will bring a turn around. I only feel tolerably well if I am horizontal in bed in the dark! Need to hibernate.
I just spent 2 hours baking some potatoes for tea, defrosted some bolognaise to pop on top. Can't face eating either of them. Now I only fancy marmite on toast! Don't know what my taste buds will make of it though.
wishing the week away, so side effects are in the past again,
I'm glad you had a lovely chemo moon MrsMeow, and good luck for today. Your daughter up Everest and your last chemo, both courageous feats! Ever so proud!
Not sure if I have already shared this - but this is my husbands idea at humour for a room I will be spending a lot of time in this Christmas - haha!
Morning lovely ladies - haven't checked in here for a while as like others have said the good days have had to be about 28 hours long to cram everything in - we had a lovely snowy and wet chemo-moon in the lake district - am so delighted others have shared a weight gain as I am dreading the weigh in today I have put on so much. It isn't unusual on chemo but I do need to calm down soon as never mind floating in our woods in the nightie to cool down it will be soon be the only thing that fits! Is so fantastic that Cathysid and CK and those of you that have had the last treatment - my unit doesn't have a bell so not sure how I will feel walking out or even walking in the door today - the nurses are quite business-like so it will prob just pass but the practice nurse who struggled to take blood this week gave me such an unexpected hug it was only then I realised that this is quite a big day - last dozywhatsit for me! Some of the posts I am catching up with on here have described the effects of the last 6 months perfectly - you all write so well- I think I have had a bit of recent denial as my emotional incontinence continues with some sudden unexpected tears - there will definitely be some today.
For those on T (D) already in steroid hell - I am really quite surprised at the bad effects they give me and some others on here - my heart rate is already over 120 and the breathlessness is back but is now normal for me so hopefully won't delay anything and I won't collect yet another ecg today. When I was reading about whether I could have a beer on dexamethosone I did read that stopping from high dose quickly can cause mood swings and depression - so many of us on here have described a teary down day on day 5 to 6 - you wonder they dont tail off the dose which may help? I will ask my onc on Friday but don't think it will go down well... so my down days are to be xmas eve and xmas day - oh dear - for the first time in 25 years we will wake up with no children in the house at Christmas but maybe is just as well - one is still up everest bless her but the other is not far away so will arrive later in the day - maybe I will have stopped sobbing by then...
Sorrynotsorry you have been delayed Ali- how do you feel about it? The extra week should flyby a bit as so busy but bet you have mixed feelings.
Well I will try to get some more sleep - roll on 1pm - have an amazing day all and thank you for such insightful posting and positivity xx MM
Hi CK. Very well done on your last chemotherapy treatment! So pleased for you..and the money you've raised is astounding. You're a real guardian of the faries, we worship you! Enjoy your Christmas and thanks so so much for your support on this forum. You're a caring sharing person to share this treatment journey with!
Meesh, yes, drinking lots of fluids, cordial mainly. Mango and Alphonsa Orange is my flavour of choice at the moment. Keeping it all in is the only issue, I live in the toilet it seems!
Thanks for your anti sickness meds advice Geordie. I must admit I don't particularly feel nauseous not like FEC, so I won't get any prescribed and save the NHS some much needed funds. I still have some top up nausea pills beginning with M if needed I guess. Meesh, your carb tips are useful, I am eating more than usual though, but in small bites which is preferred anyway I think.
Hope everyone is having a lovely evening. I'm preparing to get new blinds fitted all over the house on Thursday and can't t wait!it's been on my list of things to for years.
I met my radiotherapy consultant today, and the team lead for my treatment. Won't start till Spring, but I know all about the process which they showed in photographs, and answered all my questions, so not worried at all. I may need 3 weeks plus 1 extra week of booster radiotherapy. But as I say to myself now, being it on !
Hi Geordie, is the moonwalk the breast cancer U.K. one on Saturday 14 July? We've been talking on oct thread about signing up for the half marathon.
CK, well done on last chemo I'm so pleased for you! 🎉🎉🎉🥂🥂🛎🛎🛎🎊🎊🎈🎈🎊take it easy and rest up now knowing you'll never have to do that again😊😊
Fairydust, hope you're feeling ok today and resting and drinking plenty!
Hope everyone else has a good day and SEs are easing off.
So sorry yet pleased for your chemo delay, if Christmas will be better and you won't get any worse.
Hello everyone and esp good to hear from u Geordie and Rhona
Last T for me tomorrow too Rhona and I also start radiotherapy on 23rd Jan. CK did u get your last one today? And what is the Bell we are meant to ring? And should I take the champagne (small bottle) a friend gave me?
im just back from e day chemomoon in Cornwall. We had some sunshine and it was beautiful. Felt a lot of work for a short break - had to take our bedding for 5 of us and clean the house (it is a friend’s holiday house) but great to have a change of scenery. I hope I won’t always be this pathetic. Whilst there I went into a shop to try on a bobble hat, the shop assistant got a bit of a shock when she pulled off my existing hat to put the new one on!
Baldy McOnetit, I can so relate to your feelings about appearance. I have put 5kg (10% of my body weight ) from round 2 to round 6. I am bald with a few spiky sprouts, eyebrows very sparse , just a few eyelashes at bottom, and face is round and red. My eyes constantly stream so make up isn’t really possible . I definitely don’t feel glamorous Cathy, and can’t face the discomfort of a wig. Apparently I should feel well tho by June according to my oncologist! Hope I look a bit better before then! I wish I’d listened harder at LGFB course especially re the eyebrows.
Ali. Sorry to hear re delay but yes perhaps a good thing as you will have a lot better Christmas for it (perhaps not NY). I did debate asking for a delay but since it’s the last one I think I just want it over with.
Dog is on my my bed and I’m having a rest whilst boys are painting decorations, supervised by a kind friend. I have another evening out tonight- fondue with friends (as won’t be skiing for a long time I guess) , so I need to pace myself. My muscle pains have been pretty minimal with T (climbing stairs hurts my quads but that’s about it), but I’m pretty fatigued. Managed 5 miles of walking in total in Cornwall yesterday but done nothing today.
Good morning Shi!
Thanks so much! Carbs I can do! Starting with porridge for breakfast every day. Still have loads of anti constipation meds as well from FEC too, best get some Imodium in for the other issue.Hope it holds off for Christmas day at least. Water it is then too and loads of it.
Feeling good about T. I can do it!
Have an amazing day Shi.
Ahh thanks Geordie. Took a while for me to actually proper fall asleep last night with the steroids, but got some sleep in the end. Feel rested though! May I ask, were you prescribed any anti sickness meds on T. My oncologist hasn't, by mistake I'm told. But just checking if you needed them at all, or is it all about the painkillers rather than sickness!?
Hope you are doing well.
Hi Meesh! Hi all! Was just about to message when saw your message Meesh. Thank you!!
Yes, I remembered my steroids, my mum rang to remind me, my brother texted to remind me and my reminder in my phone went off to remind me! So don't worry about not reminding me, it is in hand but I really value your thinking of me!!
Yes, I got to chemo with my brother again and the nurse came out to the waiting area, and asked if I'd taken my steroids and when and how many and then said "well done , so pleased you remembered". I apologized again and she said "no bother, you're not the first but we just want you to have your treatments and get sorted", which was v nice.
In the end, all the nurse's knew about me and I told the story and they were all lovely. I brought in some Christmas tins of shortbread stars and shortbread Christmas trees in metal snowman and Santa tins, so colourful. And a Christmas card.
They put them in the Christmas cupboard I think, for all the nurses and reception staff to share with all their other patients gifts, so lovely!
Docetaxol went in well, New nurse of 3 weeks in put in my cannula first time under supervision, and was able to write it up in her "book of achievements "which was great for her and me as was painless! She was marvellous and took the time to talk to us and have a laugh as well as see to her other patients.
My consultant forgot to prescribe my ondenestron so will see or call my GP for a prescription tomorrow, but I now have 7 days of filgastrim this time as opposed to 5 which might help my neutrophils next time we hope!!
Left the hospital at about 4.30 after a 1pm arrival time and a hour in reception waiting area before chemo commenced, then about 30 minutes waiting for meds in pharmacy post chemo. Not too bad!
Feeling tired but good so far. Nurse said to expect flu like muscle pains to kick in soon and other symptoms might start including nail issues and brow and eyelash loss, but I say bring it . I know I can do it!! I did patiently nails before chemo this time in a dark red colour.
Have a lovely evening ladies! Thanks for all your support. Hope I can support you all too with my glittery Fairydust madness!
Fairydust, did you get your chemo today. I hope you remembered your appointment 😂Meant to message you yesterday to remind you about the steroids but I forgot 🙄
I've not disappeared off the planet, just found the weeks have ran away from me. I wanted to pop in and see how everyone is getting on.
I have had two Taxotere and two Herceptin since my last FEC. I think I might be an odd bod, or possibly just fortunate as the main symptoms I've had from Taxotere and possibly the Herceptin is tiredness and overeating on steroids.My hands have been a bit dry on the palms, some ridges on my nails, but no pain or discolouration. I have continued to have gel nails and just observed them at each colour change, but so far so good. I'm even getting a wee bit of fuzz growing on my head, possibly the FEC was harsher than Taxotere on hair.
My last chemo is on Wednesday and I can hardly believe I'm at the end. I hope chemo has been, if not as kind, then at least tolerable for all of you.
I've got my planning session for radiotherapy on 2nd January in Southampton and due to begin on 23rd January.
I'm now going to go and catch up on everything I've missed on this thread.
Love to all of you
Hi geordie, well done 👏🏻👏🏻👏🏻👏🏻👏🏻On last chemo, hoorah for you! 🎉🎊🎉🎊🎈🎈🎈it must feel so good to be done with chemo (well after all the SEs pass). Especially because it's all done before Xmas. I've got fec5 on 27 Dec In a weird way I look forward to each one because it means another one done but I also dread them even though I've been fairly lucky with SEs I keep thinking that may change with each next one. I hope rads goes ok for you, you'll have to let us all know how they go.
big hugs to you. Life certainly has changed for us all over the last 6 months. It is hard coming to terms with new appearance, new pressures to try and live a super healthy life, hormonal issues with treatment, it's an ongoing battle, isn't it!
You are doing so well adapting to your mastectomy. It is good that your partner is managing to talk to you now about his views, though it's not really what you wanted to hear. Give it more time before deciding on a recon. Wait until the treatment is done and you have the energy to consider it. At the moment we are tired and run down...I can't even face going to the dentist to have a filling replaced as it seems like too much! It will give your partner more time to get used to the mastectomy too, and he may even feel better about it as time goes on. It's very early days still.
i don't know how I am going to feel after surgery. I'm probably going to lose a third of my boob. I've never been super body confident so the post op appearance does worry me. I don't know if I will be wanting reconstruction work done - I hate the idea of more surgery and possible complications or prolonged recovery. One step at a time!
I am reassured that I'm not the only one with the nice plump chemo cheeks. I also have very sparse eyebrows and eyelashes. I think the "look good feel better" course was great for teaching me make up to cover the dark circles under my eyes, draw on new brows naturally, and great eyeliner helps too! I'm more glam than I used to be, especially when I wear my long blonde wig!
After all the treatment is done I am looking forward to getting fit again. I feel very weak and wobbly at the moment. We must be kind to ourselves and give ouselves time to heal. I wish I could abstain from alcohol happily from now on, but I am really looking forward to a couple of glasses of prosecco over the Christmas period now chemo has come to an end. I will have to make sure that I don't over do it! Christmas has always been a time of eating and drinking in excess in my family!
Well, another day of baths, sleeping, and tv for me today,
hoping my partner will cook for me as I feel totally uninspired about food and no drinks at all are appealing today - ugh, will have to force some fluids down.
Take care all,
Hi Geordie! Congratulations, you've done it!! So pleased for you, hope rads go well for you too!
What a great Christmas present a bath will be! Loads of bubbles if you can, and just wallow in scented joyfulness! I'm quite liking the sound of tatooed freckles for the rads. I meet my rads team on Tuesday which I thought was a bit early as I have 3 chemo cycles to go, but I think it's just to say hello and talk me through the process, no tattoos yet.
Again, it's really lovely to know you're ok, hope the chemo fog keeps lifting and you come to terms with your new you in every way.
Love to you.
Shi, I'm surprised the Bolton girl wasn't in the final I thought she was a dead cert for type final and thought the other finalist could've been any if the others.
Fairydust, Shi is right I probably am crackers enough but only since I've been on the 🚂 with Shi, her craziness is contagious I think 🤣😂🤣😂, ❤️ ❤️❤️❤️LLove you Shi 😘
I just enjoy and am in awe of the Strictly dances more than anything..So beautifully done and filmed. So no, doesn't matter a jot who wins..I appreciate the entertainment it's brought me each year..and sparkles and glitter and lights and joy!