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September 2021 Chemotherapy starters

Magenta59
Member

Re: September 2021 Chemotherapy starters

Oh dear Amy, that is very frustrating for you! What reason did they give? And such a hassle having to reorganise everything else around it. Our lives just revolve around appointments these days. I am expecting a call today re my Liver MRI results. Just hoping it is confined to the one lesion. Fingers crossed for us both. And best of luck to all of you ladies on this thread.

Jane.x

Dogslover
Member

Re: September 2021 Chemotherapy starters

You must be gutted x

amy46
Member

Re: September 2021 Chemotherapy starters

Good tip re Polybalm thank you.

Just had a phone call to postpone my chemo from tomorrow to Friday. So fed up. Got stuff organised for the kids tomorrow and totally focused and ready to go. Had to cancel my psychology appointment and wig appointment that were originally scheduled tomorrow as obviously chemo most important. Hey ho. Another day waiting 🙄

Magenta59
Member

Re: September 2021 Chemotherapy starters

Hi Amy,

   yes it has been a very up and down experience, but now things are finally starting to happen treatment wise, I feel more confident. Getting my head around all the info has not been easy-there is so much to process! It just seems to have taken so long to get to this point, for which my Onc apologised. Because my cancer is quite unusual, they had to do more tests on tissue samples from my surgery to reach the conclusion the tumour was partly HER2+. Biopsies taken back in May had not shown either way. I suppose they don't want to give us inappropriate drugs given the side effects we get. Anyway onwards now!

I am trying to keep busy, and have a massive list of stuff I think I need to get before it all starts. Not sure what they give us on the unit as regards meds and self care but I guess I can ask at the first big appointment I have beforehand. I may be putting a shipping order in to Boots! Like you I like to be organised, and yes it makes you feel like you have some control of the situation!

Regarding nails, I have been using Sally Hansen nail strengthener which has now been on a week and still looks good, and a really good hand and nail cream twice a day. Fingers AND toes. On researching nail care during chemo, as the Docetaxel I will be on can cause serious problems apparently, I found POLYBALM. This is a special treatment you apply at least twice a day to the cuticles and nail beds. They supply 2 tubes, one for fingers and one for toes to avoid spreading infection, should it arise. It has been clinically tested on chemo patients and found to be really effective in preventing damage. Just google it and all the info is there. I got mine on Amazon as slightly cheaper-it still cost £37-but I feel it is worth it if I keep my nails. Some risk of losing them completely on this chemo and I don't want to go there. I have lost several toenails over the years-equine related incidents! It is really unpleasant and very painful! So maybe worth a try. I think they recommend dark polish as it can protect from UV damage? I will just stick with what I have and keep out of the sun-it's not good to be out in it long anyway while we are on chemo.

Your chemo bag sounds fine. I am thinking on similar lines, but may include something to nibble on. We might be there a while! Someone also suggested having a few items handy in case they keep you in overnight-some have quite bad reactions so I hear. Fingers crossed it's not us! So small washbag, spare socks & knickers and a nightie. Think I will need a backpack! But maybe best to plan for all eventualities

I am also considering supplements, in particular turmeric, black pepper and ginger, for joint pain issues. No idea whether it is okay to take while on chemo, or best to wait until it ens. Another question among the dozen I need to ask. All I currently take is Calcium with Vit D and K. But again, need to check it out. Otherwise I will just try to eat healthily-that is if I have an appetit and can keep it down!

We are still on the rollercoaster I fear. I think chemo will be a very up and down time. Just hoping it doesn't make us too sick-I think for me the sickness/nausea may be the worst part!

Take good care of yourselves everyone.

Jane.x

amy46
Member

Re: September 2021 Chemotherapy starters

Hi Vee,
Mine is also TNBC. What chemo are you having? How are you coping? I was leery low and tearful a few weeks ago and just couldn’t lift myself out of it but now I’m feeling strangely ok. First chemo tomorrow so maybe it’ll hit me later today, but at the moment I feel fine. Amy x

amy46
Member

Re: September 2021 Chemotherapy starters

Lou, good idea re socks and blanket as I noticed it was quite chilly when I looked around the unit on Monday. 
I got a thermometer from Amazon but it kept giving wildly different readings so it’s going back and I’ve ordered a Braun one. More expensive but I don’t want to be wondering if it’s the machine or real if I get a high temp. Amy x

amy46
Member

Re: September 2021 Chemotherapy starters

Shi, what chemo did you have? Did you keep your nails painted the whole time? Or just for a few days around the chemo?

How did you find the dexamethasone? Im

worried about not being able to sleep. I’ve got four days prescribed with only three days off before the next cycle.

Amy x

veestar
Member

Re: September 2021 Chemotherapy starters

Hi I m starting chemo in 2 weeks for triple A negative breast cancer. Will be good to chat on this thread.

Vee

louby_lou69
Member

Re: September 2021 Chemotherapy starters

Hi everyone 

In my chemo bag ive got some snacks, boiled sweets, note pad and pen, fluffy socks and a blanket.

Ive also read to have a little caddy/basket at home with everything in you need e.g lip balm, hand cream, ear thermometer, tissues so you don't have to wander round looking for things.

You need to keep an eye on your temperature too and ring if it goes up.

Dogslover
Member

Re: September 2021 Chemotherapy starters

Thank you x

 

Shi
Community Champion
Community Champion

Re: September 2021 Chemotherapy starters

Amy put a phone charger in too 👍 in your chemo bag, it’s not something you think about but if you find a casa nhs stay you will need phone charger be you’ll be keeping in touch with your thread gang on here 👭 and you don’t want to run out of phone battery. All please be vigilant as you go into your nadir phases during chemo ❤️ Remember it’s not like usual you need to ring your rapid response teams ASAP and check things with them, things like uti, thrush, thrush mouth will need antibiotics not just stuff you’d use normally ❤️Always keep safe during chemo ❤️💕💕Shi xx

Shi
Community Champion
Community Champion

Re: September 2021 Chemotherapy starters

👍 Amy on drinking the water 👍 keep fluids flushing things through liver and kidneys 👍 💕💕Shi xx

Shi
Community Champion
Community Champion

Re: September 2021 Chemotherapy starters

❤️Dark nail polish helps preserve nails during chemo as sensitive to uv light and chemo can make them fall out, others have used a nail protector too, personally I used dark polish and kept all my nails, just lost few toe nail but kept all finger nails ok 👍 hope that helps 💕💕Shi xx

Dogslover
Member

Re: September 2021 Chemotherapy starters

The chemo bag sounds a good idea. Why does the nurse suggest painting the nails dark? 

Lu_B
Member

Re: September 2021 Chemotherapy starters

Hi,

Have a lobular ca grade 2, stage ?, estr+, herceptine - , no copromised limos. I had a full mastectomy( right) 25/6 and now started, today, chemo (epirrubucine+cyclophosphamide) 4 cycles (every fortnight). It was very quick in the hospital.

Feeling a bit of headache and nausea now but nothing terrible, but will top up meds now. Did my answer help? How are you? 

 

Dogslover
Member

Re: September 2021 Chemotherapy starters

Yes. I borrowed that book from the library. Very good. Good idea about the water, I must start drinking more. Just been wondering when to shave my head? Before it starts coming out, or when it starts falling out? I've asked my sister, if she would do it for me, I already have a bottle of processco in the fridge ready for the event. X

amy46
Member

Re: September 2021 Chemotherapy starters

Hi HMLL,

I have that book, one of them is a breast surgeon herself I think which is pretty bad luck. I also found it really useful.

You may regret saying your girls could glitter tattoo your head! When my children were that age they went mad for the glitter tattoos! The whole house was permanently glittery! 

So we are having the same drugs but in reverse. Having the Paclitaxol first seems to be a bit unusual not sure why my oncologist went for that way round. I’m going to be having three injections of the drug to boost white cell production each week too. Anyone else having this? I’ve got such a long list of meds and supplements I’m going to be rattling around! 
I started practicing drinking at least 2.5 lites of water per day yesterday and seem to be spending half the day nipping to the loo! Amy x

amy46
Member

Re: September 2021 Chemotherapy starters

Hi Jane,

It sounds like a complete rollercoaster for you. So hard when you don’t know what’s happening. I think it was one of the worst parts for me - the results never seemed to all be there and a decision made and I was beside myself with anxiety waiting for things. I think compared to many the process was actually really quick for me so I’m lucky but at the time it didn’t feel quick. I’m a real planner and I like to be in control so I feel a lot better now that I have dates/drugs etc to work with.

I have loads of stuff I could and should be getting on with but I really can’t be bothered so i am impressed you are so motivated! 

I have a chemo bag with the following but would welcome any other suggestions:

Water bottle

Mints

Colouring book and pencils 

Book they gave me to document my treatment and any side effects

Phone and headphones 

Reading book

Lip balm

Hand cream

 

The nurse I met yesterday said it helps some people to paint their nails a dark colour, anyone else going to try this?

I am also taking CBD oil to help with side effects and a few other supplements.  Is anyone else trying any alternative therapies? 

Amy x

 

Magenta59
Member

Re: September 2021 Chemotherapy starters

Hi Amy,

yes it seems like we have had a similar experience with the HER2 tests. So we would both have had our chemo before surgery had they had a cear result. Can't be sure but it could have made a difference for us. Most of my results were confirmed a week after the May 6th assessment waiting longer for HER", then inconclusive so retested with the same result. My surgeon had pushed for upfront chemo then on June 4th at the oncology appointment it was a complete reversal! Knocked me for six. Sent away in a daze with no idea what was going on. My BCN rang on the Monday to see how it had gone and couldn't believe it when I told her!  Surgeon was most put out and with the results from my MRI we just went ahead with surgery, whch was on June 22nd. So it caused delays to that too, as really we may have just gone straight ahead with it to begin with. In all it will be more than 4 months from diagnosis to getting the chemo. And all that time you have a cancer whch they know is an aggressive and invasive type just dividing and multiplying wherever it wants. So it is now in my liver and could this have been prevented if my surgeon had got her way. Who knows. I do know that it's not going to go away and I will be on treatment for life. This is not a knowledge that gives me much cmfort as it is just life changing stuff. Dreading it, but it has to be done! Just waiting to get started and for Liver MRI results and some biopsies from a strange lump near my axilla to come through. All the waiting as you say, and not knowing is very wearing.

I am trying to get stuff sorted out at home before it all kicks off. All the little jobs that you keep putting off! And sorting out the myriad items I will need to have to get me through the chemo-I found a marvellous post ion here with some great tips for coping with it, so am using this as a guide.

Hope all goes well with you. Think it will be a relief to get started and know that we are actually fighting this monster!

Best wishes, Jane.x

 

HMLL
Member

Re: September 2021 Chemotherapy starters

Hi everyone. I start now-adjuvant chemo 2nd September, 6 weeks after I had my 2WW results. Triple negative, awaiting BRCA results, awaiting further biopsy results of another area of concern seem on MRI same side. 

Really helpful book “The Complete Guide to Breast Cancer” written by two doctors who have had it and been treated. I have LO’s who are 3 & 5 and there’s a great book called “is it still ok to have cuddles” as well as “mummy’s lump”. One that was good for my friends older kids is “cancer party”. 

Have had eyebrows monoblade-ombré, off for second look at wigs tomorrow. Have probably unwisely (!) told my girls they can help me do glitter tattoos on my head when I’m bald. Not going for cold cap as don’t want the extra time in the unit. 

Trying to cram in as much fun and fitness in as possible before treatment starts. Will start with Epirubicin and Cyclophosphamide  fortnightly for 4 cycles then switch to weekly Paclitaxel and Carboplatin for 3 months. 

Good luck to us all and hope this is a safe space to talk about the hard stuff as well as the good. 

Dogslover
Member

Re: September 2021 Chemotherapy starters

Good luck for Thursday. My first one is on 1st Sept. I would have liked the port, or picc line, because I have had a axillary node clearance, so cannot have any injections in that arm x 

amy46
Member

Re: September 2021 Chemotherapy starters

Hi,

I’m having the same but in reverse. I had my port put in today and it wasn’t anywhere near as bad as I expected. The local was a bit stingy but then it was just a bit of pressure and wiggling around. I didn’t have any sedation so i could go home straight afterwards. It’s a bit uncomfortable now but not too bad at all. The actual procedure took about 20 minutes but I was in the room about an hour in total. Didn’t even have to take my shoes or trousers off!

Just putting it out there in case any of you are having one. I was really anxious beforehand but it was genuinely fine 😊

Start my Paclitaxol on Thursday so hopefully that’ll be better than expected too x

amy46
Member

Re: September 2021 Chemotherapy starters

Hi Magenta,

It sounds like you have really been through the mill. I had a similar experience with equivocal HER results from my biopsy on both tests and the same initially from the tests they did on the tumour itself. If they had known initially I’d have had chemo first then surgery I think. 
Hopefully you’ll feel better once you get going on the treatment. I think the waiting and not knowing is the hardest part.

Amy x

HR25
Member

Re: September 2021 Chemotherapy starters

Hi 

I'll be starting in September EC for 4 cycles and then onto Paclitaxel & Carboplatin

Magenta59
Member

Re: September 2021 Chemotherapy starters

Hi Lou,

Thanks for your kind reply. Yes we are at the mercy of the experts and put our trust in them and hope for the best. Seems like it is a long haul to get well and then never ending treatment to hopefully stay well. I never imagined 4 months ago what was in store. Feel my life has been on hold since May 6th! The endless waiting between appointments, scans, results, consultations is what really grinds you down. The fact that you have this aggressive disease gnawing away at you and yet nothing is being done to stop it, can drive you crazy. I know they have to get it right, and it can be a lengthy process, but hell it is demoralising. They know so much about it from the initial biopsies but it has taken 4 months to get the chemo I should have had at the beginning of June! Just because of 1 inconclusive result. You wonder why they couldn't just treat me for what was conclusive. I just wanted to get on with it. Now facing a lifetime of treatment-it might have been different. Who knows. Life will certainly never be the same again! I have had another sleepless night and this is all I can think about! Not sure how I will cope financially if I can't get back to at least part-tie work. DWP drag their heels with ESA which is all I can seem to get. Have been on it almost 2 months, and still only on the basic payment of £74.70 a week! I used to earn over £300 a week. Where do they think a piffling amount like this gets us? All they do is hassle me constantly for fit notes, even though they know my situation and should not be doing this. I have more than enough stress as it is! There is no safety net regarding sick pay if you are self employed. Yet we pay our taxes and NI like everyone else! Okay rant over! It's all so frustrating. Hope your results come back soon and it's good news. It's hard trying not to look ahead, and I am sure I tend to overthink things. It can't be helped. You can never forget it for long! I try to keep busy to distract myself and going to my horse is about the only thing that gets me away from it for a while. Once I am on treatment, I expect this will probably not be possible to any great degree. I am expecting the worst, and hoping for the best re.side effects! I am not expecting it to be a breeze.xx

louby_lou69
Member

Re: September 2021 Chemotherapy starters

@Magenta59 You see to have been messed about something shocking. We put our trust (and lives) into the medical team don't we, what hope do we have if they can't get it right.

I face continued treatment too as I'm HER2 +, reading about side effects doesn't fill me with hope but there are odd women who persevere and the side effects don't appear too bad. Also different brands of tamoxifen seem to have different side effects. 
Ive learnt to not think too far ahead. I'm waiting for lumpectomy results and a plan for chemo. After that is radiotherapy but I'm not thinking that far.

My colleagues will all return to school next week but I'll be stuck at home with a diary full of hospital appointments no doubt.

I thought I'd be back teaching by the end of January but I have a feeling it may be more April.

Please keep posting 

Lou x

Magenta59
Member

Re: September 2021 Chemotherapy starters

Will hopefully start my chemo 8th September. Docetaxel with Phesgo for 4-6 cycles dependent on how it works. Then 3 weekly Phesgo with Letrozole for life or "until it stops working" as my oncologist put it. It has been a rough few months since my B.C. was confirmed in early May. Neoadjuvant treatment to shrink my fairly large tumour was cancelled as they couldn't decide on whether it was HER2+ or not, even though we knew it was invasive, and Er/Pr+. My surgeon only found out from speaking to my BCN after she called me to find out how the oncologist appointment had gone, that the chemo was now off. Pretty annoyed that they hadn't informed her. We had been expecting a treatment plan. I went home dazed and confused and our weekend away was ruined. She did insist the MRI she had booked went ahead, which showed my tumour to be around 30mm, not the 40mm that the ultrasound had picked up. So we just jumped right in with the surgery. Therapeutic mammoplasty with ANC. This went well and the results are quite satisfactory even if my new perky breast is a full cup size smaller. I was promised a reduction to the other to make me symmetrical. Complications with a seroma, large dodge of scar tissue in my axilla and now cording, coupled with the fact that various biopsies scans show I now have liver Mets, makes me wonder if that second breast surgery is something I should just forget about. Treatment and getting well again is more important. I can just stuff my bra with extra padding! What gets to me most is that they have now decided after more tests on histology samples that my cancer is actually HER2+ after all, so my upfront chemo would have been appropriate after all! It would perhaps have shrunk my tumour down so I would perhaps only needed lumpectomy and maybe I wouldn't be facing secondary B.C. in my liver. I just can't help thinking my outcome would be different. But nothing can change things now. Treatment sounds evil, just like the disease, but I just have to roll with it. It dismayed me that I will need treatment for life and it may mean more chemo in the future. The side effects will never end for me and I wonder what quality of life I will have; going on other ladies' experiences it sounds like it is debilitating. I was a fit and active woman, running my own cleaning business, and tending to my horse twice a day and riding her about 5 days a week. Not to mention running the house and caring for my family. I feel okay at present and am back to doing some of my normal things, riding gardening etc but not back to work as appointments make it impossible to cope at present. In a few weeks I will no doubt be knocked out by treatment I can't even see the end of. No idea when I will get back to work as it is very physical and tiring. I will need to pace myself I think. I have wonderful clients who are supporting me but that can't go on indefinitely. What looked like 6 months off is more likely to be at least 9. The whole process is now getting me down. I was positive at first but it is becoming more difficult to stay so. I have nothing but anxiety and can't sleep due to nerve pain from the ANC. Where does it all end? Hard to see light at the end of this tunnel......

louby_lou69
Member

Re: September 2021 Chemotherapy starters

I read your blog, thanks for sharing it. So good to read people who have experienced this and come out the other side.

Julie H
Member

Re: September 2021 Chemotherapy starters

Hello, I am new on here and this sounded just the same as my situation - Licap in June, expecting radiotherapy in August and back to normal by September with few people ever needing to know - until the lymph node tested positive and now six weeks off has become 8 months or more of disruption to life.  i start chemo tomorrow morning, so it's good to see the thread of comments here from all of you.  Thanks. I am have spent three really busy weeks trying to get work done and jobs handed over to other people and home and garden in a place where I can do less for a while.  There is so much to get done, but I hope I can be in a place where I can leave things in order while I focus on the treatment and dealing with it well.  best wishes to everyone else on here.

amy46
Member

Re: September 2021 Chemotherapy starters

Good luck tomorrow Jenny. Hope it goes as smoothly as possible. My oncologist said I’d be able to drive myself to and from my chemo appointments if I wanted to so hopefully you’ll feel ok tomorrow. 
Amy x

Mai7
Community Champion

Re: September 2021 Chemotherapy starters

Hi everyone and hope you are ok.  Here’s the usual post I put up to start the thread just to make sure you have all the info.  It’s a scary time but gets less anxious once you’re past the first dose.  

You can ask the nurses on this forum if you have any concerns.  In the meantime, the top tip is always to stay well hydrated throughout chemo, aiming for 2 litres of water per day and get a thermometer and check your temperature every day.

 

Here is the BCN guide on chemo:

https://breastcancernow.org/information-support/facing-breast-cancer/going-through-treatment-breast-...

 

Here are some apps which can help to keep you on track: 

 

https://breastcancernow.org/information-support/support-you/becca

 

https://www.nhs.uk/apps-library/owise-breast-cancer/

 

https://www.careology.health/

 

I finished my chemo in October 2017 and doing very well again now.  Here is my story which has some chemo tips on how I coped which were collectively shared from others who had gone through the same from this forum:

http://lifeafterlola.com/


If you decide to set up a private group its good to stay on here also during treatment as I know from experience there are some people who watch but don't immediately pluck up the courage to join in.  Your conversations can be a real comfort to others.

If you’re new to the forum, here’s the “Getting Started” advice:

 https://forum.breastcancernow.org/t5/How-to-get-started/bd-p/welcomegetstarted

 

Dogslover
Member

Re: September 2021 Chemotherapy starters

Morning Jenny, good luck for tomorrow. Thinking of you x

Shi
Community Champion
Community Champion

Re: September 2021 Chemotherapy starters

Your Macmillan’s at your units might have some pre loved wigs where you make a donation and if you have a luvyababes near you, they do amazing range of wigs and they let you try in privacy of changing room ❤️ Go for one where you still see you and what you feel comfortable with ❤️ Although you might go wig shopping crazy when on the steroids you have during chemo 😁 just a tip some of us ended up with tinsel ones for Christmas and coloured ones. Big ❤️💕💕Shi xx

lolalil
Member

Re: September 2021 Chemotherapy starters

Hi Dogslover , i'm waiting for my dates but should start end of august going into september with 6 cycles of epirubicin and cyclophosphamide, i'm also feeling very nervous of what's ahead ( stressing so much about the hair loss ) but i've also decided not to have the cold cap i'm going to try the chemo beanies and order them today i might also look into getting wig but really not sure about that one. Sending hugs to you x

louby_lou69
Member

Re: September 2021 Chemotherapy starters

@amy46 Totally get you regarding the dying/bald comment. It's just bizarre how we think isn't it.

Ill have the port or picc if it's offered, I hate cannulas, they catch on everything and are just a hassle, plus I've seen what the chemo drugs can do to the back of your hands/veins. 
Good luck with it all. 
Lou x

amy46
Member

Re: September 2021 Chemotherapy starters

The make up course sounds good, I’ll have a look thanks!

I’m not doing the cold cap either. I’d already pretty much decided as I didn’t like the thought of only washing my hair once or twice a week. I want to be in and out of hospital as quickly as I can too. I’ve ordered a wig. Hopefully it will arrive fairly soon as I was planning to go for the big shave - I don’t much like the idea of my hair coming out in bits and bobs. I have found the worry about going bald really strange, one minute I’d be worrying about dying and not seeing my kids grow up, get married etc the next I’d be worrying about be bald which felt really odd. Not explaining that very well but I think you might get what I mean. 
I’m going for the chemo chat and bloods tomorrow then my port. I’m really nervous about having the port done under local anaesthetic. It’s easier for me on some ways as I work in operating theatres so they don’t scare me but in other ways it’s harder. 
I hope you are all feeling ok. Amy x

louby_lou69
Member

Re: September 2021 Chemotherapy starters

I did the make up one on Wednesday. You get a bag of goodies which they say is worth £200.can't wait to get mine. 

Dogslover
Member

Re: September 2021 Chemotherapy starters

Welcome, I had the same operation, with the lilap and axillary node clearance.  Originally I thought I was having the operation and just Radiotherapy. But now its chemotherapy.  I think that as bothered me the most.  I thought time wise. I would be back to normal, but obviously with the chemo, it's a longer timescale, plus losing our hair. I've signed onto some, online courses, "look good, feel better", they do skin and makeup lessons,  how to draw eyebrows on, body image confidence etc. So looking forward to that. They are free to sign up.  

louby_lou69
Member

Re: September 2021 Chemotherapy starters

@amy46  I've found this forum to be a wonderful place to share thoughts, feelings, progress and listen to people's own experiences. Everyone here just gets it.

Im still waiting to find out about my lumpectomy results and cancer regime. Good luck for next week 

Lou x

amy46
Member

Re: September 2021 Chemotherapy starters

Morning, I would like to join this group if that’s ok? I’m due to start my chemo next Thursday 26th August. I’m starting with weekly Paclitaxol with Carboplatin thrown in every third week. 12 weeks total. Then, if I can tolerate it I’ll have four cycles of Epirubicin and Cyclophosphamide every other week. If it’s too tough it’ll be every three weeks. I had a wide local excision 6 weeks ago then a Licap flap 3 weeks ago. It’s been such a rollercoaster. Only a couple of months ago I thought I was fit and healthy, I ran three times a week and took my dog for long walks every day. I’m a doctor in my normal life and it’s been really strange being on the other side of the fence. 

It has definitely been the worst couple of months of my life, but there have been some good things too. My family and friends are being amazing. I have met some truly fantastic people, from the wonderful woman who tattooed my eyebrows (who would only accept half the normal price) to the nurse who held my hand and got me through the biopsy when they had just told me the lump looked like cancer.

I feel very low and tearful sometimes but I am determined to find some positives here even if I have to hunt quite hard for them. 

My oncologist told me that some people breeze through chemo. Maybe some of us, or even all of us, will be among them. I don’t know any of you but I’d really like to think that as a group we can help each other through these next months xx

louby_lou69
Member

Re: September 2021 Chemotherapy starters

@Dogslover I've decided not to do the cold cap either. I think you lose a lot of your hair anyway and seeing it thinning and falling out day after day would just be too distressing. Plus it's supposed to be really uncomfortable and can add 90+ minutes to your time in hospital.

I also worry that there could be cancer cells not killed lurking in my scalp, probably silly but I'm not going through all of this for the cancer to potentially come back in 5 years

Of course, everyone is different.

Dogslover
Member

Re: September 2021 Chemotherapy starters

Hi, thanks for replying, I start on the 1st September. Yes, it seems very real now, and feel the same, just want to start. Nervous about the hair loss,  but have decided not to have the cold cap. Have you? X

Dogslover
Member

Re: September 2021 Chemotherapy starters

Good luck for Friday x

Richards60
Member

Re: September 2021 Chemotherapy starters

Hi,I am doing the exact same regime as you but I start this Monday 23 August.Everything is feeling to real now!The last few weeks have been horrendous waiting for appointments scan results etc.I know everyone has to go through this awful time.Now I’m just relieved to be finally getting the treatment started.I’ll keep in touch and let you know how Monday goes.Do you have an actual start date?

Jenny

louby_lou69
Member

Re: September 2021 Chemotherapy starters

I go for my results on Friday after a lumpectomy on the 2nd August. I'm presuming chemo will start sometime during September as long as I don't need further surgery.

My BCN told me my drug regime would be TCH - Docetaxel (Taxoterel) Carboplatin & Herceptin (Trastuzumab) but not sure if this will change when I eventually meet my oncologist. 

Dogslover
Member

September 2021 Chemotherapy starters

Hi I'm starting my chemo, with 3 cycles of Epirubicin and Cyclophosphamide, then 3 cycles of Nab-paclitaxel. Anyone else starting in September and on this cocktail? Would love to hear from you x