Hi I realise I’m a bit late to this but I rarely look on this site now. I also received a letter. I finished chemo In July 18, then had surgery and had rads in November 18, and Finished Herceptin in May 19. Now I take tamoxifen. I was really surprised when I got the letter as I’d spent most of 2019 trying to forget about BC! It actually churned up a lot of feelings for me, mostly anger at being made to feel vulnerable. I realise this was an irrational reaction but it’s difficult to control your emotions around bc isn’t it! Thankfully I did speak to a consultant who said I was no more at risk and so I didn’t shield but was careful. Now I swing between being worried that I will be badly affected by it and thinking it will be like flu! I was told everyone who was having/had cancer treatment in the previous 12 months received a letter.
Hello, mine have been e positive, so I can have tablets as well. I was already on anastrozole when i got a recurrence in my nodes, so now I'm on tamoxifen instead. Enjoy your garden and dog, off to take mine out now, he's 15 so we won't go far! Xx
i read your reply with interest. I did wonder if my name was on a list hence the letter 🤷♀️ Ir whether i was still classed as having ' active ' treatment bcoz of the Zoladronic infusions. Think i will just carry on as i am, walking my dog each day and tending my garden when its warm enough 🙂🙂
are you having any other long term treatment once zol has finished ?? I was Triple Negative both times so will not be offered anything else.
mini mad xx 💖💖
Hi Mini mad, I sound very like you, finished chemo last August, now on Zol Acid, 3rd infusion due in July. I got the "shielding" letter and was surprised. There are several threads about this on here and advice from the nurses that Zol Acid does not affect the immune system. I suspect the fact that we are still on the books with Oncology triggered it, and they would not look at details with the numbers involved. Its up to you of course but I checked with my GP surgery. The duty doc just shrugged it off, bit like yours, but later my own usual GP rang to say he agreed I did not need to shield. The list was drawn up by national NHS and our surgery has had loads of calls about it, about half are from people who do not want to be listed and half who did not get a letter and want one! My GP is happy for me to just carefully follow the standard rules, which I do. Good luck with the rest of your treatment Mo xx
Well I’m on denosumab which is basically the same type of drug and does the same thing and my specialist said he’s not concerned about the effects of that at all and I wouldn’t have to shield for that reason. I got the letter as I’m on targeted therapy that affects your white blood cells. Seriously just give your team or Onc or BCN a call. They’ll be able to answer your question straight away to save you wondering and they understand about how our treatment affects us a lot more than your GP will x
thanks ladies for both of your replies.
now wondering if its bcoz i'm having Zoledronic infusions, nxt one due in July if it goes ahead 🤷♀️ Would be 3 of 4. Mini mad xx 💖💖
Hi mini mad
I finished my chemo in April last year but still got the text on 23 March, followed by the letter. I too was perplexed as, apart from joint/muscle pain, I’m fit as a fiddle. However, I checked with my GP and he said it wasn’t an error “given my experience.” I should have asked what he meant but he was ringing off at that stage. I did have an episode in February 2019 when I was hospitalised for 4 days with neutropoenic sepsis so I wondered if that was the trigger for the computer identifying me as vulnerable. I’ve never had a chest infection in my life, except during chemo.
I’ve actually found last year’s experiences were excellent preparation for being shielded and my husband has joined me because it’s a lot easier. Maybe we have the advantage of being retired? I’d love to go for a drive but otherwise, the weeks are passing (week 8 now but I know they’ll extend it!), a neighbour collects my prescriptions and I qualify for participation in the weekly Grab The Delivery Slot stakes with Sainsbury’s online grocery shopping. I don’t feel sidelined. It makes complete sense to remove the most vulnerable from the course of the virus for now and maybe I would be more vulnerable. Who knows? I’d rather comply as my contribution to the pandemic effort (which, let’s face it, has been pretty disastrous). Now I’m wittering on - that is a consequence of lack of social contact lol.
You are not forced by any law to comply with this selection for shielding and all the limitations it imposes. It is advice and a request. Surprisingly, it’s not a rule or regulation as far as I can tell from the wording. You have to make your own choice. But there’s no point in people doing it half-heartedly. Either we comply fully or we undermine the purpose by taking risks. It’s every individual’s choice so please don’t see it as an insult. Nuisance, yes lol. Best of luck,
Hi. It might be worth double checking with your GP or hospital team. I know of quite a few people who have been sent the letter in error. So definitely worth double checking if you’re not on active treatment. Shielding is quite an onerous requirement so not something you want to do if you don’t have to x
hope today finds you all somehow managing to cope with all thats going on..
i actually finished my 12 chemo sessions August of last year - TNBC twice in 2 years, so didnt imagine that now i'm 9 months on from my final chemo, that i would be sent ' the letter '...
just wondering if anybody from that time 8/2019 might still look at the current posts on here and whether they have also received the 12 weeks self isolation letter.
thx lovely ladies.. mini mad xx 💖💖