62883members
330663posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Cold Cap - did it help keep your hair?

Member

Re: Cold Cap - did it help keep your hair?

I start fec-t on July 4 and I'm doing the paxmam cold cap. Can anyone recommend a dry shampoo without too many chemicals for use between washes? Thanks
Member

Re: Cold Cap - did it help keep your hair?

Hi everyone,

I have just finished chemo, x4 cycles TC and used Paxman cold cap throughout, as I was dreading losing my hair with the Taxotere. I'm very fortunate that it worked for me. I started with quite thick hair, and I had it cut shorter to a mid shoulder bob to reduce the weight, as advised by my breast care nurse. 

 

Two and a half weeks after my first chemo I shed the most which was quite upsetting, and it was very matted after washing so took ages to untangle with my husbands' help, but after that it the hair loss slowed and although my hair is a bit thinner it isn't noticeable really unless you look carefully. I've since found out that the hair follicles in the growth phase are attacked and as hair follicles are the 2nd fastest dividing cell in the body it's quite normal to shed 2-3 weeks after 1st cycle!

 

It's really important to have a tight fitting cap. Mine was put on for 30 minutes prior to starting the drugs, and left on for 20 minutes after being switched off at the end of treatment, if it's removed any sooner the ice crystals sticking to the hair will pull the strands.

I had conditioner applied before the cap was put on, and bought an empty tiny spray bottle in Wilkinsons to spray warm water before the conditioner in my last two treatments as that's what Paxman suggest.

My breast care nurse suggested using a wide toothed comb - I got a cheap plastic one by Mark Hill in Boots which has been fantastic at detangling in the early days when I used baby shampoo as advised. DON'T!!

I was told by the Chemo unit that baby shampoo contains lots of parabens & chemicals to make it non sting, and to use  Palmers, Simple or Dove. Since I switched to Palmers (I got mine in Wilkinsonss) my hair stopped getting matted & tangled after washing, felt much softer and the shedding lessened considerably. I stopped wrapping my hair in a towel turban to dry it and just pat it,  and let it dry naturally, wash only twice a week.

 

Yes, cold cap is uncomfortable at first, but with lots of hot drinks and chatting to others, plus my husband and something to read I kept myself distracted, after the first session I got paracetamol prescribed and took that as needed. The last two cycles I took 2 xParacetamol 30 minutes before I knew the Cold Cap was starting which worked for me.

 

Hope this helps. I only saw a Paxman leaflet halfway through my treatment, the website is:

www.paxman-coolers.com

 

Good luck to everyone with your Chemo!

 

Gill 

 

 

Member

Re: Cold Cap - did it help keep your hair?

Hello, I'm new here. I life in Belgium and here many breast cancer patients get 4 EC dose dense (this meens concentrated and every 2 weeks) + 12 weekly Taxol's.

 

Normally only patients who only need to have Taxol can have an ice cap. I convinced my oncologist with recent study's to use an ice cap in my case but they have no idea how long it should stay on. (Paxman cooling machine) So they have put it on for half an our before the chemo and 90 minutes after, as they do for Taxol. Please, can any of you who has/had a combination with EC (FEC e.g.) tell me how long it has to stay on? Sue124?

 

I had my second dose of EC 9 days ago. I started losing a lot of hair on day 19 after washing it very gently with baby shampoo as they recommed me. And I'm still losing a lot of hair. I think I've lost already 50% evenly and I have a bad feeling it won't stop. In 5 days I have my third chemo  Man Sad

 

To anser the question: Nevertheless I think it's worth the pain, cold, headache, feeling of nausea! For me it's not about keeping all my hair or not having to use a wig. I would be enormously happy if I had a little bit hair left to camouflage the short hairs afterwards. But I don't think I'll be so lucky.

 

Cath

Member

Re: Cold Cap - did it help keep your hair?

Hi, I've had 4 of my 6 EC chemo cycles and have used the Paxman system. Like others I had my long thick hair cut ear length before it started which, although a wrench, I'm glad I did. It is painful and the first 10 to 15 minutes especially so. Also this pain seems to have increased as my hair has thinned and I too have gone down a size in caps. I estimate I've lost 50% but evenly so it's not obvious to those who don't know me. The condition is not good,very dry and brittle, and I may be overdoing the conditioner As my scalp is flakey or there's residual conditioner - not sure which. Is it worth it? It has been for me - have a wig tucked away in a cupboard which I can't bear to look at despite my partner and friend telling me it's fine. I've got this far so I'm going to continue. But I do wonder after all this is it actually better then to cut it off to allow the, hopefully good condition hair, afterwards to grow. If not I'll have soft hair near the scalp with my current fuzzy stuff at the end! 

Hope this is useful, Sue

Member

Re: Cold Cap - did it help keep your hair?

Hi, I've had 4 of my 6 EC chemo cycles and have used the Paxman system. Like others I had my long thick hair cut ear length before it started which, although a wrench, I'm glad I did. It is painful and the first 10 to 15 minutes especially so. Also this pain seems to have increased as my hair has thinned and I too have gone down a size in caps. I estimate I've lost 50% but evenly so it's not obvious to those who don't know me. The condition is not good,very dry and brittle, and I may be overdoing the conditioner As my scalp is flakey or there's residual conditioner - not sure which. Is it worth it? I have a wig tucked away in a cupboard which I can't bear to look at despite my partner and friend telling me it's fine. I've got this far so I'm going to continue. But I do wonder after all this is it actually better then to cut it off to allow the,hopefully good condition hair, afterwards to grow. If not I'll have soft hair near the scalp with my current fuzzy stuff at the end! 

Hope this is useful, Sue

Member

Re: did it help keep your hair?

I had 12 weeks of Taxol last year and I used Penguin Cold Caps. It worked very well for me - I would say I kept 90+% of my hair. Cold capping tends to work pretty well on weekly Taxol. I know it worked for me as I lost it EVERYWHERE else. It's a pain in the ass - it makes the chemo day long and it caused a lot of neck and shoulder pain in my case. But for me, it was well worth it. I did all of my normal activities and felt mostly fine. And after the 12 weeks, it was easy to move on. Hope that helps. Best of luck!

Community Champion

Re: did it help keep your hair?

Cuteboy, I cold capped for my first FEC treatment and by day 19 I started shedding significantly and developing a thin patch on top. The cap was well administered and fitted.  It gives you 10minutes of brain freeze agony and then numbness which is easy to tolerate. I didn't cold cap again for my next 2 sessions as I personally felt it was too much pain for too little gain. I also decided I wanted to make sure the chemo gets into every cell in my body, especially since the lymph fluid runs under the scalp and I am lymph node positive. I had my 3rd FEC a couple of weeks ago and still have about 40% of my hair (I had it all shaved off after 2nd FEC which makes it easier to manage with a wig). Hope this helps. X

Member

Re: Cold Cap - did it help keep your hair?

Thanks Anne I start tomorrow, dreading the pain but hope I can bear it. I will be following everyones advice x
Member

Re: Cold Cap - did it help keep your hair?

I used the Paxman  1st one  March 2nd 2017  No 4  was  May 4th  I am having the operation  June 16th I found the cap  quite horrid  very  uncomfortable  and  gave  me  a splitting headache I have lost 30% of my hair. not sure if I need more chemo after operation .

Before using the paxman  I had  my hair  cut  from  shoulder length  to  just below chin length  which helped a lot  as my hair  was  heavy  and  thick . I  bought  shampoo and  conditioner  called Korres (  you can  buy  from amazon   ) expensive  but  worth it  . I found  the best  way  was to comb  my hair  gently  with  a large  shower comb ( wilko  £1) when it was dry .  when washing  dont  rub in  and the conditioner  I watered down just  pat it  gently  then rinse  off .  Pat with  a towel then drape this  over  your  shoulder  leave hair  to dry  naturally. I only wash my hair  twice  a week..  The outcome  is  a bit wild  looking  but  at least  I have  some left  . I woud use the cap again.  Hope this helps  anyone who  is like me  wanting  to keep their  hair  . There is no guarantee but  at least  I have  tried .. Good Luck  Anne x

Member

Re: Cold Cap - did it help keep your hair?

Hi Riversidedawn,

Thanks for your previous advice.  I have had 3 rounds of FEC and 2 rounds of docetaxel,  so one left to go on 22nd June.  I have lost 80% of my hair despite using the paxman cold cap.  The nurses used gauze particularly on my crown and a blue scrub cap to prevent ice damage to my scalp.  I moved down from a medium cap to a small cap when I started docetaxel as I guess due to the hairloss it now fitted on.  I am spurred on to continue with the cold cap as there is a 6% risk of permanent alopecia with docetaxel,  but the head nurse at the chemo day unit was unsure whether I should continue.   I am definitely going to try to manage one more time if I can. I had abit of a headache by the end of the last session so I was relieved it was over, I am hoping in 2 weeks I will feel up to it.

 

I was wondering if there is advice on supplements that will help hair growth, the registrar mentioned zinc and selenium.

Any thoughts appreciated,  I too might ask about the tramadol if it doesn't make me too sleepy.

 

Community Champion

Re: Cold Cap - did it help keep your hair?

Blue2 you can wash your hair as normal from now on. Don't colour it for at least 6 weeks after you last chemo.

I am getting my existing hair trimmed ever couple of months until my regrowth catches up. To disguise it I use a topper if I am going anywhere have a look here:

http://www.internetwigs.com/toppers.html

 

The best one for me is the Jon Renau Top Notch but it is expensive - worth it because I like myself far better when I am wearing it plus you don't have to pay VAT if you tell them you have had chemo.

 

This one is also good but cheaper:

http://www.internetwigs.com/toppers/medium-tp-top-piece-.html same thing with the VAT

Member

Re: Cold Cap - did it help keep your hair?

Thanks for all Your help Smiley Happy I've downloaded the leaflet too cheers cx
Community Champion

Re: Cold Cap - did it help keep your hair?

Hi melia

I did wash my hair as normal straight after chemo, I know some ladies have been told not to wash it on the same day - I didn't see this advice so washed in warm water as normal!

I lost may be 50% of pretty evenly all over my head. The majority came out after the first session - quite a lot all at the same time, after that it wasn't really much more than normally comes out when I wash it.

The top of my head was quite thin, so I adopted the comb over look and tied it up into a loose ponytail! The hair loss wasn't really noticeable to strangers.

I did put a soft fleece hat straight after chemo as it was so cold. Also wore hats whenever I went out as my chemo was November to April.

***** add to my list below *****
(sorry, it's finally starting to fade from my memory, 2 years on!)

Put cold cap on at room temperature and freeze it on your head (takes a little longer, but gives a better fit.)
Put gauze over any thin bits to avoid ice burns.
Have someone get it for you - Lots of warm drinks
Blanket for when your temperature drops.

**** Watch this space for updates! ****
Member

Re: Cold Cap - did it help keep your hair?

Thank you riversdawn did you use cold water to wash it immediately? I think I might be scared to touch it straight after! How much hair loss did you have if you don't mind me asking? Did you wear a sleep cap or net for bed xx
Community Champion

Re: Cold Cap - did it help keep your hair?

Hi Linda, please see my previous comments (sorry takes me ages to type on my phone!)

- See cancerhaircare website (stevenage)
- Don't use heat or pull wet hair
- use colour and perfume free products



Member

Re: Cold Cap - did it help keep your hair?

Thank you riversidedawn Smiley Happy I took painkillers half way through this time which was better and I will ask about tramadol. Do you have any advice for afterwards? In terms of washing hair and the type of shampoo and conditioner - I was thinking of trying the paxman. Also, do you have any tips for styling hair without damaging it?

 

Thanks again x 

 

 

 

Community Champion

Re: Cold Cap - did it help keep your hair?

Hi melia, take a look at cancerhaircare website for loads of tips.

I washed my hair immediately after each chemo (and weekly between 3 week fec) although I've read on here that some people have been advised against this.

I was very fortunate that I had a good result - I am hairy with very thick eyebrows which thinned but not disappeared during chemo!

I'd recommend a wide headband to protect your forehead and ears, lots of hot drinks, layers, hot water bottle, blanket, food, music / book / someone to talk to as it takes a long time. Also put cap on unfrozen then freeze it on your head for a better fit.

Good luck, I'm here if you need any Moore tips / talk x
Member

Re: Cold Cap - did it help keep your hair?

Also when should I wash my hair as soon as I get home, or leave it a few hours or days? Should I use tepid water or cold as read so much different info x
Member

Re: Cold Cap - did it help keep your hair?

Hi ladies im due to start treatment next week and cold capping. Im trying my best to think positive that im going to keep it but having total anxiety over it now. No one data suggest a wig to me as I'm so adamant im going to keep it. I think I'm prepared as I'll ever be, will pillow case, wooden comb, neutral shampoo etc but keep thinking I've forgot something important. Any additional tips please. Has anyone used a little cocunot oil to style hair just a little on the tips of my hair i was thinking to stop frizz. And should I be using a leave in conditioner after the cold caps over x
Member

Re: Cold Cap - did it help keep your hair?

Thanks riversidedawn. I like the idea of scrunch drying my hair to disguise the short bits and having layers put in. I'm already getting a bit of a lift on my parting from the hair that I lost originally and has now started growing back.
In this hot weather, it's a nightmare only washing my hair once a week. I'm so anxious to move on from my cold capping routine but am going to stay with it for a few more weeks I think, just to be safe.
Community Champion

Re: Cold Cap - did it help keep your hair?

Hi blue2, well done for getting to the end of chemo! I found that by the end of chemo I already had quite a bit of new growth. I've always had shoulder length hair all the same length but found my new natural layers looked good so after chemo I had it cut to a short bob with layers and it looked so much better. I was able to scrunch dry it which made it look even thicker.

It took me a long time to get confident to go back to my old hair care routine. I carried on using herbal essence naked range for a year and very little hair drying etc But I do think you can get back to normal quite quickly - I rather enjoyed my new speedy routine!!
Member

Re: Cold Cap - did it help keep your hair?

I'm looking for some advice please......i had my last chemo last week, EC-T, and used the paxman cold cap, and want to know, when can I reclaim my hair?!!
I've got about 40% of it left after 5 months of treatment, its patchy and i have a few almost but not quite bald patches but have managed to get away without wearing a wig. I can use hair filler powder and a wide headband and look relatively OK. It's bob length at the moment.
I've been following all the cold capping hair advice - washing it just 1-2 x week on chemo with simple shampoo, once daily combing with a wide tooth comb etc etc, but wondered when I can start using proper shampoo and washing and combing it more often? I don't want to make a mistake right when I'm almost there and risk loosing it!
Also, when my new growth comes in, has anybody any tips on how to blend it into my pre treatment bob length hair as don't want to have to cut the remaining hair short and start from scratch. How do others manage the long bits and short bits?
Member

Re: Cold Cap - did it help keep your hair?

I had my hair cut by a volunteer hairdresser at our local Hospice. My hair had been falling out all over while using the cold cap but as you say unless people knew - they wouldn't have known the difference.  I had really long wispy bits which looked a mess. As soon as it was trimmed up - it looked so much tidier and much thicker looking. If you feel you need a trim then go for it - it's the little things that make us feel better when going through treatment.

I had my last chemo in January and now my hair is starting to thicken up on top but thin on the ends - I had it trimmed by my hairdresser four weeks ago to neaten it up before I started my phased return to work. People have been amazed at well my hair has coped with all the cold capping and chemo - it may not work for everyone but it does grow back quickly - I'm so glad I stuck it out. 

 

Member

Re: Cold Cap - did it help keep your hair?

Thank you for all the excellent suggestions! Could you please elaborate on the type of supplements that you took, and the hair growth products that you mention as being "best friends".

 

Thank you.

Community Champion

Re: Cold Cap - did it help keep your hair?

Tramadol
Community Champion

Re: Cold Cap - did it help keep your hair?

Hi Linda, sorry you're getting that pain, I can't advise on that as I found it got easier the longer the cap was on - I even asked the nurse to check it was still working!

I took strong painkillers before hand -petramadol so may be that's why I coped well.

Are you wearing a wide head band to protect your ears and forehead? If not you may find that helps. Also lots of warm drinks and something to occupy you to keep your mind off it.

Hope it's easier for you next time x
Member

Re: Cold Cap - did it help keep your hair?

Hi, I am new to this forum and have just had my first chemo treatment with the cold cap (which I wear for 4 hours in total). I've found that the last 2 hours are the most difficult due to migraine pains and being uncomfortable. I took paracetamol beforehand but this doesn't seem to help the last couple of hours. Does anyone have any advice for me? My next session is in a weeks time and I was going to give it another go. Thanks in advance Smiley Happy 

Community Champion

Re: Cold Cap - did it help keep your hair?

I had my hair cut during chemo Tink. It was so fine it needed a trim, also it got too long to wear my wig. Can't see any problem with cutting?
Member

Re: Cold Cap - did it help keep your hair?

Hi Rach,

Thank you for sharing your experience. I am having the same experience. I'm losing it all over and it and you can't really tell unless you know me and can see the difference. 

The company I used said not to cut my hair for 2 months afterwards and I really don't know why that would matter. I need to cut it because it is fine like yours and I just think it will look much better and be a lot more manageable. I noticed that you did cut your hair during treatment and wonder if it seemed to affect it at all and if the company you used said it was okay.

 

Thank you so much! I hope everything is going great for you!

Member

Re: Cold Cap - did it help keep your hair?

I have done 4 treatments of AC. I already did Taxotere previously so I am done with the chemo, hopefully for good. I used the Arctic Cold Caps and kept my hair until the last round and a month out I am still shedding. I don't have any noticeable bald spot but my hair is very thin and I am wearing a wig sometimes because it just looks so much better. I am afraid the shedding will continue and I will lose all of my hair but it looks like that will not be the case according to some of the responses to this thread. I am so grateful for the hope that gives to me. And it is reassuring to hear that my hair should come back faster. I have done everything I was told to do and I am still doing it. I was wondering if anyone used a dry shampoo to help with the oilness between washes. I am only washing my hair once a week because the most shedding occurs after I wash it and it starts looking pretty bad toward the end. 

Community Champion

Re: Cold Cap - did it help keep your hair?

Hi melia I used an organic, colour free, scent free shampoo and conditioner from the health shop. About £5 each for a small bottle but as I only washed my hair on chemo days it lasted about 6 months. I then moved on to herbal essence naked range. I can't comment on paxman products as I didn't use them.

I wore bobble hats in winter and sun hat/baseball hat when the weather warmed up. If the hairs going to fall out it will so I wouldn't worry about hats making it worse.

I fashioned a nifty comb over to cover thinning scalp and tied hair into a loose ponytail with soft scrunchies from boots. I'm definitely not a scarf person either!!
Member

Re: Cold Cap - did it help keep your hair?

Melia, I wore bobble hats in winter and then struggled as soon as the warmer weather arrived. I do have a sunhat and baseball cap but am loving these headbands at the moment - much cooler than a hat! My balding is across the top of my head and my crown and wearing a headband covers the worse bits and does a sleepover type effect on my crown!
I don't know how to paste a link but if you put China flower retro hair band on Amazon, it will come up!

Member

Re: Cold Cap - did it help keep your hair?

Hi ladies did any of you use the paxman shampoo and conditioners whilst cold capping and for normal washing or is their something better out there? Can I wear a baseball cap to hide bald/spots and shedding or is wearing hats not recommended. I am not a scarve kind of girl x
Member

Re: Cold Cap - did it help keep your hair?

I did great with the cap. I used the Penguin Cold Cap May 2015-August 2015. My treatment was TCH. The way my oncologist set up my. He I mess, I only had to do it 4 times. I did everything they (The Penguin Cold Cap Company) told me to do and I continued this regiment for 10 months after I completed chemo, just to be on the safe side. I also had 6 weeks of radiation treatment. I had a little shedding but in all actuality, the strands I did loose weren't much more on a day to day basis than I have had throughout the rest of my life! When my hair fell out everywhere else, yet still upon my head, it was absolutely the greatest feeling. My eyes filled with tears because I could see the proof that it really really worked! It was also very nice to have a goal, something to focus on, something positive that I could do for myself. Something other than focusing on the cancer diagnosis. My husband and daughter got into it too. It gave them a way to be helpful, something they could do to help!  As far as the temp (30' below C), well, that wasn't an issue either. I swear, it was only a few minutes of cold. Your head gets so cold, you don't feel it and there it is... problem solved! A little Ativan (0.5mg in my IV) did the trick and I stayed alert and talked with my friends and relatives while they capped me every 30 minutes! I recommend it and i's a shame so many people don't know about it. I work in the medical field as a nurse and as far as I know, it still isn't FDA approved here in the USA. I think the cost of renting the caps ($1600) was well worth it. It would take me years to grow my hair back and the cool thing was I had something positive to focus on and people didn't question me and tell me stories of loved ones with cancer etc when they saw me. It was my business if I wanted to talk about it, not someone else's. 

Member

Re: Cold Cap - did it help keep your hair?

Hi ladies,
I just wanted to give you all a big high five you are all doing amazingly well.
I had four FEC and four Docetaxel ending on December 22nd I used a paxman cold cap and had the most amazing team of nurses only my two lovely ladies touched my hair as I trusted them. I knew I'd lost a fair amount of hair but I lost it all over and havevthock hair so it wasn't that noticeable. Now only four todo entries months on I have full brows, lashes although not as thick and hair which is insanely thick and curly I'm in love with it 😍 Oh and as a blonde my hair eyebrows and lashes are now really dark it's like being a new person!!!
I will say I've found I still have nightmares of my hair falling out and count the hair in the shower, I shudder if my head gets cold but then I take a moment and realise I'm so lucky to have tried the cold cap and have kept my hair as I now go out curl my hair and no one knows I've had anything wrong with me this helps me. Although I have noticed the buzz cut is becoming very fashionable!!!
I would say my tips for cold capping is as follows;
1. Try and go somewhere else for those ten mins when it hurts your oncologist can prescribe meds to help with this they do help and I have no idea why I didn't get them from the first session!!!!
2. Use paxman products if you can they are expensive but work like a dream!!
3. Check your own cold cap after the nurses have and if your not happy with the fir get them to recheck it they really don't mind.
4. Wide toothed wooden combs are your best friend at the end you can go onto a tangle teaser but they are scratchy during chemo if you have any bald patches.
5. Don't believe everything you read - I did and convinced myself that I was shedding in a way I would go bald and that the tingling you feel means your losing your hair at that moment.... it dosent mine is still attached and no tingling scalp now woop!!!
6. Use Teppid water to wash your hair and don't rub it with a towel it will create a nest of attached and non attached hairs so you lose tons more.
7. Coconut oil on your scalp will help but be careful as it clogs the scalp of not washed off properly which is hard with teppid water.
8. Don't use a conditioner when cold capping that you want to use afterwards the smell will make you feel nauseous and remind you. I used a deep conditioner from lush and now want to vomit when I smell it which is unfortunate as it was my fave!!!
9. Watch the time don't let the nurses start treatment early as this could compromise your treatment and at the end let your head defrost. I always nipped to the loo as I was too scared to unplug the machine during treatment got my stuff sorted then gently checked befor taking it off.
10. Ask if there are supilments you can use that helps I took tons and my growth furring chemo was insane!!!!
11. Sleep Ina silk pillow case because you are a damn queen and deserve the very best oh and it will stop your hair drying and knotting. Also use a soft bamboo cotton cap (I still use mine to dry my hair and as a comfort love my little skull caps).
12. Get someone to pour water gently from a jug whilst you wash like you would with a baby it stops knots and causing trauma also itsvthenone time you may want some moral support if those little curls of doom start coming out!! Having a reassuring voice telling you it's fine and taking the hair out of your hand helps!!!
13. Use gentle detangler with your bamboo comb when wet bit then leave it alone!!! Comb your hair morning and night but try to just leave it be!!!
14. Bandanas are also a friend they keep the falling hairs off your face and cover your scalp if it's hot as burning is easy with the shiny patches I can only imagine this would hurt!!!
15. Afterwards hair growth products are your best friend!!
16. The cold cap doesn't work for everyone- this isn't fair but is the bottom line.
Sorry if this is long but I kind of wish I'd have had it laid out for me from the start.

I wish all of you the best outcome possible in every aspect of your treatment. I found this thread a lifeline so like to pay it forward. Xxx
Member

Re: Cold Cap - did it help keep your hair?

Hi all

I went today for my third FEC , I have lost 90%of hair and resemble Gollum now too, I was thinking I could no longer do the cold cap but they said carry on as changing to Tax next round and nurse advised it is not as harsh on the hair so my hair should start growing back so after reading comments on here I carried on. it was much colder this time couldnt wait to get it off , however painkillers took the edge off , I wear my topper to work  and thats all good and hats and beanies at home . Like someone else said I was really disappointed in my results as other ladies I saw still had so much hair but it growing back quicker motivates me to carry on

 

Community Champion

Re: Cold Cap - did it help keep your hair?

Hey billy bear thank you for commenting - hopefully our thread will help others through their treatment.

I didn't lose as much as you (probably 50% all over) but like you it started growing back during treatment. Had my last chemo 10 April 2015 and 6 weeks later had cut and colour and 2 inches of new hair growth filling in the gaps.

Many ladies had commented similar experiences, it seems that even if you do have hair loss with cold cap it appears to help re-growth to be quicker. X
Member

Re: Cold Cap - did it help keep your hair?

Hello ladies. I'm a bit nervous because this is the first time I have added to a blog but I found others peoples' comments useful when I was considering using a cold cap.  Like many of you I struggled through 6 chemo sessions using the cold cap and found the first 10 minutes or so the worst part but despite the tears I persevered and am glad I did.  I'm not sure if anyone has experienced the same results as me but I lost more than 90% of my long hair by the time I finished chemo but found that "new" hair has continued to grow! Now just 5 weeks after finishing chemo I have a full head of hair that is 3 to 4 centremetres in length and 2 days ago trimmed of the last of my long hair so I now sport, what my best friend cals, my pixie look. 

Member

Re: Cold Cap - did it help keep your hair?

Hi Everyone, I am going to have my 3rd AC Treatment next Tuesday, I have been using the

 Paxman Cold Cap.  I am shedding loads and I'm now on Day 20,  I have another 6 treatment to go.  I Am following all the guidelines about how to take care of your hair during Treatments and using the Cold Cap. I would like to know if my Hair Shedding will slow down?

Thanking you all in advanceSmiley Happy

 

Member

Re: Cold Cap - did it help keep your hair?

Hi Amoyart, I am using Paxman too fingers crossed to you get to day 14 !!Mine was ok until then and now is shedding heaps ! My hair grows very fast and they said i might lose up to 70% but it will grow back faster so I am continuing with it-they will have to put some gauze or a paper hat on to protect my scalp from frost bite lol hope I got hair in 4 days as more chemo..Good Luck hun xx

Member

Re: Cold Cap - did it help keep your hair?

Hi Ladies I started the Paxman cold cap -the nurses use it -about two and a half weeks ago and as they do everything I hope its all ok, but in the last 2 days its coming out and 6 hairs together in clumps it just wont stop!! They say if your hair grows fast that you could loose up to 70% but that it will grow back quicker and to not shave it off-I am tempted but am wearing a hat all the time to collect the hair thats falling.The ladies using their own cold caps and ice seem to have better results as they monitor the temps more closely. Baldom here I come lol I am getting a wig as I will need one, I have some turbans but need a wig for work. Sharon.xx

Member

Re: Cold Cap - did it help keep your hair?

There are 2 reasons you may be losing hair on your crown. The cap may be too big and not getting a proper seal to the top of you head. Make sure that bit is really wet and has plenty of conditioner. Go down a cap size. And tighten chin strap.
Also make sure you defrost. Pulling the cap off to soon will break the hair as it is frozen to the inside of the cap xc
Member

Re: Cold Cap - did it help keep your hair?

You're not alone! I've done everything perfect according to the cold cap directions and lost a ton of my hair days 11-21 leaving a bald spot on my crown that I could have gotten away with hiding with a combover however the thinning grew and and grew over the next few weeks down the sides. Right now I could get by with a clip on topper instead of a full wig but I still have 2 more chemos to get through and shedding continues daily. It's at a lesser rate but that can add up over the next 6-8 weeks. I'm devastated. My expectations were such that Zero wigs or hair pieces would be needed in this process and I am totally depressed about it. I k kw I should be greatfyl for the hair I still have in the back so trying to focus on that. Love and hugs dearie. I share your woes and send you the best wishes.
Member

Re: Cold Cap - did it help keep your hair?

I am about to have my 3rd FEC on Monday and using cold caps, too.  I have been fortunate.  I had a lot of hair to begin with and only shedding a bit more than usual, but nothing noticeable.  I start 45min before, but continue it for 6 hours after.  I know it's a pain, but it's worth it to me. my hair has not changed at all.  I'm not sure if it's me or what, but I only feel a bit of discomfort the first few minutes.  I will pray for you.  I know it isn't easy.  xoxo 

Member

Re: Cold Cap - did it help keep your hair?

I am about to go through chemo #3, and thankfully, I still have all my hair.  I am using Arctic Cold Caps.  i start 45min before infusion and continue 6 hours after.  I wash my hair 2-3 x a week, but do use organic conditioner or cur activator everyday.  I have curly hair, so I cannot go a day ala natural Smiley Happy  i still have my eyebrows, my eyelashes are thinning, but still have my hair.  a Bad hair day is better than no hair day for me.  Good Luck, all. 

Member

Re: Cold Cap - did it help keep your hair?

I have had two fecs using cold cap but 80 percent gone now and what's left looks terrible so I got a hair topper which I have to say is so much more comfy than a wig I just need to hold on to my small bit of hair as it clips on I had loads of Thick hair too which I constantly had to blow dry so that's one consultation I guess as all I have to do now is clip on my hair
Member

Re: Cold Cap - did it help keep your hair?

Many thanks riversidedawn, that's a good idea. I will suggest it, that's made me feel better about tomorrow.
X
Community Champion

Re: Cold Cap - did it help keep your hair?

Amoyart, my nurse put a layer or two of gauze on the top of my head when I thinned, to prevent ice burns. It was still effective through this x
Member

Re: Cold Cap - did it help keep your hair?

Hi everyone,
I am just about to have my 3rd FEC tomorrow. I have had a cold cap so far. I had no hair loss in the first cycle and then in the last 3 weeks it hasbeen persistent generalised hairloss. I am quite disappointed and I had to wear a wig yesterday as my parting is now quite wide and my crown quite sparse. I wished to know if the cold cap will be bearable or not. I was ok with the first 2 treatments with doing deep breathing. I was lucky not to get a headache. I am due for 3 docatexel next which involves a much shorter time with the cold cap so I am going to try to keep going. I know I feel better having some hair.
Xx to you all
Member

Re: Cold Cap - did it help keep your hair?