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Cold Cap - did it help keep your hair?

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Re: Cold Cap - did it help keep your hair?

JoannaT,  I just finished 3 of 6 treatments that inlclude taxotere and herceptin.  I have cold capped each time, some shedding each time, seems that after the 2nd treatment was the worst, an alarming amount of shedding.  Now I have lost, I would say 50-60 percent of my hair.  It is shedding from the underneath and on the sides.  I have managed so far to keep it on the top, thru the cold caps and lots of prayer.  If I can keep what I have now, I will be satisified, 40 percent is better than none.  Cold Caps werent encouraged at the faciltiy I use in KY, they weren't familiar with them, which I found disturbing, but anyway, kudos to the UK for providing education and options for cancer patients!  Just wondered if anyone knows if/when the shedding stops?  I have heard is lessens after treamemtn 3, and then again I have heard it continues until after your last treatment? 

Member

Re: Cold Cap - did it help keep your hair?

I noticed I was going bald, I panicked and turned the internet upside down in search of a solution and tried lots of products and weird things but none worked. a friend who used  to tease me about the hair (in a bid to tease me further) bought a product from Africa during his travels and he mockingly gave me as a present.I tried it and the result is unbelievable. infact he had to call his contacts in Africa to get in touch with the manufacturers. I know how frustrating and confidence-sapping being bald is that's why I took this painstaking mission to reveal to any who wants to try it. you can contact the manufacturers on (abiomoigho@gmail.com)I hope this message helps.

Member

Re: Cold Cap - did it help keep your hair?

Hi Lorraine, I just had chemo no.5 on Tuesday and had the cold cap again, it was awful but only one more to go so am determined to see it through, I wasn't sure wether or not to bother with the bit of hair I have left but after asking others in this form others all said don't give up it will be worth it as hair will grow back much quicker xxxx

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Re: Cold Cap - did it help keep your hair?

I had the cold cap through all my 6 treatments ikept my top hair but lost it all underneath.it went really thin but not bald x
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Re: Cold Cap - did it help keep your hair?

Hi Flopsy,

Thankyou so much for your reply, hopefully I will be able to see it through to the end also,I say I have puchased some surgeons  paper hats so the will protect the bald patches! Lol

So glad you have also had your surgery you must feel so much better having chemo out of the way and now your surgery as well! That's fantastic you will just keep getting better and better and stronger.

Take care of yourself Flopsy xxxxxxx

Member

Re: Cold Cap - did it help keep your hair?

Hi Lesley,

 

Yes, they did let me through until the end.

 

There was a lack of interest in my bald patches at the clinic.

I had saved some really thin wash clothes and I cut these up and used them to cover the bald bits.

 

I'm finally beginning to recover from the chemo and had my surgery last week. Now the 2-3 week wait for results. Not feeling too bad. Cautiously optimistic.

 

Hope you can proceed and it's not too painful.

 

Member

Re: Cold Cap - did it help keep your hair?

Hi Kate, Thankyou so much for reply I really appreciate it, I am just worried that the nurses won't let me continue to use it anymore, I have gone really thin with bald patches underneath however I have purchased some paper surgeons hats so am hoping I will be allowed to continue...Hope your doing well,Lesley xxx

Member

Re: Cold Cap - did it help keep your hair?

Hi Flopsy, Thankyou so much for your reply it's much appreciated, 

were you allowed to keep using the cold cap right through to the end? I'm worried that when I go for 

treatment 5 on 11oct they won't let me continue to use it, however, I gave purchased some surgeons paper hats so am hoping this will be ok. Hope your doing well xxxx

Member

Re: Cold Cap - did it help keep your hair?

Hi Singingspam,

Was wondering did you not do cycles 5/6 with the coldcap?

Member

Re: Cold Cap - did it help keep your hair?

Dear Lesley, hope you are doing OK

 

I was also in a similar position. Even with the cold cap I lost most of hair. Did have lots of long blonde very fine hair. Went down to whisps around the sides and bald patches on top and top/sides.

 

Did 3 x FEC and 3 x T

 

Now 6 weeks after my last T my hair is growing again. Some new hair on my bald patches.

 

I'm not sure if this is true but the cc could be keeping our hair follicles in a better condiiton than without the cap. This could explain why my hair growth has been so quick after chemo.

 

 

 

Member

Re: Cold Cap - did it help keep your hair?

Hi Lesley. I did carry on with the cap for 5 and 6. It was horrible but has definitely been worth it. I am now 11 months after last chemo and have loads of hair, a chin length layered bob. I have had it cut several times too. Although I hated the cap and was frustrated at how much hair I lost in comparison to those who didn't use it I have loads of hair. Also my hair is normal. It is not fine, fluffy or curly like some people get. I did have a Nioxin dermabrasion after the last chemo and then used Nioxin products for a few more months and then Fast shampoo. The Fast shampoo and conditioner has just run out and I am not going to buy anymore. Hope this is helpful xx
Member

Re: Cold Cap - did it help keep your hair?

Thankyou Marli for your reply it's much appreciated, I had fec 4 on Tuesday and have just tentatively washed my hair this morning now I don't think I will touch it till next chemo day am so scared too! My hair has gone very thin and I gave noticed a few bald spots on my parting area which am covering with caboki and it's really good, only two more sessions to go so I desperately want to be able finish the coarse using the cold cap, the nurse put a few bits of gauze of my thin bits and I have also ordered a paper surgeons hat just in case! Lol

Thankyou so much fort our respond and support I really needed it! Xxxxx

Member

Re: Cold Cap - did it help keep your hair?

Lesley - don't panic! I know that it feels as though you are losing a lot of hair but you should be keeping more. It is worth it. I worried as for 6 weeks after the end of chem I still lost some at each hair was but it stopped and after 8 weeks i coloured it. Had it trimmed 3 times during chemo too. It grows back very quickly. Good luck.  Marli xx

 

 

 

 

Community Champion

Re: Cold Cap - did it help keep your hair?

Hi angywd

Just seen your post....so sorry you have so much to deal with.

I completely empathize with you. My daughter has been dealing with anorexia for the past year. Luckily she has been improving recently, with my complete support and the help from the eating disorder team. When I got my diagnosis, my partner of 20 years decided it was time for him to leave. So after chemo, I'm moving house! It's all a lot to deal with, I know.

However, as another said, just take one treatment at a time and then one day at a time too. You will have some difficult times but also you will have times when you feel fine. I also had surgery first and found after 2 weeks I was fine. Now half way through chemo and I give myself a week to recover and then again I'm back to me. During those harder times, take any help offered from family and friends. My teenage daughter is wonderful looking after me( not so much my son, lol !) And everyone on this site are very supportive.

Sending hugs x

 

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Re: Cold Cap - did it help keep your hair?

Hi Kate, I just wondered if you continued with the cold cap after session 4 when you then lost nearly all your hair? I.m at that stage now and really don't know wether to continue with it or not? Any advice please xxxxx

Lesley

Member

Re: Cold Cap - did it help keep your hair?

Hi ya angywd

just read your post and I am in a situation like yours my ex left just before Christmas last year and moved in with the woman who lives next door but one. He has not contributed financially for anything since he left. Just after Christmas I found out about my cancer and when I asked him to be there for my boys as I was due to start chemo he laughed in my face. He has done nothing to support the boys in fact has done quite the opposite and only one of them is currently speaking to him.

anyway enough about him .... I am due my third tax on Wednesday and have had cold cap my hair has thinned on top but at the moment I'm not using scarfs or anything to disguise it, I do have a wig for back up.

all I can recommend is stay strong and if your friends or family offer to help let them. I am quite Independent and struggled with this at first but know accept it. Don't get me wrong I still have my crying days and find it worse when taking the steroids.

i am continuing to work and that has helped to take my mind off things, may be if you can you could look into volunteering or something whilst you are not at work... Just an idea for you to consider. 

My hair is fine too, like most people say the worst is the first 10-15 mins after that it's not that bad.

i'm not sure when my surgery will be yet as my tumour is quite large and the hope is it will reduce prior to surgery, the current plan is 4x tax then review as to whether more chemo but would be fec or surgery then chemo then radio therapy.

Member

Re: Cold Cap - did it help keep your hair?

I can say after my third round of FEC out of four with four T's to go try the cold cap and get in touch with Paxman on Facebook the manufacturers for the cap. I speak to a lady called Kathryn she is wonderful that lady has gone above and beyond!! Also the nurses will pull you through as well as your chemo crew as we call it in the ward we chat and get each other through the not so good bits!!!!my friend had fine hair used a cold cap dud her eight FEC-T regime and still had lots of hair in fairness if she already had find fair as she said I can't see she lost a lot!
As others have said try some relaxation and yoga helps... I say this awake at 1:45am but it's my steroids days and I don't really sleep then!!
Make sure whatever you do you try to eat before chemo I was rushing last time so didn't and was so sick!!! Speak to people who are there they go make it so much more manageable I weirdly look forward to going to chemo and chatting to them every three weeks!!
Every session completed is one to tick off the done list me and the ladies and gents do this every time it's lovely to see people be on their way after the final treatment it makes your soul smile.....
You are clearly a strong lady and this will make you even more soSmiley Happy
Member

Re: Cold Cap - did it help keep your hair?

Angywd -sorry you are feeling so anxious but not surprising with all that is going on in your life.

I was first dx in 2009 and then with recurrence in 2014. First time I lost all of my hair but used the cold cap in 2014 and kept almost all of my hair and felt all the better for it. I am a great believer in trying it and persevering as you do lose some hair at each hair was but not as much as it appears. Give it a go.

 

My personal favourite way of dealing with stress is Rescue Remedy, especially the pastilles. They have seen me through two lots of treatment, numerous appointments and many other stressful situations. Also lavender oil, which I always have on my dressing gown going down to theatre and on my pillow every night. Relaxation of some sort, either breathing as suggested, tapes or even an app on your phone.

Taking one stage at a time and not stressing about the next stage also helped me. Dealing with each day definitely helped.

 

I found great support from the monthly chemo groups on here as well as my "real " friends.

Good luck .  Marli xx

Member

Re: Cold Cap - did it help keep your hair?

Hi Angywd

 

I'm also due to have 6 doses of chemo - Docetaxel and Carboplatin plus Herceptn.  I start on Monday.  I can't imagine the extra pressure you must be feeling with the other problems you have but if you are feeling panicky there are a few tricks I know from when I suffered from panic attacks a few years ago -

 

Try sitting in a comfortable chair and close your eyes.  Imagine a square shape and breath across the top of the square counting to five, down the right side of the square, counting to five, across the bottom counting to five and then up the left side counting to five.  Keep doing this and you will calm down.

 

Also close your eyes and imagine you are in the garden or on a beach.  The sun is shining but there's a light breeze, the sky is blue and there's gentle noise in the background.  Keep breathing steadily and this does help you to calm down.

 

I promise that these do help, keep practising them.  Let us know how you get on.

love

 

kath xx

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Re: Cold Cap - did it help keep your hair?

Hi everyone,  bit nervous about posting as I have never joined any online groups before.  I am just about to have surgery which will be followed by 6 rounds of chemo, then radiotherapy and herceptin for 1 year.  Most of the time I am coping but at least once a day I am hit by an overwhelming feeling of total fear for what lies ahead.  It often happens when I wake up at stupid o clock and then can't get back to sleep.  I'm a single mum with 2 young teenagers.  I've gone through a horrendous divorce and 10 years battle with my ex husband, 25 court hearings and its all still an ongoing battle for the £27k he owes me in child maintenance.  My children and my work have always kept me going, even driving to work in tears and driving home in tears.  I now feel like my life is spiralling out of control, I cannot work whilst having treatment due to the imuno suppressed issue.  My work have basically written me off for 6/8 months and it's killing me.  Don't get me wrong they are so supportive and have reassured me that my job will be there for me whenever I'm ok to go back.  My daughter is diabetic with bad control so I am her rock.  She is devastated but I'm doing pretty well at reassuring her and making her laugh at the thought of me looking like an egg with no hair etc!  But I'm at home now sobbing while they are both at school so they don't see.  Firstly does anyone have any techniques for getting through those moments when the fear is so overwhelming you cannot breath?  Also I have been advised I can try the cold cap but I have fine hair so not sure if this would work for me?  Sorry for the ,OMG post! 

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Re: Cold Cap - did it help keep your hair?

Sorry I hadn't finished my last bit!! I'm really glad that your treatment is also going well. cxc
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Re: Cold Cap - did it help keep your hair?

Hi Naomi,

Sorry for my late reply I have been having in the world of chemo an amazing time I aware this could change but I'm positive in myself that I'll be fine. After the first I lost a bit but nothing major I naturally shed a lot and have a ton of hair!!! I did mindful breathing for the first ten mins of the cap them can't feel it. During session two the room was so hot I was sweating in a tshirt with no shoes on with an ice head that was bizzare!!! I had one day after the second FEC (I left the conditioner in for six days and didn't brush it as I was terrified of it dropping out I was told by my fellow cold cappers round two is the worse) when I washed it I sobbed I lost probably half a handful or less I'm Aware this is pretty awesome with FEC but it was my first huge shed!!! I cried with my mum for probably an hour that was my first and last emotion with chemo!!! I've heard the shedding slows after two and stops after three as a general hoping this to be the case! I cut my hair into a long layered short style do I think this helps as there's little breakage! I use the paxman shampoo and conditioner and my hair is pretty soft. I think it maybe growing yet it maybe my mind playing tricks on me!!! I still have full lashes and brows although my armpits and lady garden are bare very strange!!!
If my hair drops out tomorrow I've had six weeks extra I wouldn't have had of normality!!! I sleep on a silk pillow with a jersey sleep cap in and am taking biotin, hair growth tablets and sea kelp all have been approved by my oncologist but I think they are helping?
I've had a total of three bad days (they weren't that bad even) in six weeks two FEC mostly due to being on my period and constipated I though I was going to pass out!!! No sickness, no loss if appetite and very little tiredness. I walk the dig for two one hour walks and do 30mins yoga and twenty mins mindfulness a day so feeling healthy oh and water my two ltrs of water a day keep things flushing through me I sware this helps!
Sorry this is crazy long but the best bit..... My lump has already shrunk it did after the first one and the second I guess this is the beauty of having a huge lump you feel progress. Btw my surgeon tried to put me off the cold cap and my onc said I wouldn't feel a change yet I have so far proved both these facts to be incorrect for me!!! Oh and the two ladies on FEC-T cold capping at the same time as me one has done six rounds of each said she had thin hair to start with and had loads of hair left. The other lady who will now be on round four of FEC has full hair really long and lovely... I'm aware this isn't everyone's journey but I do think people get scared off of cold capping. So far so good!! I use a wife combed wooden comb and use cocnut oil on my skin as its a little dry! Sorry if I over shared I'm back in on Thursday so will let you guys know how it goes and if I ever dare wash my hair again!!!!!!
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Re: Cold Cap - did it help keep your hair?

Hello. I finished my last chemo 4 weeks this Friday & I used the paceman cold cap. I lost ALOT of hair, but I've managed to maintain is say about 40% full head with it patching underneath. I can cover the thin parts. I was was wondering to all you fellow ladies who've coldcapped, how long after does it stop shedding as I'm still shedding now, I understand that I'm only 4 weeks post chemo, it'll be nice to know when it slows down and stops. Thank you xxx
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Re: Cold Cap - did it help keep your hair?

Hi a long shot Tracym1  but do you have private health insurance through your work or your husbands work? My husband added me on his last year and they didn't ask any health questions as I was worried as before this breast cancer I had malignant melanoma which has also come back so a double whammy but just a thought in case it was an option. Good luck x

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Re: Cold Cap - did it help keep your hair?

HI Lullabelle 

having read your post from earlier just wondered how you  are getting on? X

Member

Re: Cold Cap - did it help keep your hair?

I'm on my second dose of EC chemo and using a cold cap. They put conditioner on my hair and give me a sedative and some paracetamol. Have to confess the first ten minutes are not pleasant and I shed a few tears but breathe through it like childbirth! Think of hot sunny beaches and then I don't really notice it. And then I fall asleep under the duvet they give me. Two and a half weeks after my first session i started to lose a few handfuls of hair and its still coming out... luckliy my hair is very thick. I did have it coloured at the start of chemo as its naturally grey but is coloured platinum blond so when grey starts to show through its not too bad. I've read on line not to use hairdryers or straighteners so am having a re style based on leaving it to dry naturally and am organising a wig now just in case. My nurse yesterday said it was a myth that not washing or brushing your hair will help preserve it! 

One thing that might be helpful if you didnt know this already and if you have any private health insurance you can still have NHS treatment, operations and follow ups but you can opt to have chemo privately and sometimes even at home. This has been a real benefit to me as you can pick your times of when you go based in your schedule.  I'm doing a lot of alternative stuff too through a proper doctor and he recommends juicing the day before and the day of chemo so the cancer cells are hungry and will respond better to chemo. 

Good luck and  remember it will come to an end. I've put all my treatment in my diary and know by the end of feb it will be over and what a celebration that will be!  

Member

Re: Cold Cap - did it help keep your hair?

What can you do if its not available?

Member

Re: Cold Cap - did it help keep your hair?

Hi Ladies

 

I used the Paxman system, and was doubtful if it would work. My hair is very fine anyway and I was dreading having to wear wigs and scarves. The good news is my hair has held on quite well, it is slightly finer but starting to get strong again. I had my last chemo six weeks ago. The cold cap is bearable, I took paracetamol beforehand ( check if this is ok for you), wore warm layers and got the padding at the forehead and nape of neck. It does add time to your stay in the chemo ward but it's well worth it. I know not every Hospital has them, as they had been fundraised for in my Hospital. I'm now two weeks into the radiotherapy and I'm taking the Femara ( which can also thin hair).  So you have nothing to lose by trying the cold cap. Good luck with your treatments.

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Re: Cold Cap - did it help keep your hair?

cancerhaircare.com has good advice on process

4 cycles of chemo. Kept 60% of hair. One length long bob is good style to camouflage patches - sideburns thin where cap doesn't reach, and a thin patch near top of head common with cold cap. These can be covered if you have long enough hair and a side parting. Feels great to be able to walk dog or pop to corner shop looking nearly normal! Did not feel cold for long, no headache.adds 2 hrs onto your chemo day. See cancerhaircare.com

for comprehensive advice on the process.

Member

Re: Cold Cap - did it help keep your hair?

I endured 16 rounds of cold cap during chemo for triple negative . Although it was very uncomfortable and I was shivering during most sessions, I was happy with keeping about 1/3 of my hair.

 

However. I knew something wasn't right when the hair didn't seem to be growing 4 months after chemo finished.  Whereas, The hair that had fallen out was coming back.  Over the last 2 weeks, all the hair that had been preserved has decided to exit my head- by the handful.  It seems like a really cruel blow given that my chemo and radio are finished and I should be moving on. The hair that had been preserved was mostly from the top of my scalp, so now I have considerable bald patches appearing.

 

This was never given to me as a possibility by my oncologist or nursing counsellors.

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Re: Cold Cap - did it help keep your hair?

I used cold caps during 6 doxorubicin treatments.  I lost approximately 45% of my hair, but no one really noticed. My daughter never had to see me bald. I was able to maintain my privacy at school or shopping. No stares. My last treatment was 10 months ago and my hair is very full again. It was interesting to see how the new hairs grew into the longer hairs, as the new grew in very curly. But I'm very glad I did the cold caps. 

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Re: Cold Cap - did it help keep your hair?

Hi powdow.i lost all my hair twelve yrs ago fec...most recent chemo docetaxol I used cold cap only lost some hair not noticable to others.i coloured my hair again about six weeks after chemo had no problems..but you can buy brown powder that would cover the roots.in most chemists obviously not permanent but would help and also covers any thinning bits.sharon.x
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Re: Cold Cap - did it help keep your hair

I'm on my 6th cycle and I've cold capped, lost about 60% and I always coloured my hair, but the fact that I still have 1/2 gray and 1/2 blond is OK under a baseball cap.  Lossing my hair was one of my worst side effects and the one that upset my son the most as well.  I have a little ponytail coming out of my cap and still feel pretty normal.  I think it's worth it!

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Re: Cold Cap - did it help keep your hair?

I'm on my 6th cycle and I've cold capped, lost about 60% and I always coloured my hair, but the fact that I still have 1/2 gray and 1/2 blond is OK under a baseball cap.  Lossing my hair was one of my worst side effects and the one that upset my son the most as well.  I have a little ponytail coming out of my cap and still feel pretty normal.  I think it's worth it!

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Re: Cold Cap - did it help keep your hair?

Thanks, my hair is thick too. I don't suffer from any headaches and usually can bare freezing cold ok.
If it comes to it I will cold cap, at least then I don't have to wait till my hair grows in grey and maybe I'll cope with the inches of grey roots knowing that I'll be able to colour sooner!
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Re: Cold Cap - did it help keep your hair?

Oops sent that agsin and don't know how to delete!
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Re: Cold Cap - did it help keep your hair?

Marli,
Oh thank you very much for replying. No I haven't started chemo yet, still to have mastectomy, but surgeon has said now chemo is found in one node they will do a full clearance and that it could now mean chemo, still not definate but it helps me if I am prepared. I have had plenty time to prepare, was diagnosed initially on 3rd May!
I just use Nice n Easy at home and yes my intention would be colour as close to chemo as possible. It was just a friend who had chemo (but didn't cold cap) said you can't dye for 6 months till after chemo ends - it may have been because she lost her hair?
I'm still concerned about the grey though, I really have to colour my hair every 4-6 weeks, so if chemo itself takes around 18 weeks, I am going to be pretty white up top- or will my hair not really grow anyway?
Member

Re: Cold Cap - did it help keep your hair?

I have very thick hair and actually had it cut 3 times during chemo, the 3 weeks after. I think if you have lost all of your hair 6 months is more realistic as mine did take that long to grow last time.

I know that cold cap is not for everyone but if you can do it it is so worth it. Didn't even get a wig this time as I was thinking positive.

If you do decide to cold cap follow all of the advice on previous posts. Thick band for hairline/ears. scarf under the freezing pipe . lots of layers (even a blanket) to keep warm. Don't forget lots of hot drinks. It is doable if you are determined but I seem to think that not if you suffer from migraines.  Good luck.  Marli xx

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Re: Cold Cap - did it help keep your hair?

Marli,
Oh thank you very much for replying. No I haven't started chemo yet, still to have mastectomy, but surgeon has said now chemo is found in one node they will do a full clearance and that it could now mean chemo, still not definate but it helps me if I am prepared. I have had plenty time to prepare, was diagnosed initially on 3rd May!
I just use Nice n Easy at home and yes my intention would be colour as close to chemo as possible. It was just a friend who had chemo (but didn't cold cap) said you can't dye for 6 months till after chemo ends - it may have been because she lost her hair?
I'm still concerned about the grey though, I really have to colour my hair every 4-6 weeks, so if chemo itself takes around 18 weeks, I am going to be pretty white up top- or will my hair not really grow anyway?
Member

Re: Cold Cap - did it help keep your hair?

Powdow  - Yes it is worth doing. I had lost my hair 6 years previously and really didn't want o lose it again.

If you have not already started chemo , I would suggest that you have it coloured the week before and the follow all advice about caring for it throughout your treatment.

 

I coloured mine 6 weeks following end of chemo. Hair was not damaged but I did find that it absorbed the colour more so probably best to leave it on for less time.  I just used my usual Casting brand but if you are worried you can get vegetable dyes.

 

I understand how important hair is to both you and your boy. Keeping my hair this time really made a difference to how I felt about myself - and I am a very positive person anyway.

 

Good luck with your treatment.  Marli xxx

 

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Re: Cold Cap - did it help keep your hair?

Just read my post sorry about the little errors but you get the jist, doing it on my phone. My son is 9.
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Re: Cold Cap - did it help keep your hair?

Hi,
Looking for some advice/info. I've just been told, after they found cancer in the sentinel node biopsy (only one node taken) that the chance of chemo is now on the cards.
I had always intended cold capping if I could, but now hearing that you can't colour your hair for 6 months after treatment I'm wondering what to do, I'd there any point keeping my hair when half will be grey and the other half brown? I'll end up covering it up anyway.
How have other ladies dealt with this?
I really wanted to keep my hair, more so for my littkr boy, he's only, and his first question when I told him I had cancer was an I going to lose my hair. My hair is just past shoulder length and even when I got it cut to a shorter bob a few years back he didn't like it. I know he's going to have to deal with the changes, but if there is a way around the grey issue of love to hear it.
I did buy one on those spray on colours that L'oreal do now to cover my roots when my colour is needing done, only tried it the once, not sure I was that keen, and that was just a little showing of the roots.
TIA
Member

Re: Cold Cap - did it help keep your hair?

Hi Lullabelle,

I am in the States and I just ordered it from their company in Kansas. Are you sure they won't deliver it there if you're paying for the shipping? It's great stuff and works, I hope you get your hands on some...good luck!

Member

Re: Cold Cap - did it help keep your hair?

Hi Stacey M,
I gave hunted high and low for the Brian Joseph's lash gel in the uk with no luck can't even get it delivered here!! Are you in th uk? If so where did you get it from please? Xx
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Re: Cold Cap - did it help keep your hair?

Hi! I just finished 8 rounds of R-Chop for lymphoma (Adrimyacin(red devil), Vincristine, and Cytoxin). I have long curly hair and still have a full head thanks to cold capping. It is a little thinner on top now that I'm done and I hope the shedding stops soon. You CAN save your eyebrows and eyelashes! I used the lash and brow conditioning gel from Brian Joseph's since the beginning and have kept all of my brows and lashes. This is a must have and pretty reasonably priced (about $50 per tube) to keep your lashes and brows. Hope this helps and good luck with your treatment!

Member

Re: Cold Cap - did it help keep your hair?

So I had my first round of chemo and cold cap tester day.... It really wasn't that bad you forget it's there after 10mins! I used a lush hair mask and am leaving it in for the 72hours many women have recommended then will rinse with tepid water... Am on the FEC-T so not looking forward to the eyelash/brow loss am hoping the cold cap saves a good majority of my hair... A lot of the ladies that used it had a good coverage even towards the end of treatment. So I'm remaining positive 😊 The staff and people there are so lovely 😊
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Re: Cold Cap - did it help keep your hair?

Hi ladies, can anyone tell me if there is any chance of keeping your through 6 cycles of fec? Everything I have read so far indicates that you won't keep hair even with the cold cap if you are on this cycle? I had my first fec 9 days ago and have 5 more to go and will willingly persevere with the cold cap if there is a chance I can keep hair....Thankyou for any help or advice xxxx

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Re: Cold Cap - did it help keep your hair?

In the UK most hospitals have their own cold cap systems. Do you live overseas? x

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Re: Cold Cap - did it help keep your hair?

hi ladies, does anyone wholesale the cold cap from www.osell.com, i want to wholesale, but i never bought from this website, does anyone knowing this?

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Re: Cold Cap - did it help keep your hair?

Hi ladies. I will have my 9th chemo (Taxol, Herceptin and Projeta) treatment today July 22. I am cold capping and still have a full head of hair. I have lost less than 10% of my hair. Its not noticeable because my hair is very thick. It is worth trying and gives you some control. I'm very thankful because this allows me to have normalcy and privacy as I go through this journey. I decided to rent my cold caps from polarcoldcaps.com. www.rapunzelproject.com has great info on cold caps.

The cold caps do not bother me even at -36c. However I'm also doing cold hands and feet with Elasto gel mitts and slippers to prevent chemical induced neuropathy and prevent nail lost. My hands get so cold until I don't think about the cold cap.I keep the caps, mitts,and slippers in the freezer until morning of treatment and transport in cooler on dry ice to infusion center. Just like cold caps you need several depending on the length of your infusion. I've read where some women soak there hands and feet in ice water to get the same results without the cost. Please do your reach on the varies tips and tricks available to help through this process. Many blessings to everyone.