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Starting Chemo in December.2012

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Re: Starting Chemo in December.

Hi Jus
Your mum sounds amazing I'm so sorry you are where you are it's really shitty!!!!! We are all here for you Hun ...
Re hair I think any baby shampoo will do Alot of the ladies use Johnsons Think I'll give it a try too although jury's out for me with cold cap yet...but will give it a whirl.
Lolly- my arm and boob still painful nearly two weeks on but getting better And you wouldn't be human if you didn't feel emotional.
Think given what were going through a meltdown is totally ok!
I'm so anxious about results of SNB tomorrow and this not sleeping isn't helping !
Can't focus so won't be baking tonight ,( OH very pleased ) LOL ....
Take care all xxxx
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Re: Starting Chemo in December.

Hi Lolly123 and Jus

Firstly, welcome to the forums, I am sure you will find it a great source of information and support.

As well as the support you receive on the forums you might find it helpful to order the BCC resources pack. It has been specifically designed for those newly diagnosed and contains information to help you better understand your diagnosis, test results and the various treatments available. If you would like to order a copy just follow the link bellow:-

http://www2.breastcancercare.org.uk/publications/diagnosed-breast-cancer/resource-pack-primary-early...


Also, do give the helpline a ring if you need any further support or information. They're on 0808 800 6000. Open 9-5 Monday to Friday and 10-2 Saturday.

Best wishes Sam, BCC Facilitator

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Re: Starting Chemo in December.

Hi All,
I was diagnosed with BC just over a week ago. I have been told I will need a mastectomy, lymph node clearance, chemotherapy, radiotherapy and then I would like reconstructive surgery. I decided to go for chemo first as it means the time I will be without a breast will be shorter. It has been such a shock. What makes it even harder is my mum has stage 4 BC with secondary mets in her brain and they are giving her palliative care - up until March she was still working (at 76) and completely well. Anyway, that's enough feeling sorry for myself. I'd love to join your group as you all sound so supportive and it would be good to have others to talk to who are going through the same thing.
Is anyone else going to use the cold cap? I thought I would give it a go as my brother's mum in law used it and kept her hair although it did thin a bit. I am looking for ph neutral shampoo and conditioner as my chemo nurse recommended using one. Does anyone have any suggestions?
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Re: Starting Chemo in December.

hi just thought i would share how i feel today and last night i have had my first melt down it has been over a week since my opperation to remove lump and 4 lymph nodes but still feeling sore under the arm does anyone know when this shoulld start to feel better . cant wait for wed to come as i find out my results , its been the slowest week in history i know i have a long journy but not the best of people to play the waiting game. anyway feeling a little beter now i had a cry . hope you all have a good weekend and speak to all soon .
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Re: Starting Chemo in December.

Hi to everyone, I see my oncologist December 7 th so think my treatment will start mid january.Like everyone im finding it all very scary but with the help of all you lovely ladies im going to get through it ! Look forward to sharing experiences,tips,laughing and crying together.xxx
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Re: Starting Chemo in December.

Hi Lolly, What is it with being 51 and BC. I am 51 soon to be 52 next week,
I have just had a mx on the 14th plus 2 infected nodes, Iv still got a drain in. Its driving me potty now, I will find out on Wed SNB and histology report plus size of tumour - was told Lobular and 7 - 9 cms and 2,5 width. so with you there.
, expecting chemo and possible other.
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Re: Starting Chemo in December.

PS
Another good website is 'eyelineher ' She Talks about how to fake eyebrows/lashes with great demo . Also shows ideas for headgear. Helpful re: product reviews etc as well
CP
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Re: Starting Chemo in December.

Hi all
Im a bit mixed re:cold cap. My sister in law has it (stage 4 EOL) Also had it when she was first DX 3 years ago.and whilst it has meant that she kept most of her hair Her view is;
it extends the overall treatment time by a good couple of hours
Its very painful apparently
Her hair has become very thin, lifeless and hard to style
Dont want to generalise as it may be different for everyone,
I may opt to give it a go and take it from there ....otherwise I'll go for really good wig and Buffs. Take a look at Buff website also Annabandana a good one and very reasonable... Guess whats on my Xmas list this year....
I love my long hair but I love My daughter,husband and life much more...
Love-n-stuff
CP.
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Re: Starting Chemo in December.

Only 4 more sleeps till chemo-gulp!
Have a meeting with the nurse on Wednesday. Not sure what this entails but think I'm getting my wig token. Then off to get a wig I suppose. No idea how this works, should be a laugh though.
It's great our wee group is growing in that we'll be able to share our ups and downs. Sad too that so many of us are being diagnosed with breast cancer. I was stunned to see so many woman waiting for their operations the day I had mine. It really does seem to be on the increase. On the plus side treatment seems to be quite effective, if horrible.
Anyway, I'm off to scale the ironing mountain. Got to keep busy to keep the heebie jeebies at bay!

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Re: Starting Chemo in December.

Hi ladies it was alovely morning this morning but now tipping down! I am off to the Cancer unit tomorrow to talk about my Chemo plan. If i am offered the cold cap i think i will give it ago. For me losing my hair is going to be one of my biggest thigs to cope with. Also i have heard you can only wash or hair a couple of times a week, i normally do it every day. Hair dryer and straghtners 😞
Anyway i hope you all enjoy the rest of you weekends ladies take care and lots of love
Sharon Xx
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Re: Starting Chemo in December.

Hi All.....I'd like to jon the Christmas Crackers! Start chemo on the 6th. I'm a 46 year old mum with three kids, 9 and 8 year old twins. I had a Grade 3 3cm lump and elected for a mx.... had to have a second op as had some complications and am waiting for it to heal. My oncologist is just lovely.....just met him last week and feel very comfortable with him and the nurse.......for the first time, someone said to me "we will get you through this", as so far, apart from my husband and 2 best friends I have felt very very alone.....
Anyway would love to join the forum and hopefully make some friends on this journey....something good has to come out of it!!!
And importantly share the trials and tribulations of Chemo...... any hints? cold cap - yes or no?
Mandyp x
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Re: Starting Chemo in December.

Good morning everyone
How we all doing??
Shelley £1500 for a wig??? Thats really high end.I've got a pink one I used to wear when I followed David Bowie I'll send you that much cheaper......
I continued in my quest to become a 'master baker' through the night. Determined not to let a Victoria sponge beat me (cos everything else has) Really pleased with it.... It's massive !!!!! Realised later that could be the result of getting baking powder mixed up with bicarbonate LOL. I packed it with jam and cream and gave it to OH for Sunday breakfast!!!!
Well in the absence of little ones (my baby girl now in London) it keeps me occupied and distracted from bc..
.Going to TK Max to stock up on cake tins & whatever else I've seen Nigella use Ha Ha .. then for Sunday lunch at our local inn....
Lots of us getting various results this week so let's keep fingers crossed for best possible outcomes whatever stage on this journey we're all at...

Ill check in tomorrow after I know my full path results ......in the meantime There's a bottle of Rioja with my name on it for lunch..
Love-n-stuff to all
CP....
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Re: Starting Chemo in December.

Evening Ladies !

I thought I would check on you,see how we all doing......? that includes the newbies that have popped in the last day or so ! (we will all be behind you all the way.....to give you support as and when its needed ok ! ) on a journey such as we are all on at the moment , we are going to have our 'ups ' and 'downs' its normal to and to feel anxious as well......my day today has been all over the shop today,woke up this morning to find my Blackberry(mobile) out of action - an hr of keeping me on the home phone to an 0845 (probably cost me an arm and a leg !!!) tell me its been corrupted,so I make the journey to a branch , first time I have driven since my op - seemed to take me forever to get there driving like a one-armed bandit!!! only for the advisor to inform me it had to be done over the phone......I could have swung for him at this point !!! there was no way I was going home without a mobile,one way or another.......3 hrs later whilst getting a run down of the advisors love life (6 girls on the go & he wonders why he has problems in this area ?!!) I get to walk out the shop with a phone that so far I have no bloody idea how to work ?!!! ha ha - didnt help that inbetween said phone call this morning, I received another phonecall from a wig specialist ( I was looking on the net ....as you do....) qouting me prices of £1,500 - by this time it wasnt only the thought of losing my hair that bought tears to my eyes , I could decorate half my flat for that price....! so yes ladies a day full of mixed emotions today.....some sad & others that just went beyond belief to the thought maybe it isnt all so bad after all.....we will come out the other side of this stronger and maybe more then a few funny stories to tell amongst the sadness and unknown of it all......you know what theey say - laughter is the best medicine ......so keep your chin up ladies & take comfort in the fact that we are all on this journey together and we will help each other through.....tomorrow is another day big hugs & lots of love to you all xxxxx

Shelley x
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Re: Starting Chemo in December.

Hi all
Thought I would introduce myself, Im 35 and a single parent to three daughters aged 13,11 and 7. I was only diagnosed 2 weeks ago and had surgery last week to remove both lumps and lymph nodes. I am due to get results of the op on 14th December or sooner if they come in before. I have already been told I will most likely need chemo which I've worked out may start mid January and will be course of 6 every 3 weeks. I find the prospect of chemo very scary as I dont deal very well with being poorly anyway. Ive been very positive so far but as its only 2 weeks since diagnosis, which came as shock after a clear mammogram in May and reassurance since that my lumps were 'normal' for my age and nothing to worry about, I havent really had time to stop and think too much about the journey I am about to embark on but am fully aware that an emotional breakdown is on the cards and may come at any time. It all still feels pretty surreal. I'm coping by taking one step at a time and only dealing with each appointment as it comes.
Good luck to all of you or the coming months, I look forward to sharing our stories and supporting one another.

Dawn xx
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Re: Starting Chemo in December.

Hi all
Thought I would introduce myself, Im 35 and a single parent to three daughters aged 13,11 and 7. I was only diagnosed 2 weeks ago and had surgery last week to remove both lumps and lymph nodes. I am due to get results of the op on 14th December or sooner if they come in before. I have already been told I will most likely need chemo which I've worked out may start mid January and will be course of 6 every 3 weeks. I find the prospect of chemo very scary as I dont deal very well with being poorly anyway. Ive been very positive so far but as its only 2 weeks since diagnosis, which came as shock after a clear mammogram in May and reassurance since that my lumps were 'normal' for my age and nothing to worry about, I havent really had time to stop and think too much about the journey I am about to embark on but am fully aware that an emotional breakdown is on the cards and may come at any time. It all still feels pretty surreal. I'm coping by taking one step at a time and only dealing with each appointment as it comes.
Good luck to all of you or the coming months, I look forward to sharing our stories and supporting one another.

Dawn xx
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Re: Starting Chemo in December.

Hi new Christmas Crackers. I'm sorry your in this position but welcome to the thread. It's such a scary time for all of us but I've already found this a great support and know we'll all help each other through it.

Shelley, from one tough cookie to the other I'm up for kicking BC's arse (you may have to remind me of that on my worst chemo days). x

Christine, it must be so tough being diagnosed and not only dealing with that but having your sister in law battling with bc too. What a terrible time you and your family are going through. ((Big Hugs)) x

Sand, hopefully we can all help each other with support and advice when the dreaded side effects hit us. Can't believe your onc said that, at the moment the thought of losing my hair just makes me feel sad not liberated! x

Lolly123, just keep following this thread and chat to us all and we'll all soon get to know each other. I'm due my results on the same day as you so will have everything crossed for the both of us. x
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Re: Starting Chemo in December.

Hey Lolly
Think a lot of us newbies too....I certainly am.
I guess like all of us on here I'd give anything not to be on the site (great as it is of course!)
But I am., so I'm trying hard to come to terms with my Dx and do my research so I can contribute to my treatment plan following SNB results on Monday. Recovering ok from surgery have my moments /meltdowns that seem to come from no-where.
Just had my hairdresser (of 20 years) here for usual colour cut etc Think he's more devastated than me at thought of hair loss. Think he washed my hair in his tears today LOL Bless him He's gone away to find me the right wig etc .....
But if it means I'll live and survive then so be it. Its only hair I guess. I'm more upset that He won't need to come every three weeks as is my 'norm'
OH keeps saying we have to find a new normal but I want my life' as is ' I love my life just fine!!!!
Biggest problem so far is insomnia, can't sleep, Too anxious and keep thinking morbid thoughts totally out of character.
On my treadmill at 3am this morning!! Then baked 2 cakes, 24 scones and flapjack None of which is edible!!
so the birds had a great breakfast ....
I just want Monday to come so I know exactly what I'm up against and get on with the treatment .
Does anyone have any good reference points/reading etc for lymphovascular invasion ??? I'm trying to find out if it always results in chemo ?..
Take care all xxxxx
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Re: Starting Chemo in December.

hi i wolud love to be part of your group, just been diagnosed with BC waitng for my resuts to see if it has spread into my lymph nodes get results on wed, to see what treatment i will need.
not sure how this site work do i have to do anything to keep in this group
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Re: Starting Chemo in December.

hi please can i join. waiting for my results to see if it has spread to my lymph nodes to see what treatment i will need
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Re: Starting Chemo in December.

Hi , I just ppopped in from November sparklers,
love the Christmas crackers name
good tip to see how people are doing on their journey , keep an eye on the month before you , our guys are brill , we rant , share funnies and how we are coping with side affects , including hair loss , I found it liberating plus I love my wig ,

Good luck on all your journeys ,

stay strong xxxxxx
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Re: Starting Chemo in December.

Hi. I'm starting chemo in December too. Had mx with 2 positive nodes. When told oncologist i was concerned about hair loss, she said most ladies find it liberating - I said I definitely wouldn't! I think its the unknown that's the most worrying. I've read all I can on side effects, and realise everyone's different. Would be great to be part of your group to try and give each other encouragement.
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Re: Starting Chemo in December.

Hi CP, welcome to this thread. We are here for you.
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Re: Starting Chemo in December.

hello everyone
Im recently diagnosed ( October) had surgery etc and go for outcome of SNB on Monday. Have LVI so fully expecting
chemo to be part of treatment plan starting in Dec, so will really value being able to talk to you all. Sister- in -law at stage 4 with extensive Mets so Im feeling really scared.......Still numb from diagnosis.
Xmas is my favourite time of the year so going to "deck the halls" early and get as ready as possible. Determined to be as festive as possible and make sure Sis has a loving last xmas.. BC is a terrible disease!!!
I need to stay strong and think I'm in great company with you guys...
Have a good weekend all
Christine xxxx







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Re: Starting Chemo in December.

Hi Christmas Crackers !!! ( by the end of this , some of us may well be !!! )
I hope you ladies have had a good day......thanks for the replies, really helps to speak to others in the same boat as they say ! I have basically been keeping myself busy as I have been since the diagnosis but to be honest nothing new with me , always on the go even before BC , spent the evening visiting my 3 neices , so have kept me on my toes and given me a few giggles,especially going through their christmas nativity play with me, its gone from when I was a kid "away in a mainger " to bumpty bump - whats that all about ?!!! ha ha , but it also highlights the fact that after chemo another nodes op and radio that I may not be havving them myself especially being the age I now am 36......but then I have to say to myself that however sad I feel about this , this is my life I am talking about so it leaves me no other choice but to go with it and kick BC's arse for once and all , no matter how long this journey make take ! I will end this on a good note by saying you ladies and your comments are really helping in what could be a tough ride but only if we allow it to be.....something tells me with tough cookies like myself and you lot - not a chance !!!
enjoy the rest of your evening ladies whatever your plans may be (being honest mine is just crashed out on the sofa watching the old box with a bit of choc , kids have knackered me out ! ) & catch up with all your updates later - lots of love xxxx

Shelley x
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Re: Starting Chemo in December.

Good choice especially is I'm feeling more than a little crackers. I was supposed to get my results today but instead got a call to say that the pathology report is still incomplete and won't be ready until Wednesday...Grrr!! Just about held it together on the phone and then had a good old blub to myself. The kids have kept me busy the rest of the day so not much time to feel sorry for myself but planning a huge glass of wine when they go to bed and no doubt another blub!
I have two kids, Adam 5 and Emma 3.
Maire, It's good to hear that your kids are handling thing's so well. So funny, I know what you mean about siblings, my two seem to have bickered all afternoon. I can't have been easy telling them though, I'm dreading that.
Love Polly x
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Re: Starting Chemo in December.

Hi Ladies yay... we have got our name The Christmas Crackers is great!
And at times we might think were going crackers too. I have got two boys as well Joshua 16 and Ethan 12. I also love Christmas too but can't seem to get into it as make this year.
Good luck to you all. Xx
Hi Destiny we are here for you, Take care (((Big hugs))) Xx
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Re: Starting Chemo in December.

Hi Marie, Destiny , Polly, Shaz1234, I think The Christmas Crackers is a great name. Iv asked my GP for flu jab before my anticipated chemo as i dont want the lergie thats going around. I have 2 boys Angus and Niall.
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Re: Starting Chemo in December.

OK....drum roll.....let's be ...The Christmas Crackers! Think Polly suggested it and I think it fits because we'll be crackers by the end of all this and let's face it we're all wee crackers at the moment!
Shaz, I've got 3 children. I kept the news from them until my first op then told them. My youngest started crying but only because I switched the playstation off to tell her. They are 16 (boy), 14 (girl) and 10 (girl) and they're fine about it. To be honest kids tend to be optimists and don't really worry about health like us oldies. If only mine could be just a tiny bit more co operative that would be great but maybe the fact they're behaving like typical siblings is a sign that they're not upset.
I love Christmas and usually get all excited very early on. Not this year. But who knows maybe the chemo wont be as bad as I'm imagining. I can cope with tiredness, baldness and the odd ulcer just not so sure about the more scary side effects. And I'll really miss my festive tipples if I'm not allowed.
Destiny-hope your visit to the onc. helps with your decision. The onc I visited was fantastic. Spent ages going through everything with me, answeres all my questions-in fact I think I took up over an hour of her time. It really cleared a lot up for me and really my chemo was inevitable (though I've no nodes affected)
Anyway good luck to us all-we'll all come shining through!

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Re: Starting Chemo in December.

Hi Polly1 you get your results today! fingers crossed for you. Xx Great idea about decorating the house i wasn't going to go mad this year but perhaps i will.
Yes i agree, i think Maire should choose our name.
Have a good day ladies
Love Sharon Xx
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Re: Starting Chemo in December.

Hi All !

I was diagnosed with BC early october now recovering from lumpectomy & Lymph nodes removal (7 I think were removed ) went for test results yesteruday of the biospy of op , surgeon feels that because of my age , even though it looks as if they got it all , the lump was 1.5 cm so it was very small , caught fairly early , that the best route is radio & chemo......its the chemo that has really thrown me as my first thought is I will lose my hair, being a cheeky chatty dental nurse my patients know me for my thick long wavy blonde hair and all 5ft of my cheekiness ! so I am feeling a bit anxious as it is the unknown.....will I lose it, will it just thin a bit ??? I have an appointment on tuesday to discuss it all further , as the nurse did mention cold cap treatment can be an option , I would like to try it , in the hope it may help , if it doesnt then at least I give it a go !!! I will need 6 sessions , one every 3 wks so hopefully it wont be as bad as it sounds and I can get through it the best way that I can in the way that I have so far by trying to smile,laugh and joke my way through it,even though the journey does seem a bit longer then originally thought ........so any tips , words of advice from any of you lovely ladies would be much appreaciated, yes I have a great network of support of my family & friends but they dont really know how this all really feels , especially when I am home alone at night, single - no partner and no children to busy myself with , so any words of advice I will gladly take on board in the hope it will help me as I await to start my first session of chemo anytime soon - stay strong & keep smiling ladies , best wishes & lots of love to you !

Shelley xxxx
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Re: Starting Chemo in December.

It's so annoying isn't Maire, i am trying to everything done before my Chemo starts because you just don't know how poorly you are going to be. the weekend end before we are all going out for the day. I hope you have a lovely weekend. Have you got children Maire if you don't mind me asking? Xx
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Re: Starting Chemo in December.

I know what you mean about not being able to plan anything. I'm trying to think of it as hibernating for the winter and have convinced my hubby we need a fab holiday next summer to look forward to.
Shaz 1234 it's tough with Christmas coming up as we don't know how bad our side effects will be. I'm planning to go into town on saturday and buy more decorations, at least the house will look festive even if I'm not feeling quite so merry.
Maire I think if your happy to you should have the honour of naming us as you started the thread. (ps I'm from rainy Scotland too)
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Re: Starting Chemo in December.

How did you work it out Caroline was it the accent...or my rain soaked feet?
Sorry you're missing your trip. I feel I can't plan anything. Lots of fun nights coming up and I just don't know if I'll be fit. Am going to make the most of this weekend-before dreaded chemo.

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Re: Starting Chemo in December.

RANT RANT
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Re: Starting Chemo in December.

Hi Marie, I v just had a look at you responses and realise your Scottish.
I had to cancel my planned trip to Glasgow next week - for birthday and seeing Frankie Boyle. Im originally from Ireland but live in London so understand his humour. Plus my family have links to Scotland - especially the West Coast. Was very pi..ed off as had planned this early this year - as always enjoy the craic in the Glasgow pubs. Had to cancel flights and hotel - I had a good old swearing session and rant yesterday. My language was disgraceful - my husband laughed and told me I was getting back to normal.
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Re: Starting Chemo in December.

Love all the suggestions. Robin's reminds me of the last time i had radiotherapy as I thought of myself is a robin red breast then!
Like Snowflakes too-so once we've a few more folk we could maybe have a vote or someone could just make an executive decision.
I had my heart function test today (in prep for herceptin later). It was easy peasy, couple of small injections and a nice relaxing lie down while photos taken. Some Christmas music and tinsel would've rounded it off nicely. So if anyone is waiting for that test, it's absolutley fine. I had the afternoon off (I work with pre school children so didn't want them nuked) and had a wee wander into town where I squelched about in sodden shoes then cheered myself up by sampling food and drink in M & S.
Think we'll all need maximum Christmas treats to compensate for having yukky Christmas (my 2nd chemo is booked for 20th Dec).

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Re: Starting Chemo in December.

Hi All,
I'm Kittyqueen from the March 2012 thread wanting to wish you all well on your journey's xxx Have to admit the first name that came to me for your group was ' The Jingle Belles'.....has a lovely Christmassy theme to it.
Love KQ

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Re: Starting Chemo in December.

Hi Ladies i will be starting chemo in dec around the 17th. They want to shrink my cancer first because it is big. But i am having a SNB on the 4th dec. I would really love to join in with you all. I love the names Twinkle and Snowflakes......
How do you feel about the Chemo starting so close to Chrstmas- i am so worried that i am going to be poorly over christmas.
Good luck Marie i hope all goes well with your first Chemo Xx
Good luck Caroline60 and Polly1 Xx
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Re: Starting Chemo in December.

They're all lovely ideas whatever gets you through this, well done Polly.
i am only on your thread now because i am waiting for the nurse to change my dressing, bored!!!
xx
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Re: Starting Chemo in December.

Starlights is good, I like a bit of corney or how about the "twinkles" 3 year old has been practicing Twinkle, Twinkle Little Star all week for her playgroup nativity...I swear I can still hear it in my sleep!
Other suggestions;
Snowflakes
Mistletoes
Robins
Crackers...how I'm feeling at the moment!
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Re: Starting Chemo in December.

Hi Iv'e popped in from october pumpkins, why don't you call yourselves "Starlights" or is that too corney!
Hope you will all be able to share your worries with each other as we do.
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Re: Starting Chemo in December.

Hi Maire and Caroline, count me in too.
I'm waiting for the results of WLE and SNB this friday. Consultant gave me the lovely news after my op that even if nodes clear they want to do chemo due to cancer type and age (39). Usually delighted to be called young but for this, nah, not so much!!!
Caroline, good luck for your results.
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Re: Starting Chemo in December.

I was thinking the 'ho ho ho's' but maybe not.

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Re: Starting Chemo in December.

Good luck to marie and caroline, you will find loads to share, and you'll find others will join, you might want a name, september are the sparklers, oct pumpkins etc
love anne xx
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Re: Starting Chemo in December.

I'll keep my fingers crossed that you can by pass the chemo, but if not I'll see you here!
I thought I'd get by without it but have the her2 protein so nae luck!
Good luck with your results.

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Re: Starting Chemo in December.

Hi Marie, as a result of my cancer type - I envisage I will be starting chemo in Decmber. Hve just been discharged from hosp had mx and 2 lymphnodes removed. Also snb - awaiting results.
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Starting Chemo in December.2012

Hi, I've been waiting to see if anyone else might kick this off and also waiting for my date.
Just got the dreaded letter and will be starting Chemo next Thursday (28th November). So a wee bit early for this thread but think I might have more in common with those starting in December. Anyone else want to join in?