Thank you for all your posts ladies. First chemo today, will be using a cold cap, it's so good to read about your experiences.
My daughter has stomach cancer and will be receiving epirubicin which will cause her to lose her hair. She is just getting started on the chemo meds this next week. Where do we obtain the cold caps? I've not heard anything about them.
Hi Amanda, I'm so glad you found my experience helpful, it makes it so worthwhile using this forum! If you need any other tips/support do please let me know. Wishing you all the best in your treatment, and let me know how it goes. If you do need chemo remember it's zapping all those nasty cancer cells!! 🙂Take care xxx
Hi Gill... Thank you so much for sharing your experience and tips which has given me hope if I have to have chemo. I am still waiting to hear as I was only diagnosed last Thursday and have been told that I will have a lumpectomy and radiation initially but then dependant on other tests such as my HER2 results they will br able to establish other treatment for me.... dreading chemo as I don't want to lose my long hair (down to my mid back). I hope yours continues to work and that you make a full recovery Gill, take great care of yourself- Amanda xxxx
Hi mishy, yes I'm at the QE. I've had the rest of my treatment there so thought I might as well have it all under one roof. Although apparantly the radiotherapy is only carried out at the Freeman so I'll be there for that, and I would like my reconstruction carried out there as well as I've heard really good things about the plastic surgery.
I had my pre assesment (bloods etc) nearly three weeks ago, it's taken this long to get my ward visit monday 3rd and then straight in for chemo the next afternoon.
I'm cold capping so maybe I wouldn't of been entitled to a voucher anyway. Like you, I'm worried about the gollum look. I not overly keen on wearing a wig either, but I really wouldnt be comfortable wearing head scarfs. I couldn't stand people looking at me thinking 'she's got cancer'. I'm just not brave enough for that.
Carole, your hospital sound generous and on the ball when it comes to making sure you have the things you need. I cant tell you the hours I spent trawling the internet looking for advice. I didnt even know what a softie was until I came home with one boob and wondered how I was going to wear a bra. x
I've found my hospitals pretty generous with things. They referred me to a wig service despite saying I was going to cold cap, which meant I got £120 off price of a wig. Therefore I only paid £40. It is synthetic but the guy recommended this as it is so much easier to look after, stays in style and doesn't need any styling. I'm quite happy with it.
My BCN gave me half a dozen softies after surgery. Yesterday I had a PICC fitted and they've given me a prescription for the waterproof Limbo cover for showering. That saves me £18 buying one.
So I've no complaints on this side of things.
My chemo nurses advised me not to use a dry shampoo between washes as they contain lots of chemicals. I found I could manage anyway with twice weekly hair washing. x
I just wanted to encourage you cold-cappers; I shed quite a bit of hair two and a half weeks into my first FEC but that was really the bulk of the hair loss throughout 3 FEC and 3 Docetaxal. I kept about 40% of my hair and now, 8 weeks after final chemo am wearing headbands just to keep it and the new hair in order as its quite fluffly and unruly. I did find it very uncomfortable, although as others have said its the first 10-15 minutes in particular, and I always dosed up with paracetamol beforehand. By chemo 6 I was unsure I could face it again but I did, and with hindsight I'm so glad I did. So don't be discouraged by early hair loss ladies !