Hello, I’m due to start chemo this Wednesday and will be using the cold cap. I just wondered if it ended up working for you and if you have any tips?
I hope you’re doing well x
I am desperately wanting to wear the cold cap. But just had a call saying I will be sent home wearing a pump with a small amount of chemo in it. Really didn't want this as I wanted to wear the cold cap for the whole time chemo was going in. Has anyone else had this? Flot chemo xxx
Honestly, thank you so much for taking the time to.reply with so much detail. I've had my 2nd round of EC .... good its awful. The tiredness is unbearable.
Thanks again x
Here are my cold cap tips...
Take paracetamol and ibuprofen an hour before you think you will be ready to put on the cap
I sprayed my hair to make it damp and then put lots of conditioner on before the cap (I used simple
shampoo and conditioner the whole time during chemo and quite a while after)
Bring a hot water bottle, blanket, scarf etc
Make sure you get a really tight fit with no gaps, try different sizes if you need to and make sure its
pulled down with the Velcro straps, I used the gel caps that are kept in the freezer and changed
every 45 mins as the other type (machine which constantly keeps the cap cool) didn’t seem be a
good fit for my head! Some people put gauze around the edges to stop it touching their forehead
but I didn’t think it made a difference. Don’t be afraid to be pedantic about it as the nurses may not
be so careful but it's not their hair!
After each round I put on a hat to go home and waited for two or three days to wash my hair
I tried to only wash my hair once a week.
I washed it over the bath with very gentle spray and as cold water as I could tolerate and used
simple shampoo and conditioner
I tried to brush it very little and only with a wide toothed comb. I didn’t use a hairdryer,
straighteners or any products on it until about 8 weeks after I had my last chemo and waited around
3 months to dye its
I slept on a silk pillowcase
You will absolutely notice that your hair will shed when you wash it or brush it but don’t give up, it
doesn’t mean it isn’t working. Mine did this from the very first chemo and my hair definitely became
thinner but, in the end, probably only lost about 10-20 % and most people would not have noticed. My
parting got wider and I was sporting a bit of a mohican for a little while when it was growing back!
It is definitely worth persevering; I hope it works for you!
I used the cold cap, I didn’t loose hair until my second dose of chemo, it was probably my biggest lose. I kept about 60/70% of my hair. I lost all round the edges but I kept my hair longer so it covered it.
It’s worth sticking it out, it takes longer but it made me still feel like me x
Hi Erica, you’ve had quite a few replies to this, but there is also a thread begun in 2013 by Meemoo on which you will find quite a few more. It’s just further down than the thread you started.
I never cold capped as I didn’t want to spend any more time in the unit than I had to.
All very personal. X
I had 3xFEC and 12 weekly paclitaxel (pfc 7 weeks) and cold capped throughout-it was non negotiable on my part
Ignore the scare stories , it is no-where near as bad as some claim - the first 10 mins are cold - then it is fine- take a paracetamol if you are concerned about pain.
Yes it takes longer but so what? I kept 65% of my hair which is all I cared about-have had 2 hairdresser cuts since finishing and hairdresser is very pleased with my hair (despite the curly regrowth coming through.!)
I did a cut and paste from when someone asked why I got such good results, here it is:
Wash once about a week after chemo with cool water and NOT under a shower.
Pat dry DO NOT RUB.
Give about 4 squirts of a leave in conditioner.
Comb with a wide tooth comb
THEN LEAVE IT ALONE until the next week and repeat.
The more you fiddle with it the more it sheds. Do that routine even after your last chemo and only go "back to normal" as in under a shower, more than one wash, wash out conditioner, hair dryer, straighteners or whatever a good month after your last treatment - but I left it 6 weeks.
YES! Mine thinned a bit but if you did not know me you would never know. This is me after my last treatment. BUT I was ultra careful read below for my routine.
I had my hair cut to just past chin length and layered before I started. I also had my eyebrows tattooed.
You will need a stretchy headband
A wide tooth comb
Shampoo (any sort you don't need anything special)
Conditioner (ordinary and a leave in)
A flask of hot tea/coffee
Take a pain killer 30 mins before your appointment.
When you get to the hospital damp your hair and apply a about a teaspoon or a little more of conditioner and comb it through.
Let them put the cap on and start the treatment. It will feel bad for the first few seconds but then it eases off.
When it is over they take the cap off and your head is covered in ice.
Put your hat on and go home. Do not wash your hair for at least 3 days and not under a shower. Wash once in cool water, pat dry with a towel don't rub. Then spray with ha few spurts of leave in conditioner, comb with wide tooth comb THEN LEAVE IT ALONE.
The roots are very weak and they more you fus with it the more comes out.
Me too I kept most of my hair on head lost it everywhere else ! Expect 10 minutes of serious discomfort three times as long on chemo ward but for me it was worth it
Hi I finished chemo in June. I cold capped every time. Had 3x FEC and 3xT. If you are going to lose hair it usually happens just before the second treatment. I kept most of my hair, probably about 60/70% and it was well worth it for me as like you losing my hair was a very big deal. Just make sure the cap is tight and look after your hair gently. Good luck x
I am new to this forum so forgive me if I am repeating what others have already asked.
My worst fear is losing my hair. It's a huge thing for me.
I am having 4 EC fortnightly followed by 4 paxitacel fortnightly.
I've had my first EC 11 days ago using the cold cap and so far nothing has happened to my hair. (fingers crossed it stays this way).
Sounds like a stupid question but is this a good thing or is it to soon for it to affect my hair? I am due to have my next round on wednesday.
Please can anyone share their experience with me?