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Starting Chemo in December.2012

Shazzaboro
Member

Re: Starting Chemo in December.

Hi coyotegi, just popped in from the November thread. The shampoo you can get from Boots is Naked. It has a mild shampoo and conditioner for sensitive scalps

Shazzaboro x
Caroline60
Member

Re: Starting Chemo in December.

Hi Ladies, I still have my drain in nearly 3 weeks on. I now call it the pain in the a.se. Its so bloody frustrating. I spoke to the discharge nurse who visits and she told me as a result of having stratis - it can take 2 week minium. So fingers crossed - maybe this week.
I had a s.it I am going to have Chemo - moment - it gave me the hebe gebies.
Shaz1234
Member

Re: Starting Chemo in December.

Hi Christmas Crackers, i hope your all well (as well as can be).
COYOTEGI i start my Chemo on the 19th as well. 4 FEC and 4 T. I really don't know whether to do the cold cap or not. They want to shrink my cancer and hopefully just have a lumpectomy next year. Yes i had the flu jab too. Xx
MAIRE how are you today? you seem to be coping very well so far. Xx
LOLLY123 i hope all goes well on the 5th, take careXx
Good luck to everyone else having appointments and Chemo soon. Xx

Love Sharon Xx
coyotegi
Member

Re: Starting Chemo in December.

hi there , need to join you ladies as my chemo starts on 19th dec, 3 lots of FEC then 3 lots docetaxel. whilst not that bothered about my hair thought i would try the cold cap. I have read to use the shampoo range from boots except now i cant remember the name! Oh and i had mx and deip on 17th sept. so been quite a wait for chemo which has been soooo frustrating. have to say the reconstruction was a breeze, the tummy tuck has been the painfull/uncomfortable bit and that was the bit i thought was the silver lining. lol
have many had the flu jab? i am always offered it because i have asthma but never bother with it. no Dr has suggested it to me, but the more posts i read the more i think that no two hospitals give the same advise, treatment etc. sorry first post and a bvit of a rant.
lolly123
Member

Re: Starting Chemo in December.

hi christmas crackers,
got mixed emotions at the moment, i have an appointment on wed 5th to see oncologyst to see what treatment i will need, i have clear margin and clear lymph nodes, but grade 3 and 22mm big, but still sore under arm, i was only working half days last week as was still a bit emotional ,and sore , when i got my results which i feel where pretty good considering, i was about to go home for my half day and one of my collegues said "why are you going home your not sick anymore", i felt such a fraud, as im not sick ,but sore, some people dont say the right things sometime, im sure she was only being funny, but it really upset me.
just wanted to get that of my chest, hope you are all coping & good luck to you all.

lolly
x
Maire
Member

Re: Starting Chemo in December.

Hi folks. Day 3 today and nauseau has def subsided but have been feeling a bit jittery. To be honest I think this is mostly psychological. I just hate the thought of what might be happening inside. On the plus side I've done 2 washings, driven a bit, walked to and from shops-skittering about on the ice a little. Doing bits and bobs def. helps. As does eating. I got up late so ended up not having lunch till 3 p.m. Too late! After that I felt quite a bit better. I don't want to post anything negative but want to be realistic too.
So far so good. Part of the journey is getting used to feeling a bit odd. I thought I'd be laid up in bed and that's not the case. So good luck crackers-we'll make it through!

Cybele
Member

Re: Starting Chemo in December.

Hi all,
I made a couple of posts on the November thread, but I'm not starting chemo until a week on Tuesday - Dec 11th - so I guess this thread is where I belong!
I was completely freaking out about having chemo, but after delaying it for a month, and having some time to calm down with no hospital appointments, am feeling a lot better mentally and physically (I had WLE in October, margins clear but one micrometastasis on SLN, hence chemo) and am now ready to face the chemo - or as ready as I'll ever be.
I just want to get the first one over now - I think the fear before you start is probably the worst thing.
I'd like to thank everyone who has posted tips for getting through chemo, especially jellytot and revcat with their detailed guides - I have been assiduously taking notes, and collecting mouthwash, gel for mouth ulcers, children's toothbrush, PIC line cover etc etc in a big 'chemo bag', so I'm as prepared as I can be for the side effects that may happen.
I'm going t otry the cold cap - I met a woman at the Haven this week who had thinnnish, fine hair like mine, and kept it with the cold cap. She said she had been MASSIVELY stressed about doing chemo, to the point where she made herself ill, but she found to her surprise that she tolerated it quite well, and said it was much like having the flu (she had 3 FEC 3 T)
She also reminded me that you don't feel terrible ALL the time - that for at least one week in the 21 day cycle you should feel pretty much OK.
I found all this very comforting - fingers crossed it won't be TOO bad.
Good luck to you all, and here's to next spring - by which time we will all have finished chemo, be putting it behind us, and getting on with our lives!
shellebelle
Member

Re: Starting Chemo in December.

Hello there Christmas Crackers!
I thought I was quite well until I went in to see my GP a few months ago and just mentioned one or two things, like you do once in a blue moon........it's been non stop since!
Very briefly, after initial scans/biopsy, had WLE & SNB with no clear margins & SNB positive. MX followed and confirmed Grade 3, 30mm IDC with DCIS surrounding, ER+ 8/ PR+ 8 (greedy thing is stuffing it's face off my hormones). Nodes 3/14 positive and vascular invasion, so now Chemo. 3 x EC and 3 x Docetaxel starting 10th December. Christmas may not be quite the same this year, but hey ho!
During all this, I had to have a 'suspicious' mole removed from my back week after MX but thankfully that turned out to be just a 'suspicious' mole! What's one more scar anyway?
Not to do things by half, I'm now on BP tablets, statins for High Cholesterol as well as lansoperazole for excess stomach acid - basically I'm a pill popper these days and soon to be filtered through with toxic chemicals, beamed with radiation and de-hormoned for a few years.
There's only one way, and that's to keep going!
Good luck to everyone
Jus
Member

Re: Starting Chemo in December.

Hi All,
Haven't been on site for a couple of days so have just spent last half hour catching up with what you have all been up to. Happy Birthday! Marie and Caroline 60, hope you had a good one and were treated to lots of nice things from your loved ones.
Marie and Shawshankredemption - I hope you are still feeling ok after your chemo yesterday, your posts have alayed some of my fears about starting chemo next week.
Black Swan - Have you had your first chemo yet?I really feel for you not knowing a firm date. It's hard enough to get your head together when you do know exactly when it's starting.
Cressida - I'm so sorry you are going through chemo again. You do sound like a strong person though so I'm sure you'll get through it.
Jellytot83 - Thanks for the tips on chemo and your blog. I have bookmarked it and am sure I'll refer back to it when I need to.
I have been to have my flu jab and had a MUGA (heart scan) prior to starting my chemo, and results were fine. Am still not sure which chemo I'm starting on as am going to be part of a trial. I may be starting on Docetaxel and Avastin or may start with Epirubicin and cyclophosphomide. My oncologist has also agreed to give me a CT scan on Tuesday- she isn't expecting it to show up anything and hopefully it will put my mind at rest that it hasn't spread anywhere else. I've also made an appointment to have my long thick hair cut into a short bob. Am hoping this will allow a really good contact with the cold cap.
Hope everyone else is keeping cheerful,
Jus xxx
shawshankredem
Member

Re: Starting Chemo in December.

thanks cress
am scared to wash it think il leave it couple more days no ons gonna c it not of anywhere iv got boots naked shampoo n con 4 sensative scalp might get the simple range next time nwe it had to b natural ph balance n i had it cut shortel last week only to shoulder couldt bring my self to go shorterim def gonna keep using the cap through rest of treatment 1 down 5 to go ther the bloody radio thanks 4 the quick reply x

thanks jelly
ill have a look x

ps hope youre both doin ok n all ytreatments goin well x
sue x
jellytot83
Member

Re: Starting Chemo in December.

Hi Ladies,

Just wanted to wish you all well and lots of love and luck for your chemo journey.

I had kept a blog throughout mine and just did a post about my top tips to get through chemo, have a read just in case it's of use to you: http://thelittlestjojo.blogspot.co.uk/2012/11/top-tips-for-getting-through-chemo.html

Love & best wishes,

Jelly xx
Cressida
Member

Re: Starting Chemo in December.

Hi Shawshank,

I wrote you a fabulous and informative reply that would have made you and everyone else feel better but it has disappeared...

Anyway - I used simple shampoo and cond. Once a week. Do not wash it for 24 hours after chemo. Do not dry, use straighteners etc or use anything else at all, no sprays etc. Some people did use other products but I did not. Have it cut to a shorter style, not cropped or thinned out in any way - tell your hairdresser - they always have a friend who had chemo (everyone does) so they do know. Comb out the tangles gently whilst the conditioner is on. Hair will keep coming out. Don't panic, my hair came out in what seemed like handfuls when I washed it but I still had enough. At this time of year they have much nicer hats then when I had FEC-T but I found a nice wide headband covers up the greasy unwashed look and any baldy bits. I had my chemo on Thursdays and washed it on Sat morning so I had the nicest hair at the weekend.

Good luck and remember it is up to you whether to persevere or not. Stop if you want to but carry on if you want to. Don't let any busy nurse persaude you to give up. This is one of the very few things you can control so make sure it is you who decides.

Cress, xxx
shawshankredem
Member

Re: Starting Chemo in December.

hi all u crackers
first chemo over with yesday went ok feelin little bit sick but not too bad n im tryin to drink loads n im takin the tabs they give us 4 this even gave me sum domperidone........ well it is my birthday..... unfortunatley this is in tab form too lol oh well
Caroline60 happy birthday hope u have a realy great day n get spoilt rotten u deserve to x
Maire glad u also get through first chemo with no probs hope yr feelin ok today x
Jellymold did u start to use the mouth wash straight away or wait 4 sore mouth not sure now wat i got told but seem to think they said wait til mouth starts to tingle dos this seem right x
Shaz im also havin fec-t but im havin 6 3 of each x
Polly good luck with yr next surgery hope it all gos well x
Funki sorry to hear yr havin such a tough time at min mines dif to yourse had single mast with imediate recon but nodes were also affected had 15 removed 11 were affected also been goin 4 scans over last few weeks body, bone, heart there really not bad u just lay there n to machine dos the rest please try not to worryabout them easy to say i no i had first fec-t chemo yesday just hopin the coldcap works the lady next to me was on her 5 sycle n said shed kept her hair so heres hoping fingers crossed x
Blackswan tell them to get there selfs sorted out like u need this added stress its so not on hope u manage to get things sorted soon x
Shelly im tryin coldcap first one yesday it slowly gets colder n painful after first 20 mins or so but its a put up able kind of pain n if u feel like givin up try not to as it dos wear of it may start to feel colder again on n of but its doable n def worth it if it can save yr hair n i feel ok to day little bit of a nigglin headach but not too bad n dont no if this is cos of cap or or the bloody shit they put inside us hope u give it a go with good results lady next to me was on 5th cycle n had kept hers so hears hopin x
Butterfly Dawn hope yr arm starts to get better soon i no exactly wat yr mean mine is the same its been 7 weeks on mon since single masr recon n 15 lymphnodes remover so supose its stil early really x
Cress welcome so sorry u had to re join but everyone will help u through it x
Jayne im also havin FEC-T first one yesday so thanks for the advice hope yourse continues to go well x
Amd 66 ivbeen suckin on mints today had first FEC yest x
Sharon id def say try the coldcap if u decide u dont like it they can take it off but its got to b worth a try were gonna lose our hair anyway so if theres a chance u can keep it id say go for it glad i tried it wil def keep using it x
Cress glad cap worked 4 u im keepin my fingers crossed it dos 4 me how many days b4 chemo did u wash it n how many days after did u wait to wash it n how often in between also what shampoo n conditioner did u use please x
Maire
Member

Re: Starting Chemo in December.

Oops-Just lost my post.
Here goes again. Yesterday was fine. Felt a bit of nausea at dinner time but went to bed for a bit-snoozed-got up-got a bucket-took pills went back to bed and slept soundly albeit with a grumbling tummy acc. to husband. Wasn't sick and feel ok today. Took more pills and walked daughter to school, shopped, wrapped some pressies and am about to put washing out. Very cold here (-5c) so washing will be very stiff but want some freshness in my sheets!
Feel really ok today so hope that perks up those waiting in the wings.
Destiny, I just turn away at the needle part. I felt a wee bit light headed but it passed. After that I felt nothing other than the shivers. It'll be fine for you. Just think happy thoughts, get a wee happy tune in your head. Think about all the treats instore. Even if Christmas is challenging we can still treat ourselves to something that makes us happy.
I didn't try the cold cap because none of the nurses seemed especially keen and I do think they can't really be bothered with the faff but I probably would've struggled with the cold (and I'm usually the first one to open all the windows because I loathe being too hot). The high heidyin nurse said it prob wouldn't work for me anyway. So going to visit the wiggy woo shop on Monday.
Am just wondering what my chemo song will be. Will need something playing along in my head to get me through the worry. So far "This girl is on fire" the new Alicia Keyes is buzzing about I there but not sure if it's the one yet!

Cressida
Member

Re: Starting Chemo in December.

Hi Destiny, Shaz, Marie and everyone,

I can tell you that the cold cap can work as I had it last time. Some chemo nurses are very negative about it as it is more work for them and takes longer so you are there blocking a needed chair. But that is not your concern - if you want to try it go for it. I had a good result even though one nurse told me it would definitly not work. My hair thinned, bits fell out all the time but I never went bald and I only needed hats and wide head bands, no wig. It means that mine has thickend up post chemo much quicker than my chemo buddies. There are lots of threads on here about it. Main advice is to make sure the cap fits tightly all over. If it is not in contact with part of your head then that bit will go bald. When I first put it on I found it painful and was about to give up, but I am stubborn and stuck it out. After about 20 mins it is fine - you are basically numb! If you want it, then insist they take the time to do it properly.

Cress, xxx
Destiny979
Member

Re: Starting Chemo in December.

Hi Maire
Glad it all went well......easing my mind a little as my first one is due on the 5th so a little bit nervous.....due to the fact I dont like needles anyway ! I had to laugh when you said you jumped behind a bush to go pee - I hope this doesnt happen to me , my hospital is right on a main road !!! my dear dad is going to sit with me bless him, he may have to sit on me to get me to do it at this rate ! just telling myself have to have it,got to do it no other choice - sure once I get the first one over wont be such a worry as I will know what to expect.....are you trying the cold cap ?- I have asked about this for myself , the nurse informed me that it has between 70-90 % success rate so I am going to give it a go and see if it will help in some way- good to know you are feeling ok with it,makes me feel maybe I can be a bit stronger in getting this next stage now - Cressida , I really feel for you having to go through it all again but something tells me you are a tough cookie and you will be more then ok getting through this -as for you other ladies Shawshank and Shazza,anyone else I may have missed out - sorry ladies......I hope you are all keeeping well - still kicking arse - stay strong - Lots of love to you all xxxx

Shelley x
Shaz1234
Member

Re: Starting Chemo in December.

Hi Maire i am so pleased all went well today, and the fact that your carried on to be good. I hope you have another good day tomorrow Xx Did you have the Cold Cap? I really don't know whether to try that or not! Take care of your self the next few days.
Cressida i am so sorry to hear you have got to go through Chemo again. They are giving me Chemo first to shrink the cancer.
Blackswan I am also having chemo first then surgery. I really hope you had yours today.
Shawshank i hope things went well for you today.
SNB tuesday 4th and
My chemo starts on the 19th!
Good luck everyone
keep smiling
Sharon Xx
amd66
Member

Re: Starting Chemo in December.

just popping in from september sapphires, hope all of you do okay.
my little hint was to take mints with me with fec, but I found lemon sherbets nicer, only one part of the cocktail might make mouth taste metallic or weird.
lots of love
anne xxx
Jayne_m
Member

Re: Starting Chemo in December.

Hi Marie - I'm just popping in from the Pumkins...
I found that the C part of FEC can make you feel a bit strange while it is beign administered so after two rounds I aksed if it could be given more slowly. They now administer it over 30 mins instead of 15 and I have had not problems at all. Its worth mentioning it and asking. I hope you continue to feel ok, I had FEC 4 today and feel tired but ok.

Jayne xx
Maire
Member

Re: Starting Chemo in December.

Welcome Cressida. Hope your 2nd lot of chemo hits the mark. Sorry to hear you're going through it all agian.

Maire
Member

Re: Starting Chemo in December.

Wee update. No sickness at all. In fact feel fine.
One word of caution-be prepared for lots of toilet visits. Don't know if it was the gallons of liquid I consumed or an effect of one of the drugs ("can irritate bladder" apparently) but I had to nip behind a bush when going for a walk. What a relief that was!
Off to pick up kids. Feel fine to drive.
Hope this helps those of you worrying about day 1.

Cressida
Member

Re: Starting Chemo in December.

Hi Chemo Crackers,

Can I join you? I am slightly out on a limb as I have already had chemo (FEC-T) but my cancer did not care and got bigger so I had a mastectomy and now I have to have some more, different chemo (GemCarbo). This is very unusual so don't panic and think it might happen to you; I asked my onc how often she does this and she said about 5 times altogether in her career. But, it does mean that I am starting chemo again, even though I do not have evidence of secondaries, so I would like to join you. I didn't do the forum thing last time - I just kept my head down and tried to get through, but I think I will need support to do it all again.

I've just been told by the chemo unit that my first session will be on 13th December. So the chemo fairy is coming for Christmas. Oh joy.

Cress. xxx
Maire
Member

Re: Starting Chemo in December.

I too work with pre school children. CP. I'm going to really miss them. A lovely parent gave me a hug yestarday and said "God is with you" and I started blubbing. Absolutely the last thing I wanted to do. One of the kids said "Why has your nose gone red?" It's those wee honest gems I'm going to miss.
Had my first chemo and am now back home about to eat lunch. I was a good girl and drank tons of water throughout. Have already had 2 lots of pink pee!
So far I'm ok. Am being a good girl (again) and taking anti sickness medicine.
I did have a wee bit of a reaction and started shaking all over during admin of drugs but I think it was the cold. I felt pathetic and then had a wee teary moment. I was a bit anxious but nothing major. I really do think I wasn't wrapped up enough and the drugs going into my veins were cold. So my advice is, wear lots of layers and if you're offered a hot drink take it. I stopped shaking just after the last drug went in and I had had a few mouthfuls of tea. It stopped pretty suddenly-so am guessing it was just a wee minor reaction.
There were lots of other women in chatting about wigs etc so quite a companiable wee place. The staff. of course, were lovely!

butterfly7
Member

Re: Starting Chemo in December.

Good luck Maire and Shawshank for today xxx

Well its been exactly 2 weeks since my WLE and ANC. Gradually getting more movement back in my arm but still have a lot of numbness in underarm and a lot of sensitivity down my arm, which makes pulling on a sleeve or putting my coat on a bit painful!! Very anxious to get results from the op but my appointment is not until the 14th December. I am starting to miss work too, I work as a teaching assistant in the Nursery of a Primary School and the children I mainly work with are those with special needs and those on the autistic spectrum and I love my job. Its harder because I have to go there every day to take two of my children who attend the mainstream school there. I've been getting funny looks from a lot of the parents wondering why I'm not at work and those who are brave enough actually say "not working today" to which I simply reply "no, not today". As my chemo probably wont start until mid January I'm thinking of going back to work in couple of weeks just for a couple of afternoons a week. I was a stay at home mum for 11 years until 3 years ago when I re-trained in childcare and can't believe I would rather be at work than at home lol. I think its because at the moment I do not feel ill and am a bit uncomfortable with all the attention and constant texts and phonecalls asking if I'm ok. I must sound very ungrateful, I really do appreciate all my friends and family rallying round and all the offers of help, and I know in the weeks to come I will be in desperate need of their help but I sometimes just feel a bit suffocated by it all. I should count myself lucky as I know not everyone has that support so I have just given myself a stern talking to lol.

Dawn
xx
Destiny979
Member

Re: Starting Chemo in December.

good luck to those that are starting chemo in the next day or so......been given my first session date which is the 5th dec, bit nervous as I am not a great lover of needles but its gotta be done ! I will be having 6 sessions in all FEC-T and docetaxel , I am going to give the co;d cap treatment a whirl...see how that goes-got to meet 2 lovely ladies on the ward on wed that were sat there having it-looked like two horse jockeys sat there......! the caps were nothing like I imagined (I kept thinking of the deep blue sea divers caps - the nurses thought this amusing... ! ) and they came in a pretty shade of pink......the ladies seemed ok sat there happily chatting away to me - advised me to take painkillers beforehand as it can be uncomfortable to start with , to wrap up warm as you will feel cold and to have plenty of hot drinks on the go.so treatment plan is _
6 sessions of chemo
another op as there is one margin that was quite tight from the first and so they want to be sure they definately got it all as my lymph nodes were affected , I am classed as a grade III - thats why chemo is advised because of my age 36 - as the consultants put it just added insurance to make sure I dont get this sod back again.....
5 wks of radio - no meds needed afterwards
so yes I am a bit nervous as some of you are aware by now I hate needles so that doesnt thrill me in the least but nurses did say see how 1st session goes and see if possibility of a port being placed may be easier (more for them I think !!! ) half of me is I dont really want to be doing this but the stronger half is saying got to - havent a choice.....so despite how ever nervous I may feel , just want to get this show on the road now - see the light at the end of the tunnel and get on with living life again.......I know with one anothers support on here us ladies will be more then just ok so chin up,stay strong and keep smiling - good luck again for those starting chemo any day now - big hugs to you all xxxx

Shelley x
Maire
Member

Re: Starting Chemo in December.

Polly-enjoy the chocolates. Goos luck for your next surgery. I had to go back for more too but 2nd time they got it all and it was much easier than the first surgery.

polly_1
Member

Re: Starting Chemo in December.

Hi, finally got my results today.
I have a mix of invasive lobular and invasive ductal in the same tumor, biopsy just showed lobular so news to me. Apparently uncommon (oh great!) but treatment is the same. 26mm, grade 2, not fully clear margins, ER+, HER- and 2 out of 3 nodes affected. So Hi Ho, Hi Ho it's back to surgery I go for another WLE and ANC. Then another wait for results.
Maire & Shawshank, best of luck with your first chemo. xx
Blackswan, that's so unfair that your being messed about so much. I hope it goes ahead tomorrow and it goes well for you. x
Anyway I'm off to pig out on some more chocolate , don't care if I get fat!
BlackSwan
Member

Re: Starting Chemo in December.

I am supposed to be having Neoadjuvant Chemo ie chemo first and then surgery.
The chemo was supposed to start last week, then it was scheduled last Tues, then it was re-scheduled to start today, and the last I heard it on tomorrow instead, but someone was supposed to phone today to confirm.
No one phoned (and no one phoned the last times it was re-scheduled), so I'll just have to travel in tomorrow to find out if it is on or not. Don't know why hospitals have these information black-outs. Perhaps they think mega-stress is good for you? How hard can it be to phone?
Not sure if I should come in early in case they want to tests? With the information blackout, I've got no idea if any are required.
Maire
Member

Re: Starting Chemo in December.

Had my clinic appointment today and I'm feeling a bit better about things. The staff have seen so many of us I feel safe in their hands.
Got my wig token too!
haven't got round to drinking loads of water yet. Maybe later. Will def be sipping all day tomorrow.
Funki-sorry to hear your news but chances are there won't be any spread. I hope the scans put your mind at rest. I knoiw what you mean about the head spinning thing. You get some scary moments. The only thing I can advise is a stiff drink and a good night's sleep.
Shaz I'm getting similar treatment to you, but 3 and 3 rather than 4 and 4. Also getting herceptin. Going to be a long journey.
Shawshank-good luck to both of us tomorrow. I'm in first thing at 9a.m. and the nurse assured me I shouldn't be sick. She said if I throw up, call the doctor right away to get an anti sickness injection.
Jelly mould-Thanks for the tips. It's nice to know the Nov ladies are keeping an eye on us.

Funkilala
Member

Re: Starting Chemo in December.

Hi Caroline 60!
Re Visit with BC nurse. Gosh this seems like weeks away now lol It went Ok and she took some fluid off. It didnt make any difference to pain but it's Ok now and the fluid that has come back is staying there until the body reabsorbs it

I have far more on my plate now 😞 I got my results today from my Lumpectomy and Sentinel node biopsy. The good news is they managed to get the lump out with clear margins, The bad news is there were signs of cancer in the sentinel node and 3/5 of the lymph nodes.
I'm in a bit of a mess as although my husband came with me for the results and stayed with me all afternoon he has had to go back to work now for a few hours and im on my own and although im OK my head is spinning
My surgeon said he wants to do some more scans to see if it has gone anywhere else first and then depending on the results of those scans he will tell me what comes next. I think it means that if the scans are clear then he will go back in and remove all the nodes and then depending on how many are affected may or may not do chemo. If it has spread to other organs or my bones they wont bother with the node clearance and just go straight to chemo. Im so confused and cant take it all in. I want to just focus on getting the scans first and the results but I have so many what ifs
Do you or any of the other lovely December ladies have any thoughts or advice please?
Do you think I should post this in the waiting for results section?
Funki x x
Caroline60
Member

Re: Starting Chemo in December.

Hi Funki, yes I would put this in the waiting for results section - you usually find someone who has gone through the same experience. Please be kind to yourself. If your consultant says it is treatable then it is.
Caroline60
Member

Re: Starting Chemo in December.

Good luck to all who are having Chemo tomorrow.
lolly123
Member

Re: Starting Chemo in December.

hi polly, how was your results today ?
Caroline60
Member

Re: Starting Chemo in December.

HI all, Iv just back from the hospital regarding results. They removed 17 nodes 3 were positive. Im also HER2 positive er and pr negative. So will definately be joining you in Dec Chemo. Will be having Herceptin, chemo and rads. I was so scared of tripple diagnosis - but was told this is also treatable.

I shouldnt feel so happy - but happy re ouitcome given the curcumstances.
lolly123
Member

Re: Starting Chemo in December.

hi just though i would share my news, been to get my results of the lump & lymph removal, they got all the cancer out i had a 2mm clearance, and it hasnt spread to my lymph nodes which i good news, the lump was 22mm big and grade 3 so i have to see the oncolgist next wednesday to see what treatment i will have to have, i know i have to have radio, and am likely to have chemo, but still feel very pleased that they got it all and i hasnt spread.
wish you all the best if you are having chemo tomorrow or results x
lolly x
Shaz1234
Member

Re: Starting Chemo in December.

Hi Ladies i am off to the Chemo ward today to find out my Chemo starting date. I was at the Cancer unit Monday i now know what drugs i shall be on i am having 8 sesions of FEC-T (4xFEC then 4xT) Plus Herceptin. This is pre op to shrink my cancer before the lumpectomy.
Good luck Maire with your first Chemo tomorrow. Xx
Good luck to Sue with your frist Chemo tomorrow Xx
Goodluck to anyone else Xx
Shron Xx
KEEP SMILING Xx
jellymould
Member

Re: Starting Chemo in December.

good morning christmas crackers im mand from the sparklers, just popping in to say a big hello and good luck to you as you start your journey. there are some great tips for getting through but one of the main ones that pops up alot is drink lots of water before, during and after it somehow helps to flush it through your system. i did and apart from having a couple of days feeling yucky was fine. oral thrush and mouth ulcers is another, at the 1st sign of thrush go to docs they will give you nystatin goes in a couple of days and keep your mouth clean and use the mouth wash. any way hope this helps, lots of hugs and good luck wishes. xxx
Maire
Member

Re: Starting Chemo in December.

Yes Chemo tomorrow. Going to see the nurse today. Not feeling 100%. Feel a bit of nausea and am getting mild twinge in my left side. finding it hard to sleep.
I've been coping well up to now. Worrying so much about this twinge that it's probably making me feel ill. Going to mention to the nurse today just incase anything's brewing. Having said that don't want to have chemo delayed if there's nothing major wrong.
I'm not normally like this so hope I can perk up later.
Good luck tomorrow Caroline.

shawshankredem
Member

Re: Starting Chemo in December.

hi everyone
caroline60 happy birthday....... thought id say it now in case im not up to it on fri as have my first chemo on thurs. maire am i right in thinkin u start chemosame day as me thurs 29th
OMG pmsl sorry just got didtracted by celeb juice repeat keith to joe essex how many sided dos a square have joe 6....... lol which country boarders wales n ill give u a clue its not london like u thought last time joe i dont no so he has a guess......... RUSSIA lol wat the fec how can one person b so bloody thick???????????
anyway hope every ones feelin ok tonite well as ok as there gonna do while goin through this sh**e hope all treatments r goin well n to plan, had to go 4 my first ever flu jab today..........my god he gets worse hes got a watch on his ankle...... lol n on that note im gonna log of n watch rest of it nite all x
sue x
DAISY123
Member

Re: Starting Chemo in December.

hello can eney one help iv had operation and snb snb got microchips in now iv got to have another operation on 20 dec for removal of ln im scared then on to have cemo is this weekly thing and well i be very pooley
Caroline60
Member

Re: Starting Chemo in December.

Hi shawshankredemption, My birthday is on the same day as yours.
Caroline60
Member

Re: Starting Chemo in December.

Hi all, Im post surgery day 12. Iv till got the drain in. My arm feels as if someone has perpetually beaten by a bat. However, Iv been persistant with my exercises.

Welcome Funki - how did your BC nurse appointment go?
Caroline60
Member

Re: Starting Chemo in December.

Sorry im watching the stones on tv - distracted and not looking at keyboard
Maire
Member

Re: Starting Chemo in December.

Oh and a tip I was given by another cancer mum was to drink beetroot juice. I got some and it is absolutely vile. I was all set to bin it but had a look online and sure enough it does seem to be a super food with some science to back up the claims. I'm on day 2 of drinking it, heavily dilluted with apple juice. Hopefully it will keep my bloods etc healthy.

Maire
Member

Re: Starting Chemo in December.

Good to hear from the December Darlings (2011), we Christmas crackers would love to hear your advice.
Hope everyone going for results today or any treatments has had a good and positive day.
3 more sleeps till my chemo starts. Hopefully it won't be too bad and I'll be able to share that with you all. Am worried that if it's awful that'll just frighten everyone.
Think I'll need to take up a hobby to keep my mind off things.

TraceyW1972
Member

Re: Starting Chemo in December.

Hello all you lovely Christmas Cracker December ladies! Just want to pop my head in and wish you all the best for your treatment.
I started the December 2011 chemo support thread at this time last year, so can tell you all that this is do-able. It is a bit miserable BUT with the support of those going through the same thing as you it is manageable, so take advantage of this thread.
I had four rounds of TC, first one on 16 December, and I managed to have a lovely Christmas day with my family without too many SEs. On the SE side, I lost my hair everywhere except my eyebrows, eyelashes and toes (of all places!) but everything is back in the right place now including a two inch length of wavy hair on my head. I also ran the gammut of SEs but different ones after each round and some worse than others including a midnight hospitalisation for suspected neutropenia after my final round.
My advice to you all is: go with the tiredness you will feel, don't fight it, sleep is your friend. Drink water like it's going out of fashion. Remember to take your temperature religiously. And treat yourselves to something nice during the third week when you'll be feeling almost human again.
All the best ladies!
Tracey xx
3network3
Member

Re: Starting Chemo in December.

Just a quick hello, have been in your shoes exactly one year ago, started my chemo on 2. Dec 2011, one year on and hair is growing back nicely albeit a bit slow, but blame Herceptin for this, I'm back to work which I enjoy and generally have my energy levels back to an acceptable level, go to the gym and being quite active. I'm looking forward to a nice Christmas dinner this year!! It's not easy, but you'll get through it and together you will help each other so much. We're now 14 women from our Dec thread last year (aka December Darlings) who are very much in touch on a private FB group and have met each other last month. We became firm friends.

All the very best to each of you,

love 3N3

lolly123
Member

Re: Starting Chemo in December.

Good afternoon Christmas Crackers,

i have just got back from work only lasted a morning, as Arm is too sore, and i had a lot of support from my freinds from work but did feel like i didnt want to be there , i have a good boss and she said for me to go home and only do what i want to do, so going back in again tomorrow going to work mornings only this week to see how i get on. hope you are all having a better day
speak to you all soon
luv lolly
lolly123
Member

Re: Starting Chemo in December.

good morning to all , first day back to.work feeling a.bit nervous as dont know how my freinds are going to be with me,and wheter i wil keep strong not to have anothr break down dont want to make them feel uncomomfotable,well only two more day and i will know where i stand with treatment
hope you all have a good day will catch up with you all at diner time x
Destiny979
Member

Re: Starting Chemo in December.

Evening ladies......a very late one at that !
for those of you that have had nodes removed & a drain placed recently.....had my lumpectomy and nodes removed on the 1st Nov - got sent home the next day with a very big attractive bottle attached (was a bit taken back by the size of it ! ) needless to say I was a bit unfortunate that it came out the next morning when I heard a big whoosh coming from my breast.....dont know who jumped the most me or my cousin Jo Jo that was sat next to me......nurse came in to remove it as couldnt be reconnected due to risk of infection,have to be honest in telling you ladies that the whole thing was probably of my own doing.....didnt tell the nurse that the night before me and my cousin was making a cuppa,my cousin was looking sad for me the fact I was stood there in my pjs with this big old drain hanging out of me....so being the ditsy blonde I am I started to jig around the kitchen singing LMAO "iM SEXY AND I KNOW IT.....WIGGLE WIGGLE WIGGLE YEAH !!! " ......that ladies share remain our secret between us !!! nearly 3 wks later & 2 courses of antibiotics , the pain and awkwardness has subsided,took paracetomol and ibuphofen , it helped....still feel like I am holding a brick under my arm but just a bit uncomfortable , not as bad as it was - so it does get better I promise ! put it this way I was able to finally get in my little broom broom and drive to the local shops without the fear of looking as if I was driving a banger racer !!! ha ha - as for being ditsy.....had a blonde moment earlier today-logged on here , couldnt understand why I couldnt see any of you girls coming up....only to then realise I was on the American site......bet the ladies on there thought " who the bloody hell is this Brit & what she doing on here-coming on our manor ?!! " kept myself busy today by having a cleaning spree around the house like a mad woman - even the cat got a make-over !!! this evening visited the folks,pretty chilled though they will insist in cooking me dinner.....veg & more veg......by the end of all this I seriously run the risk of looking like a brussel sprout if anything else !!! (sorry Mum if you read this.....ladies she has been checking in on us - but its nothing that I havent already told you mum....IS IT ??? ) Have hosp appt on tues where they will do my bloods,ECG and then maybe I will be given a date for the 1st dose of chemo - yes I am anxious being that I dont like needles, I am dental nurse by trade,family and friends find this fact quite amusing.....! I dont like the thought of maybe losing my hair , possibly having to draw my eyebrows on without the risk of looking like Fanny Craddock...?!!! (see I can still see the funny side of it....just about ! ) but on the other hand I just want to get this show on the road , get it done with , kick its bloody arse and get back to normal again.....ladies we will all have our up and down days but we will also have some funny stories to tell throughout our journey - that I am sure of ! so keep your chin up ( the way I am eating at the moment .....may end up holding a few chins ....! ) , stay strong & think positive thoughts - lots of love to you all xxxxx

Shelley x