Kate from Leeds (my lovely old stomping ground!)
Nice to read you sound like a similar "trying to be organised" person, I too take notes as to what's going on so I can keep up with news, my way of being in control with this whole cancer lark, I have a book for ailments, diet, temp, sleep, side effects...sad thing is that I actually struggle to read my rubbish writing! But I do know what to expect...
A lot better on the 2nd EC vs the first still ta, think the pre-emptive dulcoease is proving a jolly good idea as not really doing anything else differently, or could be due to the FSG (or whatever the blummin letters are) injections to increase white blood cells? The operation was to install a port (port-a-cath) to make the taking of bloods, delivery of chemo etc easier as my veins were not playing ball and at the last chemo were collapsing all over the place. It will mean I also don't look like I've been self harming hands & arms that were covered in bruises, am such a delicate little flower (I jest).
Your journey sounds like you're following me, I was in for neut sepsis following 1st EC, suspect they may send you home ,as they did with me, with syringes to (very easily) inject yourself, I am hoping they will prevent a visit to the lovely ladies at Epsom general next week when have low immunity again...fingers crossed for both of us. Mind you, apart from wanderers in the wee hours you may be enjoying some peace & quiet away from your kids?
Unlike you I don't seem to have any mouth issues, other than being off alcohol (the smell of white wine makes my stomach turn) and not being able to eat my favourite stinky blue cheeses my taste is broadly same as pre chemo, luckily though have a hankering for all things healthy! (Quite worried that some ice cream I have in the freezer will run out of use by date...as a tight northener I abhor waste!).
Naomi
I applaud your honesty, and its quite difficult to snap at people on here - so give it your best shot! No-one (especially me) will take offence even if you succeed..
You should, if you can, use this medium as an opportunity to vent. We're here to listen, support & tell you you're wrong if need be!
And no need to apologise, not everyone can have verbal diarrhoea like I often do. You join in when you want. Do know what you mean re memory, I am getting to the stage where I am taking notes on everything (see above) and it's getting to the stage that if am downstairs and need something from upstairs need to say it over & over again on the way upstairs so don't forget why I've gone to the top of the stairs. Post it notes are rapidly becoming my best friend.
Hope you're doing better with them injections, I didn't fancy doing it but just get on with it now, helps having a large spare tyre to aim for.
Beryl
Hope you're doing well twin!
See below re hair, am more hoping to chanel Charline Theron re mad max fury road, just without the grime on my face. My boyfriend has however told me I'm more Brian Glover.
Can't be ar5ed with wigs, caps will be my pal, plus au natural when needing money/sympathy of course.
All,
Following lots of moulting got the boyfriend to bring round clippers last night and now resemble a day old baby bird, apparently my hair was not suitable for the clippers (of course)!! So off to the barbers for a bit of a tidy up later...lets see how much sympathy I can garner, bets on a freebie anyone??
(Tam tam - tried cold cap & it didn't work for me but I'm a big believer in nothing ventured nothing gained)
So does anyone have anything planned at the weekend? All being well am seeing some northern pals who are visiting the smoke, if am good (which I WILL be) doing afternoon tea (the lushes I am with will have the champagne option, Cinderella here will do with mere tea...boo!).
Hope its a good one for all.
Sam X
