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September 2019 Chemo Starters

222 REPLIES 222
Member

Re: September 2019 Chemo Starters

Hang in there Naomi40 xx thinking of you and remembering how terrified i was.

it wasnt Anywhere near as bad as i imagined it would be..   good luck..x

Member

Re: September 2019 Chemo Starters

Hi mini mad 

 

I have to wait another 45 minutes before they do my picc line which unfortunately isn’t helping my anxiety at the moment 

Member

Re: September 2019 Chemo Starters

Hey Naomi40,

 

i had no trouble at all with my picc line, just had it flushed through once a week n 

the dressing changed before my treatment.  No pain just the odd twingle for few days after but nothing really since it was put in.

maybe ur back home by now.. let me know how you get/got on.

mini mad xx 💖💖

 

Member

Re: September 2019 Chemo Starters

Hi mini mad 

 

Thank you for replying. I’m so scared about tomorrow and I’m trying not to think about it but I just feel so nervous. 
Have you had any problems with your picc line and how long have you had yours for. 

Member

Re: September 2019 Chemo Starters

Hi Naomi40,

 

i had a PICC line when i started my chemo,  veins are rubbish on my hands.

never regretted it,  took about 35 mins to put in.   Used for chemo,  bloods n any meds, no pain from cannula's.....

you can buy PICC line covers which look good and when you shower you need to keep the picc dry....good old cling film.... 

good luck for tomorrow n try not to worry about it,  Let me know how it goes.

mini mad xx 💖💖

Member

Re: September 2019 Chemo Starters

Hello from a very sunny Leeds ☀️☀️☀️

Glad to hear you are through the worst this cycle Sam. Bike ride sounds awesome, I love a bit of mud and manure is good for roses? Surely it’s good for us too 😉.

I’m just going through the mill😩 and feeling 😖😴🤧😕.  Just had to do an emergency dash to the loo in Sainsbury’s.... thank the lord there was no queue 😳💩

The kids are just not getting it ( they are only 10) however I think they are definitely of an age were empathy should have kicked in. Well, I think it might have after my explosion on Saturday! They were being little s*!**s and I lost the plot, with my husband too. Expletives galore 😬🤬!

 

I have given no apologies for my outburst and nor do I intend too. 
It’s also my big fat 50 on Saturday ☹️. I’m not really bothered about being 50 I’m more bothered that all my plans have now changed. Weekend to Bruges cancelled, marathon I was doing with friends in Spain cancelled . 
I haven’t wanted any fuss but different groups of friends are arranging meet ups for lunches, afternoon tea, theatre visit so it’s not all doom and gloom. 

I think if anything, this **bleep**ty cancer has highlighted how things at home aren’t that rosy 😔.

sorry for the self indulgent post . 
On a  positive note I got a critical illness payout which I didn’t even think I was entitled too! 

kate xx😘

 

Member

Re: September 2019 Chemo Starters

Hi everyone.

 

Due for picc line insertion tomorrow and feeling slightly apprehensive. Does anyone have a picc line and are there any do’s or don’t s with one.

 

 

Member

Re: September 2019 Chemo Starters

Hi All
Sorry there appears to have been some downs on here but am back fighting fit to provide the ups - the rough week in last post was thankfully just temporary and was in lovely Northumberland last week with an extremely muddy bike ride yesterday (think I consumed quite a lot of not only mud but also horse s$%t too - am sure that will help my treatment plan).

Am all done with the naughty drain cleaner, EC, and on Thurs on the cillit bang, paclitaxel, which I believe is a breeze compared to EC so hopefully should sail through (we will see eh?).
I've started Christmas shopping too and do hope that all are starting to feel a little Christmassy given the weather is now suitably cooler - which is a relief for a summer hating/tropical sweating northerner, bring on the frost I say! That said I do need to sort out my bedding plants so think will be doing very cold gardening this weekend, the neighbours will think the chemo has removed not only brain but all common-sense all together as they did last time I was doing it in the rain.

Hope all have had a good weekend with no incidents, some good food & rest and minimal/no side effects.

Sam X

 

Member

Re: September 2019 Chemo Starters

Thanks ladies for your responses. Much appreciated. X

Member

Re: September 2019 Chemo Starters

Hi Berylperil,

pleased you’re feeling better generally. I hate the disappearance of taste and that awful mouth feeling. It’s just a waste of food because it has no taste.  
No suggestions I’m afraid, I’ve had no soreness in my last few rounds thankfully. I do tend to eat boiled sweets to take away the foul, furry taste in my mouth. 
Do you find it clears up into week 3? 

xxx

Member

Re: September 2019 Chemo Starters

Hi Naomi, sounds like you need to talk it through with your oncologist some more. Keep us updated xx

Member

Re: September 2019 Chemo Starters

AC436E3B-C45C-4F19-ACD0-F9F0BF25315B.png

Not this brand but came in a dropper bottle like this 💜

Member

Re: September 2019 Chemo Starters

Hi

Thanks pinkflamingo will start googling to source the syrup. 

X

Member

Re: September 2019 Chemo Starters

Hi berylperil,

 

sorry to hear you’re having problems with taste - I was given some marshmallow syrup which a friend got from a local apothecary/ homeopathy/ health food store. It has been brilliant- just have a few drops on my tongue and it gets rid/ masks the hideous chemo taste long enough to be able to have a cup of tea or coffee or squash without it tasting horrid. I know I don’t drink enough anyway so this has been a godsend. 
sending hugs 

x

Member

Re: September 2019 Chemo Starters

Hello ladies, 

Sorry haven't posted for over a week. Am ok and feeling better. Am pleased to say that I have not had neutropenic fever this cycle. 

 

Along with my energy levels in the first 10 days particularly, my mouth has been worse this cycle. I struggled to know what to drink. I now cannot even smell ginger without feeling queasy. Tea and coffee have been foul, but this has improved. At the worst bit I  have just drunk fizzy  cold water. Has anyone found any good suggestions for managing this? My tongue was sore and very dry as was the back of my throat (like a couple of peas were stuck I couldn't shift). I have now got some biotene toothpaste (for dry mouth) and some saliva replacement spray which has helped.

 

Really feeling that this is marathon and not a sprint, the finish line is not yet in sight, but  this second half is taking its toll.  Sending hugs to all,  we will get there. 

Member

Re: September 2019 Chemo Starters

I’m really scared because of how the picc line is inserted and the vein that it goes into and I’m worried about the risks 

Member

Re: September 2019 Chemo Starters


@Naomi40 wrote:

Hi Everyone, 

 

I hope everyone is doing okay?

 

 I unfortunately have hit a bit of a low. I feel like I’m just doing what needs to be done without any real feelings. 

I have finished my 3 cycles of fec and have a scan on Thursday to see if my tumours have responded. I also have to see a nurse for picc line insertion even though I have said no to having that as that’s not what I discussed with my oncologist. 

I didn’t do well with the last 2 cycles of fec and I still have pain in my arm from the last 2 cycles and I felt more unwell with the 3rd cycle. 

My oncologist now wants me to have weekly chemotherapy instead of Docetaxel because of how my body reacted with fec. I’m so tired of being stuck full of needles and I’m so fed up of it all right now. 

I’m trying to be brave and strong but sometimes I’m just so fed up with it all.


Hi Naomi,

 

fingers crossed with your scan on Thursday 🤞

Why do you not want a picc line? It might be more straightforward if you have to have weekly chemo, it could take away the stress of all the injections.

you are really going through the mill with this treatment Naomi and it’s such a shame you have to try and feel brave when you shouldn’t have to if you’re feeling totally crap! 
At the start of this journey the Macmillan nurse spoke to me about how cancer treatment can affect people differently and our moods too. Have you spoken to your nurse/ doctor about how low this is making you feel? They should be able to give you something to help or contact Macmillan about a counselling session. It sounds like you’re not really getting the time with the medical staff for them to get how you feel. Xxxx

Member

Re: September 2019 Chemo Starters

Hi Everyone, 

 

I hope everyone is doing okay?

 

 I unfortunately have hit a bit of a low. I feel like I’m just doing what needs to be done without any real feelings. 

I have finished my 3 cycles of fec and have a scan on Thursday to see if my tumours have responded. I also have to see a nurse for picc line insertion even though I have said no to having that as that’s not what I discussed with my oncologist. 

I didn’t do well with the last 2 cycles of fec and I still have pain in my arm from the last 2 cycles and I felt more unwell with the 3rd cycle. 

My oncologist now wants me to have weekly chemotherapy instead of Docetaxel because of how my body reacted with fec. I’m so tired of being stuck full of needles and I’m so fed up of it all right now. 

I’m trying to be brave and strong but sometimes I’m just so fed up with it all.

Member

Re: September 2019 Chemo Starters


@berylperil wrote:

Hi September gang, 

Feels like we're definitely in the trenches now. I was very pleased to get round 4 in last Thursday, but after the high has come the low.  Sunday passed in a haze of exhaustion. It was enough to have made it from bed to sofa and back again. Making myself eat and drink, but don't really want to, but know I have to. 

 

Today I feel a tad better, I think this comes from accepting that I will need to go through this  phase and there will  better days ahead. I cried alot in cycle 3, I now know how gentle I need to be with myself and others.  There is a pace and rhythm to the process my body needs to go through and I have been fighting it. This has come in the form of needing to achieve something everyday, and then feeling that I am useless (even saying I am pointless), if I can't do it. I am being a bit rubbish at being wife/mother/friend/daughter/colleague, I have sort of lost my identity in these roles, I am for this short while reduced from who I was. I have even said I am failing at this chemo lark as others seem to carry on and sail through, so why can't I? But for now this is me,  I am  not achieving  what I thought was important, my expectations on myself have realigned.  I am not keeping my chin up or carrying on to make sure life seems normal, because its absolutely not. Today I am still exhausted but I got up and had breakfast and  cleaned my teeth, and then crawled back under my duvet.  I have  got my lovely dog for company,  and I have pulled favours for the school run. I don't need to achieve anything more than just be, and tomorrow is another day. X


How are you feeling? Hope today is a good day xxxx

Member

Re: September 2019 Chemo Starters

Hi everyone,

 

how are you all? Just catching up and sensing we are all in the thick of it now. I’m currently having round 4 as I write. Last patient here!

i had two rounds of EC and mri showed a minimal response to the tumour so they cancelled my 3rd EC and I’m now having pertuzumab, trastuzumab and docetaxel.

Last 3 weeks have gone quite fast tbh. I did have episodes of tiredness and achey bones and that bloody awful taste in my mouth 😭 

I enjoyed a few gins this last weekend though as I felt ‘normal’!

 

when I met with my chemo nurse on Friday she told me to expect to feel emotional and tearful at times. It seems to happen more so on rounds 4 and 5. 
so if you haven’t been told this take care and come on here for some hugs xxx 

Member

Re: September 2019 Chemo Starters

BerylP

I too am feeling it this time, had a nap at 5pm Sunday evening and didn't leave bed until 7 this morning.  Couldn't face the bike ride that I really wanted to go on and knew I shouldn't given am feeling quite meh.

Today not a good brain cell day and am now tucked up in Jim jams in front of TV. Hopefully next week will return to being the good week.

 

Sam X

Member

Re: September 2019 Chemo Starters

Thank you LucyLump 😊 

My breast surgeon is really informative and puts me totally at ease but I haven’t seen him since my sentinel node biopsy in August. 
My oncologist is not as good a communicator; he will tell me if I ask but I don’t always know what to ask because I don’t know what to expect, if that makes sense? I don’t know what I don’t know. 
Hearing that there are others who have trodden a similar path is comforting .

Member

Re: September 2019 Chemo Starters

Hi lovely ladies. I am just visiting from the July group. Pink Flamingo I also had a scan after the 3 FEC chemo and my lump had not shrunk at all. In fact it had very slightly grown bigger which like you I was not happy about. The breast surgeon had warned me before I started chemo not to be surprised if this happened and that reduction in size was more likely to be seen in the second half and he was right. After I started the docetaxel, herceptin and perjeta the lump shrunk almost immediately and it has finished off less than half it's previous size. I am now happy with that. The other thing worth mentioning is that in my case I found the docetaxel easier than the FEC. The worst thing about it for me was the change in taste buds but I found that easier than the feeling sick on FEC. Everyone is different but just wanted to say that for some people docetaxel is not necessarily worse. Good luck all of you with the rest of your treatments. You will finish them soon. Xx

Member

Re: September 2019 Chemo Starters

Hi September gang, 

Feels like we're definitely in the trenches now. I was very pleased to get round 4 in last Thursday, but after the high has come the low.  Sunday passed in a haze of exhaustion. It was enough to have made it from bed to sofa and back again. Making myself eat and drink, but don't really want to, but know I have to. 

 

Today I feel a tad better, I think this comes from accepting that I will need to go through this  phase and there will  better days ahead. I cried alot in cycle 3, I now know how gentle I need to be with myself and others.  There is a pace and rhythm to the process my body needs to go through and I have been fighting it. This has come in the form of needing to achieve something everyday, and then feeling that I am useless (even saying I am pointless), if I can't do it. I am being a bit rubbish at being wife/mother/friend/daughter/colleague, I have sort of lost my identity in these roles, I am for this short while reduced from who I was. I have even said I am failing at this chemo lark as others seem to carry on and sail through, so why can't I? But for now this is me,  I am  not achieving  what I thought was important, my expectations on myself have realigned.  I am not keeping my chin up or carrying on to make sure life seems normal, because its absolutely not. Today I am still exhausted but I got up and had breakfast and  cleaned my teeth, and then crawled back under my duvet.  I have  got my lovely dog for company,  and I have pulled favours for the school run. I don't need to achieve anything more than just be, and tomorrow is another day. X

Member

Re: September 2019 Chemo Starters

Bless you it’s awful. I’m really struggling this time. Joint pain, breathlessness, heartburn, bladder irritation and I’m dreading the Docetaxel 

Member

Re: September 2019 Chemo Starters

Agree re the exhaustion Naomi40 - I have had very little in terms of side effects since the first cycle but the fatigue and exhaustion is really difficult- I seem to have no stamina whatsoever. Makes me feel utterly useless 😔

Member

Re: September 2019 Chemo Starters

Hi pink flamingo 

 

I can kind of relate, had 3 lots of fec and just waiting for a scan.

 

 I had breast markers put into my tumours and I was told they had shrunk a bit but this was nearly 2 months ago and now I also experience pain in that area and my hair is starting to grow back and it makes me doubt how effective it really is. 

I hope that you are doing okay and it’s just that you need to have the last lot of chemotherapy to make the difference.

 

Sending hugs to you as I can just imagine how frustrating it all can seem 

Member

Re: September 2019 Chemo Starters

Hi all,

Not long finished my 3rd cycle of neo-adjuvant FEC and had my scan to see progress. Disappointed to find it hasn’t shrunk at all. After first cycle, I was aware of some soreness around lump but this soon stopped. Oncologist thought at the time that this was positive indicator that chemo was working. Now I’m not so sure - added to which my hair has started growing back. On the one hand I’m quite delighted on the other it’s making me think that the FEC has done nothing since the initial cycle. 
anyone experienced anything similar?

next week, I have first cycle of docetaxol, herceptin and perjeta

currently quite despondent 😞

Pink Flamingo

Member

Re: September 2019 Chemo Starters

My 3rd cycle of fec and I feel more worn out then the last time. I honestly don’t know how my body is going to cope with Docetaxel next. I hate feeling this exhausted all the time. Being a single mum I worry as I need to do school runs and try and keep things as normal as possible and I really don’t know how I’m supposed to do it. I have a partner but we live in different areas and only see each other on weekends. I just want to stay in bed all the time. Went out for an hour today and I’m now exhausted 

Member

Re: September 2019 Chemo Starters

Hi All

 

Week 7 of Paclitaxel and Cycle 3 of Carboplatin last Friday. Side effects that I have had are minimal considering joint pains day3-5 and this week increase in fatigue and nausea. I am still able to go to my yoga classes, housework and take my boy to cinemas  but today I feel like meeeehhh so just on the settee feeling sorry for myself l. So sorry to hear that some of you had a few hospital stints xx

Member

Re: September 2019 Chemo Starters

Help if I state who am writing to ...

 

Pardeep (PB)

And to carry on...I've just had my 4th EC and had very few side effects, yep lost some of hair and got so annoyed with finding it all over and being unable to wash/style without losing more had it all shaved off, constipation (sorted via dulcoease) and feel a bit rough the following week (but doesn't stop me cycling or taking it easy at the gym) but no nausea or sickness at all - hope you're equally lucky as me & as you were on paclitaxel.

Sam X

Member

Re: September 2019 Chemo Starters

Good to see you back & hear you're doing well on the paclitaxel, will be joining you in 3 weeks...can't wait!

 

Sam X

Member

Re: September 2019 Chemo Starters

Didnt stop me from doing anything apart from swimming which i dont do anyway.

i found some pretty picc line covers on ebay which i wore all the time. The tubes all fit nicely inside and are comfortable 👍

you'll probably be given one to use when showering.  I just kept my arm up above my head but you soon get used to it.

i had all my chemo and pre meds and saline flushes thro my picc, it was so easy and ' no pain ' ! You have the dressing changed and the lines flushed every week. Xx

Member

Re: September 2019 Chemo Starters

mini mad 

 

I guess I’m worried about the risks and the do’s and dont’s . I have a 9 yr old and 13 yr old that I still need to take care of and being a single parent I’m worried that it will restrict me doing certain things 

Member

Re: September 2019 Chemo Starters

Hi Naomi40,

 

i had a PICC line , they dont do Portacath's at my hospital,  and i didnt have any problems with it.   Putting it in was ok,  i found the local injections more uncomfortable than the procedure itself.

anything you want to ask go right ahead.  I was having my treatment every week and my veins arent good.

mini mad xx 💖💖

Pb
Member

Re: September 2019 Chemo Starters

A little update from me..

 

I had Pacitaxel number 9 yesterday and have a further 3 treatments before moving over to the dreaded EC. I have tolerated the pacitaxel really well and had minimum side effects so for those of you moving to this soon a bit of hope... The main side effects I have had are diarrhoea which is manageable and some tiredness. I have been able to do the school run every day except chemo day so a relative state of normality for my children. 

 

Sorry to hear some of you have been on hospital.. 

 

Take care everyone.

 

Pardeep.x

Pb
Member

Re: September 2019 Chemo Starters

Hi Everyone. 

 

Sorry bit been on here for a while aa managed to block my account..

 

Naomi I too had a port fitted and it so much more convenient as I am currently on weekly chemo. It makes life easier... 

Member

Re: September 2019 Chemo Starters

Naomi

Did you ask why you couldn't have a port?  I know there maybe a waiting list for a port, and depending on where you are in your cehmo treatment time may be of the essence but , if time permits, I would, personally challenge this decision.  PICC is still far better than cannula but if you would prefer a port then please do shout!

Chemo is not the time to be all British about this cr4ppy situation, which I discovered early doors (when was admitted to hospital due to thinking I was not feeling "bad" enough/as other people I read about).

 

Good luck with whatever you get.

 

Sam X

Member

Re: September 2019 Chemo Starters

Hello, 

I’ve just been told I will be having a picc line and I’m really worried about it 

Member

Re: September 2019 Chemo Starters

Naomi

Yes but whilst mine was done under local anaesthetic they gave me something else (not general anaesthetic though) that knocked me out for quite a while (probably just to shut me up) but did come round towards end of operation but couldn't feel anything at all.

 

Sam X

Member

Re: September 2019 Chemo Starters

Naomi,

I was given two lots of anti sickness this time as well as three lots of painkillers(paracetamol, brufen, codeine).

 

Ive taken a few painkillers and a couple of anti sickness but nausea hasn’t really been a problem so far.

Abdo cramps when I need the loo are probably the worst thing and I’ve had this with all 3 chemo’s.

Happened in Blackpool today and I just had to dash into a hotel, obviously looking desperate for the loo 😳💩! 
Just explain and I’m sure you’ll be given enough to help should you need them.

 

Blackpool was fun, first time for the kids but I’m knackered now. So pleased we just drove from Leeds and didn’t stay over. Back home all cosy in my pj’s with a cuppa tea 😊

Member

Re: September 2019 Chemo Starters

Thank you Sam

 

Everytime I have chemotherapy that vein becomes no good and I’ve cried so much because it really hurts when they are trying to find a good vein. I’ve been told the port it will be done under local anaesthetic but apart from feeling a bit of pressure or a pulling sensation that it won’t hurt.

Member

Re: September 2019 Chemo Starters

Naomi

My decision to go port was a jolly good one. The op is quick (max 1 hr) and was painless, its a little painful afterwards but healed within 2 weeks and is now sooo much easier than fannying around playing hunt the vein and am free of "oh dear another one's collapsed" - as my viens were doing.

Unlike the PICC there's no maintenance and you can swim with it.  Mine will be oiked out when I have my surgery.

I'd really recommend it, it is so much quicker as well to take bloods and you'll never need a cannula again (though you may need to go to chemo unit to set it up for any MRI contrast as I found the nurses in the MRI unit weren't trained to do port stuff).

 

Good luck 

 

sam x

Member

Re: September 2019 Chemo Starters

Hi Katttz

 

Thank you for replying.

 I think the only thing that concerns me more is nausea and vomiting as I have a phobia of being sick. Do you get anti sickness medication before and after treatment.

 

Have a lovely time in Blackpool, have never been there but my sister says it’s great xx 

 

 

Member

Re: September 2019 Chemo Starters

Hi Naomi,

 

I'm one week post docetaxil and I am feeling a few side effects but all manageable with a bit of pill popping. 
Achey joints started yesterday and a little nausea. I’m hoping this will pass in a few days then I’ll be back to ‘normal’ for the final week before it all starts again! 

Off to Blackpool tomorrow as a half term day out for the kids, we were going to  go on the train but decided to drive. It’ll be a long day and  if I feel dodgy  I can always go and flake out in the car for a bit ! 

A port sounds the right way to go Naomi, it must be bloody stressful for you.  Generally , I have ‘good veins’ but I’ve had a few misses. One: it’s painful and Two: you get wacking big bruises.

 

xx

 

 

Member

Re: September 2019 Chemo Starters

Had my last lot of fec today soon it will be Docetaxel. Today wasn’t a good day, cannula went in but couldn’t take blood and was no different with the 2nd one and thankfully the 3rd one was successful only I have lots of bruises. It’s been decided a port is the best way to go as I’m running out of good veins. 

A little bit anxious about the port being put in but I’m guessing it’s got to be better then this every 3 weeks 

Member

Re: September 2019 Chemo Starters

Hi Katttz

 

How did it go with having Docetaxel? 
I hope you are feeling okay.

 I have my last fec treatment tomorrow and my oncologist will let me know if I am having Docetaxel or another chemotherapy treatment instead after that. 

Member

Re: September 2019 Chemo Starters

Beryl

Hadn't realised you'd been back in hospital, what are you playing at? Have your cancer team not given you the FSG (??) injection things to do yourself?  They've been my saviour since hospital visit post round 1.

Glad you're now out but obviously would like you not to end up there each cycle...the poor nursing staff must be getting tired of seeing you (imagine a smiley face here - can't be bothered to fathom out technical challenges!!).

 

Sam X

Member

Re: September 2019 Chemo Starters

BonnieB
Re the PICC its pants that you found out after the PICC was done that your veins were too small. I went straight to the port on the advice of a lady in my chemo ward who has had both, and am sooooo glad I did.
I don't mind cannulation but playing hunt the collapsed vein was getting exhausting for me and the nurses and I now find that hand & arm are now still aching after last contrast I had with MRI at end Sept.

Obviously I am not you (you should consider yourself v lucky) but the operation was my first ever and was over in a flash, it was an hour max. It took c 2 wks to heal enough to not feel like one of the Borg and is sooo easy to get blood out and chemo in and doesn't hurt any more than the cannulation prick. Plus with a port there's no maintenance (a plus for me as am quite lazy and will do anything to avoid stuff I don't need to do) and your can go swimming too.
Also despite what I was told at the MRI unit (think its cos none of them are trained for port stuff so avoid it) the port can also be used for scan contrast stuff so there is no need for any more nasty cannula Hokey Cokey ever again.
There is an op to whip out the port and if you're yet to have surgery they do it at the same time.
Hope that's helped, you may however find, as I did, there's a waiting list (few weeks for me) so if you're interested I would pursue sooner rather than later.

Sam X

 

Member

Re: September 2019 Chemo Starters

Hi all,

just checking in and it sounds like a few are going through the mill at the moment ☹️.

Berilperil: can’t believe you’ve been back in hospital. I hope those bloods are improving and you’re feeling an improvement at home. How frustrating, what are you being given to help your neutrophils? here’s hoping the rest of this journey improves xxxx

Naomi: sorry to hear you feel unwell too and are having a  delay.  I’m having docetaxil tomorrow. Consultant kept telling me not to worry about side effects and to not worry about what the nurses tell me. He thinks I’ll sail through....immediately had me thinking he’s trying to install a positive mental attitude as maybe docetaxil is a rough ride😬. We’ll see !

 

Louise: I’ve read dark nail polish can protect your nails. I’ve painted my toes navy blue and have shellac on my hands. However one of my big toes is sore and I can see black at the cuticle base. I’ve lost a few toe nails before through running and they grow back ok. I’d rather keep my fingernails though!

 

 

I had a consultant appt on Friday and my tumour has shrunk 25% but the cancer is still active so my pathway will not go with a 3rd EC but straight to pertuzumab and trastuzumab. I’ve had them both today and I’m back for docetaxil tomorrow afternoon. I’ll keep you updated on any side effects. Last week I totally felt like my normal self. Food tasted good, I had energy and even managed to run and I even had a night out with a few proseccos! 
let’s see what the next few weeks hold 🤞

Im booked in on a FeelGoodLookBetter day 5/11.  Hoping I feel well enough xx

 

Thinking if you all and sending positive vibes 😘