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How did you feel after first EC?

10 REPLIES 10
Sammy73
Member

Re: How did you feel after first EC?

Hi @Love running  

Very crammpy tummy today 6 days on. 

Thought i would feel better not having the anti sickness and steriods!? Maybe not. Tucked up in bed for the rest of the rainy day. At least its not gorgeous and warm outside!!

Feel a bit miserable as i have felt so ok so far. Hey ho. 

Sammy73
Member

Re: How did you feel after first EC?

Thanks @Love running 

Will try. X

Love running
Member

Re: How did you feel after first EC?

@Sammy73 

Don’t worry about the posting - I am also confused at time.

The group is under the Monthly thread next to this one you used:-) I am sure you will find us. I can try to see if I can call you in somehow to make it easier.

From my experience, getting off the steroids is a bit hard, as you loose the energy. I have now experienced twice a roller coaster of emotions and tiredness Day 6 due to it. I am on the edge of crying all the time but you get over it. 

Regarding the PICC, it is quite convenient.  I have been able to exercise with it without pain and it saves my veins for all the blood sampling. 

Take care and I hope to see you soon on our May group

Sammy73
Member

Re: How did you feel after first EC?

Thank you @Love running 

Im very new to blogging or whatever this is! Lol. Will try and find it. 

Day 5 since treatment and off steriods and anti sickness as of today , had 2 marrowbone injection so far 3 to go then a bit of my own time till the next session 9th june. They have suggested a pic line b4 my next treatment which i didnt really want as my late husband had bad experience with it but this is different so going for it. 

Will try and attach myself to the other group 😁

Love running
Member

Re: How did you feel after first EC?

@Sammy73 

Well done on your first EC - I am on my second. I am glad that you manage quite well. My first one was tough but the second got adjusted and I coped better.

There is a May starter group that you might to join. We are a good group of strong ladies sharing advice, tips and experiences. We also support each other a lot as there are good and bad days. 

Sammy73
Member

Re: How did you feel after first EC?

Hi, 

I had my 1st EC yesterday at 130pm and my nurse was with me all the wsy through chatting and explaining stuff. I was there for about 2 hours. i had a muzzy head as i left the hospital but managed to go to the pharmacy to pick up some bits,my partner picked me up we went home had dinner watched t.v and had an ok night. Lots of weeing as lots of fluids day b4 the day and day after. I had a headache but my temp was fine so had some paracetamol. Today ive eaten and i am just chilling in bed, probally will do bits and bobs but will take each days as it comes. 

After my surgery 13th april ive managed my time so much better and dont beat myself up if i cant managed something. When i can do it i will to my potential. 

Good luck just listen to all thete guidance as it will be. 🤗

Love running
Member

Re: How did you feel after first EC?

Glad I found a fellow runner. The day before my first EC, I run my last 'normal' 10 km. I am also determined to try to run in between the cycles if I can. I have even registered to a virtual race in September (when I should be done). May be we can motivate each other? 

 

coffeeandcake
Member

Re: How did you feel after first EC?

Thank you @Love running

I will join the May group as my first session is next week. I’m determined to get at least one final 5k in before then! 

Love running
Member

Re: How did you feel after first EC?

Hi @coffeeandcake 

I just had my first EC on Monday. I had a rough first night which left me very tired on Day 2 and Day 3 - and now Day 4 I feel much better.

As you are planning, I took a walk with a friend on Day 2. It was decided on the day as I did not know how I would feel. But I followed the advice of my contact nurse to try to get my pulse up for at least 30 min each day, she said that it won't make me feel worse.

I gather all my strength for this slow walk with my friend. It was great and I got my energy level up. I needed a nap afterwards though to recover. But so worth it. Nothing is mad, except what is happening to us. What ever makes you feel good and strong, you should embrace. I did a short run this morning (more speed walking than running but I thought if I can walk, I can run). that's mad too, right 🤔

There is a monthly chemo thread for the May starters, you may want to join. We are a wonderful small group sharing our experience, tips and tricks.

Have a nice evening

LouJP
Member

Re: How did you feel after first EC?

Hi

I had EC and then T.

I was a little ropey but went into the office the next day and did get out.

Stick to your plans so something nice to think about but if you arent up to it, your friend will understand.

Good luck

xx

coffeeandcake
Member

How did you feel after first EC?

I have my first EC session next week and just wondering how other people have felt after the first session? I’m early 40’s, fairly fit and healthy, hoping to go out to visit a friend the day after my treatment - is this even worth considering or am I mad? Thank you!