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September 2021 Chemotherapy starters

CT2021
Member

Re: September 2021 Chemotherapy starters

@Magenta59 @really hope you are feeling better today?

Hope you other lovely ladies are doing well? I had my 3rd and last EC today and it was much quicker as I decided to ditch the cold cap. Just couldn’t face it. Feel relieved to have made the decision.

I just feel really tired and a bit sick but to be expected.

Heres to a good week for us all. Lots of love xxxx

Magenta59
Member

Re: September 2021 Chemotherapy starters

thanks @aliess. Still feel rubbish today. 3 days of upset tum and running to loo, and really bad joint pain. Today strange shooting pains-must be neural, in back, surgery site etc. Hope this passes soon. It's not much fun! Have not been out of the house for 2 days and the weather here is foul. I might have gone for a short walk - it might have helped somewhat, but it's not worth getting soaked to the skin. Take care. Jane.xx

aliess
Member

Re: September 2021 Chemotherapy starters

So sorry your feeling rubbish @Magenta59 

Hopefully it will pass soon 

sending love 💕 

Alison x

Magenta59
Member

Re: September 2021 Chemotherapy starters

Hi @CT2021 @aliess @Somerset Bunny @Lu_B and all you other lovelies, I have had a bit of a break from the thread while waiting for my new treatment as nothing much to report! Well I had the NAB Paclitaxel (Abraxane) along with my Phesgo jab on Wednesday and everything went well on the day. Since then, though I have gone rapidly downhill,despite anti nausea meds, Buscopan and Immodium. Getting no sleep due to repeated trips to the loo and bad abdominal cramping. Have decided to up my Buscopan-it is allowed-to see if that helps. Can't eat much and everything tastes weird again, but keeping my fluid intake well up as don't need to end up dehydrated. feel wrecked to be honest and so weary. Wondering when I will turn the corner-soon I hope.

@CT2021I didn't do the cold cap as I am very susceptible to cold induced headaches, and with a taxane, you will pretty much lose hair anyway. Have loads of headcoverings, hats and 2 wigs and some fake fringes on headbands to put under scarves etc so I'm not too bothered. I would actually be happy to get rid of the remaining hair which is shedding everywhere as it is a pain! @aliess that was inspired making your fringe with your own hair-I had thought of it but wasn't sure how to achieve it, so just bought some cheap ones from eBay-they do the job.

@Lu_Bwhat a great feeling to have finished your treatment and now you can hopefully recover from the main chemo etc and move on with your Letrozole therapy. Please let us know how that goes-I will be starting Letrozole myself Feb next year and actually hearing some horror stories about it. I hope it treats you kindly. All the best!

@Somerset Bunnyhow I feel for you missing Rick Astley-my daughter is a fan and we were going to get tickets to see him at York Racecourse, but it was cancelled due to Covid. It seems like ages since we saw any live music. Think the last band we saw was Greenday at Leeds O2-years ago. They were great! Also saw Bastille there-we are big fans, and my partner and I also saw Eric Clapton thwere some years back. That was wonderful-and he had Paul Carrack with him on keyboards. A great show. Oh what it is to reminisce! We can't think about booking tickets for anything until I am through this rotten chemo. I think in some respects the Abraxane is worse than the Docetaxel. I didn't feel billious like this and my tummy wasn't as badly upset. I am looking forward to another night of bog-trotting! What a life!

Have a good weekend everyone. Clocks go back so I can have an extra hour ligging about in bed and no guilt involved! LOL! Big hugs to all.

Jane.xx

veestar
Member

Re: September 2021 Chemotherapy starters

Hi

I am on filgrastim too, I m not feeling many side effects so intrested to hear what you are suffering, oh thats not nice to have side effects from that aswell as chemo. 

My chemo wasn't ready from pharmacy on tuesday, so I had to be hooked up to the saline IV fluids for an hour and a half extra, I was'nt too pleased, I would have rather the chemo nurse had said at the beginning but the team did not  realise. DOH. The chemo nurse was really grumpy too, all the ones I have had so far are so nice. 

 

Happy weekend all..

aliess
Member

Re: September 2021 Chemotherapy starters

Hi @Somerset Bunny 

so sorry you had to miss that Sue! 
you’d have been just down the road from me too! I live in Bournemouth 😂. So when you’re next down this way give me a shout! 
make sure you get all your gigs booked in for next year when this will all be a distant memory 🤞🏻We are booking let’s rock Southampton for July! Line up looks really good. 
💕

aliess
Member

Re: September 2021 Chemotherapy starters

Hi @Lu_B 

that’s great you’re through the other side! You can start to look forward again. I understand it’s not easy as you may feel cut adrift. There is support for moving on after treatment on Breast Cancer now. Just email movingforward@breastcancernow.org. I’ve registered already for January! 
mans of course we’ll all still be here for whatever you need 💕

Somerset Bunny
Member

Re: September 2021 Chemotherapy starters

Hi all, 

Sorry @aliess I did do a reply to you at some unearthy time of the morning Thursday when sleep was evading me but for some reason it didn't post! @Lu_B so pleased for you, onwards and upwards now my lovely. Take it radiotherapy is not as bad as chemo? Have you used any creams or have any routines to keep your skin in good condition whilst undergoing this treatment, as it would be good to know for the future I too have to undergo this treatment post chemo.

My chemo is the gift that keeps on giving, I am now getting the most awful indigestion 24/7 for which more meds have been prescribed. In my 'good' weeks atm, preparing for the next round which will no doubt take me down again, I am finding the filgrastim injections the worse part of my treatment, they make me feel like shite! Anone else suffering with these?

I should have been at a Rick Astley gig and a stay over in one of my happy places Bournemouth last night with my other half, but we all know things like that are on hold for us all. I did throw my toys out the pram a bit yesterday thankfully my family and friends understood and supported me through it. Live music is my thing, my last gig was February 2020 so really missing it, had to cancel 3 (all postponed because of covid) thanks to this shit show hopefully I'll make it to the Pet Shop Boys in May next year...a girl can dream! 

Lots of love Sue xxx

Lu_B
Member

Re: September 2021 Chemotherapy starters

Hi, Ladies, 

I finished my last chemo 3,5 weeks ago. Had a full week of radiotherapy( every day). I can tell you that I am now feeling much less side effects of the chemo. Started letrozole again and so far, so good.

I am hoping to start getting fitter in the weeks to come. Still avoiding swimming pool as oncologist said my immunity needs a good 8 weeks after the end of chemo to get back to normal. I got my flu jab last week will get COVID vaccine in the next 2 weeks. 

It feels great to be over with this part of the treatment and want to thank you all for your support. It really made me feel part of the “same boat” and sharing hints and experiences did help.

Ar the moment, I feel I need more mental health support to carry on. 

Keep strong during the remaining of your treatment!

 

aliess
Member

Re: September 2021 Chemotherapy starters

Thanks @Shi I will do that! 
💕

aliess
Member

Re: September 2021 Chemotherapy starters

Hi @CT2021 

don’t apologise! I decided not to bother with the cold cap, I just can’t stand the cold and have raynauds. So it wouldn’t suit me. Also the added time and the 50% chance it wouldn’t work. 
I have a wig but just don’t feel it, I’d rather wear head coverings and I made myself a fringe with my own hair which actually works! 
Just go with how you feel. 
💕

CT2021
Member

Re: September 2021 Chemotherapy starters

Hi @aliess and you other lovely ladies

 

Yes another week down and survived half term! 

Got my 3rd chemo next week. I’m just trying to decide whether to keep carrying on with the cold cap. I still have a lot of hair at the sides but large bald patches on top of my head which are becoming harder to hide. My main worry was my young children not liking my bald head but I’m not sure I can carry on with cold cap. Plus I’m not sure it’s really working for me anyway.

sorry for going on a bit ! Xx

Shi
Community Champion
Community Champion

Re: September 2021 Chemotherapy starters

Aliess 💕 step by step you are getting there, do pop onto Oct thread if sept ones bit quiet ❤️Back in 2017 we were all thread jumping like crazy all 👭👭 helping each other through, then jumping onto rads and surgery threads as we all went off from chemo to other treatments but always keeping 👭👭👭with each other ❤️ Everyone’s here for you 💕💕Shi xx

aliess
Member

Re: September 2021 Chemotherapy starters

Hi Ladies

how is everyone? 
another week down! 
💕 

Shi
Community Champion
Community Champion

Re: September 2021 Chemotherapy starters

Veestar ❤️👍fabulous you look great, wigs have come on so much no one can tell and the youngsters are wearing them all the time switching their hair up as they do, no one bats an eyelid now ❤️💕💕Shi xx

CT2021
Member

Re: September 2021 Chemotherapy starters

Hi @aliess ! 

It is hard but it’s hard for everyone in different ways. Keep thinking of people living on their own and that must be really tough at times.

Just has Tesco delivery which didn’t think would arrive as website and app down all yesterday so couldn’t add or change anything. As such sent him away with 6 bottles of wine I’d used to secure the slot .. really can’t stomach the thought of wine atm! 🤢 We do have some food in the order but not much!!! 🤣
Hope everyone has a good Sunday.

love to all xxxx

aliess
Member

Re: September 2021 Chemotherapy starters

@CT2021 

That must be so hard for you having to avoid your family. Mine are at the age where they avoid me 😂. we’ve all had colds this week and my temps has been fluctuating wildly. Hopefully over the worst. I’m worried as everyone is about covid rising again. I’ve not been offered a flu jab let alone a booster. Might ring the docs Monday to enquire. 
💕

aliess
Member

Re: September 2021 Chemotherapy starters

Wow that looks great @veestar 💕

Magenta59
Member

Re: September 2021 Chemotherapy starters

Hi @louby_lou69 , thanks for this link. Some very useful products and info here.x

Magenta59
Member

Re: September 2021 Chemotherapy starters

Hi @veestar @louby_lou69 @aliess @Mrsmillie and everyone else on this thread.

Hope you are having a good weekend! @veestar that wig looks great! very natural. Not sure why the photos loaded upside down-same thing with mine! @louby_lou69 the attachable fringes are great under a hat-we can look like we have hair to all intents and purposes, which is quite reassuring. I feel a bit self conscious still in my wigs-they do take a bit of getting used to don't they? So the clip on fringes attached to a headband work for me with a hat or bandana on top. Wore the wig to my hospital appointment this week-we are all in the same boat there so it feels okay. Just another baldie trying to hide the fact! LOL! I have very little hair left now, falling out like mad and i can just pluck tufts out-no pain involved! Will be relieved when it is all gone, in a way, as the resulting mess will be gone too! My head felt sore until I had the buzz cut, so much better after. Must have been the weight of the remaining hair tugging on those damages follicles that makes it sore-really strange. Oncology nurse recommended moisturising scalp with a tea tree formualation so I found the moisturiser in the photo on Amazon. I think itwas about £7 so won't break the bank and would be good for any sore itchy areas as well as our heads! I keep getting dry patches on my face-unusual for me so just slapping moisturiser on night and morning.

AVoiding germs at the moment is an ordeal for all of us isn't it! My son who lives with his partner and 2 yr old daughter have all had a rotten cold, so I had to cancel my visit last weekend. Just can't risk catching anything with chemo looming next Wednesday. At least this time I won't be hyper for 3 days on steroids. I don't need em with my Abraxane. WooHoo! They play havoc with sleep and I was always hungry. Awake all night and needing snacks.It's potty! I WILL NEED anti nausea drugs though as it is more likely to make me sick-really hoping THAT doesn't happen, but no idea what to expect!

Have been managing to get my equine R&R every day, and managing to ride weather permitting so at least getting out in the fresh air every day and trying to lose the pounds that have somehow accumulated since my last weigh in. Had put over 2kg on in under 3 weeks! I will blame the steroids! Can't get too heavy for my pony. Top weight she can cope with is 9.5 stones including all tack and myself! I don't want to cause her any more problems as it has taken 2.5 years of continuous rehab to get her to where we are now-fimally trotting and having a little sneaky canter! She is loving it after months and months of walking in hand like an oversized pooch.

Sad this week as my poor little cat is reaching the end of the road. He had dental surgery 3rd Sept and vet found an inaccessible tumour in his face, above the top jaw, and under his eye. It is causing him issues now and I think I will have to have him PTS as I can't see him suffer. Not what I need to deal with with chemo as well. Everything happens at once!

Have a good weekend all. Jane.xFor our sore itchy bits!For our sore itchy bits!

louby_lou69
Member

Re: September 2021 Chemotherapy starters

veestar
Member

Re: September 2021 Chemotherapy starters

louby Lou . I love that fringe . It looks great on you . Do you mind me asking where you got your bangs from ?

veestar
Member

Re: September 2021 Chemotherapy starters

Morning ladies 

I m giving in today to the wig ..  upside down ! It says it all.. the wig is longer one side , LOL.  
my friends want to go on a bike ride today . Don’t think so 😂😂

image.jpg

CT2021
Member

Re: September 2021 Chemotherapy starters

Morning Ladies!

Your stories/chat etc cheering me up! 

I’m really struggling to avoid germs but have come to the conclusion that with primary age kids I just can’t avoid them. I have a cough and cold, but ok and temp ok as regularly checking. My 7 year old little girl Is extra clingy atm. Had a nightmare couple of weeks with Covid going round their classes and I was trying to physically keep away from her and she got so upset. Now I’ve had my booster jab over 2 weeks ago I feel less worried. I keep opening windows and just hoping for the best!

i have done a to do list today (mainly for the husband 🤣) so must be feeling better.

love to you all xxxxx

louby_lou69
Member

Re: September 2021 Chemotherapy starters

@aliess 

Its Rudyard Lake which is near Leek in the Staffordshire Moorlands. I walk there a lot. It's a circular route with a coffee place half way round and a pub at the end! 

I bought a stick in fringe for my woolly hat and it's a game changer. 
232B8E5F-5D3A-456A-9046-8ACB2CE1D982.jpeg

aliess
Member

Re: September 2021 Chemotherapy starters

@Mrsmillie 

Hi, yes I’m the same! Have lots of energy Saturday rush round trying to get as much as possible done. I’m not as flushed today but went to bed with sudocrem on my face as my eyes are sore and round my mouth also. Seems to do the trick! Also had red itchy hands last night. Once again sudocrem Daves the day 😂. I have a fringe piece ready and waiting 😉. Have a good productive day! 
💕

Mrsmillie
Member

Re: September 2021 Chemotherapy starters

Good morning everybody,

Like you @aliess I had number 6 of paclitaxel on Thursday, the longed for halfway 🎉🎈….always have the red flushed face on Friday but on plus side energy level is up so always try and get as many house chores done as poss before the ‘rougher’ days set in, usually Sunday/Monday. It’s definitely been a case of avoiding the colds doing the rounds at the mo, hubby had it last week and he was sent to spare room, taking no chances.

I’ve been cold capping and so far so good, it may sound petty but the thing I worried about most was losing my fringe! I did manage to find one on line that you can wear, sort of attached to head band so got that just in case!!

Hope everyone has a good weekend, hugs to all x

aliess
Member

Re: September 2021 Chemotherapy starters

Morning. @louby_lou69 @Somerset Bunny @veestar 

& all you other brave ladies. I just realised this morning, we are actually doing this! In the middle of all the appointments, arrangements etc we don’t stop to think how far we’ve come! We should all be super proud of that. 💪🏻 @louby_lou69  well done on the shave looking good! That scenery is gorgeous, where is that?  @Somerset Bunny @Glad you got some exercise last night 😂.
Pacli no 6 for me yesterday which is half way 🎉. Temp was up and down all week as everyone in our house also had a cold which I think I’ve been trying to fight off. With the help of yesterday’s steroids hopefully will be gone soon. These hot flushes are something else 🥵. 
I got up on Wednesday and decided to shave off the wisp. I just wanted to massage my sore head without the worry and distress of “there goes another Two handfuls” I’m  covering my head all the time now so not much point it being there. I didn’t do the fringe area though so clinging on to that. Also not feeling the wig at the moment. 
you’ll laugh but I’ve got a ruddy great crease in my forehead of which I’ve always been conscious. So I cut off some long pieces of hair and attempted to make a fringe piece. 
don’t know if it will work or last long 😂.

I did put some moisturiser on but have also been thinking about something specific so I’ll look into the moo goo, not heard of that. 
have a lovely weekend ladies 💕

Somerset Bunny
Member

Re: September 2021 Chemotherapy starters

Morning ladies

@louby_lou69 looking good lovely, and that scenery looks gorgeous. I think I might have to join you in braving the shave I didn’t realise quite how irritating loosing your hair could be! Loads of mine fell out yesterday, I will admit I did find it upsetting, and like you I am finding it uncomfortable at night even when I go to bed looking like Norah in my hair net!

Is anyone putting anything on their scalp in the way of moisturiser? My sis sent me some moo goo products, their oncology pack, wondering if anyone else has tried this? I keep asking the nurses but no one gives me an answer.

No heating on here yet and I am still sleeping with the windows open! Hubster is on our sofa bed downstairs keeping away from me as he has a cold, every chemo so far one of the buggers in this household, apart from me is poorly. I have to get friendly with the anti bac and bleach and keep my distance. You would all laugh though I awoke in the early hours to discover a worrying damp patch in the bed ….thankfully nothing from me the hot water bottle I used to ease tummy ache had leaked 😂😂! Turning a king size mattress at 3am did not do my various veins (a badge of honour inherited from pregnancy) any favours! Four other people in this house and not one of them heard me! 😂😂 ah well here’s to another day in paradise, start the injections today to boast the bone marrow production whoop de do 😂😂😂 roll on next Wednesday when I’ll be drug free for a few days. Hope you all have a fab weekend. Lots of love Sue xx

 

louby_lou69
Member

Re: September 2021 Chemotherapy starters

My heating has been on a bit today.

Shaved my head on Tuesday, well,y partner and son did. There was no tears, just laughter. My head was so sore, the buzz cut has eased it but it's coming out loads now. Lying on the pillow is uncomfortable.

Chemo #2 on Tuesday. Bring it on, then I'm getting closer to the end. 6017AA10-91DC-4783-AC8A-30D03F4D78B7.jpegAE220F4C-46CF-41C9-84C9-E8D91FF2E10A.jpeg

veestar
Member

Re: September 2021 Chemotherapy starters

Hello all,

Friday night and the heating is on, I m not sure how you all feel on chemo but one minute I am hot then I am cold!🤔 

I had no side effects this week from paxil, so that was good. 

ksg123 .. I am wearing a bobble hat all day long now, apart from at work, I m not feeling the love of wanting to wear my wig yet although my hair is so fine now, but I feel like I should be off to a party or a night out in  my wig. Which sadly I m not..

aliess.. great pic of your headscarf, my hair is sooo fine now. resisting the shave, my work colleagues want me to shave it off, I bet they wouldn't if it was them😂 

x

xx

 

 

ksg123
Member

Re: September 2021 Chemotherapy starters

@Somerset Bunny I'm glad today went better for you, small victories eh? 🙂

I need to start the wig shopping soon but not sure how I'm feeling about it really. Thought it wouldn't bother me in the grand scheme of things but I think it might...In the meantime I've bought a big chunky bobble hat from M&S - at least we have the blessing of it being 'hat weather' ! lol

Take care x

ksg123
Member

Re: September 2021 Chemotherapy starters

@amy46 Thank you for reaching out. I'm pinning my hopes on the weekly Taxol being better than the EC - I've got everything crossed for that! lol 

Thank you!

Take care x

 

Somerset Bunny
Member

Re: September 2021 Chemotherapy starters

@ksg123 I am on FEC-T, second one today went better than the first, I am home now and not feeling so zonked out but the weird taste is already back in my mouth 😳 I know the next few days will be playful to say the least, came back with yet more drugs, I reckon I'll rattle by Christmas and probably give Santas reindeers bells a run for the money 😂

I also had my wig fitting today and decided upon Erika, she a bit lighter and straighter than my own hair but that is probably a good thing. Told the ladies the only Erika I know of was Erika Roe the lass who bared her chest at a rugby match back in the eighties, told them that as my boobs are not very symmetrical post op that will not happen anytime soon 😂 Autistic son didn't seem to freaked out by it either which was a bonus.

 

I was in with a lady who has terminal liver cancer, only having chemo to help extend her life for fives years, I did make her giggle (I can be quite out spoken, what you see with me is what you get) especially when I was offered another one of the NHS delicious cheese sandwiches on white bread! Yuk!! Been there out of desperation once and never again!!! I had the hindsight to purchase a BLT from the hospital M and S food which made them all well jel.

Helped the chemo nurse I had was fab and was willing to chat, as some don't makes the experience a little more bearable. Anyways hoping I'll sleep well minus any hot flushes, look after yourselves all.

 

Lots of Love Sue x

 

amy46
Member

Re: September 2021 Chemotherapy starters

@ksg123  And @CT2021 

I started my chemo end of august but I sometimes post on the September thread too. I am also TN (god they should change that name!) but because they didn’t have the receptor state for her after the biopsy I had survey first. At the time I was pleased but one thing I will say is that you will at least know if chemo is working for you by doing it the other way round. I am now having 20 weeks of chemo without any clue as to whether it’s doing it’s job. I think in the long run you might be pleased although psychologically I can totally understand why it’s so hard at the moment. If you are having Paclitaxol and Carboplatin next I can also give you some hope as I really have found this very much better than I imagined. Week 9 tomorrow and I walked 7km this morning and ran 5km yesterday. If you can get through the EC I think you’ll find the next bit much better. I have the EC at the end for some reason! Just wanted to reach out and give you a bit of hope and something to feel positive about as there have been some amazing ladies on here who have done the same for me when I was feeling anxious and miserable Amy xx

ksg123
Member

Re: September 2021 Chemotherapy starters

Hello!

@CT2021 Lovely to have contact with someone on a similar journey to me! I'm managing to avoid the sniffles this far but teenagers are just as germy as the little ones I find! lol Son's had that horrible cough that's going round so he's been at arms length for sure!

I thought I was well prepared for this chemo business, positive thoughts blah de blah but as I sat there the first time and that stuff started being shoved into my arm I was suddenly overwhelmed....Rubbish isn't it?

Feeling quite sick, more so after the second treatment I think, and just playing around with which foods I can and can't eat. I always find I'm really restless after the treatment, would be happier if I felt tired and could sleep but nothing is relaxing - can't even face a cup of tea!

Are you having many side effects? I was thinking I'm quite fit, healthy etc etc it'll be a (relative) breeze but I just find myself wishing these next few months away and can't wait for it to be over! The holidays I'm planning in my head!! (not sure how I'm going to pay for them though...lol)

My lump is relatively sizeable too and hidden underneath - only found cos I often sleep on my stomach. I thought for weeks I had a lumpy mattress - didn't realise til I checked one night in bed that it was me that was lumpy!!!

You take care and try to keep positive. Reach out whenever you want or need it - I'm sure we both will xx

ksg123
Member

Re: September 2021 Chemotherapy starters

Hi There!

So lovely to get a reply, thank you for taking the time.

I hope all goes well for you today. Which treatment are you on? Sympathising and sending hugs for the coming week.. x

CT2021
Member

Re: September 2021 Chemotherapy starters

Hi ksg123

i started EC the same week and also TN. I’m ten days into second cycle and feeling sorry for myself!! Doesn’t help that have constant sniffles but unavoidable as 2 kids under ten so bringing germs from school all the time!

i need to work on my resilience and stop negative thoughts going round and round but it’s hard!! I have a large tumour and psychologically struggling with the fact doing chemo first. I understand it on level but struggle with it aswell!

love to all x

Somerset Bunny
Member

Re: September 2021 Chemotherapy starters

@ksg123 welcome my lovely.  I'd never written anything on a forum before either, and yes I find it good to talk to those going through the same experience, My chemo journey started just after you on the 29th September, second one today, if  it is anything like the first like you the week following I know I will not be that great, me and the recliner chair will once again become bessie mates 😂

My kids are just a bit older than yours  18, 21 and 23. They still worry and yes take the mick out of me especially now I am loosing my hair ...thank heavens for our sense of humour!

Lots of love Sue x

ksg123
Member

Re: September 2021 Chemotherapy starters

Hello there!

Sounds so similar to me. Started my EC on 22/9 but 3 weekly. Triple negative, had to have second biopsy following further indications on MRI - much of the same found.

My kids are 15 and 18 so older than yours and not quite so interested in putting stickers on my head (though I may suggest it! lol) 

By the date of your post you're into your treatment now, how are you finding it? I'm 2 sessions in, I find the first 5 days the worst. 

Would be nice to hear your experiences as we're having similar.

Take care

 

 

 

ksg123
Member

Re: September 2021 Chemotherapy starters

Hi,

That goes for me too - same regimen. Started on 22/9 this year. How are you finding it? I'm in the Triple Negative camp...

Never posted on a forum anywhere before but thought I'd give it a go as hoping it might help to chat..

x

 

Somerset Bunny
Member

Re: September 2021 Chemotherapy starters

@Magenta59 glad your treatment plan is back on track. I have to have three rounds of docetaxel after my three of FEC, this drug can give you tingling/ painful hands and feet and again think they can adjust the dose downwards if it becomes an issue, says in the blurb they gave me last physical appt (all others have been via phone) this should subside though once treatment has finished, I did catch up with a lady, when I last was on a visit to x ray who had finished chemo recently, she said to mention it to the onc if it's a problem. Proud of you for braving the shave, think I will get to this point eventually. I'll be honest it's easier for my lot to discover my fallout with it being longer, and give them something else to moan about 😂, wearing chemo caps and hair nets to keep it contained atm  xxxx

Magenta59
Member

Re: September 2021 Chemotherapy starters

Hi @Somerset Bunny @louby_lou69 @aliess and all you other lovely ladies!

Hope you are all having a good week despite your shedding hair! Mine was falling out everywhere so my daughter gave me a No4 last saturday. I have been shorn for over a week now, and it does make life easier! the shedding hair can now be contained by my headwear instead of ending up in my bed, on my clothes etc. I also picked up another wig today so have a choice now. And plenty of beanies!

Saw my Onc today and he has organised my new Abraxane treatment which will commence on the booked date next Wednesday 27th Oct. 5 more treatments in all, and hopefully no more allergic reactions! At least my blood counts should be okay due to not getting it last time! Have had an easy time of it really with only getting the Phesgo jab. Just a relief to know we are back on track! This drug is NAB Paclitaxel and can cause peripheral neuropathy among other things-he said if this becomes a problem, and clearly they don't want to cause us long-term damage, the dosage could be adjusted downwards so I'm not getting quite so much of the drug each time. Has anyone experienced this? Tingling and pain in hands and feet? It can get quite bad I believe! Don't want to end up incapacitated as I need to get back to work sometime and this could clearly cause a problem if it never goes away. Fingers crossed I am not going to be one of the unlucky ones! He also warned that in some cases your hair never grows back! OMG I do not want to be in wigs for ever! Lord what we have to endure!

Take care and big hugs to all. Jane.x

Somerset Bunny
Member

Re: September 2021 Chemotherapy starters

@aliess looking good there lovely, they sound fab and soft which makes all,the difference. I may have to pay a visit to Clarks Village and see if any are in the outlet. Yes my hair slightly red in colour, reckon it'll grow back grey though ha ha ...the stress of all this. It will be interesting to see what the wig lady comes up with tomorrow! I'll keep you posted xxxx

aliess
Member

Re: September 2021 Chemotherapy starters

@Somerset Bunny 

They do cover the whole head, you just roll and tuck at the back. It’s basically a tube of jersey. I see you’re also a redhead, I’ve had a bit of a job trying to find the right colour wig! 
you will know when the time is right. I just don’t feel I need to shave it if I can cover up. I’ll feel differently if and when the fringe goes. 

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Somerset Bunny
Member

Re: September 2021 Chemotherapy starters

@aliess loving those sea salt snoods (we have an outlet store near here I wonder if they would have them?) are they quite big,would they cover a whole head (thinking eventually here) I know what you mean about not being ready for a wig, my sis told me just to shave my head this morning but can't bring myself to do that just yet..... I will know when the time is right. Also it gives my austistic son time to adjust to the new look Mum. I have donned my chemo hats today to keep the falling hair contained as finding it everywhere is driving me nuts! xx

aliess
Member

Re: September 2021 Chemotherapy starters

@Somerset Bunny  Love it! 
Last week was horrific hair loss wise, I am now bald on top (I have a gorgeous comb over 😂) but clinging onto my fringe and sides. I don’t want to shave it as it has slowed the past couple of days. So you never know I may just keep my fringe 🤞🏻 I have some snoods from sea salt https://www.seasaltcornwall.com/handyband-printed-cotton-headband they have lots to choose from and you can wear them multiple ways. They don’t do plain so I’ve made my own using kids t shirts. I wore one to bed too they’re so comfy. Not quite ready in my head for the wig yet. I also bought a fringe on a band from headscarf’s by Ciara. 
plenty of options just choose what right for you. 
💕

 

Somerset Bunny
Member

Re: September 2021 Chemotherapy starters

@louby_lou69 my maternal grandma used to wear them to, I remember a blue one worn at bedtime to protect her curls after her weekly shampoo and set ...bless her...she was fab and I miss her even though she's been gone 20 years, she lived to 98 though.

Thank you for your kind words, we've all got to remain positive and support each other 😊 I am thankful for all you lovely ladies on here, we are all in the same boat and this journey we are on can be a very lonely one, especially in covid times . My humour is helping me get through this...apologies if it's slightly warped 😂. If your head is itchy you are probably on the verge of shedding as my scalp today has been sore and I've been wanting to scratch it, but I donned a scarf to prevent myself from going there. Dreading washing it tomorrow, and cleaning the shower drain after (with gloves on don't panic!). I've been keeping what's fallen out, I've decided to give it a burial/funeral in our garden, closure for me I guess. Husband thinks I've lost the plot. Doing this as I have a suspicion (and knowing my luck) it'll grow back grey and curly like it was in my teens..my worst nightmare!! xxx

louby_lou69
Member

Re: September 2021 Chemotherapy starters

@Somerset Bunny 

My grandma and mum always used a hairnet, can't beat em. 
My second chemo is fast approaching and my scalp is a bit sensitive and itchy. I always lose loads of hair anyway so not sure if it's quite shedding yet but it's getting close (I'm on day 18 since chemo).

Ive got turbans and scarves plus Wilma my wig ready. My partner is ready with his clippers, he shaves his head every 10 days so he's going to do it for me.

Love your positivity and smile 

Lou x

Somerset Bunny
Member

Re: September 2021 Chemotherapy starters

Norah Batty eat your heart outNorah Batty eat your heart outHello Ladies, 

Well it's finally starting to happen, I am shedding more hair than my ancient rabbit used to, and he moulted like a good un (god rest his soul). The hubster and kids unbeknown to me last night had a "find the hair" competition at the dinner table 😂, so I am thanking the lord that I used to ride horses (we are talking years ago here) but had the hindsight to keep the hair nets, this is no how I looked to do the sandwiches and breakfasts this morning....very Norah (no wrinkly stockings though!).

Round 2 Wednesday and I am containing my excitement, but atleast it will be another bitching (being polite here) one down. Onc just rang me (or rather one of her minions), not that I could hear him very well (he had an accent which made it harder to understand what he said on the phone), I think he said he was prescribing mouth wash and more drugs to help with the ensuing indigestion and constipation (honestly never thought I'd be putting this on a post on the net 😂).

Wet and horrid here today in Somerset, I'm off to do some baking in a bit, so that my tribe have stuff to eat when I am feeling pants and have to rest post chemo. Hope every one has a good week.

Lots of love Sue xx