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Starting Chemo in December.2012

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Re: Starting Chemo in December.

Very low.

After 4 days on the Dexys my lungs seem to be getting worse, if anything. Just had a very bad night.

May have over-exerted myself yesterday as, fuelled on Dexy energy, I cleaned out and reorganised all the kitchen cupboards, then went shopping for and made a picnic to take to the Blondie concert at Kew Gardens last night - my second big post-chemo treat, which I was determined to go to, hell or high water, having missed the Springsteen concert - and then went to the concert, which wasn't too difficult, as we live close to Kew.

It was great to have a night out with R, a lovely evening, and Blondie was great, but now I'm completely wiped out and was coughing all night.

I am so sick of all this.

And getting more and more paranoid that the cancer has just decided to come straight back into my lungs, although I know perfectly well that this is the least likely explanation. I've always had bad lungs. Radiotherapy is bad for your lungs as, I now discover, is FEC - the cyclophosphamide can cause lung damage.

I'm wondering about going back to A & E if it doesn't improve in the course of the day. But you always feel worst early in the morning, so I'll see how it goes.

Just despairing, really.
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Re: Starting Chemo in December.

so want not towear a wig atm but hair still not growing on the top of my head! want to dye away the grey as wellbut couldnt quite bring myself to spend £10 on a bottle big enough for "normal" hair only to do 1/2" !
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Re: Starting Chemo in December.

Today I am going to a BCC breast recon seminar. I have buried my head in the sand about recon, as I don't want a lumpy scarred thing in place of the flat scarred thing I have at the moment. I also can't imagine agreeing to surgery, if it is not life saving. I just can't accept the risk that it might not go to plan. I don't like pain and infections.

However, I have now decided that knowledge is power. I will learn all about it and then do as I please. They can't make me. They can't scare me into it like they did the second lot of chemo.

Wish me luck, x
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Re: Starting Chemo in December.

First British person to win Wimbledon in 77 years, unless women are people too....
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Re: Starting Chemo in December.

um in 1977 Virginia Wade won wimbledon! Isnt she British?

QD x
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Re: Starting Chemo in December.

Watching Andy Murray become the first British Wimbledon Champion for 77 years made me feel proud to be British and brought tears to my eyes. He looked absolutely exhausted when he served for the match but it was so exciting and it certainly wasn't a gift, he really worked for every point. Wonderful, wonderful stuff. Arise Sir Andy!!!
B
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Re: Starting Chemo in December.

Ah bless him! QD x
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Re: Starting Chemo in December.

Wasn't the tennis fabulous?

I cried at the end...

Great morale booster...

Did you see that Murray gave all the money from winning the tournament at Queen's before Wimbledon to the Royal Marsden for cancer research, because his mate Ross Hutchins has got Hodgkins lymphoma?
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Re: Starting Chemo in December.

Talking of hair, the new hair growing on the top of my head through my cc remaining hair is coming through at a tremendous speed and is incredibly thick. Trouble is it wants to point north (about 2" long) whilst old hair lies obediently flat. I've tried John Frieda serum on it but it still insists on standing to attention. Anybody else got the same problem or any brilliant ideas of what to do?
B
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Re: Starting Chemo in December.

Lisalouw it was me that used the colour mousse. Mine came with English instructions which I didn't read because I used it the way my hairdresser had used a similar colour mousse on me. Haven't got the tin anymore because I've used a permanent colour and don't need the mousse but I'll tell you what my hairdresser did.

The first time she used it on damp hair. She squirted it on a root touch up brush, made partings and applied it to the hair and then combed it through. She did this all over the head and it completely changed the colour of my hair from blonde with lots of new grey to total darker blonde. She said that when I washed it not all the colour would come out so I could just squirt a ball of mousse into my hands and massage it through the hair and style. I use the word "style"loosely you understand! She also said if I got some new grey growing through the old hair I could just put some on my finger and "touch it up" so to speak. Once the hairdresser had done it I just put it on with my hands as this was easier and the colour wasn't so intense. Cetainly worked but I preferred to use less rather than more as I have a chin length bob and the mousse put on thickly so that you get an entire colour change does make the hair a bit too stiff.

To be honest I finished chemo on 12th March and cold capped so kept quite a lot of hair but the new hair was coming through grey and fluffy. Didn't like that so I have in fact used permanent colour "Naturtint" three times since then and my hair has been fine and is in quite good condition albeit thinner than I'm used to. Very thick all over my scalp now but the longer hair is still thinner. Not the best of looks but better than the alternative. Good luck with the mousse.
B
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Re: Starting Chemo in December.

oh Cybele love you are in the wars. its not fair is it! I had different steroid regmes with different chemos. with fec it was 8 tabs a day for 5 days with tax it was 16 over 3 days. perhaps your onc is not the best person to see regarding the lung prob. you maybe need to be referred to a lung specialist.
LisalouW - cant you google the intsructions for the mousse? i cant blumin find any johnsons baby soap!!! aaargh

QD x
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Re: Starting Chemo in December.

Hello everyone , who was it who got the goldwell colour mousse , I ordered some off amazon and no English instructions ! So no idea how to use it or how long to leave it on or if to wash it off , very confused x
cybelle , so glad you on the good drugs , I had 8 a day on chemo , 4 in morning 4 at night , I never felt elated though boo , I hope you find some answers because I know the oncs are treating the cancer but you also need to have some quality of life whilst having treatment , I know it prob won't do much but when my asthma bad I start on the manuka honey and fresh lemon drinks and lots of menthal sweets which seem to soothe my lungs and funnily enough booze always seemed to help , think it's because it used relax me so i wasn't thinking of coughing , hope you feel better soon x
QD, I was told only e45 or diprobase, no deodrant/shaving , no suncream , in fact nothing unless they have agreed it , so yep all dept seem different , I'm even washing my hair over bath so shampoo doesn't go down on my rads area , I've a sensitive skin though , oh they advised to use simple soap , so I'm sat in the house when it glorious outside as I can't go in sun and can't find any shady spots x
lolly, boo to another op x
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Re: Starting Chemo in December.

Cress - laughing. YES.

The Dexys are cheering me up no end - still coughing, but now feeling massively cheerful, not to say elated. Just like the good old days on chemo, but without the pesky chemo side effects.

it's extraordinary the difference in effects between two very similar drugs.

Sorry, due to being plunged in the Slough of Despond for the last few weeks have not been paying attention to how everyone else is, just been coming on here and whining.

Thank you for the support, everyone, and I truly hope you've all been doing better than me. xxxx

And hey, Andy Murray's in the Wimbledon final again...
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Re: Starting Chemo in December.

Cybele - the job of oncologists is to try and stop us dying of cancer. And we all know, that the only way to "beat" cancer, is to die of something else.
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Re: Starting Chemo in December.

Coughing got really bad again over the last 24 hours, and am feeling exhausred and very down. Can barely speak.

Saw the doctor and explained the probs wirh Prednisolone, and he agreed tp put me pn Dexamethasone for a week, four tablets a day for 4 days, then gradually reducing. Trying to remember how much they gave me on chemo, if this will be more or less.

Actually on chemo, didn't you have to take 2 doses of 2 tablets every day, so maybe it's the same..

Have been doing some research on radiation pneumonitis nad have found that Cyclophosphamide - the C isn FEC - is also known for causing lung problems.

Am quite worried because although the radiation pneumonitis will usually get better after a few weeks on steroids, cyclophosphamide/radiotherapy can also cause later lung fibrosis which seeme to result to more permanent damage to the lungs about which there isn't anything they can do,

And all of this is more likely to happen to people like me with previously damaged lungs..

Am going to try t oget a meeting with my oncologist to talk about all this. My main oncologist seemed to doubt this was anything t odo with the radiotherapy, but one of the other oncologists disagreed, and I find it hard to believe that my lungs could get into this state without anything triggering, and there has been no other trigger than the rads - I haven't had any kind of respiratory virus for months. I'd like them to do a scan on my lungs to try t oget to the bottom of it, because the pneumonitis doesn't necessarily show up on an x-ray.

Knowing the exact cause won't make any difference to the treatment - the ONLY treatment for this kind of lung inflammation is steroids, to the extent that you can tolerate them, but I would really like to know whether it is the cancer treatment that is causing it and , if so, get myself put under the care fo a proper lung consultant over the next months while we see if anything else develops.

The oncologists don't really seem very interested in lung problems; if it's not actually going to kill you, it doesn't count..
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Re: Starting Chemo in December.

LiaslouW - I will ask my avon lady about hair mascara. ta for that. No hair not long enough to dye yet- and I would be dying my scalp tbh!

Lolly - good luck with the op
Mairie - hope the tiredness settles.

interesting- when I was at my rads planning yesterday I was given some info. on NO account was I to use aloe vera - just e 45. and only use johnsons baby soap. weird how we all get different advice!
Son leaves for Kavos tonight on a lads holiday. God help Kavos!!!!!!!
QD x
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Re: Starting Chemo in December.

Good luck with the op Lolly. Pretty unfair you have to deal with this new medical procedure.
LisaL-I'm getting 18 herceptins. It's poss it has affected my blood count. Nobody seems unduly worried......apart from me.
Hamley- eyes are ok. I've got to the grand old age of 50 without needing glasses so think any deterioration may be down to age rather than anything else. Optician was unconcerned but said just keep getting them checked. Thank God for the good old NHS!
As for the Tamoxifen-it def makes me tired. Strangely though if I get active I forget I'm tired for a bit.
It's a strange kind of tiredness. I go to bed, read a few pages of my book (The Dinner, at the mo, enjoying it!), drift off to sleep and then bang! wide awake after a few mins. Usually with all sorts of crazy thoughts zipping about my brain.

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Re: Starting Chemo in December.

Hello to you all, just a very quick post to let you know i have been to doctors today about my wrists as i am still having sleepless nights with them very painfull, i am being referd to have an opperation on them to sort it out GULP !! but im sure it will be worth it.

lolly
x
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Re: Starting Chemo in December.

Marie , just read a link about herceptin affecting white cell count , can you ask the oncologist or contant breast ca nurse to put your mind at ease xxx
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Re: Starting Chemo in December.

QD , I get like that still and it's nearly 6 wk after surgery , I have a few days where I'm ok then a few days where my legs feel like lead and Im that tired I'm short of breath , one of the nurses at rads says that it's just your body catching up with everything , so on the days I'm bad I try and rest , best I can anyway with a toddler , in fact that's when the bag gets packed and I leg it to my mum and dads , you can buy hair mascara , I remember getting some from Avon ages ago , not sure if any chemicals in though , is your hair long enough to dye yet , yeah to aug when your rads over , sorry your tattoos hurt , ouch , the air con was so cold that day maybe it froze my body abit ha x
marie , I think the chemo messes with our white blood cell count for a good while after , or maybe you just run down , how low was it , I bet it feels so nice to go with out your wig , I keep going without my hat now and again , but I just look like I've got really thin hair not been ill so I don't get any pitiful looks , how many herceptin do you have , I thought it was 12 x
hamley, congrats on end of rads , yipee xxx
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Re: Starting Chemo in December.

Hi all
Cybele - how are you feeling now? im so sorry to hear you missed the concert.
Cressida - no my mascara isnt waterproof so when it rains i have to cover my head pronto! did the gas man call?
Hamley - yay to last rads! hooe you find some closure re your nan
Maire - how did the eye appt go? mine are blurry too
SP - well done on op
LisalouW- yay to hair dye

I had my tattoos done today and im sorry but OUCH!!!! x 3!!!!! my first rads will be july 16th and last August 8th. Roll on August 8th!!!!!

How long did people feel tired for after surgery. i still feel in a bit of a fog, or for those that have had children - like the beginning of a pregnancy when you are shattered. Perhaps its the tamoxifen playing with my oestrogen?

QD x
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Re: Starting Chemo in December.

Lisa low-Glad your hair is looking better. Mines is def growing but slowly. Still a tad purple. I bought some more hair dye but think I'll wait a bit longer before using it. I'm finding my hair is thickening up at the back but is finer on top. Had enough of the wig so am now going out and about with my new fuzzy head. This has been tough at times as people have realised I've gone through chemo and I'm getting the odd hug which is kind but makes me a bit emotional.
Still feeling tired and worried about white blood count. Am hoping it's just the herceptin or the recent cold I had.
Herceptin No 9 tomorrow-The half way point!
Hope the cough is less racking Cybele!
Sunshine forecast for tomorrow lets all bask in it for a while and boost the old vit D.

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Re: Starting Chemo in December.

hello ladies , I've just had no 9 of 20 rads , my rash has now calmed , prob just in time for my skin to start bubbling! , more positively though my hair is a better colour , went to hairdresser tues and he put a semi dye on , it's not covered grey totally but toned it down , I've also had my hair cut , it's very thin though so still wearing hat , wig too warm , until it thickens up more , buts it's hair, how's everyone's hair coming on , can't shave under arm during rads and that hair is sprouting very quickly, typical !
Cybelle , so sorry your still feeling rough, I have asthma so I'm watching out for a cough , it's awful when you can't breathe , it just saps your will and energy, I hope they give you some of the good steriods , I've got some left over from chemo so I'll be taking them if need be x
marie , how you feeling ? X
hamley , hope you have a peaceful time visiting your mums mum and feel better for it x
QD , yeah to mascara , I've used it before on my grey roots , I've ordered some colour mousse off amazon to tone my hair down when this colour washes out x
love to everyone xxx
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Re: Starting Chemo in December.

'The genius of cancer treatment is that it makes you WANT to die':


today's post on http://chemonights.blogspot.co.uk/
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Re: Starting Chemo in December.

Just found out my neutophils are a bit low..............so now worrying about leukaemia.......I need to get a bit of perspective!!!
SP, Glad you've had your op. It must be a relief to know that part of the journey is behind you.

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Re: Starting Chemo in December.

Maire - I did a bit of a search for recurrence whilst actually taking Herceptin. It's hard to search this site but I did find discussions about it. If anyone had a recurrence on Herceptin you can be sure they would be here talking about it. I agree that your Onc is probably not telling the whole truth, but I could not find ANYONE who said they had recurrence whilst actually taking it. That sounds good to me. Just try not to have a heart attack...
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Re: Starting Chemo in December.

2nd WLE yesterday for me went ok, despite a very long (hungry) wait to go to theatre. I have more pain than last time and it looks like there's a more substantial difference to the other boob now, despite my brilliant onco-plastic surgeon's best efforts. Priority's the cancer clear though, so looking forward to the tissue results in a week or two.

In support both Cybele and Marie - my lung mets didn't cause me to cough and liver ones didn't stop me drinking wine! Hang in there until you get some answers.
Sarah.x
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Re: Starting Chemo in December.

Cybele I'd phone your GP to hurry things along. The post chemo landscape is pretty scary. It sometimes feels no one is really looking out for us so we need to take back control ourselves. I have just booked an eye exam because I feel my eye sight is deteriorating and I know Tamoxifen can cause probs. Just want to make sure I am being vigillant. The problem is there's a fine line between vigilance and paranoia. I'm def drifting into the paranoia zone! But I'd rather be a pest with nothing sinister than a stoic woman who ignored warning signs.
I've been really helped on here by people who suggested my rib pain may be caused by radiotherapy. Sometimes you just need someone else to come up with a plausible suggestion.
Cress-My onc calmed me down and said "It's unheard of for people to have cancer spread while on herceptin". That reassured me even though I'm not sure it's entirely accurate! Good luck with the servicing!
Hamley-Glad the rads are finished. Good luck with the trip to the grave. Hope it is peaceful and healing.
Hope the cough resolves soon Cybele, you need a break!
Right, now for that eye test!

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Re: Starting Chemo in December.

The coughing is getting worse again, although I took 3 tablets - 15mg - of the Prednisone this morning, and 10mg yesterday. I daren't take a higher dose because of the whole it-makes-me-psychotic thing

I'm just sitting here, coughing and coughing.

I'm due to see my GP on Friday, but if this continues I'm going to have to go back to A & E this afternoon and ask to be put on a nebuliser again.

I am SO SICK of this - all of this.

The thought of going back to the hospital again just makes me want to cry.
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Re: Starting Chemo in December.

Hamley - I think it is a lovely idea to go and talk things over with your Mum and your Gran. I hope it brings some peace to you all, xxx
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Re: Starting Chemo in December.

Now studying the medical literature on radiation-induced lung damage after radiotherapy for breast cancer. Apparently Tamoxifen can make it worse...

Acute lung problems are rare, but more common in people with previously damaged lungs - that would be me.
What really p*sses me off is the way the oncology registrar simply dismissed the possibility that my acute coughing problems could be anything to do with the radiotherapy, as it was 'too early'. From the literature I can see that it would be unusual, but by no means impossible.

I did have a vague worry way back that radiotherapy might not be good for my lungs, but with the whole chemo nightmare I kind of forgot about it.

Now I'm trying to research as best I can whether there may be long term effects on my lung and, if so, the best way to deal with it, because I have absolutely no confidence that any medical professional is going to do this for me
.
I think this acute exacerbation will eventually clear up with steroids - there is no other treatment - but when I see the doctor on Friday I'll try to get him to change the steroids to Dexamethasone, which suit me so much better.

The worry is the long term effects - there is something called fibrosis that may develop after the inflammation has died down - this is essentially scarring of the lung, not clear how that affects you long term.

I think probably it will just mean that my already weak, scarred lungs will just be weaker and more prone to exacerbations of coughing, and that there will be a lot more recourse to steroids in the years ahead.

Fabulous, just f***ing fabulous.
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Re: Starting Chemo in December.

I've finished my last rads appointment, hooray! My oh took me out for dinner to celebrate at our fav restaurant and I pigged out big time.

I'm sore and know that it'll get worse before it gets better, but am looking forward now to my 2nd mx then I can go back to work after recovery and feel relatively normal again. I'll make a decision then about recon which probably wont be for a while yet. My 'dogs ear' on my scar has suffered worse with rads than any other part and I feel that I just want to cut it off. My nose keeps bleeding, I thought that had finished with the chemo and the hot flushes persist .

I had hoped everyone would be feeling so much better now but it seems that bc is lingering still. Hang on in there everyone.

I'm going to visit my Mum's Mum's grave on Friday. She died from bc aged 44 and it will be the 50th anniversary of her death. My Mum (who also had bc) and I are going to spend some time with her, just us so we can talk it over. I wish I'd known her and my Mum (who lost contact with her Mum when she was a child) is looking for some closure. I hope my Gran likes me.
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Re: Starting Chemo in December.

Glad the sanity is within reach again Cybele.

Maire - when is your Onc appointment? You really seem to be going through the cancerxiety mill. You may be amused to know that I did not get seen to by the gas man due to a cock up of appointments. So, I am due for my service today instead. Lucky I got cancer and have no job to go to.

Mandy - how's the pink bag?

QD - I am having a good giggle imagining you mascaraing your head. Hope it's waterproof.

Lisa - boo to getting rads rash so soon. Demand attention from rads nurse. Cry at them if necessary.

Sarah - when is the surgery?

Coyoti - I too am eating to make up for all the food I could not enjoy during chemo. It's fun, but it's not a good look when the stomach sticks out more than the remaining boob.

xxxx
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Re: Starting Chemo in December.

Aggghhhh. Lost my post.

It was really funny and yet supportive at the same time. Honest.
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Re: Starting Chemo in December.

Maire, totally agree with you about the beneficial effects of alcohol - am currently drinking a sizeable glass of Armagnac to help me stop coughing, as it's got a bit bad again. Took a dose of steroids this morning - but only 10mg, not 30 mg - because it seemed to be starting up again, and most of the day was ok, but during the last hour have been coughing non stop again, so alcohol is the only way forward. For some reason neat spirits really help with the coughing - probably because it anaesthetises your airways, or something.

Whatever - it works, at least in the short term.

This morning had minor panic attack after reading someone's post on this site about lung mets and suddenly thinking, for the first time ever 'OH. MY. GOD. Perhaps I am coughing because I have METASTASES in my LUNGS'.

I immediately phoned Cressida in a state of absolute panic, and happily she was in, and talked me down, pointing out that my dodgy lungs long predated cancer and that lots of people get coughs whilst on radiotherapy, especially those with pre-existing lung conditions. GOOD POINT.

Thanks, Cress.

We ARE all going to get our lives back at some point, aren't we?

Please tell me we are...
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Re: Starting Chemo in December.

omg Maire - what an awful shock. Hope it is just an admin error and that the hospital gives you a HUGE bunch of flowers.
Lisalouw- hope you feel better soon!!!
Coyotegi - yay to a bit of normality.
Cybele- if you can get to the concert then go. I agree with Maire - cant you get one of those seat thingies?

Ive started using mascara on my hair. I figured that if it was safe enough to go near the eyes it would be safe for newbie hair. Ive got blue, black and brown so can ring the changes!

QD x
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Re: Starting Chemo in December.

Cybele, could you get one of those portable seat things.....and I'm a firm believer in a medicinal drink, would be a shame to miss your concert. On the other hand if you are really not up to it give yourself a breather.
I've had a horrendous day due to a frightening and unexpected letter arriving and telling me I was being admitted to hospital!!
Couldn't get any answers as today is a Saturday but looks like it's either an administrative error or a really poorly worded routine letter. Have been in hysterics but luckily was able to find a way to get access to medical records and am now sure it's nothing sinister.
LisaL-scalp no longer purple but hair still has a purplish hue. Have gone wigless on a couple of occasions but really need a decent dye job.
Right, think I'm due a Drambuie now!
xxx

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Re: Starting Chemo in December.

Back home and feeling rather saner now. Thanks for support and advbice, everyone. BC and QD - good point, I'd forgotten that about steroids. But they gave me 7 days of 6 tablets every morning to give short sharp shock to lungs, nothing about tapering off from day 7. Just stop on day 7. So I just stopped on day 5 instead of day 7. I really was losing it big time, mentally. It was frightening. Am thinking /hoping that the big probs with stopping steroids suddenly would be if you have been taking them for months. Hope so, because I just could not bring myself to take any more, even a smaller dose. If i go down with an infection over the next week I may live to regret this..

Unbelievably, and weirdly although the left hand side and middle of my breast is now pretty much healed, the right hand side has continued to burn. Where it wasn't burnt before. Not as bad as before though, just red and sore, skin not actually broken and weeping. Fingers crossed, I don't think it is going to get any worse now.

In other news, we are meant to be going to see Bruce Springsteen at the Olympic Park tomorrow - R got the tickets ages ago for a post-cancer treatment treat. We both thought I would be completely healthy by now.

Yeah, right.

i honestly don't think I can face it, it's a very long night even if you're feeling healthy, a lot of walking, a lot of standing up - and I am really, really weak.

R paid a fortune for the tickets, though, and we are meant to be meeting some friends, so if I don't go i am going to spoil it for everyone, but right now it's the last thing in the world I want to do.

SP - yes, it's improtant to remember that this whole nightmare is about trying t oavoid dying from cancer, but God, it's very hard to hold on to that thought sometimes...

Love and hugs to you all. xxxx
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Re: Starting Chemo in December.

Thanks border, can't believe I've got a rash already 5 doses in , I suffer with prickly heat anyway , at least that's what I think it is , I already take antihistamine for hayfever , it's driving me nuts abit , very itchy , steroid cream takes it off abit , I'll ask them on mon when I go , I normally use eurax cream when I get it in the sun so I'll take it with me to let them look at it , I've also got aloe Vera gel I'll ask about that too , they seem to be very strick , e45 or diprobase x
marie , ha ha , is your scalp still purple , think ill go for boring brown to be safe , is it you who's getting rib pain , just been reading my radio booklet and it says rib tenderness is a side effect and also rib fracture !
Hope everyone managing there aches, pains , lumps , bumps and god know what else we seem to be getting
I'm at Weston park which is a cancer hospital, and yest I saw a young lad in a wheelchair , I can't get him out of my head , poor lad , its made me shake myself and think stop moaning Lisa, lv to everyone xxx
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Re: Starting Chemo in December.

Good luck with hair cut LisaL. One word of advice.....don't go purple!

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Re: Starting Chemo in December.

Lisalouw - I developed a rash the day after I finished rads. Very itchy. I took Piriton anti-histamine tablets and the rash immediately stopped itching and the spots gradually disappeared. Used only Aloe Vera gel on skin which never went even pink.
Hope the hair turns out well. Just having it done will make you feel so much more normal and have a lovely rest at your parents' home this weekend.
Have a lovely weekend everybody - I think the sun is going to shine.
B

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Re: Starting Chemo in December.

A while since i have been on here, sorry that so many are having problems.
when the chemo guy says anatrosol ( or whatever its called) will have a low to moderate benefit as only 4 out of 8 can you all understand why i havent started taking it yet? reading these posts makes me even more reluctant...had finished with menopause symptoms and really not wanting more.
I also lost wieght during chemo as couldnt eat anything,just wish i could sill say the same! shouldnt stomach have shrunk?
I am doing most things as normal , horses, allotment , shopping etc. working 4 hrs a shift and feel ok then suddenly get exhausted out of nowere? I think some of it is dealing with people at work who all seem pleased to see me back which is nice, but constantly being asked if its"all gone" and my prognosis is draining, as is feeling i need to be cheerful...
Thanks for humour again Cress the Oracle and keep up the research. Maybe" the meaning of life,the universe and everything in it" could be your next topic!
Chinup Cybele and Marie.
Hugss to all, X
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Re: Starting Chemo in December.

Few days since I've been online...
Cress - many thanks for perspective
QD - love and support your declaration of intent to family. I've told mine I'll only go so far & to know what to expect if I ever issue a family invite to a holiday in Switzerland...
Cybele - I can't believe you're having such a rough time of it, heartily wishing it gets better for you soon. Try to remember it's all in aid of best chance of no recurrance. Re Tamoxifen, it hasn't made any difference to me, perhaps that's because I already had night sweats and hot flushes during chemo.
BC - you sound very wise!
Good luck Marie & Mandyp, hang in there Lolly.
Sarah.x
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Re: Starting Chemo in December.

Yeah QD oh new job and yeah for son passing driving test , yep tattoos very painless , one in centre of chest and one at each side of rib cage , mine looks like a black freckle xxx
my rash is getting worse , it's like a prickly heat rash , I'm only on rad 5 , thought skin problems started around 10 , I've got some steroid cream to try now , the fatigue is back too, boo! Feel like I'm glued to the spot at moment , think the driving to rads and back and parking has been abit too much , my dad took me today and I've packed a bag and me and me little boy are stopping at mum and dads for wk end , on the plus side I'm having my hair cut and coloured on tues, yeah , I'm hoping to be able to go without hat or wig and give my head a breather
cybelle, so sorry your having a rough time , I really hope things start picking up for you , I had a reaction to an antibiotic through chemo that made me anxious , depressed and hallucinate so I know how you feel , when chemicals get you mentally it's very hard to deal with
love to everyone , I'm still waiting on my genetic test xxx
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Re: Starting Chemo in December.

QD still waiting for my various medical appointments. Trying not to fret too much. Didn't expect to hit a bump so soon, but then I am a terrible worrier.
Good luck with the radiotherapy. I was one of the lucky ones with no damage to skin at all.

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Re: Starting Chemo in December.

Congratulations junior QD on becoming a fully fledged driver and so pleased to hear that OH has got a job. What a relief that must be. Hours are tough though. Hope the tattoos go well. Really quite painless.
B
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Re: Starting Chemo in December.

Hi all

Cybele- what an awful experience for you but i do share Border Collies concern re the abrupt cessation of steroids. Both my kids have asthma and both have had prednisalone and it was drummed into me that their doses were to be gradually reduced. Sending you a hug.
Lolly- thanks for the reassurance re tattoos. I will be glad when Thursday is over.
Maire - so was everything put down to tam?
Mandyp - good luck with the results

My OH has a job parking cars at birmingham airport. He does 12 hour shifts. Yesterday he was supposed to leave at midnight but they were that busy that he worked until 1.15am! He rolled in at 2! Worse than a bloomin teenager! On the plus side my son passed his driving test yesterday! yay. so I can now remove that taxi driver badge that ive worn for the past 19 years!!!!!!!
QD
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Re: Starting Chemo in December.

Cybele I really feel for you as so much is being thrown at you at the moment. However, I have always been led to believe (by my veterinary surgeon) that steroids should never be stopped abruptly and that you should wean yourself off them by gradually reducing the dose. This is what I've always had to do when my dogs have been on Prednesilone.
Apparently artificial steroids stop our adrenal gland (I think it's the adrenal) from naturally producing steroids which we need to fight infection, inflamation etc. so if steroids are withdrawn abruptly our bodies are left with no steroid output. By weaning ourselves off them we gradually encourage the gland to go back into production again. Also abrupt withdrawal of steroids can cause lots of side effects with are very unpleasant and our bodies are not able to adequately fight infection until the adrenal gland is fully functional again.
I try not to take steroids if I can get away with it - didn't have them during chemo and this is because of what I've learned over the years from my excellent veterinary surgeon, with all my various collies.
Google it Cybele - don't want you to feel worse than you already do.
Take care.
B
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Re: Starting Chemo in December.

Hi all.
OMG Cybele - you did right to take yourself off the drugs....sounds blimmen miserable.
I had the blood test yesterday at the genetics. It was really interesting......I'd argued with my onc when i asked for a referral that even though my family history is not strong that there was a distinct lack of females in my family. also I quoted you Cress on the TN under 50 malarkey. And I'm glad I did as the genetisist said that despite the lack of family history....no one under 70 had cancer in my family, that the mutation can start anywhere. Anyway, should have my results in 2 -3 weeks. It was a no brainer for me to have the test. Although was tough getting blood as veins were not playing ball!!!
Also went to Docs to get prescription for dilators.... and I can't wait. Hope i get a pink bag like you Cress!!!! Also told doc about my wheezy chest and she's organising a couple of tests for me - bloods and the one where you blow into the thingy!
Glad the rain held off as I made my twins' sports day today. Their last year at infant school. Very emotional, but lovely.

It's all about bearing up really. And trying not to think too hard about going back to work!!!
Love to all
xxxx
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Re: Starting Chemo in December.

Bloody Tamoxifen. Fume fume!
Hope your boiler had a good old service!
Snigger.