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Cold Cap - did it help keep your hair?

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Re: Cold Cap - did it help keep your hair?

I started my T yesterday after 3 fec. Have been cold capping all way through. Have lost about half my hair and have a very annoying bald patch right at the top. I can't complain though as manage to hide it really well with clipping the fringe back in a kind of quiff. You can't even tell. The thinning has definitely eased off loads now too. I'm told it will start to grow back a bit now too. So I'm thinking with regards to hate loss my worst is over. I bought a product last week that I ordered in from boots called topik. It's amazing!! It's like a coloured powder that I sprinkle on the thinning bits. It works brilliantly. Definitely worth a try if any of you are darker as that pink scalp shinning through can look a bit obvious xxx
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Re: Cold Cap - did it help keep your hair?

Hi rosarty .... Funny I found docetaxel harder but all doable .... Er only a slight bit of fluff !!!! On my legs yes lol can you believe it !!!! Start rads next week and still have to have herceptin but yes pleased chemo done .... Good luck .... I have a card someone bought me saying
You are stronger than you think and braver than you feel 😘 I quote that most days .... We can do this all of us xxxxx
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Re: Cold Cap - did it help keep your hair?

Hi. Awil. Well done you finishing chemo!! I'm hoping the docetoxyl will be a bit easier but I'm guessing there will be a whole new boat load of side effects!! Sounds like the hair loss slows down through this. Has yours started growing back now? Xx
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Re: Cold Cap - did it help keep your hair?

Hi I had the same as you rosarty 3 X Fec and 3 X dox and had cold cap twice felt ill with it but thought if kept hair .... But was falling out in clumps after second dose do my daughter who is a hair dresser cut very short but o
List all on top do the clippers come out and you are right it was kind of a relief... Tears then you just get on with it .... I have a false fringe I bought on wigs4u it's Velcro and just goes under bandanna or hat makes me feel less of a C victim ...... Finished chemo 3 weeks ago starting rads next week ..... Good luck with rest of chemo xxx
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Re: Cold Cap - did it help keep your hair?


@Rosielea wrote:

Unlike most here, I didn't continue with cold cap after 1st round of chemo. (I finished round 6 28/10/15 and haven't gone bald, just thinned a lot. So it does seem to be luck as much as anything.

 

The fit of the cap is crucial, must be tight all over. The better the contact between the hat and head, the more likely it is to work. Long thick hair will have poorest fit but then will probably still will have plenty even if they do thin. I had a shoulder length bob and fine hair.

 

I was warned that the coldness could give headaches, make you feel cold etc but I coped fine with that side of things, yes it was cold for the first 15 mins or so but I just found it made thewhole experience much worse. The tightness of the cap and the chin strap just made me so clostorphobic/paniky that I think I just felt very moment of that 3 hour session and I vowed if I lost any hair after round 1 I wouldn't bother with cold cap on round 2. Day 17 I started losing lots, needles to say I didn't have it round 2.

 

How much more I have lost has varied with each cycle, round 2 I lost lots and that's when I cut my hair short, then clippered it to a no1. Round 4 I didn't have a sore head at all so guess I didn't lose much that round. In fact I think it was round 1-3 where I lost most but I have not gone bald yet! 

 

As as for eyebrows, they seem to be the last to go, I have v.short stubby ones with nothing at the out edges and eyelashes have been done since about round 3/4. This is v.annoying as bits get in your eyes all the time. Had lovely smooth legs for a while, been growing again for a while now. Facial hair lessened but didn't go. Lady garden went gradually, but not completely. 

Good luck whichever way you decide to go.



 

I'm on 3x FEC and 3x Docetoxyl programme. Had my second FEC last Tuesday. Think I'm on quite high dose epirubicin at 100mg

I cold capped (paxman system) for these first two doses 

Found capping Very hard. Headache all way through 3 hrs and felt nauseous as soon as it went on!  Had my long wavy hair cut to a Bob before. Nothing happened after first cycle And kept all my hair. Persevered with capping for second cycle with help from a sedative the night before! 

Rinsed hair gently under Shower second day after cycle and it came out in clumps. Persevered thinking this was just a shedding but hair falling out continuously over next few days leaving bald patches. . By day 5 after second cycle I was so distressed with this I decided to shave off completely. Was a huge relief to be honest and far less distressing than the hair just falling out everywhere. 

My husband and children said I had a lovely shaped head and actually said I looked good!! 

I am relieved not to have to cold cap again but was glad I gave it a go. I'm sure its success has a lot to do with drugs and doseage you are on. 

My advice still would be to give it a go. I guess there's a 50/50 chance of it working. We are all different and it seems some find it a lot easier than others.

Its been really helpful reading peoples honest experiences on this forum.  

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Re: Cold Cap - did it help keep your hair?

 

I'm on 3x FEC and 3x Docetoxyl programme. Had my second FEC last Tuesday. Think I'm on quite high dose epirubicin at 100mg

I cold capped (paxman system) for these first two doses 

Found capping Very hard. Headache all way through 3 hrs and felt nauseous as soon as it went on!  Had my long wavy hair cut to a Bob before. Nothing happened after first cycle And kept all my hair. Persevered with capping for second cycle with help from a sedative the night before! 

Rinsed hair gently under Shower second day after cycle and it came out in clumps. Persevered thinking this was just a shedding but hair falling out continuously over next few days leaving bald patches. . By day 5 after second cycle I was so distressed with this I decided to shave off completely. Was a huge relief to be honest and far less distressing than the hair just falling out everywhere. 

My husband and children said I had a lovely shaped head and actually said I looked good!! 

I am relieved not to have to cold cap again but was glad I gave it a go. I'm sure its success has a lot to do with drugs and doseage you are on. 

My advice still would be to give it a go. I guess there's a 50/50 chance of it working. We are all different and it seems some find it a lot easier than others.

Its been really helpful reading peoples honest experiences on this forum.  

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Re: Cold Cap - did it help keep your hair?

Unlike most here, I didn't continue with cold cap after 1st round of chemo. (I finished round 6 28/10/15 and haven't gone bald, just thinned a lot. So it does seem to be luck as much as anything.

 

The fit of the cap is crucial, must be tight all over. The better the contact between the hat and head, the more likely it is to work. Long thick hair will have poorest fit but then will probably still will have plenty even if they do thin. I had a shoulder length bob and fine hair.

 

I was warned that the coldness could give headaches, make you feel cold etc but I coped fine with that side of things, yes it was cold for the first 15 mins or so but I just found it made thewhole experience much worse. The tightness of the cap and the chin strap just made me so clostorphobic/paniky that I think I just felt very moment of that 3 hour session and I vowed if I lost any hair after round 1 I wouldn't bother with cold cap on round 2. Day 17 I started losing lots, needles to say I didn't have it round 2.

 

How much more I have lost has varied with each cycle, round 2 I lost lots and that's when I cut my hair short, then clippered it to a no1. Round 4 I didn't have a sore head at all so guess I didn't lose much that round. In fact I think it was round 1-3 where I lost most but I have not gone bald yet! 

 

As as for eyebrows, they seem to be the last to go, I have v.short stubby ones with nothing at the out edges and eyelashes have been done since about round 3/4. This is v.annoying as bits get in your eyes all the time. Had lovely smooth legs for a while, been growing again for a while now. Facial hair lessened but didn't go. Lady garden went gradually, but not completely. 

Good luck whichever way you decide to go.

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Re: Cold Cap - did it help keep your hair?

Hi,

 

I used the cold cap for my chemo March-July 2014, I have a thick chin length bob which I have had regularly trimmed since chemo finished.  My hairdresser commented that he has seen many ladies with chemo hair and its take about 2.5 years to get the condition and thickness of mine.  I attribute it all the cold cap.  This is a link to a post I wrote on another thread where there is a lot of information that you may find useful...

 

https://forum.breastcancercare.org.uk/t5/Chemotherapy/Hair-loss/m-p/948328#

 

Good luck

 

Rebecca 

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Re: Cold Cap - did it help keep your hair?

I cold capped for 3 x fec plus 11 x weekly taxol starting Oct 14 until April this year. It is uncomfortable for the first 10-20 mins but after that it's OK.

Tips:
Wear layers you get cold
Hot drinks and hot water bottle
Wear a headband to protect earz and forehead
Take strong painkillers half hour before

My hair thinned after first fec then not much more. I cut it to a bob and tied back in loose ponytail to hide thin bits.

Def worth it as now have a full head if shoulder length hair with 3 or 4 inch natural layers of regrowth!
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Re: Cold Cap - did it help keep your hair?

Hi Babypink

 

It's been about 3 years since I had my chemo, and I used the cold cap. When I did it, you had to wear the cap for at least 30mins before the start of the treatment, and I think 30 minutes after. I found it quite painful at start, but soon got used to it, however, mine had to be changed half way through, so that was uncomfortable. I think I had it on for about 2hrs in total, but I might be wrong, my memory is bad! 

 

I had long thick curly hair, and wasn't given any advice, so the first time wasn't a complete success, as the cap probably didn't get near enough to my scalp. It's best to keep your hair as flat to your head. I ended up losing quite a bit after the 2nd treatment, and did have my hair cut to about shoulder length. After that, I'd lose some, but managed, with the help of some filaments the disguise the odd bald patch, to not need my wig. 

 

Hopefully this helps you a bit, all the very best luck to you and everyone else doing through it now xx

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Re: Cold Cap - did it help keep your hair?

So the cap is it put on when you are receiving the chemo infusions? How long is it on your head for? How many times do you wear it? I'm down for 5/6 months of chemo
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Re: Cold Cap - did it help keep your hair?

I had my first treatment 3 weeks ago, going into2nd cycle on monday. the cold cap was very unpleasant for

the first 30 min. then you get used to it. I did not experiences any headaches or similar. it was just weird and cold. Dress appropriately, maybe bring a scarf. My hair started to fall out a little bit after 3 weeks but not in junks.
I think it is worth a try......

my hair is long and I have not cut it yet. They kept on saying , wait until you know how much hair you will lose. so i will wait.

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Re: Cold Cap - did it help keep your hair?

not sure yet.

Its 3 weeks now. and my hair started to fall out 2 days ago. but not in junks....its just more than usual.

I have 4 cycles.....so lets see what I have on my head in 2 months.

I have long hair and havnt cut it yet..  . as I was told I should wait and see and I might be able to wearmuy hear in a ponytail and hide my bold spots.....

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Re: Cold Cap - did it help keep your hair?

Just seen your post about cold cap. I'm due to start chemo in three weeks and contemplating cold cap. What is the feeling I would experience did it really help

Did you still need to cut your hair short? I'm finding it difficult to accept at the moment

Thank you
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Re: Cold Cap - did it help keep your hair?

Hello everyone. I'm reading these messages to get some inspiration as I'm sitting in hospital having my first FECT treatment with the cold cap. The first 30 minutes was hard and my ears really suffered but now having had it on for about 3 hours it's just fine. I just hope it works. I know that it depends on the person and chemo drugs. I'll keep you posted.
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Re: Cold Cap - did it help keep your hair?

I used it for the first time Friday my forehead feels bruised and sore and bending down hurts did you get this symptom I'm paranoid now xxx
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Re: Cold Cap - did it help keep your hair?

I am planning to use this and begin my chemo next week. I am happy to give you feedback if you still need itx
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Re: Cold Cap - did it help keep your hair?

I am having FEC-T just had 4th cycle of 6, although the cold cap isn't pleasant, i have managed to keep most of my hair. It has thinned on the top and still comes out for a couple of days each cycle but everyone has said its looks fine and they would never know i was having chemo! Once you move onto Docetaxle you dont have to keep the cap on for quite so long, so it does get easier.

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Re: Cold Cap - did it help keep your hair?

I finished chemo 6 weeks ago, and used the coldcap throughout. I had 6 cycles of FEC T. My hair has thinned quite a lot, and I got a bald patch on the top of my head (where the cap didnt quite fit properly) . I didn't need to wear my wig though as I used hair filaments (a kind of coloured powder they sell in Boots, aimed for balding men!). I sprinkled these on the bald area, then pulled my fringe back over the area using an alice band. My hair is a short bob and i was just able to tie it back which I did at times. My hair continued to fall out until 3 weeks after the last chemo, but has now stopped. Im really pleased that I persevered with the cold cap.

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Re: Cold Cap - did it help keep your hair?

Alexandra - I am unable to send email, it won;t send. Could you tell me where your college is,Sorry I've never heard of it. Marli

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Re: Cold Cap - did it help keep your hair?

Hi! I am a student at Geaorgia Institute of Technology and I am on a design team that is currently working to improve chemo cold cap technology. Our team would love to speak with people who have first hand experience with using cold caps. If you would be willing to give any feedback or personal accounts of using a cold cap devide, please email me at arichardson9@gatech.edu. 

 

Thanks so much! 

 

-Alexandra

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Re: Cold Cap - did it help keep your hair?

Hope it goes well LisaJane. It does increase the time for each chemo session, but I felt it was well worth it. Your daughter is very young, my kids were 9 and 12 when I was diagnosed (a year ago last week). We didn't hide anything from them, we explained I'd been diagnosed and that I'll have to have an operation and chemo, then let them ask questions. There are some comic book style info things for kids from MacMillian (I think, or may be BCC, can't remember - they were too young for mine). All the best x

 

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Re: Cold Cap - did it help keep your hair?

Thanks so much for all this info Jane. I'm about to start my Fec-T on Wednesday and do want to give the cold cap a try. Even though it gets a bit of negativity. So it's great to hear it has worked for so many of you. I have had my hair cut to a short bob which I love and wish I had done years ago!!! It was so dry on the bottom I knew I would be pulling t out just trying to detangle it. I do have a wig ready in prep for it falling out which I'm thrilled with but would love to keep my own. My hair is so thick so even if I lose half it shouldn't be noticeable. As daft as this may sound the hair loss won't bother me but I'm worried about what my 5 year old daughter will say!!! Stupid I know but we haven't really said much to her yet as she's a real worrier.
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Re: Cold Cap - did it help keep your hair?

I recommend a relative or friend Cap. Be sure to put tylenol3 or sedatives to help protect against the cold.

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Re: Cold Cap - did it help keep your hair?

Hi, I've used the cold cap & have had amazing results. I do have much thinner hair on top & at the sides of my hair which i think is where the cap doesn't touch / fit properly. However i think im the only one who notices. I only get brain freeze for about the first 5mins, then it goes. Don't get me wrong, i'd love not to have to wear it as It would make Chemo much easier. However, my hair was important to me so well worth it. x

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Re: Cold Cap - did it help keep your hair?

Hi - I used the cold cap for my first FEC, and it fitted really well, and my head was frozen - covered in ice when removed.  Still lost at least 75% of my hair from that first cycle, including a large area on the top of my head.  I used it again for the 2nd cycle, just for the heck, and still losing.  I have not bothered with the 3rd FEC.  I think it is very individual how it affects you.  I didn't find it a problem to use.  Yes it is a bit of a bother and it definitely extends the treatment time.  I did feel cold but that is easily countered.  I'd say it's worth a try and see how it affects you!

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Re: Cold Cap - did it help keep your hair?

Odd how we are all different. All my other hair is growing back so thick and fast, having to shave legs daily instead of weekly, the lady garden is going mad and had to have the bikini line waxed much further than usual!

 

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Re: Cold Cap - did it help keep your hair?

I used the cold cap through FEC-T. My hairdresser reckoned I had lost about 25% when she saw my hair 3 weeks after my last chemo. I'm almost 14 weeks post chemo now and still losing hair especially when I wash it. All my other hair is growing back well. So yes, I haven a similar problem to you Deehar.

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Re: Cold Cap - did it help keep your hair?

I finished cold capping on 10 April. I had my hair trimmed and coloured in June and its really thickening up now. My hair loss was really only after the first fec in November and new growth started immediately so I have a layer of new hair around 2-3 inches long. I plan to keep ep trimming til it's all the same length again, although these natural layers are giving it body! Keep going, its worth it ladies.
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Re: Cold Cap - did it help keep your hair?

Hi, I'm going to haven't my first chemotherapy next week, and I'm in quite a quandary about the cold cap.its all a bit Scarry!! There are very few parts of my body I like.....2 of them been removed and now I'm likely to loss my hair... but it's better than the alterative. It great to read about people who have or are going through the same thing, you don't feel alone.
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Re: Cold Cap - did it help keep your hair?

I used the cold cap through 4 cycles of chemo and kept approx 40% of my hair, although it is very thin on top. The fitting of the cap is in my view really essential to get the best result. Now 8 weeks on from my last chemo, I am still noticing that my hair is falling out (rather more than it would naturally have done before) and I have less of it to lose! I talked to my oncologist about this who told me that the Docitaxal impacts the hair follicles, even of the hair you keep and did not seem surprised that I was still losing some. Dies anyone else have experience of on going loss of what they 'saved' above and beyond what you might natually expect to lose each time you wash/brush? I do have new growth coming through so it's not alopecia as far as Im aware....

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Re: Cold Cap - did it help keep your hair?

I cold capped 3 x fec and 11 x weekly taxol. I lost approx 1/3-1/2 my thickness of hair all over after the first fec. After that oy started to grow back. Lady garden went first though. My leg and underarm hair stopped growing after a while but shaving again by the end of Chemo. Weirdly eyelashes have only just come out - finished Chemo 6 weeks ago and eyebrows thinning! Also plucking chin hair - though it's gone grey!
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Re: Cold Cap - did it help keep your hair?

 
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Re: Cold Cap - did it help keep your hair?

I'm capping my sister. Talk to penguin cold cap reps they have tons of info. I recommend a relative or friend to cap you. Make sure you take tylenol3 or a sedative to help withstand the cold. They suggest a list of items to buy You have to have caps tight and at the correct frozen temp according to your chemo meds. They'll tell you.
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Re: Cold Cap - did it help keep your hair?

Hi my sister and I are capping our sister for the 2nd round in a week. Pls provide any tips for success. We pray this helps and are doing it right. Thanks.
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Re: Cold Cap - did it help keep your hair?

Thank you for the advice everyone, I just saw my son (he's 20) and he said that it wasn't really bad, just a small patch.  I've brought a few scarves so if it stays like this I can hopefully just cover up the top but I will definately consider cutting it off because my scalp is so itchy and tingly feeling.

I'm seeing my oncologist tomorrow, hopefully she will be able to tell me if this is all of the hair loss I will experience or its just the beginning?

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Re: Cold Cap - did it help keep your hair?

Hi, I'm in Sydney and found this forum very helpful also. I'm supporting my mum who is at day 12 after her first FEC infusion for breast cancer. She hasn't been well. She has been told she will loose her hair, it hasn't started for her yet. She is planning on having a hairdresser come to her home and cut her hair very very short so as she looses her hair, it's just in short strands rather then clumps. Some advice she was given was to cut it off/shave it as soon as the loss starts so it's a little less distressing. I'm sorry to hear what you're going through. I hope this reply can be a little helpful. X
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Re: Cold Cap - did it help keep your hair?

I have to be honest I thined a fair bit and got fed up finding hair everywhere but still have full head of hair which I can still style I also still have eyebrows and lashes. Have used cold cap 3 times whilst on FEC but also put it down to juicing every day - good old spinach !!!
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Re: Cold Cap - did it help keep your hair?

Hi Sooba74,

I used the cold cap for my firest 2 chemos but my hair also started coming out in lumps. I probably only lost about 1/3 but was fed up with founding hair everywhere in the house and my scalp was really itchy so I made the decision to shave it all off. 

To be honest I was not that fussed about losing my hair to start with so it was no big deal for me. It was actually much bigger issue for my OH but he's now got used to it - I got him even to use clippers the other week to even it all out and he found it fun.He made a mess of it so I had to do the tidying up 🙂

Re your question - there's no telling how the cold cap works/not work for each person. Some people put up with the hair loss and cover bald patches with remaining hair/scarves/hats while others just shave it off.

It really is a personal choice how you manage the situation and I hope you find a solution that works for you. Just remember, the hair will grow back after the treatment x

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Re: Cold Cap - did it help keep your hair?

Hi Sooba, I also lost quite alot of hair too, I had long red hair but had it cut short before I started chemo and now a year on I have peroxide bleached hair which I now keep shaved on one side to a number 1, can't imagine having long hair again. Did your cap fit tight as on my 3rd treatment mine didn't & I lost a lot of hair on the top of my head but I did find that my hair grew back a lot quicker than other ladies who didn't use the cap so I would keep using it. Try not to wash it, I used simple products & managed to onky wash it once a week. I would have what you gave left cut shorter as it is easier. Good luck
Sam xxxxx
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Re: Cold Cap - did it help keep your hair?

Hi,

I live in Melbourne but this forum has been very useful.  I have just started losing my hair, I used the paxman cold cap system nearly 3 weeks ago, it was my first of 4 scheduled chemos.  I'm devastasted that I've lost about 2/3 of my hair.  I had thick long red hair and now it's nearly gone, I can see my scalp which I never knew was pink.

I guess what I'd like to really know is when does it stop falling out?

My nurses said that my hair would thin, they said about a 1/3 (I've lost alot more than that).  Its been coming out since the 2 week mark after chemo, I washed my hair for the first time a few hours ago and it started coming out in clumps, so I brushed it to get the loose ones out and there are still more strands all the time.

Please tell me when this stops?

I don't know if I should just shave it off?

Help.

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Re: Cold Cap - did it help keep your hair?

Hi I also have used cold cap every time 3rd FEC this week and am so glad I did. Although quite painful and have lost a fair bit of hair and had it cut to a shooter length no one would know what I was going through - so would definitely recommend. No have seen my nurses today and discussed colouring as have some grey coming through she suggested maybe a henna or colour with no ammonia in and that could be any time really, she said no real guidelines out there. The thought of losing my hair terrified me and would definitely recommend the cold cap hard going but worth it!! 😄😄
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Re: Cold Cap - did it help keep your hair?

Meadows I'm pretty much a year on from you. I finished my chemo at Macclesfield General last March 20th & cold capped all the way through and kept enough of my hair for no one to really notice & for me that made so much difference to how I felt. I had my rads at the Christie. I did have a short red Bob throughout which really faded so I think it was about 6 weeks after my last dunk that I gave in and dyed my hair, it was driving me mad. I did use a herbal hair dye as I didn't want to put chemical on my hair. There are loads of colours on Amazon & it was ok but not the brightest. However, within about 4 more weeks I decided I wanted white hair so I put peroxide on it and had it cut kind of like Pinks style so I couldn't have really mistreated my hair more but I figured it was now or never & I have to say I love having short hair, before Cancer I had long hair but now one side is completely shaved to a number 1 & the other is longer found my face. I never would have dared have this style before Cancer but I love it.
I'd probably wait a few more weeks then see how your hair feels. I used the lush shampoo bar that stimulates growth and my hair grew really quickly. Good luck
Sam xxxx
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Re: Cold Cap - did it help keep your hair?

Hi Meadows, I went through it about 3 years ago, and I just wish my memory was better. I dyed my hair as soon as I could, I'm fairly sure if was only about a month after my last chemo and cold cap. It was this that I used http://www.naturesgreybusters.co.uk/index.cgi?product=Natures%20Grey%20Busters&d=7&mid=SM775... and it was very successful. Good luck and lots of love to everyone going through this xxx

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Re: Cold Cap - did it help keep your hair?

Hi Meadows - I have had 5 out of 6 chemo treatments and have also used the cold cap. I have kept almost all of my short hair, no actual bald spots just thinning. Although not pleasant I am so pleased I have used it - lost all my hair 5 years ago and did not want to go through that again. I feel that 6 days of unpleasant treatment is better than 6 moths without hair.

Have you looked at cancerhaircare.co.uk . It is a website about everything you need to know about your hair and cancer treatment. There is a good section on scalp cooling which I used to decide on whether or not to use the cold cap. You can get a booklet by email from the Lister Hospital about scalp cooling and it has a really informative section on how to treat your hair AFTER you have finished including when you can colour it. Really worth a read. Good luck. Marli x

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Re: Cold Cap - did it help keep your hair?

Hi, I just wanted to share my experience of the cold cap.  I wanted to preserve my hair but was warned that it was not guaranteed.  I had my treatment at the Christie hospital in Manchester and could not have asked for anything better.  I started my chemotherapy on 2 December 2014 and started the cool cap at the same time.  I found the chemo absolutely fine but the cool cap experience was very unpleasant. Someone had said that if you can get past the first 10-15 minutes I would be fine.  That was actually true but the whole experience of the cool cap was not pleasant.  However, 18 March 2015 I had my final chemotherapy (6 sessions) and perservered with the cool cap.  I personally am so glad i did; I was able to continue to lead a normal life.  Although I lost probably 1/2 of my hair anyone who didnt know me would not have known.  My hair did come out after every treatment, even up to the end but the worst was after the second treatment (Christmas Day) when handfuls came out in the shower.  I used baby shampoo and conditioner, only washed it when I had to, usually twice a week and used my fig brush as a comb because of the wide teeth.  Be warned what hair you keep is very fine, feels like baby hair and the ends are dead.  I chose to keep mine shoulder length.  I was asked if I would do the same again and yes I would.  I am now waiting for my hair to grow back and that is why I came on here to get advice on when it comes back and when you can start to colour etc.  Anyone any feedback?  Hope this helps...

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Re: Cold Cap - did it help keep your hair?

Somebody said that hair better stays on the head if hair are cut very short. I do not know my self.

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Re: Cold Cap - did it help keep your hair?

Hey ladies
Ooh hair loss is tricky huh! I have given up with the cold cap, my hair was just falling out all over the place after two sessions and I just felt so ill after chemo and the cap didn't seem like it was working (because hair falling out) so gave up. Not a decision I took lightly because without sounding vain I really wanted to keep my hair (getting married in 6 months!!!) I just couldn't cope with the sick feeling and hideous headaches too. I've had a third chemo now and it was more bearable without the cap. I have all the hair around my hairline however quite a big bald patch on the top of my head.
I'm not posting this to be negative or put anyone off, just to say its different for everyone and that I know it does work for lots of people so persevere if you can. Everyone on here is really kind and it's reassuring to know we are not going crazy mad on this roller coaster!
xx
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Re: Cold Cap - did it help keep your hair?

Oh thank you all for your comments.

 

Just have no idea what to do with this.  Dont think any baldpatches as yet but hair very thin on top.  For the first time yesterday felt rain on my head!!

 

Problem for me is my hair was so thick so looks so fine now, but I  will not get it cut will just see what happens naturally.

 

May give the nurse on this line a call to as everyone seems so helpful.

 

You have all cheered me up a lot

 

Bless you x

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Re: Cold Cap - did it help keep your hair?

I would definitely persevere with the cold cap. I used it and a lot of my hair fell out and especially towards the end I felt like giving up using it, but I noticed new growth starting to come through on my bald patches at around chemo number 5 and I think the cold cap protected that new growth. I also used hair fibres (I think it was called caboki, which is actually aimed at men) and that helped a lot. During my chemo I used head bands to cover up the bald patches and about a month after my last chemo I had what remained of my hair cut really short and it blended quite well with the new growth. Although I could pull handfuls of hair out while I was having chemo, it didn't actually take that long after chemo finished before it stopped falling out. I never went completely bald and didn't feel the need to wear my wig either. Keep going. It will be worth it. xxx