Thanks MamaTony, for your very encouraging words.It is so good to know that your daughter's operation was a success. How wonderful! We were all in a bit of a state that evening, but our lovely daughter is so sensible and determined - she is doing lots of research on the operation (with lots of warnings from me about internet scare stories!) and we have had a number of very calm and interesting chats. My husband compared it a bit to when I first got the news about the BC - the initial shock is overwheming, but after some sleep and more info, it is something we can deal with as a family, one day at a time.
Thanks to everyone else as well of course for your very kind words. They really help!
Sounds like we're all more or less getting through this week in a reasonable state. I'm still stuck with this awful taste - I'm SO fed up with it - but am hoping that it will clear by Christmas. I really don't want my Christmas lunch tasting of metal!Hot flushes are also a nuisance, totally! And I've got a grand total of 5 eye lashes left - why?
We're celebrating Christmas Eve with my parents (my dad is Danish, so Continental style) and then we're off to my in-laws on Christmas Day (great driving, absolutely no traffic ). No wifi and pretty lousy data connection in their house, so the kids might actually have to pick up a book or doing something other than fiddle with their phones!
Big hugs to everyone
Hi all! Haven’t posted for awhile but just wanted to share TODAY IS MY LAST CHEMO!!!
I didn’t think this day would come! This site has been such a comfort thank you 😊.
For anyone that doesn’t know i had lumpectomy and 3 nodes removed, IDC, HER2+ (lovely injections to look forward to). Love to you all & keep strong 💪🏿 💕xx
Hi all, I haven't posted on here very much at all since beginning chemo in September but have been reading all of your brave and supportive messages to each other. There is so much courage amongst you all and you have helped me enormously, so thank you 😊 I had my last Docetaxol yesterday (reduced to 80% and with some fab painkillers!!) Onwards and upwards to radiotherapy and 10 years of Tamoxifen now!! Well done all, you're almost there and you have 'totally got this' wishing you all a very happy and peaceful Christmas and a brighter 2019 xxx
Hello Gaby & Pulapula,
I’m sure everyone has got sidetracked with SE’s & getting ready for Christmas. Like you Gaby, i’ve been so tired & out of breath this last 2 weeks. Doing simple things is taking up so much energy. I went food shopping this morning after having bloods taken & thought I was going to pass out. As for that awful taste, I will be so happy to get rid of that. I think we should just hide those scales until well into Jan 🤪
Gaby that’s terrible to hear about your daughter - as if you didn’t already have enough to deal with. Sending big hugs & positive thoughts ❤️
Pulapula - good luck for Friday. Will be thinking of you. It is such a nuisance having to wear hats etc. I’ve taken to wearing a pink beanie that my sister bought for me. One minute I’m freezing, the next I have major hot flushes so it gets ripped off !
Hope everyone one else is doing ok xxx
I really hope everyone goes well for you on Friday. I'll be thinking of you. I've got surgery in late March, I think, so a bit of time to go still...
I'm fed up with hats etc as well, especially as nothing really seems to keep my head all that warm.
Had a bit of a mixed day today. I'm feeling better but our daughter was diagnosed with scoliosis at Guy's this morning and will probably have to have an operation to correct the curve in her spine at some point next summer. We seem to have gone from a family with very few health problems to having to deal with really rather major issues. I'm sure she will be ok in the end, but it's not easy for a teenager, who is about to embark on university etc. I just can't wait to see the back of all these doctors and hospitals!
Hi all, it's been a bit quiet on here lately - hope it just means you're busy getting ready for christmas, and are coping OK with your side effects.
I finally decided today what surgery I am going to have on Friday - WLE with reconstruction. I'll find out the pathology results on 7 January and really hope I don't need to have more chemo...It's been nearly 4 weeks since my last cycle and I don't miss it one bit! I've still got my PICC line in, just incase...Just wish my hair would start to grow back as I didn't get a wig and I'm getting fed up of wearing hats and scarves.
Hope you’re all having a good weekend, despite this cold weather. Today’s going to be a day tucked up at home for me maybe wrapping some more Xmas presents 🎁.
My stepdaughter is back from uni for the holidays so it’ll be a nice Sunday lunch then curl up on the sofa & watch Christmas films.
Thursday was my penultimate Carboplatin / Paclitaxel sesssion - it nearly didn’t go ahead cause my platelets & neutrophils we’re low, but they repeated the blood tests early on Thursday am & they’d risen just enough. Today was my last day of taking steroids - yeahhh 😁.
I’m fighting a cold & sore throat at the moment but praying I can stave it off till I get my last session out of the way next week.
Gutted that the nail on my right big toe is turning black - 1 week from the end. Isn’t that Sod’s law. Finger nails haven’t got any worse. The oncologist nurse said that I may get another horizontal band on each nail with this last cycle ( called Mees lines ) but the cuticles still look intact so she said I should avoid losing fingernails if I keep moisturising them & just let the bands grow out.
Wishing you all a good week. With each step closer to Christmas, we’re all getting closer to this nightmare ending. Take care all ❤️😘
Had my first EC session today and am feeling ok. I was half expecting to be throwing up by now, as I spoke to a couple of lovely ladies on the ward last week, who were feeling dreadful after their first EC. I had a barrage of anti-nausea drugs this morning and have been given a large bag with more goddies for taking at home - so far they seem to be doing the trick, fingers crossed! I am feeling a bit more dopey than usual, but my kids would probably say that they can't notice any difference
It's my husband's birthday today, so will bake him a cake in a moment. Wasn't sure I'd be up to it, but am very relieved that I can go ahead. He was a little low last night - combination of getting older and the ongoing worry of my treatment. He is not one for letting on much if he's stressed or sad, tends to bottle things up a bit, and the last few months have of course not been easy. Hopefully a bit of yummy cake and presents will cheer him up.
Hope everyone is having a reasonable week.
Gaviscon is a complete waste of time. The only thing i’ve ever found to work on severe indigestion / acid reflux is Lanzaprozole. Maybe try your own GP & see if you can get them to prescribe something stronger like Lanzaprozol. It’s usually 1 tablet a day in morning & it works pretty quickly. Xx
Gaby it’s great to hear your genetic test was clear. Such a huge relief for your famiy ❤️
Lisa I was offered genetic testing as i’m Also TN & have strong family history of BC. My results not due till Christmas time. Re nails, have gone for nice Christmassy red varnish & just going to keep fingers crossed.
Treemad - have you tried ringing the chemo helpline. They are really good if you just want advice & you can chat through what SE’s your having. I’ve had quite lot indigestion - I think due to steroids but i’m On completely different chemo drugs to you so it’s hard to compare. I take Lanzaprosol on prescription which helps, but they say that if any 1 symptom is really bad, it’s best to get it checked out. Please don’t suffer in silence - it’s all hard enough as is. I rand 24 hr chemo helpline early hours one morning & the nurse was so lovely - she let me run through every single SE & then gave advice on how to deal with each one. Hope you get it sorted soon
Think i’m set for a late night all thanks to those pesky steroids this morning. Wide awake 😬😬😬
So relieved to hear your news Pulapula 🤗❤️
Just ticked another Session off the list. Now 2 is the magic number. I’ll be joining you Mama Tony & Lisa in finishing by end Dec.
I took my nail polish off last night & this is how my nails look. They’ve got horizontal stripes & tips are looking very brown. They’re still intact & not lifting so i’m hoping they survive another 2 sessions - Anyone else experienced this ? Xx
What a reilef this must be for you - brilliant news! Will you need to have any treatment for the cysts?
I was very interested in you comments about your tumour. I suspect that I will be in a similar position, as I am tripe negative and the tumour can no longer be felt. You don't seem to have been given a lot of time to make these major decitions, but I hope that you can get lots of support in this process from your oncologist and BCN. Do you have a Macmillian or Maggies Centre you could approach as well? They probably wouldn't give you specific advice, but perhaps they have someone who can talk the options through with you?
Enjoy your Xmas shopping!
So happy to hear your positive news Gaby
Pulapula - sending you lots of positive vibes for a good result from your mri tomorrow.
Kath - so sorry to hear about your tooth. Were they able to do any dental work. How are you coping with it? I can’t quite imagine how you deal with dental pain on top of all the other sh*t.
A Little Pixie - hope you enjoyed the time with your mum & sister. I’ve got my family visiting on Sunday for a pre- Xmas get together.
We saw the Fantastical Beasts film yesterday - very good. Setting the scene for a few more films to come I think, although I did doze off at beginning. Oops 😴😴😴
Its awful not being able to sleep. Friday night I was awake will 3.30am, then Saturday spent most of the day snoozing. It’s so hard to break that cycle especially when you just feel yuk.
Hope you managed some sleep eventually Gaby.
Aley I hope you had a better weekend and that your SE’s have now calmed down.
Its pouring down here, so we’ve decided on an afternoon at the cinema. Always feels like such a treat.
have a good day all xx