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September 2017 Chemo Starters

chasanddave
Member

Re: September 2017 Chemo Starters

Thanks Rhona. should have bought the bucket after all! All ok though and going for an event free nights sleep! night to you x
Sue C
Community Champion

Re: September 2017 Chemo Starters

Thanks Nikki x

RhonaBoat
Member

Re: September 2017 Chemo Starters

Hi Nikki49

 

It was really encouraging to hear about your experiences, thank you. I will definitely take on board your tip about drinking enough water before and afterwards, something I'm not always very good at doing!

 

I'm not going to use the cold cap and have already got something for my head for when it gets colder at night.

 

Rhona xx

RhonaBoat
Member

Re: September 2017 Chemo Starters

Hi Jacqui

 

Good to hear you've got the first FEC done. I am also worried about piling on weight as I've managed to lose 16 pounds over the last few months. 

 

Hope you enjoy your time with Maria, that did make me laugh Smiley LOL

 

Hope you have a restful night's sleep.

 

Rhona xx

Nikki49
Member

Re: September 2017 Chemo Starters

Hi Sue, congratulations on the good mammo result.

 

My curls went after about a year/18 months

Strangely though there is a girl in my group who before treatment had hair so curly which she hated so much that she would have it chemically straightened, yet after chemo & to this day it is dead straight lol

Sue C
Community Champion

Re: September 2017 Chemo Starters

Thank you Nikki for popping in. Its so great to hear of positive stories from those who are a few years on. I had chemo just a year ago and have had my first clear mammogram. Can I ask.....when do the chemo curls go?! I used to have long straight hair and now its short and curly!

Sue xx

Sue C
Community Champion

Re: September 2017 Chemo Starters

Hi Tattyed

Welcome to the thread.

I had TC chemo, which seems to be quite unusual here. There's not many of us!

We must have a similar BC. Anyway, compared to FEC , I think there is less sickness, that's for sure. I only felt abit of nausea in the first couple of days and was never sick. I didn't get mouth ulcers or infections and had very little problems. But my biggest challenge was the fatigue. I don't know whether that was just me though. So I did find the first week I was unable to do much. I didn't feel ill , just quite happy sitting and watching tv!

Let me know how you get on and I can talk you through my experience as you go.

Sue xx

Sue C
Community Champion

Re: September 2017 Chemo Starters

Hi Jacqui

So pleased your first one went well. 

Take it easy for the next few days. You may find that once you stop taking the steroids, your energy levels drop. Keep taking the anti sickness tablets for a couple of days and hopefully you won't need the bucket!

Take care .

Sue xx

Nikki49
Member

Re: September 2017 Chemo Starters

Good afternoon everyone, so sorry that you find yourself here but you've deffo done the right thing by joining a monthly chemo thread, it was the best thing I did.  

 

I was exactly where you are now but in September 2013, being able to talk to others on the same treatment as me was a godsend, being able to come on here at 3am when the rest of the world is asleep to ask if anyone had experienced XYZ and to have someone say "yep that happened to me too" was so comforting.  We did migrate to a secret fb group and many of us are still in touch to this day.

 

I was 49 when diagnosed in July 2013, in the August I had a right side skin sparing mx with temporary implant, micro & macro mets were found in the sentinel node so a week later I went back under the knife for an axillary clearance 11 nodes were taken, thankfully all were clear, then 10th September I started 6 x FEC-T, no rads, reconstruction surgery 6 months later, then about 8 months after that I had the left side reduced to match.

 

I didn't cold cap, I wore a mixture of beanie hats and a wig, I bought scarves but chose not to wear them as I felt like a victim in them.  TIP get something to wear on your head in bed, come the winter my head was freezing in bed!

 

I have just had my 4th clear annual mammo since treatment ended, my hair has grown back & I have the boobs of a 20 yr old (every cloud and all that :-))

 

I will pop in from time to time & will try answer your queries.

 

my oncologist directed me to Macmillans website for information about the chemo drugs.  It has an A to Z of every chemo drug, if you go to their site put in their search bar 'Chemotherapy drugs and combination regimes' you can look up your regime to find out its side-effects and what I found very useful is it detailed when you're immune system is likely to be at its lowest.

 

the best advice I was given was to drink at least 2 litres of water the day before, the day of and the day after infusion.  I had FEC first which tends to make you feel nauseous a couple of hours later, take all the meds they give you, at the times they told you, DO NOT WAIT till you feel sick as by that time you've probably left it too late!

 

best of luck xx

Tattyed
Member

Re: September 2017 Chemo Starters

Ah Im so glad someone has heard the name tattyed before - it was the name me and my cusions used to call our auntie - she hated it lol.

 

I do believe that more people will post about negatives than the positives.  Good luck with your chemo too Jacqui - hope it all goes well  xx

chasanddave
Member

Re: September 2017 Chemo Starters

Oh my goodness Mrs Miaow - what a 'mare for you.

Sounds like quite a day.You must be really frustrated, to say the least. I'm sure there will be a wig for you that they will stretch to. How lomg will the decision be for you?

Jacqui

chasanddave
Member

Re: September 2017 Chemo Starters

Hi tattyed (I love that name - it's what my mum used to call my boys when they were toddlers!)

Hope it's all smooth for you. I've heard more positive than negative tales of chemo over the years so I'm erring on the positive side for my own sanity! Sorry I have no knowldge of your type. I'm sure someone on the other thread will have though.

Best of luck

Jacqui x

Tattyed
Member

Re: September 2017 Chemo Starters

Hi, Im due to start this month - 6 x TC.  My oncologist told me that if chemotherapy and side effects were on a scale of 1 to 10 my treatment would be 4 so very manageable - he made it sound like a walk in the park.  Came home and looked up TC and a lot of views and experiences seem to tell a different story!  I would be interested to hear if anyone else is having TC.

 

Great list by the way and good luck to everyone else starting this month.

 

xx

chasanddave
Member

Re: September 2017 Chemo Starters

Hello! First FEC down - small triumph! All good - fingers crossed that it stays like that!  Just ate some crumpets - terrified to stuff my face incase I'm sick. I do love my food so need to be careful cos I'm already overweight and the steroids may pile it on, so need some control!

 

I've ordered my wig - she's called Maria! Really looking forward to spending some time with her. My husband woudl have preferred a blonde Farrah Fawcett- Majors circa 1978 stylee....tough! I'm actually quite excited about getting my hair allcut off on Friday.

 

Ready to relax with a bin bag full of drugs! And a cup of tea. 

Onwards and upwards everybody. Hope you are all having a good day, whatever you're up to!

Love and hugs galore

Jacqui x

MrsMeow
Member

Re: September 2017 Chemo Starters

Hope you managed today ok I have been delayed a week as in my other post. Hoping all your prep has been spot on take care
RhonaBoat
Member

Re: September 2017 Chemo Starters

Thanks for the list ladies, hoping I don't need the bucket Smiley Happy

RhonaBoat
Member

Re: September 2017 Chemo Starters

Hi Daisy 

 

All the best for starting FEC this Friday and hope your preparations are going well. I start FEC next Wednesday. I knew straight away I wouldn't want the cold cap. Feel okay about losing my hair at the moment, but that could change of course xx

RhonaBoat
Member

Re: September 2017 Chemo Starters

Hi MrsMeow

 

Sounds like quite a day you had!

 

I also went for a wig fitting which went fine, I hope you manage to get your sorted. Sorry you are having to delay chemo for a week.

 

I went to the dentist yesterday, just needed a check up and clean and polish. Got a hug from my lovely dentist when I told him about my BC and treatment needed.xx

MrsMeow
Member

Re: September 2017 Chemo Starters

Hi Rhona thanks so much - after a change of plan am now starting next Wednesday too, good luck with the prep, hope you get lots of rest x
MrsMeow
Member

Re: September 2017 Chemo Starters

Good luck to those starting tomorrow - which no longer includes me!!

What a day! - went for a wig fitting and am too naturally curly to have anything on prescription - the specialist couldn't believe there was nothing to match without me paying and is actually challenging this by sending a picture of my own hair to the decision makers to get them to fund me a wig - but I came home with nothing or I would have done if my car hadn't broken down an hour from home then after waiting  90mins for breakdown got a phonecall saying my chemo needs to be delayed by a week to give my gum more chance to heal after the big tooth extraction last week. So bloods again on Monday and chemo starting Wednesday - which will give me a chance to get a new car battery! Hope everyone gets on ok x

Sue C
Community Champion

Re: September 2017 Chemo Starters

Hi Jacqui
I didn't cold cap as I'm not sure how successful it is. I hated losing my hair, but resigned myself to wearing scarves. I got used to it after a while and then my hair grew back quite quickly. I stopped wearing the scarves 4 months after chemo had finished. Now I'm managing short curly hair, whereas I had long straight hair! Xx
chasanddave
Member

Re: September 2017 Chemo Starters

Hi Sue - I briefly considered the cold cap - and then decided to embrace baldiness and scarf art! The thought of extra discomfort - and added time to the chemo session -  was more than enough to put me off!

Sue C
Community Champion

Re: September 2017 Chemo Starters

Oh and forgot to say, I didn't have the cold cap, but there are threads on the chemo section which deal specifically with this x

Sue C
Community Champion

Re: September 2017 Chemo Starters

Hi Ladies

Jacqui...I hope you won't need the bucket!!

Sweets/mints are quite good around end of first week, as you get this weird, furry mouth thing and you're taste buds go abit strange. I found it only lasted for a few days.

Daisy welcome. Hope we can support you here. 

The biggest thing they worry about when you're having chemo, is if you pick up an infection. So you have to keep an eye on your temperature. And if there is a problem, they have to act quickly. So if you're feeling unwell, they say its OK to take ibroprofen. However, paracetamol can bring down your temperature and mask any infection that you have. The nurses will go through this with you. 

Hope this helps

Sue xx

Daisy52
Member

Re: September 2017 Chemo Starters

Hi Sue

Thanks for starting this thread. I'm starting FEC this Friday. Feeling anxious and trying to get prepared over the next two days 😳 Out of interest, why ibuprofen and not paracetamol? Is anyone else going to try the cold cap? xx
chasanddave
Member

Re: September 2017 Chemo Starters

Great list! That kept me focused this afternoon Cath! I've added to that too: 

 

- antispetic wipes (my boys tend to pee around the loo but nevr quite get it in...)

- ruber gloves

- sucky/boiled sweets (?) not sure why...

- hair ties (am donating my hair to LIttle Princesses Charity on Friday, so need to plait it ready to send!)

 

...forgot the bucket...!

 

Good luck to Mrs Miaow tomorrow too! I'm in at 11.30 - what about you?

Jacqui

 

 

Sue C
Community Champion

Re: September 2017 Chemo Starters

Oooooo Cath, good list!

Can I add.....ibroprofen ( not paracetamol)

and tablets for diarrhea/constipation!!

Sue xx

Cathysid
Member

Re: September 2017 Chemo Starters

Hi,
I was meant to start chemo last week but now could be end of this week. Having tchp over 2 days so an august and September starter now!
I have tried to prepare. This is my list:
Wig and soft hats/scarves
Fragrance free organic shampoo/conditioner
Aveeno oatmeal skin moisturiser
Alcohol free mouth wash
Kids soft toothbrush
Reading books
Light healthy food in fridge
Kids school stuff at the ready!
Claritin - people say helps with bone aches from herceptin
Herbal teas and coconut water to keep hydrated
Buckets for sickness
Epsom salts for soakin in bath
Antiseptic hand wash...

cath x
RhonaBoat
Member

Re: September 2017 Chemo Starters

All the best for tomorrow Jacqui x

Sue C
Community Champion

Re: September 2017 Chemo Starters

Hi Jacqui

All I would say is, just be as organized as possible for the first week. Make sure you have any medication that you might need. Have you thought about childcare at all? You just might need some help to start with. I'm not saying that you will feel ill , its just fatigue can be challenging at times!

Xx

Sue C
Community Champion

Re: September 2017 Chemo Starters

Hi Jacqui

Welcome to the thread.

Good luck for tomorrow and let us know how you get on.

Sue xx

chasanddave
Member

Re: September 2017 Chemo Starters

Can I ask...Other than food in the fridge for my kids, any other advice on prep tips for chemo?? Thanks
chasanddave
Member

Re: September 2017 Chemo Starters

Hi all. grateful for the thread. I too start my FEC tomorrow so looking forward (?!) to sharing experiences with others in the same boat.
best of luck to you all!
Jacqui x
RhonaBoat
Member

Re: September 2017 Chemo Starters

Hi MrsMeow

 

Wishing you all the best for starting FEC tomorrow. I'm going to do all my preparation this week for starting next Wednesday.

 

Rhona x

Sue C
Community Champion

Re: September 2017 Chemo Starters

Hi MrsMeow (great name by the way!) and welcome.
Yes its a good idea to prepare, especially for the first week. Stock up the fridge, get the washing done, and get all the meds that you may need. Then you can sit back and relax and let others take care of you.
Best of luck for tomorrow.
Sue xx
MrsMeow
Member

Re: September 2017 Chemo Starters

Thank you for starting this thread - I start FEC tomorrow so I hopefully qualify for a Sep start group as the August ladies are already old hands at this! Going for a wig appointment today and getting a shopping list together prepping for chemo- is like preparing for armageddon! Good luck to all x
RhonaBoat
Member

Re: September 2017 Chemo Starters

Hi Sue

 

Thanks for your welcome Smiley Happy

 

I'm having FEC T followed by Herceptin and radiotherapy. I've had a quick look at the information I was given, but will no doubt go through it with a fine tooth comb as I like all the details. I am meeting my oncology nurse on Friday for bloods and to talk through everything xx

Sue C
Community Champion

Re: September 2017 Chemo Starters

Hi Rhona and welcome.
I'm sure there will be other ladies joining us soon, but in the mean time, let me know if you have any questions. I'll try to help as much as possible. Do you know what you're having?
Sue xx
RhonaBoat
Member

Re: September 2017 Chemo Starters

Hi Sue C

 

I was thinking there must be a September 2017 thread starting soon, so thanks for starting this thread. I start my chemo on 6th September, still can't believe I am talking about myself and chemo in the same sentence. I am sure your experiences will be very helpful. I will be glad to get started as the sooner it starts the sooner it will be over!

 

Rhona xx

Sue C
Community Champion

September 2017 Chemo Starters

Hi Ladies

 

Welcome to the forum.

 

This thread is for anyone starting chemo this month. Hopefully you can all help and support each other through it!

 

I will pop in from time to time and try and answer any questions you may have. I had chemo last year so sharing my experiences may also help.

 

Best wishes

Sue xx