Thank you for that post it really helped. I’m day 3 into my 1st treatment and I think I just let things get on top of me today. I then panicked thinking my partner would walk away from me if this was too much. We haven’t even been together 2 years and even though she reassures me she will never leave I just feel she is distancing herself and when we talk on the phone she says telephone conversations are difficult because I don’t do anything and I really wanted to shout at her well what do you expect me to do every day but I didn’t shout and just cried but denied crying. I feel so afraid and I don’t know what to do
I am day 15 post round 1. Please feel encouraged those that have just had a treatment that the horrible early days of the cycle have thankfully turned into feeling better days, and I have been out and about eating tea and cake with friends at every opportunity. Its these good moments and days that will see us through the dark ones and the days we will each of us want to write off.
My day started today with tears in the shower as handfuls of hair went down the plughole. Even though I knew this was coming, it's still bl00dy horrible and a cruel side effect. Decided to take control and my husband very gently clipped it all off this afternoon. My scalp feels less 'pulled' now for doing this too and I haven't got loads of hair all over me. Pretty scarves will be my new look.
Chemo 2 is next week. Hope everyone has a better weekend and big hugs to all.
Hi Mermaid. Sorry to hear that you are not feeling so good after your first fec-t treatment. I had mine on Tuesday and felt that I needed to use the just Incase anti sickness medication that they gave me a few times and that helped. I found a plain biscuit and slow sips of lemonade helped me. And I started to feel better this morning apart from the dreadful constipation so I’m off out to get some senna. It will get better but if your sickness doesn’t ease give them a call and see if there’s something else they might be able to give you. Take it easy and I hope you start to feel less sick soon. Sending hugs 🤗
Hi everyone. I started my first treatment of FEC-T yesterday. Treatment and cold cap went well, but started feeling nauseous on return home and proceeded to be poorly through the night both ends!. Currently laid up on bed like a sloth and wondering if you lovely ladies have any tips/tricks for me. Am drinking water but cant get over the sea sticky feeling at present . Much love to you all xxx
Hi everyone, hope everyone is doing as well as they can.
For me I’m on day 2 of my steroid medication and I’m glad it’s the last day until my next treatment.
Besides the headache and joint pain I feel irritable and snappy and after hearing a neighbor outside constantly coughing for a good 20 minutes I was so tempted to take a bottle of water out there because it was irritating the hell out of me. I feel so irritable and I feel I’m going to be alienating my family and my partner at this rate if I keep feeling snappy. Has anyone else been dealing with feeling irritable and how do you manage.
And on the other hand I just cry at the drop of a hat for no reason at all
Just seen your post. So sorry to hear you've been rough. Sending you a big hug my chemo twin, and hope you start to feel better really soon. Ps you did make me smile with the thrush tale! X
Yorkshire defector sorry to hear you are having casa nhs stint, same happened to me after 1st chemo, days 7-14 are nadir days if on 21 day cycle. Well done keeping vigilant ❤️ Hope you are home soon ❤️ Hope the boyfriend takes care of cats for you 😘 now if you’ve still got your own room get some music on phone and have a little dance round room or walk round room just a little one otherwise it’s easy to go from bed to chair and back again, if you’ve got your own bathroom in the room too it’ll feel like an adventure too, keep 😁 and if you need to go 🤪🤪do it on here 👍💕💕✨✨Shi xx
After having fec chemotherapy yesterday I noticed the occasional tingling feeling in my head, forehead, ears and the side of my face and the top of my neck . Has anyone noticed this feeling and does it last for long. Should I be worried?
For me, I’d rather have an injection than swallow a tablet but I’ve never needed to do it myself.
It honestly wasn’t as bad or as difficult as I imagined. I’d read on another thread about pinching and then injecting the ‘pinch’ - I barely felt it. I won’t pretend I liked it or that I won’t be happy to finish them for this cycle but I managed it and I’m sure you will too. Xx
I've been having these over the past days and decided must be brave and do one myself, not overly fond of needles per se never mind DIY injections.
Rest assured it did not hurt at all, it was the least painful prick I've ever had! and was vvv easy to do so have faith..
Am feeling fine after a particularly cr4ppy Monday (which followed a good weekend).
Managed to drag my carcass out of bed at 3 on Monday, mainly as the cats were starting to nibble on my legs. Temperature was 38.1 by 5,in A&E shortly after and writing from hospital. Worth noting that felt better having got up and though a bit 'pooey' certainly wouldn't have classed myself as ill.
Anyway turns out white blood count way too low, inflammatory markers v high so am in protective isolation...the novelty of hospital wore off very quickly..
Anyway my point is if I hadn't have been diligent taking temperature regularly I may be in a worse condition as didn't really have any of the side effects that would lead you to take your temperature so beware.
Hopefully will be able to leave Alcatraz soon and see what my boyfriend calls 'giving the house a quick tidy' gulp.
Pink flamingo hope you are feeling okay.
I start my injections tonight for 10 days and all I can think is how on earth do I do this I’m not exactly keen on needles and I feel like I’m on an emotional rollercoaster after just starting fec chemotherapy yesterday
Not feeling as cheery as the exclamation mark suggests 🤣 Started FEC on Friday and Sat, Sun and Monday felt mildly fluey - not great but certainly not as bad as others. Yesterday, actually not too bad and even ventured in to work in the afternoon having done emails in the morning. Have to say that very little effort left me feeling pretty wiped out.
Last night was the first of the injections for me - we all seem to be on very different regimes regarding those - laughed (hysterically) at the bit in the leaflet where it said I only be doing this having been given some training!! Either way, I managed it. Was told to take mine before bed so that I was resting whilst my body was working hardest. Woke at 4 am feeling nauseous and generally the grottiest I’ve felt so far. Hasn’t improved yet so currently harnessing my inner sloth and doing very little- looking forward to pinching, stabbing and plunging tonight- oh, the joys!!
Just popping in from the July Chemo starters, I've had my 3 EC's and start my T's today (feeling a bit nervous)
I have had to do the tummy injections for 7 days post each EC, they stimulate the bone marrow to produce white bloods cells which help to boost your immune system, I found the first 7 really challenging to do as I hate needles, but I can do them no problem now, never thought that would happen.
I have tolerated EC well, only vomiting once after EC 1 and EC 2, no sickness after the 3rd one even tho the post chemo drugs were not changed but have not had nausea at all. Main sides effects from EC for me have been:
I have not had any mouth problems at all, changed toothpaste to Corsodyl and the bleeding gums I had before any of this have cleared up so despite the yukky taste I will carry this on.
This side effects, for a short period of time are tolerable as long as you are kind to yourself, I have found that at the beginning of treatment I was fine but as time goes by I feel more angry and upset about having to go through this and put this pressure on my family and friends, felt more anxious and stressed, not depressed, and sometimes have fear that even after all treatment it might come back, but it is still worth it and I would chose this treatment option again if I had/have to. And I think this is just part of the effects of the cancer, the drugs, the change in routine and coming to terms with the whole package but hoping things will settle down.
Good luck ladies - you all have the strength to get through - keep supporting each other
Love to you all
Quick post before i'm off to bed.
i walked my dog all the way through my weekly Paclitaxel for 12 weeks so dont know why you were told not too.
my chemo nurses said it was good exercise and was good for me being out in the fresh air.
grab that lead if ur upto it and walk ur dogs.... good luck...mini mad xx 💖💖
Today I had my first fec chemotherapy treatment. So glad the anti sickness medication worked, I have also been prescribed 3 other anti sickness medications as well as mouth wash and 10 days worth of injections. At this precise moment besides a headache and the odd ache I’m not feeling too bad. I’m just going with the flow of what each day brings
me too re Amazon basket! 😂 I’m awaiting my chemo start date having just had first oncology appointment. Wishing you lots of luck and hugs
Wishing you loads of luck for the start of treatment! I’ve just had my first oncology appointment and am awaiting a start date for weekly chemo. I’m undecided about the cold cap - part of me thinks it might be better just to resign myself to the hair loss - it’s s temporary thing after all. If you go for it, please share how you get on
It sounds as if we are in very similar situations - today being the 10th I’ve just had my oncology appointment, and am now waiting on a start date - could be up to three weeks apparently! I think the waiting is probably the worst bit! Be great to stay in touch and hear how you get on.
Good to hear your feeling ok apart from thrush and cramps. Hope they clear ASAP.
I had my first EC yesterday. Feeling ok so far and was just sent home with Dexamethasone and metaclopromide. No injections yet, thankfully.
Hi, I’m 7 days after first round of FEC, feeling ok, have got thrush in my mouth, been given something by the GP, which I think has given me a nasty taste in my mouth as it was fine before. My last tummy injection tonight which my husband or son have been doing as I can’t face doing it to myself, they’re both pro’s now 😊
All my hair is still here which is a bonus, my main problem is boredom, can’t take my dogs out as I was advised that picking up dog 💩 wasn’t a good idea.
I’ve had a few stomach cramps but spoke to the chemo nurse about this and I told her I was taking an anti sickness pill after my tummy injection as I felt sick the morning after my first one, she told me the anti sickness pills can give you stomach cramps and diahorrea, so have stopped taking those.
Other than that felt generally crap for a few days but I think I’m coming out of it now and hopefully will be ok for the next couple of weeks before it all starts again 🙁
I'm from the March19 group, and wanted to put in a few tips from my experience because I was one of the unlucky ones who had an awful time through chemo. (Most of the rest of my group didn't, so please don't let this scare you.)
I was originally due to have 3 FEC and 3 Docetaxol, it ended up being 2 FEC and 3 Abraxane, which is a different type of taxol.
1. Especially on FEC, clean your teeth after eating anything at all, with a very soft toothbrush. Even if your mouth is feeling sore and awful, this will help.
2. If you find yourself feeling extremely and severely down the day after your steroids finish, talk to your chemo team or your oncologist. If you are sitting there debating if you should ring them or not, you should.
3. Steroids can reduce your impulse control - consider cutting off your access to easy online shopping for a while unless you are rich enough to not care!
4. Bone pain from the taxol - mine was severe and after a couple of days I was prescribed a week's worth of slow release Tramadol, which helped immensely. Although it's an opioid it is a synthetic one and gives you far less constipation than the others.
One other tip - through chemo, do not try to eat your favourite meal, whatever it may be. Having it associated with how you feel through chemo can put you off it for life. Also whatever you can eat during FEC will likely be completely different during the T phase. During FEC all I could eat was mashed potato, baked beans and veg soup with cheese. During T I couldn't eat any of that and couldn't cope with dairy at all, not even milk in my tea.I lived on marmite toast for 9 weeks!
Sorry to hear of your back pain and the fact that I can't suggest anything that would help. Hope this doesn't exacerbate but thought this might at least amuse.
In addition to the existing fungal infection I now also have a lovely dose of thrush, far better however than the genital herpes (and subsequent frog marching to the nearest STI clinic) that the "operatives" on NHS 111 were suggesting pre doc appointment yesterday! Quite a journey but not as exciting as would have been to explain to the boyfriend that particular bombshell.
Thank you pink flamingo I hope all went well. I sometimes have to occasionally take pain relief for migraines. Is there any painkillers I can’t take whilst having chemotherapy.
I had my first cycle of FEC yesterday. I was pleased to have taken some socks with me as my feet got quite cold - not sure if as a result of the treatment or just chilly!! Also some sweets especially for the C part which can give you a funny taste in the mouth.
After 24 hours, I’m feeling a bit thick-headed and my OH says ‘a bit vague but very deliberate when you try to do something’ !! Nothing new there then - lol!!
good luck with yours xx
I have my 1st fec chemotherapy on Tuesday. I think I’m prepared for it. Is there anything in particular I should take with me on that day?
just catching up on how everyone is doing. I didn’t get much further than introducing myself a few weeks ago and many of you have started your treatments. So good to hear you’re all doing ok so far and managing your side effects.
I start EC on Monday so I’m spending today bloody cleaning!!! Although I have been to park run with my son this morning, I’m hoping to keep these up if and when I can.
kind of feeling prepared... well I’ve bought a wig and thermometer. Not going with the cold cap as my hair is fairly fine so I thought I’d give it a miss to stop me stressing about saving my hair. Wig shopping was a rather fun day, I went with a friend and we had fits of giggles throughout. 🤣😂 I definitely don’t suit being a blonde or having waist length hair. Although I think my husband would’ve liked me in that wig 😉
Enjoy your weekend ladies 😘
Hello all, I hope everyone is ok!!!
Had carboplatin yesterday morning. PICC line fitted at 9.30am, was interesting seeing it fitted on the big screen and was painless, it made treatment so much easier this time.
I slept around 5 hours - I think its the steroids but feel reasonably chipper this morning just a bit tired.
My thoughts are with all of you going through treatment, keep taking the tablets !!
Pink flamingo, I too had the same sort of feelings pre first chemo, I.e feeling well and that it being difficult to reconcile that treatment was going to make me sick.
Struggling tonight with low back pain. No change of position seems to relieve, it has taken me a while to work out that this is likely the famous bone pain that has been mentioned. I had my 5th injection tonight. Tomorrow I am going out to get some Epsom salts as recommended by Shi.
If there are any other good hacks for managing this discomfort please share.
Thinking of you today...hope all goes well.
Start cycle one tomorrow 😱 Finding it all so difficult to reconcile what I am about to do to myself with the way I feel ie actually very well. Leaving work tonight was tricky- my colleagues are all so lovely - showered with wonderful thoughtful gifts.
Reflexology tonight though so hoping to feel a bit more chilled and less anxious xx
Thank you for your encouraging words..
First paclitaxel done yesterday and I feel.ok just tired and achy..
I persisted with the cold cap and it was not as bad as I thought it would be. Took lots of layers and a blanket..
It was a long day as I also wa given herceptin and perjeta so was glad to be home last night for a rest.
Hope you are getting on ok
Thrush infection alert- any thrush infection will need proper meds from your units not a treat it yourself solution like you usually do. If oral thrush you usually get fluconzole tablets. Please keep safe and phone your units ❤️💕💕✨✨Shi xx
Reflexology tonight though so hoping to feel a bit more chilled and less anxious xx
Interesting re thrush, I also have a fungal infection..come on antibodies! Got a cream so we're OK.
What I have found day 6 post chemo is that I've been turned into a teenager - sleeping till midday, picky with food and most lovely a huge outbreak of quality zits!
Think they'll be asking for my ID when next tripping the light fantastic....
Felt a zapped of energy and low in the last few days but feel like my mojo is making a welcome return.
Have had thrush infection which has not helped, seen the team and now have treatment.
No hair loss yet, but my scalp feels sensitive....
On day 3 of tummy injections and no effects so far.
I am going to do the school run tomorrow and hoping to go back to work next week. Bring on normality!
Have a good few days folks.
Murphsmum hope you’ve got on ok with jab, grab skin, stick in, plunge down, done 👏👏 if any of you get bone pain with jabs, Epsom salt baths are a winner and tip that’s been passed down through the threads 😘💕💕✨✨Shi xx
Sam you shine with head held high tomorrow on your trip into town 👍👍you are amazing, we all are amazing, you all tell yourself that ever time you look in the mirror 👍👍have you all got your look good feel better sessions booked with your Macmillan’s 👍👍 💕💕✨✨Shi xx
hope you got on OK today.
Yep, your thoughts are pretty much my conclusion.
Am looking forward to my first hair wash post chemo Friday morning ( I have them all scheduled in my dairy...soooo sad). I am however imagining the water looking like something out of drain with all the cr4p I feel is in my hair complete with cat hair, bird nest, leaves and perhaps some medieval coin hoard.
I shall be having a special trip into town to show my lovely, clean and semi styled hair!
Sent from my iPad
Best of wishes for you first chemo tomorrow. I'm on the EC, I take what you'll have tomorrow after my 4 x EC.
I'm not feeling too bad following my 1st lot, constipation is the worst thing so in the scheme of things could be worse! All the anti sickness & steroid pills did the trick.
I do hope that its like this every time as do appreciate how lucky have been.
Not sure if you're cold capping but that wasn't half as bad as some have and will be (assuming I still have follicles worth protecting) doing again in 2 weeks time.
I do hope the people and staff on your chemo ward are as lovely as mine were as they did make it an enjoyable experience, full of laughter.
Anna gabanna 👏👏👏that’s amazing you’ve raised some money too as well as sending hair to little princes trust 💪💪💪your Macmillan centre should be able to support and help your 13 year old, try and get and have a chat with them on your own, also the ask the nurse facility on here, there are support networks ❤️❤️Copenhagen lovely 👍did you get to tivoli? Copenhagen is just fantastic, you should plan a holiday for after and don’t forget your thread meet up 👍we had weekend in London. It gave us something to look forward to ( just remember to do over pm’s) as threads are open to whole world, so keep safe 💕💕✨✨Shi xx
I start tomorrow and am also giving the cold cap a try, and I also wondered what is the point if I can't mess with it. Well I have kind of come to the conclusion that when it's all done, at least I hopefully will have some to play with and not be starting from scratch. But hey, I might change my mind at some point! I've had my hair cut short yesterday in preparation. I think I will just wear stuff on my head to cover up when Im having a bad hair day.
I'm kind of thinking that every now and then I will be able to do something with it if I do go out somewhere nice.
Much love Emma xxx
Sorry it’s been a while🤗 Anyway, I have a pre-assessment at the chemotherapy ward on the 17th followed by my first chemo on the 18th (not doing well with acronyms atm😂) I had a very eventful last 2 weeks went to the GP as per advise by my breast cancer care nurse as I was very anxious and unable to sleep so managed to get prescription, friends that haven’t seen for ages have been over, spent loads of time with wee family even had a cheeky weekend away at Copenhagen (never had I imagine or I would pay for a KFC chicken burger for £6.50 on its own😱) And also I had 9 inches off my hair which I will be posting to the little princess trust❤️❤️❤️❤️. I shared it on Facebook and attached breast cancer as charity of choice and raised £125 😊 I haven’t indicated the big C but people were happy to help. I’m 💩n a brick with chemo. Also yesterday, two weeks post telling our 13 year old about my diagnosis he broke down into tears asking if I will be bald and what other side effects will I endure 😢 As far as how I felt this was the hardest seen as my boy has always been happy and chilled out. I managed to quickly arrange a meeting with his school this morning and the headmaster was very supportive. So at least they’ll keep a look out for him. My son did say that he doesn’t want counselling at the mo and they said they will respect that. They even mentioned that if I am on chemo there are few clubs that he can join till my husband gets home just in case I am feeling under the weather. This is the first year that he’lol be on his own as our eldest will be going to uni xx Thanks for reading xx
I’ve been given metoclopramide hydrochloride tablets to take but I can’t remember when the nurse said to start taking them and I can’t get through to the ward to ask, I’m assuming I should start today?
Beryl peril, have a look at luvyababes wigs if you’ve a shop near you, they do an amazing range of non dress up wigs now and a £14.99 one from there turned out to be better than the very expensive real hair one oh bought me also your Macmillan usually has good range of preloved wigs too. 😘😘 there are also turban type hat things too that look amazing and a lady who had chemo same time as me couple of years ago had these great little hats with beautiful sequins on, think she got of Amazon, they were beautiful ❤️❤️💕💕✨✨Shi xx
👏👏murphsmum 😘now keep that fluid flowing and rest up 💪💪Yorkshire defector most of us went grade 2 sinead nothing compares to you look, made it lot less 😫when it went to Chucky egg head 😜sending everyone ❤️❤️❤️💕💕✨✨Shi xx
Heartened to hear that someone else is also suffering with constipation (sorry, that makes me unkind), but it's just the knowing you are in it with others!! I too am hoping 'the earth will move' for me tonight!
I also had my hair cut short from my normal mid length bob. I now have a sort of messy style which I am finding is incredibly easy to manage and have had lots of compliments, even about looking younger !!
My scalp is a tad tingly, I wash my hair every day so I think it's not going to be too long before the dreaded fall out. I am completely dreading it. I bought a wig, but just came home and cried as it looks so not me, I have had hair taken out of it, but it is still too bouffant, there is a risk I will look like an ancient Boris Johnson (i am 7 years younger than Boris) in my attempts to style it! Working on techniques with scarves and thinking this maybe the route for me.
I did my first of five tummy injections to push my bone marrow tonight. The information in the box, like the chemo drugs makes for bleak reading on the small print. But I said to myself others before have done this and I have to trust in the team.
Big hugs, on we go...
Hi, just home from my first chemo (FEC), went ok, feel alright at the moment, only needed 1 sherbet lemon! Nearly passed out when they tried to put the cannula in, so probably feel a bit crappy from that. A different nurse came and put it in first time and hardly felt it 😊.
Was expecting to feel a lot worse tbh, that might come eventually, took a bag full of stuff and didn’t use any of it, apart from the sherbet lemon! Came back with more than I went with though, steroids, anti sickness and injections to be put in my stomach and a ‘Tropic’ goody bag 😊
Good luck to those starting later this month 👍
Feeling ok after my 1st EC chemo, day 4!
Constipation main problem, prune juice, plenty of bran & senacott yet to kick in as one would hope but fingers crossed for some movement later.
Now finished my stash of ant-sickness & steroids so hopefully sleep will return to normal.
Caught in a bit of a dilemma re hair, had it cut short but am needing to mess around with it to make it look presentable (and don't want to do this as it will encourage loss!) not washed yet but feeling I may as well shave it off if I can't make it look OK without potentially damaging delicate follicles (that may or may not have been saved by cold capping) - what's the point of having my hair at this stage?? Suggestions welcome as am sitting on (a messy haired fence) for now...
Hopeing to do some work from home this week.
Good luck to all.
Hi sugar puff ❤️Please mention to you team before starting chemo you’ve felt a bit queezy this week, they will assess you are safe to proceed with chemo 👍it’s better to have a delay and get through safely ❤️If you are chopping off a reasonable amount of hair, please consider little princes trust wigs for kids, it’ll help make wig for a child 👍quite a few people have done this 👍👍 you’ll find plenty of 🤣😂🤣😂🤣and grace goes out the window when the steroids give you botty block and you all share pile relief stories 😲 bit of Madonna’s into the groove on chemo jukebox for you 💃🏻💃🏻🕺🕺💃🏻💃🏻Keep 😁😁keep 💪💪💪keep safe 😘😘💕💕✨✨Shi xx