Apologies, everyone -- I just realized I posted much the same earlier in this very thread!
@angleblue I didn't fast and didn't have any problems with nausea during FEC (or docetaxel, for that matter), but I only had 3 cycles of FEC. I did make sure to drink at least 2 liters of water the day before, day of, and day after chemo -- generally hitting 3 to 4 liters on those days, and aiming for 2 liters every day throughout. I also ate lighter suppers the day before chemo.
FWIW, I also didn't suffer from any mouth ulcers; I just had one tiny brush with what I thought was oral thrush at the far back of my throat during docetaxel, but my oncologist said it looked like mucositis. (I had some pain in my esophagus, which she thought was related.) Before I started, my nurse, who previously worked on an intensive care unit, suggested using a baby toothbrush and children's Sensodyne toothpaste, and brushing immediately after all meals and snacks, followed by either Corsodyl mouthwash (5 minutes after brushing) or bicarbonate of soda dissolved in a warm water. I made sure to gently brush sides and roof of mouth and tongue, not just my gums, and my mouth was sore-free. My nurse also advised getting a new toothbrush every week, but instead I bought 2 and sterilized them on alternate weeks (7-10 minutes in boiling water; somewhat annoying as you have to hold them down with something since they naturally float). I bought bamboo-handled brushes to minimize plastics exposure; they were barely more expensive than plastic ones.
I've read that a lot of ladies have got on well with Emend. I'll definately ask for it. I've been taking manuka honey and will continue throughout treatment. You're right its so expensive though. Can't believe I'm spending £30+ on a jar of honey! I'll look out for that mouthwash if I have ulcers. I was hoping manuka honey woud help with those though. I'm starting my first of six FEC on tuesday. Just want it to be over! Glad to hear you're nearing the end of treatment. Its a long haul for you.
Thanks for info. For the first one I'm going to take my chances and just going to restrict my eating tomorrow and hope for the best with the nausea meds. If its bad this time I'll fast next time. My birthdays going to be miserable enough tomorrow without adding fasting as well! If I have a bad time though I'll no doubt be asking you for more info!!
No, 24 hours is not enough! You would be better to to 48 before and just a few after. It really is not at all difficult. The trick is to eat something low carb and high fat for your last meal. I used to have a 3 egg omlette with a salad. I do know all the reasons why and can tell you but it is lengthy and a bit tiresome.
A bit more info here:
Thanks for the link. I'm going to look into this. I don't think I could do 48 hours before and 24 hours after. But will look into whether 24 hours before and 24 after are helpful xx
This is the fasting thread: https://forum.breastcancercare.org.uk/t5/Chemotherapy/Anyone-else-fasting-while-on-chemo/td-p/102523...
Basically you don't eat anything at all and drink only water or black tea/coffee for 48 hours before chemo and 12 hours after. Valter Longo is the scientist behind it all and I read everything I could find about him.
I followed his guidance and to give you a bit of encouragement look at the two mice about 40 seconds into this video:
As well as cutting down hard on the unpleasant side effects, fasting protects your healthy cells and so the chemo has a greater effect on the cancer because cancer cells don't "hibernate" for want of a better term.
I took all my steroids on an empty stomach and was fine.
It is not for everyone but it suited me and I seemed to fare a great deal better than the women on my thread and in my unit.
I'm just about to start FEC (all a bit of a shock as I was told post surgery MDT had decided rads and tamoxifen as it was so early and low risk. I then insisted on Oncotype DX ...just for peace of mind. This came back at 31 ..high risk of recurrence..so chemo here I come!!).
I'm pleased to hear that you seem to be doing well on FEC JacqB. Are you still doing ok? I hope so. Also can you tell me more about the fasting you're doing and also where I can find the thread. Do you really think its helping?.
Anyone else have any FEC expereinces?
Thanks and lots of love Angela xx
I had EC (no F) and found that the Emend was excellent for controlling the immediate nausea. I couldn't take the ad hoc medication later because it clashed with the Prozac but I found that the occasional sicky feeling was managed pretty well with Sea Bands and the occasional chunk of ginger.
I was told that nausea wasn't likely with Taxol so I wasn't given Emend with that but I never suffered with it anyway.
Hope you are faring well after your first FEC.
I had mine a couple of weeks ago and was told nausea was pretty much confined to the first week. I took all the nausea tablets I was given (three lots) for the three days following FEC and afterwards took one a day for three days of the back up drugs they gave me, I could take up to three a day but was warned of constipation. I found this got me through the first week. I have had a couple of watery mouth episodes and my stomach is constantly rumbling, but managed to get through that first week with no sickness. I did have the shaky feelings that Bay mentions, coated tongue (that was addressed by brushing my tongue gently during teeth cleaning) and like you I am terrible at drinking water, something I will have to address for round two as I'm sure it would help with night sweats and the shaky feeling.