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Starting Chemo in December.2012

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Re: Starting Chemo in December.2012

Apart from the nails breaking all the time its been ok. I do know all the staff at the hospital really well now. I cant believe we have been every 3 weeks for a year.

I had FEC chemo in 2009 so my veins are worn out, and since it was chemo again and herceptin for the year the port seemed a better option.

I have worked all the way through, for me it was better not thinking about it all the time and mostly have felt ok.

Good luck for the last 2. Looking forward to hearing that you are done. Think we are the last 2 to cross the finish line.

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Re: Starting Chemo in December.2012

I've just 2 more to go Mz.Will be finishing at the end of January. I've had all mine via veins in hand but usually takes a few tries. Looking forward to getting to the finishing line. Not that I feel bad but am hoping to feel some benefit once it's all over. How have you been with the heceptin?

Bet you're glad it's all over.

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Re: Starting Chemo in December.2012

Hello Marie, I made it to the end, had the last herceptin on thursday. Within 20 minutes of finishing I was in theatre have my port removed. Sore and bruised but port free, which feels amazing.

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Re: Starting Chemo in December.2012

Just been reading the last few posts and it is comforting to know that you all seem to be feeling the same as me.

 

I was diagnosed on 31st October 2012 - lumpectomy 10th November and I too, like Maire, started my chemo on 28th November.  So late in the month I sort of fell into the December Crackers group.  QD I also didn't know whether to be elated or cry.  I felt weird really as if it had all be a dream (or nightmare!!!)  Back in November 2012 I thought my world as I knew it had ended but I'm still here and life goes on just the same as before it all started.

 

Haven't yet had my annual check up and mammo.  I was treated privately so not really sure what happens next.  Really looking forward to Christmas which is a big event in our house and it was just not the same last year even though we tried hard to be "jolly".  I hope all the ladies in the group have a lovely, peaceful and healthy Christmas and new year - indeed I wish this for everyone on the forum.

 

I haven't visit the site so much lately mainly because most of the time I forget about my own connection to cancer which is a good thing as it helps me to be normal.  Then I read something in the paper or hear something on the radio which brings the big C into my mind and then I remember and come back the this site because you all gave me so much comfort whilst I was going through treatment. Especially because I didn't tell anyone I had cancer other than my husband and children and best friend so this site was somewhere that I could open up and talk freely to people who knew what was going on in my life.  Thank you to everyone and I truly hope you all go from strength to strength.

B.

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Re: Starting Chemo in December.2012

hi all my diagnosis anniversary today. feels a bit odd. dont know wheteher to cry or laugh- so did both!  love to all x

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Re: Starting Chemo in December.2012

It seems such a long time ago we were all just starting our treatment we have all done so well. Just got to live life to the full. 

 

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Re: Starting Chemo in December.2012

I can't believe a year has passed. This time last year I was hours away from my first dose of chemo. I feel a bittersweet nostalgia about it all. Weirdly!

It's def an experience I will never forget and hope never to repeat. Thinking back to December 2012 I remember a sense of life standing still and a desire to hibernate till spring.

I hope all the Crackers have fantastic Christmasses this year-and good luck with the mammo results Lolly.

 

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Re: Starting Chemo in December.2012

Well thats my mamo over and done with till the next time all i have to do now is wait for the post to drop through the door in two weeks time.

 

hope you are all well

 

lolly

 x

 

 

 

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Re: Starting Chemo in December.2012

ment to tough year not touch lol

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Re: Starting Chemo in December.2012

hi to you all long time no speak, ive not been on here for such a long time thought i would pop in to see how you are all doing, got a lot of reading to do, lol.

 

i am back to work full time now and doing ok, my hair is growing back quite even all over very thick, but want it to grow quicker, but got to be patiant.

my right hand has been opperated on for Carpol Tunnel, it healing quite well, been about 27days since opp so  slow progress but it is a progress, got to wait 3 months before they will do the other hand, but cant wait till i get it done.

go my mamo tomorrow first one since BC was found so hoping all is still well get results in two weeks time.

will keep you informed as to the results.

 

anyway Crackers keep smiling we have all come through a touch year, Smiley Happy

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Re: Starting Chemo in December.2012

Hi Lisalouw

 

Sorry to hear you've been having problems getting onto the forums.  I have passed this on to our technical team for them to check out your account.  If in future you continue to have problems please do let us know by email to: moderator@breastcancercare.org.uk and we will try to sort it out for you.

 

Take care.  Kind regards,

Jo, Moderator

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Re: Starting Chemo in December.2012

Morning all , I've not been able to get on here , I kept getting kicked off and kept resetting my password a few times , so no idea what's happened , shellebelle congrats on the boob news , cress that's fantastic news re your scan it must have been such a worrying time , have a brill hol and have a big sangria for me , I bit the bullet and had a permanent dye on my hair and it's fine , got sick of the grey and dull look , hairdresser used a moisturising one but that's all I know , I'm using organix argon oil from boots and that seems to be making it less fur like and softer , also some good hairspray to keep it flat instead of vertical , nails just peel and my for my last kick in teeth from chemo my eyelashes shed and thinned a few months after chemo and have only just started growing back , must be getting me back from holding onto them throughout chemo , I've been back at work 3 mornings a wk so been tired and finding it hard to remember what I actually do , I'm shadowing next wk but as for the computer that's totally gone , I've managed to hurt my hand on the log flume ride at gullivors kingdom so I've got a splint on and awaiting physio appt , always something isn't there , lv to everyone , oh I've gone my natural colour med brown , might go redder but I was red brown before , and if got an aversion to pink at mo !!! Xxx
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Re: Starting Chemo in December.2012

Yup-I've been getting a lot of pain in my hip. But the intensity comes and goes. That oestregen was pretty useful stuff. Sorry about your pain it's pants.

 

Have just discovered I've been carrying about a medical alert card from my chemo days. Have joyfully ripped it up!

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Re: Starting Chemo in December.2012

Just had my bird's nest chopped down and am back to a pixie cut hairdo. .

Not doing too bad with hot flushes which are tolerable but joint pain and muscle aches are a nightmare. Hands and feet particularly painful but arm and leg muscles constantly aching and am getting 'dead leg' sensation almost all the time. GP unhelpful apart from noting BP is high so need to recheck in a few weeks.
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Re: Starting Chemo in December.2012

Oh no-what you struggling with?

I'm flushing away but not finding it too bad. My 'fro is getting me down a bit. Feel a bit Art Garfunkel.

 

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Re: Starting Chemo in December.2012

Tamoxifen/Menopause.... hate, hate, hate it!! 

 

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Re: Starting Chemo in December.2012

I've got a 'fro too and it's growing taller and wider as well but glad to have hair on my head this winter.
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Re: Starting Chemo in December.2012

yippee Cress! Njoy!

 

Hi all  !

 

Maire - my hair is growing up and out too!!!! it used to be long and straight. I've always had a fringe to cover my wrinkles and at the moment its that blooming curly it doesnt even reach the first wrinkle! still at least I have some hair so shouldnt complain! x

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Re: Starting Chemo in December.2012

 

Watch out Spain, she's on her way!

Have one on me Cress.

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Re: Starting Chemo in December.2012

Well, there is something wrong with my back, but I knew that.  I have to wait for the full MRI report, but my Onc rang them and they said it is not cancer.  My bone scan was clear.  So I don't give a flying f*ck what is actually wrong with my back - 

 

THERE IS NO EVIDENCE OF METS

 

I am packing my bags and going to Spain.  

 

Thank you sooooo much to every one who cheered me on.

 

I am never having another scan again.  I officially opt out.  Unless something springs alien like out of my body I am not putting myself through that again.

 

Love you all,  xxxxx

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Re: Starting Chemo in December.2012

Good luck C!

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Re: Starting Chemo in December.2012

Results tomorrow morning.  Eeeek.

 

 

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Re: Starting Chemo in December.2012

Hi all.

Not had a chance to catch up on everything,,,,but just popping in to send my love,,,,, Cress - let us know how your results are......I'm 4 weeks away from recon. be glad to get surgery out the way. Hoping they take all my stomach away so that i end up like an ironing board!!!!

And will be good to have smaller boobs! might even run for a bus in the new year!

On the subject of hair; I look like my dad!

love to all

xxxxx

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Re: Starting Chemo in December.2012

My hair's a bit thin at the front too. I'm blaming Tamoxifen. I've been purple, ginger and now kind of brown. Hair is defying gravity at the moment and contiunes to grow upwards and outwards.

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Re: Starting Chemo in December.2012

woohoos all round! Marie my nails are just about recovered 5 months on from last chemo though my toenails have not grown back completely yet. just wish my hair would grow quicker at the front. cant decide what colour to go , fed up with being told short and grey suits me cos thats what my sistr whos 11 yrs older than me has!

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Re: Starting Chemo in December.2012

Hi all

 

just checking in and saying "Hello"! x

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Re: Starting Chemo in December.2012

Woohoos from me too!

I've just had number 14 Mz. My nails are annoying. Keep splitting.

I'm getting 18 herceptins. So four more to go.

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Re: Starting Chemo in December.2012

Woohoo to clear mammogram Shelle and woohoo to finishing Herceptin Mz (jumps up and down).

 

Smiley Very Happy

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Re: Starting Chemo in December.2012

Woooohoo my solitary boob passed the mammogram test and I'm now officially a 1 year survivor!! Other news is I've seen ENT specialist and been given vestibular exercises to follow and he was confident I will recover from my dizziness in time. Already feeling a bit better so things going in right direction there. Just got endocrine appt. in a couple of weeks and that should hopefully be the last of the tests this year. ...yeay.
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Re: Starting Chemo in December.

Hello Marie,

Number 16 done and dusted yesterday.

Will be thrilled to have my portacath removed, have hated it all year, but did make chemo and herceptin so much quicker and easier.

My nails are so soft and break all the time. Not sure if its herceptin or tamoxifen doing the damage.

Mz

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Re: Starting Chemo in December.2012

Happy Halloween crackers!

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Re: Starting Chemo in December.2012

Wella Fresh

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Re: Starting Chemo in December.2012

Hi ladies , ha ha cress think I prefer your spell check name , I found the moving forward course helpful , the content of the course isn't anything you don't really know , it was just the being with a group who have gone through breast cancer , it's a shame you would have to go to London , it's all geared up to getting back into exercise , cancer fatigue, menopause symptoms and such , I've never had an MRI , I'm still keeping crossed for next 2 wks , is it the colour fresh or colour touch you use on your hair , maybe I should go see a hairdresser like you say , I cold capped and yep my old hair is more fragile x
Shellebelle, I creak and groan too , I'm like a 90 yr old on a morning , I'm trying to do a little exercise at night when my nipper in bed and that seems to be helping but my boob and armpit are tender , think I need to invest in an industrial strength sports bra !!! Xxx
Love to everyone xxx
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Re: Starting Chemo in December.2012

Thanks for all the crossing ladies.  You can relax for 2 weeks until the results now.  

 

I have only had breast MRI before.  Because I had a variety of scans this time I was treated to a variety of different types of banging.  About half way through I heard something that would not have been out of place in a night club (mind you, it's been a while since I was in a night club).  I wonder if anyone has sampled the noise from an MRI.

 

Hair - I have been colouring mine with semi permanent Wella dye.  It's great for making my hair shiney.  I have stopped for now as I want to go swimming on holiday (also 2 weeks away).  I don't want to be floating in a cloud of dye.  Bad enough wondering if everyone can tell that one of my boobs is made of shower puffs.  I am relying on my hairdresser to decide when to hit it with major chemicals.  She thinks it will be OK by Christmas.  That is quite a long time after chemo (over a year since FEC-T and over 6 months since GemCarbo).  Maybe it's because I cold capped and the hair I had left was delicate - if you grew from scratch it might be different.  I am just suggesting you ask a hair dresser's advice.

 

xxxx

 

 

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Re: Starting Chemo in December.2012

Lisalouw my hair is much curlier than before (I look like I've had a perm) and it's little darker in colour with less grey so I haven't bothered to colour it. I'm still suffering with vertigo and have appt. with ENT consultant next Thursday.

Cress hope MRI is a quick one. Blooming noisy things even with ear mufflers on!

Got slightly tender ribs at moment so don't know if I've exerted myself a bit too much or what. Also joints are starting to stiffen first thing on a morning. I creak and click like an old deckchair until I get going....

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Re: Starting Chemo in December.2012

Thanks Lisalouw,

 

Survived the bone scan, now for the MRI.

 

Tell us more about the moving on course - I looked at them, but I would have to get into London before 9.30am.  Just too expensive and painful (standing on rush hour trains etc).

 

x

 

bty, I just spell checked this, and it suggests I replace Lisalouw with "luscious"  Smiley Wink

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Re: Starting Chemo in December.2012

Hi ladies , just checking in to see how everyone is , good luck cress I'm all crossed for you , shellebelle how's the dizziness , any better ? How's everyone's hair , are you putting normal dyes on now we reached the 6 month point , I'm reluctant , I'm on a moving forward course , 3 sessions , it's really good and nice to be in a room full of ladies who's gone through the same thing , back to work in 2 wk, gulp !! Xxx
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Re: Starting Chemo in December.2012

Thanks Maire and QD.  

 

Here goes.....

 

 

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Re: Starting Chemo in December.2012

Hi Cress 

 

fingers crossed  Mega Hug! x

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Re: Starting Chemo in December.2012

Think good thoughts Cressida. Will be crossing everything crossable.

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Re: Starting Chemo in December.2012

Thanks Shelle, try not to fall over, Smiley Wink

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Re: Starting Chemo in December.2012

Hi Cressida. Everything's crossed. ....even my eyes which doesn't help my dizziness one bit 8-)
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Re: Starting Chemo in December.2012

Morning ladies,

 

Need you all to get everything crossable crossed as I have bone scan tomorrow and MRI on Friday.  Oh Joy.  I was doing so well and not thinking about bl**dy cancer, but it's hard to ignore it as giant machines whir and bang about me whilst they specifically look for it.

 

If I survive this, remind me never to tell an oncologist anything ever again, and just smile and nod and say I am fine.

 

Ignorance is bliss.

 

xxxx

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Re: Starting Chemo in December.2012

Found this in another thread. It has 520 signatures, but think we can do better than that!

Free dental checkups and sight tests for cancer patients

Responsible department: Department of Health
All cancer patients should receive free dental check-ups and free sight tests for five years, i.e. during all treatment, as per the prescription exemption certificate received. Especially as chemotherapy is known to cause dental problems, and tamoxifen is known to cause sight problems.

Copy and paste the link below into your address bar:
http://epetitions.direct.gov.uk/petitions/53515

Pass it on!!!
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Re: Starting Chemo in December.

At least that's one more hurdle overcome Shellebelle. Thinking of you and your horrid dizzyness. Hope you're coping.

Anyone else on Herceptin at mo? I've just had number 13 and it's getting really tough. Don't know how I'll manage 5 more.

The jumping and shouting was a good tip Cressida.

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Re: Starting Chemo in December.

Brought it all back to me. Have to wait for results now.
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Re: Starting Chemo in December.

How did it go Shellebelle?

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Re: Starting Chemo in December.

Mammogram day. ....gulp
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Re: Starting Chemo in December.

Good bit of jumping and shouting there Maire.

 

x

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Re: Starting Chemo in December.

Hello Marie

 

I will ask the technical team to have a look at amending the title.

 

Best wishes

June, moderator