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Cold Cap - did it help keep your hair?

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Re: Cold Cap - did it help keep your hair?

Kenmore do you have any bald patches ? I would persevere with it, I had medium caps and did lose hair from the very top of my head but 4 months on from finishing chemo it us about an inch & half long. Give it another go as I think it grows back faster
Sam xxx
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Re: Cold Cap - did it help keep your hair?

Miss Maize,

I am so glad my post helped you.  I hope you are doing well and that the cold cap is working for you.

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Re: Cold Cap - did it help keep your hair?

Thank you so much for replying to my post.

 

My hair is coming out in handfuls If  I run my fingers through it. I did have really thick hair but think I have now lost about 2/3 of it.

 

I have only washed my hair once a week and used johnson's baby shampoo and simple conditioner.

 

I did not rally start to lose my hair until about 17 days in but it is coming out all the time, falling out.

 

They used the medium cold cap with the small over it and there was a huge gap over the top of the inner cap both times.  I said I have a big head  which I do and sholud it not be a bigger cap but they said no. The nurse did say though at the end of chem0  2 that if I use it again she has changed my notes  to medium and medium. But to be honest dont know if I will have any hair left at all by then. My hair is short just below my ears and dont think at the moment it could be cut, as when you touch my hair it falls out.

 

Husband thinks I should maybe just pull it out, but frightened to do this and think I will just wait to see if it all falls out.

 

I am so disappointed as I did try the cap and had great faith in it but just bad luck that it was not fitted or working properly.

 

 

 

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Re: Cold Cap - did it help keep your hair?

Hi Kenmore28, I successfully used cold cap but on my 3rd chemo the cap wasn't as well fitted & I did lose hair from the top of my head. However, for my next 3 chemos it was colder & I didn't lose more hair. I could tell that I had lost hair but no one else could. I would recommend having your hair cut short though so the hair you do shed isn't so obvious. You will lose strands, I lost 20/40 per day but you will be amazed how much hair we actually have !! I finished chemo in April & now I've cut my hair even shorter & I've bleached it too now,
Keep up with the cold cap, it will be worth it for you.
Love Sam xxxxx
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Re: Cold Cap - did it help keep your hair?

Hi Kenmore28

I used the cold cap with my FEC and kept 2/3 of it. I was told that the hair loss with the first fec is usually about 17 or 18 days after the session. So if the cold cap was not working properly I would imagine that you have now lost all that you are going to lose from that session by now. I found that I kept hair where there was a really good contact with my head. The smaller cap made me lose hair on top since when it was pulled down there was a gap at the top. With the medium size cap there was good contact with the top of my head but more of a gap at the back of my head at the bottom. So I ended up with the medium cap with a small cover over it pulled tight to get good contact all over. Your head should go numb when you have had it on for a while so if you press the cap in places and your head feels the cold immediately then there is probably good contact. I sometimes tied a scarf over those bits to improve the contact. I have fine hair and I have heard that if you have thick hair then the close contact is more difficult.

Persevere with it as it worked for me and my hair bald patches are sprouting nicely now. Good luck. Happy for you to message me for more info as I wore it 21 times throughout all my chemo so have some good tips.
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Re: Cold Cap - did it help keep your hair?

Hi Kenmore28, the cold cap system you're using seems different to the one I used. But my first go wasn't very successful for different reasons, I lost a hell of a lot of hair after the 2nd one, but then it tailed off. I ended up a bit patchy, but I used some filaments men use to cover their bald spots and it was very successful.
I think it's an accumulative thing, so it still may help you lose less in the future treatments. I'd certainly give the nurses on here a call, they may know more.
Good luck with the fec and the cold cap, lots of love, Paula

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Re: Cold Cap - did it help keep your hair?

Hi Kenmore28 and welcome to the BCC forums

Along with the support you will find here please feel free to call our helpliners for further practical and emotional support on 0808 800 6000, lines are open weekdays 9-5 and Saturdays 10-2

Take care
Lucy BCC

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Re: Cold Cap - did it help keep your hair?

Heloo,

 

This is my first post so sorry if I am asking something that has been explained elsewhere.

 

I had my first chemo and had the cold cap and there was a little hair falling out in the first two and a half weeks.

 

The last few days and after  washing my hair with Baby shampoo and simple conditioner yesterday, masses of hair fell out in the shower and when I brushed my hair yesterday and today.  I just have to touch my hair and lots comes away, it is not sore but my head has been tingling.

 

Problem was at the first cold cap treatment the two tubes were disconnected when I went to the loo and only one was reconnected.I noticed after about an hour after Fec had been administered that mey head was not rwally cold.  The hospital were worried the machine might be faultyand are really sorry.

 

I had second fec today and cold cap was cold!! Everyone was checking it was working.

 

So I am wondering if the result of the first chemo is that I will lose all my hair or if the second cold cap might do the trick with the hair I have left.

 

I do have thick hair which is in a bob, it is coloured and so the grey/white or whatever roots are very visable now.

 

Having spent about 12 hours with the cold cap, I would love to keep some hair but have no idea if I will.

 

No one at the hospital had any idea.

 

If anyone has any thoughts would be great if you could reply

 

many thanks

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Re: Cold Cap - did it help keep your hair?

Hi everyone

I am recently diagnosed ( early June)  and had my first chemo session two and a half weeks ago and am due for my next one on 1st August. I need 6 sessions every 3 weeks then surgery then radiotherapy.  I am desperate to keep my hair - I dont want to be a cancer 'victim' and having a bald head just fills me with horror.  I read up quite a bit on the cold cap so I reckoned I knew what to expect.  I had my long hair cut short - boo hoo- but from all the blogs and the nurses advice they say it doesn't work as well on long hair. The oncologist was a bit non commital about me wanting to use the cold cap but I ignored her negativity and went ahead regardless.  The Macmillan nurses at the hospital were more supportive as were the staff and they helped guide me through ensuring that the cap fitted tightly and recommending that I wet all my hair and applied conditioner prior to the cap being fitted.  I too was told to use a low PH shampoo/conditioner but my hairdresser recommended to me Nioxin which is low PH and for thinning hair.  Also as my hair was highlighted it is also for chemically treated hair.  I wash my hair twice a week in cold water and tend to just use the conditioner.  I shampoo about once every two weeks and use cold water each time.  Today was the first time that I noticed more hair coming out when I combed it - I use a large wooden wide toothed comb but its not too bad and I am keeping my fingers and toes crossed that it does not get any worse. I was also recommended to sleep on a silk pillow to prevent friction but I simply put a silk scarf around my head and sleep in this. If I can provide any more hints just let me know.  Good luck to everyone out there. 

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Re: Cold Cap - did it help keep your hair?

You're very welcome, Hun, if there's anything at all I can do to help, I wished I'd asked more when I had my treatment, but it all happened so quickly. My hair was quite big when I had my first treatment, which meant the cold cap didn't get so near to my scalp. I think you're doing the right thing having it cut. Lots of love and strength to you xxxx

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Re: Cold Cap - did it help keep your hair?

Thank you Paula. I am going for the hair cut option. My hairdresser will think im nuts! Ah well Thank you for your lovely message xx

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Re: Cold Cap - did it help keep your hair?

Hi MissMaize, I used the cold cap when I had my chemo and I wished someone had given me some advice like that. My hair is thick and curly, and it was long, but although I used the cap I still lost, and for some reason it was a lot more manageable. I would strongly recommend getting it cut a bit shorter, mine ended up being about shoulder length. I did get some bald patches by about the 4th session, but I bought some filaments that men use for bald patches to disguise it, that worked a treat.
I hope it all goes ok for you, it's a tough time, but there is an end. Good luck xxxx

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Re: Cold Cap - did it help keep your hair?

Hello Jane
I have read your post a couple of times over now and thank you it has given me the know how that I was needing to carry on with the cold cap. I've had first of six chemo sessions and am experiencing hair loss. Chemo was two weeks ago & because I had the cap I think I thought I wouldn't have any hair loss so this week has been a bit of a shock. I've read a bit and most of what I read has involved people shaving their hair off. I have a teenager & a 10 year old & I think they'd struggle if I had no hair (as well as me freaking out!). I have long thick curly hair, am really wondering whether to get it cut short. The trouble is if I have a bob it will stick out at all angles & require styling which I am not really doing at the moment. Maybe though if it is short it will just thin & the cap would work better. I'll think on it some more
Anyway big thank you
xxx
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Re: Cold Cap - did it help keep your hair?

I know this is an old thread but when I typed in 'cold cap will it work?' I was brought to this page so thought I would share my story for anybody else that is looking.  I was offered the cold cap during my 6 session of FecT.  I found the following information helpful: Firstly I had my past my shoulder length hair cut very short.  I only washed my hair when it really needed it, once a week with 'simple' shampoo.  I didnt really know what I was looking for in the ph balance of shampoo's and so simple was the only one with 0% fragrance free on it so I chose that one!  I didnt use cold water to wash my hair but I did have it much cooler than I would usually use. The first time I put the cold cap on I found it really uncomfortable, it made me feel sick and I couldnt talk and had to really zone out, I never thought I would be able to cope.  I did not wet my hair before the cold cap, and it is really important that it is of a very tight fit.  I had to wear it for half an hour before my chemo started and for half an hour after my last bag of chemo.  It was changed every 30 minutes and don't be afraid to shout out if the nurses don't come to change it, they are so busy you may need to remind them! My hair started to fall out after my second chemo.  I found it would shred about the 5th to 7th day after every chemo session.  Don't be too alarmed!!  It's a bit scary when you wake up and your pillow is covered (oh I used silk pillows as my hair didnt seem to fall out as much with them).  I only combed my hair if it really needed it, having short hair meant I could get away with not having to 'style' it!!  I used a very wide toothed hair brush and only used my hair drier on the lowest cool setting.  I must admit sessions 4 and 5 were a real struggle, and I really thought of giving up BUT I knew it was helping my young children cope so i persevered and I'm so glad I did!  People who did not know I was having treatment had no idea that I was. I even could have got away with not telling the children I was receiving chemo as they would not have realised the difference. The bald patches were about the size of a fifty pence on the side and back of my head where I laid and were only really visible when it was windy.  If you are offered the cold cap I would give it a go!!  IT WORKED FOR ME. 

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Re: Cold Cap - did it help keep your hair?

Hi Gilly I'm having 6 FEC and the 4th is due in 5th Dec. yes I have worked hard at keeping my hair as I just want to look as normal as possible for as long as I can. I also wash my hair when I do lol in cold water to keep hair folicals closed good luck to everyone cold capping xxxx Tracy
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Re: Cold Cap - did it help keep your hair?

Hi there Tracy

 

Well done you, sounds like you have worked hard at keeping your hair.  Your talk about 4th FEC, doe that mean 4 FEC  then 4 Taxol because i think generally it is  the FEC that contributesd to the hair loss.  Will be thinking of you next week as you go for your  4th Chem.

 

Take Care    Gilly  x

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Re: Cold Cap - did it help keep your hair?

Hi just to say I've had 3 rounds FEC and still have hair although it has thinned quite a bit but no one can tell apart from me. I am experiencing tingling in my head which worries me . I loose hair daily . I wash once a week and quite a bit comes out so trying to do this only when really necessary and comb once a day with wide toothed comb as gently as possible . Make sure hair is soaked and simple conditioner smoothed on then wide tooth comb through. Make sure cap is good tight fit front back sides and top the caps can be used in different sizes so I have both small but some may have med with small outer ect. I don't wash three days before and try and leave three days or so after before washing . It should be on your head for half hour from freezing point and two hours after the red chemo drug has gone in . I wish you good luck with cold capping I also had my hair cut to shoulder length before starting and layered . I am going to hairdressers again this week to get it trimmed again as it had grown so want to make sure it's not to heavy for FEC 4 on 5th Dec . Good luck xxxTracy
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Re: Cold Cap - did it help keep your hair?

Thanks, Gilly, to be fair I finished my treatment some time ago now, had radiotherapy and now on tamoxifen. I just hope everyone now gets more info when using the cold cap than I did. Good luck to all on here. Love Px

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Re: Cold Cap - did it help keep your hair?

Paula.  Sorry that your unit weren't so thorough, there really is a lot of difference in support services and staff knowledge. Sounds like you've managed really well using the fillament, i hadn't heard of that until recently.  Hope you are doing OK just now. G x

 

Sam.  Hope the Hickman works for you, so irritating that you've got to go back next week.  As you say Head Freezing is a walk in the park compared to having babies. G x

 

I did experience some head aches after cold cap and used Migrastick which was really effective (little roll on from H & B).  This was just to reduce the number of drugs i was taking 'cos anti sickness & Steroids are a must for Chemo.

 

Take Care Girls Gilly x     

 

 

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Re: Cold Cap - did it help keep your hair?

Hi everyone, I started my chemo yesterday and used the Paxman cold cap. I had it out on 30 mins before and to be honest it was not as bad as i thought. The first 10 mins were uncomfortable but for anyone who has had kids not as painful as that ! unfortunately for me although i didn't feel cold it did cool my veins and they shut down after the anti sickness meds and first dose so i had to stop although i did have the cap on for 4 hours. I am going to have a Hickman line fitted next Tuesday then trying the Chemo again on Thursday.
The hospital i am being treated at has 3 sizes of cap, none of them fit brilliantly though, i had the middle one - the purple one. I could feel it on the top but at the back it didn't really fit so i will see if they can get the covering cap which is an elasticated cap to be tighter next week. I did have my hair cut shorter before I went but it isn't too short and it all fitted under.
I would say to anyone who is thinking about ti to try it as it really wasn't as bad as I thought it would be.
Sam xxxxx
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Re: Cold Cap - did it help keep your hair?

Gosh, Gilly and Carol, I feel so annoyed, I didn't get anywhere near the advice or help. In fact I had to remind them on the length of time if should be on sometimes. The wetting the hair makes complete sense, it was never mentioned ! Let's hope it helps others get the most from using the cold cap.

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Re: Cold Cap - did it help keep your hair?

The unit where i went used the Paxman system and i did lose a lot of my hair but it was long and thick.  Didn't know to have it cut before!!!

 

The staff at the unit were very thorough with all the girls in prep for cold cap.  Completely saturating your hair roots with a spray then using Simple Conditioner (due to PH balance) on roots.  Cold cap on for 1 hr before and two hours after Chemo.  I used to take towel while they wet the roots and warm cardi / wrap 'cos it is cold. 

 

I had Neo Adjuvant Chemo and had very little time to research / get my head round the diagnosis before i was straight in for FEC/T Chemo.

 

Of the girls using cold cap the ones with shorter layered hair were the ones who retained more of their own hair but they also only combed it occasionaly and washed it weekly.  I am still in touch with some of the girls and where the hair they lost is growing back through they have had it cut shorter now to get a more uniform look.

 

It is definately worth giving it a try.  Good Luck and Take Care.  Gilly x

 

 

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Re: Cold Cap - did it help keep your hair?

Hi Suzanne.

The most important thing is to wet your hair completely before you put the cap on. This is to make sure that your whole scalp freezes before you start the treatment. This is single most important thing for that cap to do its job. I didnt know that before my first treatment, the nurse told me just to spray some water on my hair so I did and I lost about half of my hair after the first session. I knew how to do it properly on the second session and from that point I didnt loose even one hair. Not only that, hair that I lost after first session started growing back before I finished my chemo. It really works! Keeping most of my hair and not having to wear a wig, allowed me to keep working normally full time during the whole chemo which was really great as I really wanted to keep working but decided not to tell anyone in my workplace about my problems.

It works magic Suzanne.

Carol

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Re: Cold Cap - did it help keep your hair?

Suzanne, I wish I'd been as thorough as you. I was only given a weeks notice and didn't have a clue. Funny enough I've had the same treatment as you done because my hair was at an awkward length and I couldn't seem to style it. That was in June, and it's still a lot smoother than it was. I haven't heard about the conditioner thing so I can't help with that, but I think if you keep your hair as flat to your head as possible it should be ok. Make sure it doesn't dome at the crown, which is what happened to me. It sounds silly and obvious, but do wear warm clothes. I hope I've helped a bit, please don't hesitate to contact me if you need a shoulder or anything. Px

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Re: Cold Cap - did it help keep your hair?

Thanks Paula, that's very helpful.

 

Mine is terribly curly (& frizzy too), so the thought of loosing it & it coming back even curlier is horrific! I've just had the Brazilian Blowout done on it which not only relaxes the hair, but puts so much good condition into it - thinking that the best condition i can get it in now, the better! I've been able to put away my straighteners already. At least my hair currently looks pretty normal & means it won't be sticking up in all directions in between washes & after cold capping.

 

Any other advice during cold capping? Think I read somewhere to smoother conditioner on before the cap cap goes on?

 

Thank you for sharing your experience,

 

Suzanne x

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Re: Cold Cap - did it help keep your hair?

Hi Suzanne
I have thick curly hair, and I used the cold cap, but I didn't get any advice. If, god forbid, I had to have the chemo again, I would definitely have my hair cut shorter and layered. I think you're exactly right, the cap needs to get as close to skull as poss. I managed to get by without a wig, but it did go thin, I used some filament type stuff (for covering mens thinning hair!) which worked a treat. All the very best luck, it's not pleasant, but it's not forever. Take care of yourself, love Paula

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Re: Cold Cap - did it help keep your hair?

Hi Ladies,

 

I'm starting my chemo on 6th December & i'm going to try the cold cap. I have very thick hair & asked the nurse if I should get it layered a little to ensure the cold reaches my head fully. She said that she advises i kept it as it was so if it thinned, it wouldn't be as noticable - she also said it would help keep my head warmer. Surely this conflicts with the principle of getting the cold to the scalp?

 

Any advice or suggestions?

 

Thanks, Suzanne x

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Re: Cold Cap - did it help keep your hair?

Hi Tracey

I too am under the care of Wolverhampton and finished my chemo at the end of August. I used their gel cold cap with success. I had fairly short hair to start with and although it thinned, I kept nearly all of it. I never needed my wig but sometimes wore a cap purely for self confidence. I found all Staff on the Chemo unit at New Cross very professional and can't fault them. They should also refer you for a wig which you get free of charge. They use Will's Wigs who again were excellent. Good luck and message me if you want any more advice/information about Wolverhampton, I truly don't mind. I finished radio 3 weeks ago and now have 3 weekly Herceptin. Thinking of you xxx

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Re: Cold Cap - did it help keep your hair?

Hi, I've just been told that I need chemo FECT-T and are desperate to try and keep my hair, this horrible cancer has taken enough already!. My hospital (Wolverhampton) offers a form of cold cap which is a one size cap which is kept in the freezer. I think there's gel inside which keep the cap cool. I spoke to the nurse on the chemo ward about the cold cap but she wasn't very forth coming and didn't seem that enthusiastic about me using it. I've read so many good things about the cold cap and definitely want to give it a go, I'm happy to pay for a different make if I need to. I'm interested in what type of cold cap people used to keep their hair whilst on FEC-T please. I've heard that the Penguin cold cap and Paxman system are meant to be very good. Did anyone use the standard gel cold cap and did it work for you considering that there may be places where the cap doesn't fit snug to your head? May thanks in advance for any information. I'm due to start chemo on the 29th Nov so time is of the essence. Regards Tracy XXX

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Re: Cold Cap - did it help keep your hair?

Could not agree with you more........................I also make sure that i press the back of the cap flat to my head and try and make sure that all parts of the cap are incontact with my hair which i have had cut 1nch all round to enable the cold cap to work..........fingers crossed.

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Re: Cold Cap - did it help keep your hair?

What machine instructions are you talking about as i will check that next time round have just started the Chemo and cold cap regeime so would like to make sure that they are leaving it on for the right time.........

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Re: Cold Cap - did it help keep your hair?

Hi,

I am another who has done 5 cycles of chemo, 3 FEC 100 and 3 T. (final T necxt week).  I still have about 60% of my hair and dont need to cover up with anything although i do use a coloured cream that stains the scalp so the skin doesnt shine through. It wasnt that expensive, about £13 from Amazon and has lasted ages. Like everyone else i did lose a fair bit after cycle 2 but its been fairly even. I would definitely reccomend the cold cap, after 15 mins its nyumb, and i alsways atke painkiller sabout 2 hours before hand which helps.

Oh and my treatment is NHS so its still an option not just for private patients.

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Re: Cold Cap - did it help keep your hair?

Hi, I was just googling  to find out what I'm allowed to put on my post-cold cap hair and saw  this  thread.  I had 4 cycles of EC and 4 of Tax (Docetaxel) and I still have hair!  I did lose a lot though, and  there  was a time when I didn't think it would last the course, but wierdly I started to get new growth after cycle 6 or 7 and it stopped falling out.  I last had it coloured before Christmas and it would seem that in 9 months its only grown about 2 inches so presumably hasn't grown at all during chemo.  I had it cut every couple of months, increasingly shorter, as the hair got increasingly thinner and more straggly.  I'm now a month post-chemo and I'm loving having sideburns again.  My 'old'  hair is shorter than I'd like and is prone to sticking up on end, but as a temporary condition, I can live with it.  When I think of the other ladies in my chemo group and  the  way they had to deal with losing their hair,  wigs in the summer heat, being asked to remove scarves at the airport, forgetting to put the wig on when answering the door etc etc. I don't regret the decision to stick with the cold cap.

 

Yes, it was uncomfortable but I timed the first 5 minutes and  the discomfort had always  worn off before the end. It also makes the chemo sessions much longer. For EC it was half an hour before then 2 hours after the infusion, sorter after for the Tax.  I understand that the NHS don't offer it any more due to the time it takes the nurses to set it up  and the increase in time, which is a pity.

 

Good luck!

 

 

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Re: Cold Cap - did it help keep your hair?

Well, my caboki arrived! I ordered a small sample of blonde and light brown - (my hair is blondish on top and a mousey brown underneath. It's a bit difficult to apply to the cowlick on the back of my head where it has been thinning, but with mirrors it's not impossible! It does appear to work in that it darkens the area and you can't see the skin shining through the hair, so it does give the appearance of more hair. I had been going out with a wide material headband on to cover where I'm thinning around my parting at the front, but I felt confident enough to go into town shopping with my hair down and no-one batted a eyelid. So yes, it does work and has helped me a bit with my confidence. It's not cheap though. However, a little seems to go a long way! Hope this is a help to someone.
Any other techniques that people use to disguise thinning hair? xxx
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Re: Cold Cap - did it help keep your hair?

Glitter girl, please let us know how the caboki works out and good luck
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Re: Cold Cap - did it help keep your hair?

Hi. I am new to the forum, so not sure if I'm typing in the right place!!
I am 43, have had left breast mastectomy, no radiotherapy required but am having my 4th chemo out of 6 rounds on Wednesday (2nd Oct). I have used to cold cap from the beginning. I had very long hair before treatment started but had it cut to a shoulder length bob style prior to first chemo. I'm very glad I did. My hair started shedding about 17 days after first chemo. I was quite shocked by how much came out! I persevered with the cold cap though and I do still have hair - albeit quite thin in places now. It's not thin enough to warrant wearing my wig but where the cap did not fit tightly (in front my ears and underneath at the back) I have lost a lot. The shedding has slowed down now and I am learning to treat my hair slightly differently (I.e. I only wash twice a week - more falls out after washing - and I only comb with a wide toothed comb when I have to). My last chemo is scheduled for mid November. I don't know whether what remains of my hair will last that long or not, but I am grateful that I have had hair this long into treatment. I have ordered some caboki (a powder fibre treatment, primarily for men to cover bald patches and thinning hair) to see whether that will hide the areas that are getting a bit thin. If anyone is interested, I will let you know how that goes!!
For anyone considering or just starting use of the cold cap, I'd say don't give up, give it a chance. It is very cold and I'd say that it hurts probably for the first 10 minutes or so, but then my head just goes numb! I am on FEC 90, so more hair loss is predicted than if I were on, say FEC 75. The time you keep it on depends on the strength of treatment. It has helped me to feel a bit more 'normal' throughout this horrible time. I'm just happy to be on the downhill part now, the end of chemo is in sight! Best wishes to all. x
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Re: Cold Cap - did it help keep your hair?

Hi, me again! You may want to check the Paxman website as they actually list how long pre chemo, during infusion and after infusion duration for cap wearing. I have (hopefully) attached the link to this, hope it helps!
http://www.paxman-coolers.co.uk/recommended-cooling-times/
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Re: Cold Cap - did it help keep your hair?

Hi. I am due to have round 4 of 6 chemos next week. I have been using the cold cap. A friend of mine had breast cancer a few years ago and used to cold cap and was able to forewarn me about the fact that some hair does still fall out. Like you, I started shedding big time just over 2 weeks after first chemo. All I would say is, don't give up! when I went in for my second chemo, the nurse told me that I would have been bald by that stage if I hadn't used the cold cap! My hair is very thin now, but I am thankful that I do still have some hair, I am on FEC 90 - so have to have the cap on at least 30 mins before and between an hour and an hour and a half after (I read the instructions on the machine - the nurse didn't really seem to know!). The duration is different depending on the strength of FEC!!
I have also sent off for a product called caboki (others are available) to cover bald patches/thinning hair (I haven't had to resort to a wig yet) so will let you know how that goes!!
Sorry if this is a bit garbled - I'm having to write as I think of things otherwise me and my chemo brain keep forgetting stuff! x
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Re: Cold Cap - did it help keep your hair?

Hi

I've only skimmed through this, but I feel quite strongly we're not given the best (or any) advice with regard the cold cap. I think some others have said, if you have thick, curly hair, it's best to flatten as best you can so the cold can get to the hair follicles. Also, yes, it's probably better to go for a shorter hairstyle because inevitably you will lose some. The other tip I have is, I lost probably about 50% (thick, curly, didn't know to flatten it), but I bought some filament type stuff that men use to disguise baldness. That prevented me going down the wig route. Even if this helps one person.......

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Re: Cold Cap - did it help keep your hair?

Hi All, I have just had my 2nd Fec using the paxman cod cap, my hair stared shedding in the 3 rd week after my first chemo. My hair has thinned and it is upsetting with fist fulls of hair coming oout when brushed but I will persevere. The nurses dont seem to give much encouragement though and all have different ideas on how long to keep in on post chemo. First time was 40 mins after, this time was 2 hours. Has anyone any ideas on the right timings? Am wondering if this is why my hair is shedding so much because it wasn't on for long enough the first time?
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Re: Cold Cap - did it help keep your hair?

Hi all, Bev here. I'm new to this, had WLE & SNB 1st July, been told need chemo, most worried about losing my almost waist length hair. This thread has really helped me, I now feel it may not be too bad after all, even though I feel the cold terribly will give it a go, anything to help with hair loss is a bonus in my mind. Will get my hair cut shorter first (but not too short)
Would like to thank all the lovely ladies on here for the tips and info.
Hope you are ll on the road to recovery now.
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Re: Cold Cap - did it help keep your hair?

Hi,
i have had FEC and Taxotere, I used the cold cap both times and amazingly kept my hair all the way through. Even my Onc said she'd never known anyone before keep it on Taxotere so it's always worth a try. It's a bit uncomfortable, like an 'ice cream' headache, and for a couple of days afterwards my neck was achey, but in my mind it was very worth it, although the kids were disappointed as I'd told them that if my hair fell out I'd let them decorate my head with face paint.....
lots of love x

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Re: Cold Cap - did it help keep your hair?

Lana 14 - I had 6xFEC and cold capped and although I had thinning I kept a good covering of hair and never had to resort to the wig. Now 10.5 weeks post chemo and it's growing really fast.
If you get bald patches appear ask the chemo nurse to put some gauze on your head to protect your skin from the cap, or alternatively a surgeons paper hat. Don't give up using the cap. Your hair will get thinner but even if you get the odd bald patch appear it can be covered by a creative comb over and because the cold cap has protected your hair follicles your new hair will start growing faster.

We all start shedding at different times. I started shedding at FECx2 and it continued shedding until 7 weeks post chemo, but I still have enough hair that if you hadn't met me before chemo you'd never know the difference. My advice is keep on using the cap - you won't be disappointed.
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Re: Cold Cap - did it help keep your hair?

Hi there am having 3 tax and 3 fec. I am currently using the cold cap. I have had my 3 tax and after my 3rd its started to come out. I am going on to fec now.. Very scared it is al going to fall out!! It feels a lot thinner but no bald patches yet, has only one had these to drugs? And used cc thanks
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Re: Cold Cap - did it help keep your hair?

I used the cold cap for my chemo treatment in 2009, the breast cancer nurse told me using the cold cap was a waste of time. The sister on the ward talked to me about it and was encouraging, I decided to give it a go after all if it did not work and it doesn't for some people I would loose nothing. A friend gave me a tip to avoid the ice cream head ach at the beigining of the session make sure you have a warm drink hold some of the liquid in your mouth and push your tongue up between your top ;lip and teeth and this stops - it worked, I also did not loose amuch of my hair it got thinner but I was the one who noticed the most, it was amazing and I would do it again. The down side of it was I did not manage to get a relationship of any sort with my breast care nurse probably because I rejected her advice and I can't stand the smell of Dove shampoo too many connections. I would say go for it. Good luck and I hope the rest of your treatment goes well

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Re: Cold Cap - did it help keep your hair?

Hey Swoot - I just a a great big smile when I read your post about going to the hairdressers for a trim .

So encouraged to read that you have been there - done that - and know getting haircuts!!! Go girl x x

Much love x
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Re: Cold Cap - did it help keep your hair?

Hi Kazzer, I was on FEC-T, rather than TAC (though the t and the c may be the same, I don't know) and it was pretty successful for me. I finished chemo in November last year and still have hair - in fact I am off to the hairdresser this aftenoon to get a trim because it has grown a lot since I finished chemo... Though to be fair so has ALL my hair, not just my head hair 😉

I'd say it's definitely worth having a go - you can always see how your hair is doing after the 1st session and take it from there.
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Re: Cold Cap - did it help keep your hair?

Hi ladies, it's my first time on here, hope your all well? Xx I am starting chemo next week, and wondered how successful it was with TAC??
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Re: Cold Cap - did it help keep your hair?

Hi ladies, it's my first time on here, hope your all well? Xx I am starting chemo next week, and wondered how successful it was with TAC??
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Re: Cold Cap - did it help keep your hair?