Just to say I am nearly two years on from Diagnosis now. Stage 3 advanced to nodes. have had a full mastectomy and received high dose FEC and radiation. I used the Paxman system (we live near where the company is based) I managed two cycles of FEC using the cold cap. I found it really tough and after the second cycle my hair came out in huge clumps. as I had masses of hair before it was very noticeable and distressing. At that point I decided to clipper off what was left (with my hairdresser- she was marvellous) and do scarves with funky hats. I was lucky as this was through the winter and I love wearing hats. It was the best thing I did and felt totally liberated. I completed the third cycle of FEC without using the cap.
My hair is now fully grown back. Thick and wavy as it used to be and I have it in a shoulder length bob.
I use an organic wash in hair dye that is very gentle and have the ends regularly trimmed.
It started to grow back straight away so I was never really completely bald. I'm convinced it was the cold capping that helped even though I had a lot of hair loss and only managed two cycles. I'm sure it helped protect the hair folicles and root growth area.
So keep persevering and dont worry if you don't manage all cycles with the cold cap. It will have helped.
Best wishes xx
Thank you for all your posts ladies. First chemo today, will be using a cold cap, it's so good to read about your experiences.
My daughter has stomach cancer and will be receiving epirubicin which will cause her to lose her hair. She is just getting started on the chemo meds this next week. Where do we obtain the cold caps? I've not heard anything about them.
Hi Amanda, I'm so glad you found my experience helpful, it makes it so worthwhile using this forum! If you need any other tips/support do please let me know. Wishing you all the best in your treatment, and let me know how it goes. If you do need chemo remember it's zapping all those nasty cancer cells!! 🙂Take care xxx
Hi Gill... Thank you so much for sharing your experience and tips which has given me hope if I have to have chemo. I am still waiting to hear as I was only diagnosed last Thursday and have been told that I will have a lumpectomy and radiation initially but then dependant on other tests such as my HER2 results they will br able to establish other treatment for me.... dreading chemo as I don't want to lose my long hair (down to my mid back). I hope yours continues to work and that you make a full recovery Gill, take great care of yourself- Amanda xxxx