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Brain cancer

4 REPLIES 4
Loulou1007
Member

Re: Brain cancer

Jaybro could I ask what are the Facebook groups you recommend ?

thanks x

Loulou1007
Member

Re: Brain cancer

Hi Alreadytaken

i have just read you post and sorry for you to be here, anyway I am in a similar situation to you with mets to bones, liver and lung, I am also er positive and her 2 negative and my primary cancer 5 years ago was stage 3. Unfortunately my lung collapsed because of the cancer and I am hoping to have drained this week. I will then start Paciltaxol chemo. Hair loss is upsetting although I have wigs from previous bc.

may I ask how are you doing and have you started chemo? I’m 51 with a family what about you. I hate this ride and frustrated that 2 treatments for mets haven’t worked for me whereas for others it’s lasted year/s it’s unfair. Hence me having to start paciltaxol. 

let’s hope this treatment works and keeps all stable for years/s

louise xx

alreadytaken
Member

Re: Brain cancer

HI again ,  I think its secondary because its moved to some of my organs and bones.

From the letters to the GP I have bilateral breast cancer and the scan shows extensive met disease. from the biopsy on the left breast its grade 3 invasive ductal carcinoma, the tumour is er positive and her 2 negative, the right breast is grade 2 which is er positive and her2 negative. its spread to some of the lymph nodes liver lungs and bones.

Thanks for the luck xx

Jaybro
Member

Re: Brain cancer

Hi

We meet again. I’m so sorry you have a secondary BC diagnosis. It’s a devastating shock, isn’t it! You might find it better to post in the secondary breast cancer forums as that’s where the ‘expert’ advice will be and you may find your answer. 

Do you know the location of your secondary tumour? Mine’s in the medial canthus, between eyelid and brain, but my oncologist hasn’t said it will spread to the brain! Has your oncologist mentioned it affecting your brain? I ask these questions because I can understand your imagination running wild, filled with worst case scenarios. My personal preference is to trust my team, accept the treatment, hope for the best and put all the horrors in a box in my head, ready to be dealt with if I ever have to deal with them. It takes some practice but, apart from some leakage on Christmas Day, it’s served me well so far.

You might also apply to join the secondary bc private forum which can be very helpful - I got amazing support after my Christmas blip. There are also a couple of very good Facebook groups which you may want to join once you know where you stand with everything. They are a tremendous source of information about new treatments etc and there are groups for specific kinds too - I belong to a Triple Negative group because our interests and needs can be very different. Wait till you know more about what’s going to happen to you and you feel emotionally strong enough. 

Good luck with the chemo. Hopefully the radiotherapy has done a lot of the repair work already xx

alreadytaken
Member

Brain cancer

hi, I had 5 sessions of RT and will soon have chemo.

I have secondary breast cancer.

How likely is it that the cancer will spread to my brain and any idea of the time this will take ?