Nutty- this is so positive, will perservere with cold cap. Hair now falling out where the cap didn't touch .... and prickling feeling all over. Good luck all with bloods/meds/SEs/wig-chomping puppies and so on .... Love Anna.
Just had call that I'm to go in an hour early and have bloods done again as they are too low. I'm really hacked off as I just want to get on with it and do not want delays! I realise that I will be really upset if I'm sent home!
I used the cold cap and fingers crossed but although I have shed a little more hair than usual it is not huge amounts, so I will keep going. I have been using baby shampoo, a little conditioner but only on the ends to make it easy to comb out with a wide tooth comb, every 2nd/3rd day, and use the lowest setting on the hairdryer and have been handling it very gently. I also have thin hair, but apparently lots of it.
The treadmill has been great - 2nd hand, £100, but worth every penny. I have used it every day, apart from the day after the first chemo, and am absolutely convinced that the exercise has helped me cope with the side effects. The doctor from the unit called on Friday when I was on it to see how I was and she laughed when I apologised for the noise before I could switch it off, and told me I was clearly fine and to keep doing it if I can - even if I can't run as far, or for as long, as my treatment progresses. For me this exercise started for the diabetes - I have now lost 7st 9 lbs and my HbC1a is 4.7 - which is more than half my body weight - and I went for the treadmill as I did not want to go outside or to a gym, as it was too public and too embarrassing for me. But I think that over the winter I'll be better safely indoors and not battling the weather. I realise I'm lucky, as this is still a lot of money and that some might not be able to afford it, but I bought it from Gumtree and there were cheaper ones. This one had been used to hang clothes on, and had only been used a dozen times, so seemed a good bargain. The hardest thing was getting it home, as it is SO heavy, and up all the stairs to our flat (I live in Edinburgh which has lots of tenements with stairs)! Don't think it is going anywhere soon!
Hope you are having a good SE-free day ladies - I'll let you know what happens to me today. I might be crying from frustration though. Warmest hugs. P xx
Hi Mel, I too have fine hair, although the nurse said I had a lot of hair. I'm trying to leave the washing for as long as I can. Its great that no one can tell you've been through chemo - thats what I'm hoping to do. The problem I had was the nurse looking after me wasn't very enthusiastic about it - but I really want to keep going as I've read that it can help the hair come back faster after. Thank you for dropping by - its so good to hear sucess stories xx
Morning Everyone – Hope you all had a good weekend. I’m on day 14 of T and I had a really normal weekend – went shopping with my daughter, went out for dinner yesterday. I’m feeling really good at the moment. What a difference a week makes as I spent all of the weekend before in bed feeling really rubbish.
After reading about PaulS success on her treadmill I think I’m going to get one. Before this I was running a couple of times a week, I have been out for a slow jog a couple of times since but I thought as the weather is turning and I can’t image I will want to be running out in the cold this year - I thought the treadmill will be the best option for me. I’m used to doing at least 10,000 steps a day but really don’t think I’ve managed that on many days in the last few weeks! So even when I’m feeling rubbish – I can hopefully just go and walk for 5 minutes or so – well that’s the plan anyway. Do you have any recommendations?
My little lump is definatley going - I’m having trouble finding it now – I can’t believe how quickly this has happened. I still have hair – it has started to shed more now. Just wondering how many times a week other cold cappers are washing theirs? And are you washing with cold water? When I have washed mine I’ve stood under the shower in the cold but now the weather is changing I’m thinking I might have to change this.
Hope you all have a lovely SE free day xx
Oh goodness, puppy attack! I will have to watch those naughty kittens, they get to the letterbox with a gleam in their eyes and teeeth bared, Lord knows what they'd do with a lace front wig, it sounds so dainty, quite the Jane Austen model ....Thanks for your great replies Beamers. Hope you have a great evening (Downton hurrah!) and get lots of well-earned sleep. Love Anna
Anna - my puppy LOVES stealing my wigs so beware with your kittens! I have two, one was human hair and cost £400 but it feels/looks beautiful and I have a cheaper synthetic one for work/casual wear which was about £150. Puppy enjoys them both equally! Emma x
Helooooo, isn't it a great day???? I got the Browzings eyebrow set from Benefit - little palette with dark wax you brush on and then powder up with toning powder. Cost £23. My friend with (total) alopecia uses the kit and you honestly can't tell that her brows are drawn on .... As for wigs, I haven't had the courage to get one yet. What have you gone for Beamers? Remy hair lace cap expensive or vinyl budget? What to do? Also I'm amused at the idea that my very naughty kittens would love a wig - to shred! They can't resist anything with fringe or dangly bits, and the thought of them running round the house with a £500 wig in their chops is pretty hilarious! Might save the money and go with the beanie/bandana plus false fringe combos. Hair comimg out in handfuls at base of head , where cap doesn't reach. Good luck with upcoming chemos and here's to SEs getting under control or fecking off altogether. Hope none of you come down with the sniffles, I've banished snivelling husband to spare room whilst I'm in the 'danger' week. Good strength and lots of love, Anna.
So sorry you've had such horrendous sickness Peegee, I only have waves of nausea and v little actual puking. The Metroclopromide holds it off, but I have to take it rigorously. Thanks for the heat pad idea - aches so bad today. My good pal who is on cycle 4 hasn't found her SEs getting any worse each time, so hopefully some of us will be similarly lucky .... Have a good evening and take care of any colds that are around us ... husband hacking and snivelling tonight. Agghhhhhhhh. Anna.
Hi there, I feel like I have HAD huge chemo. Bones all aching today ... white cells dying off? Boy this stuff gets everywhere. Anyone lese got aching hair? it's so wierd. Love to you all, Anna.
Hi Murphy, I'm day 9 of 1XFEC (5 to go), so we are at the same stage ... lots of Beamers are a bit ahead, which is great as they can give us the heads-up of what's to come. To protect against acid reflux they gave me Omeprazole (didn't get on with Lansoprazole, it gave me gastritis). Tummy protector important on the steroid days, as appararently steroids can damage the tum. Have they given you Omeprazole?
Another question to all - has anyone used anasthetic cream (Emla) prior to cannulation? They used it on my daughter when she was tiny, and she didn't feel a thing .... have bought a tube (£3.76 Boots), and will ask if they might be kind enough to help me as I am a huge baby with needles. Love Anna
I had my bloods and clinic today before my second FEC, all fine, doctor said its worth giving cold cap another go on Monday as I still have some hair left (although much thinner!) so really hoping it might ease off on the shedding. I gave my wig its first public outing with friends yesterday, really great response so I braved it again at work today. It's actually really nice to look in the mirror and see a full head of hair again!
I have been given Emend for nausea as suffered pretty badly last time, has anyone else tried it? Doctor said it was 'the good stuff' so feeling optimistic!
Hope everyone has the best possible weekend!
Hello dear Beamies, so good to read all of your great advice, moans, breakthroughs and progress. How amazing are we? So sorry if I sound like a Country Singer, I do tend when I care about things ... So here's to kicking cancer's sorry, misguided ass, feeling the chemo go attack! attack!, listening to our incredible kids, enjoying delicious curry and noodles, walking without wigs slipping, not having diarrohoea in ASDA (sorry to be gross, it was truly appalling) enjoying oodles of saliva (real or synthetic ... gross again) and just getting on with it. Whatever IT throws at us. Have a fecking nice day, love Anna.
Whitfield - you can say whatever you like here! We must all feel we can. But we need to be positive as well when we can and look to the future because our outlook really has an impact on how well we do overall! So pleased to hear your tumour is shrinking and that your scans were clear. Mine were too, and it is such a relief, I know, and we are so lucky they are and that is such good and positive news.
Take care and have a good day.
Best P xx
If we can't moan here then where can we moan! There are so many things that I can say here that I can't/won't say to close family and friends. So go for it ladies! Get it off your chest (did you like the pun?). Sorry.
Re mortality - we are all mortal! I said to my surgeon that this had been a hellish year for me - diabetes, eye surgery and now I have breast cancer, and he said - 'You do NOT have breast cancer now! I have done my job with the two surgeries and removed it, so do not think like that! The chemo and radiotherapies are to make sure no rogue cells have escaped' Get through this next bit then get on with your life! And take the drugs for 10 years'. We need to be positive and not go through all this and then waste it with worrying and lots negative thoughts. I know it is hard, but we must do this as otherwise what is the point of it all? So, moan all you want through chemo and radio, and about hair and everything else, but after that it is the rest of our lives and I for one plan to live it to the full as healthily and as productively as possible. You sound a lovely bunch of women who are having a hard time but it will end and it will get better for us and we can meet and share and enjoy things again. That's the plan!!!!!! My oldest friend is now in year 13 post BC and is just great and I plan to be just like her.
Hope you all have a great SE free day. P xx