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Paclitaxol question

5 REPLIES 5
Jaybro
Member

Re: Paclitaxol question

Hi again

I can’t swallow tablets either and I find it hard to swallow fluids - solids I’m ok with so long as they aren;t dry. It’s surprising how many meds are available in oral soluble form ie melt in your mouth. I now have Lansoprazole in that form as I was having to tip the capsule contents into smaller capsules! I also now have pregabalin in small tablet form (though I have to break it in half lol). I’ve found taking small tablets and small capsules is easy with banana or with any kind of food so long as it’s moist. That’s made taking the 18 pills of capecitabine every day (the 500mg tablets are too wide for me to swallow) fairly easy. 

Best of luck xx

alreadytaken
Member

Re: Paclitaxol question

hi my friend , thank you for your advice .

I have applied to join the secondary group.

As you know I can not swallow tablets , maybe a lot of other drugs will not be suitable for me, but worth asking about in my situation, but I do need to stay here long as possible to hopefully see my mum out , her life is not good and the knowledge that I am ill will just make her suffer more , also for the rest of my family I need to be here long as I can.  Sorry to hear your diagnosis , dont know much about it , only that its a tough one too.  

Take care  x

Jaybro
Member

Re: Paclitaxol question

That’s understandable. I’ve read he extent of your secondary mets and you really have a difficult task ahead. Paclitaxel is often the first line of treatment as it has a good success rate in keeping the cancer under control. I think I was given capecitabine (a little thinning at the temples but a full head of hair with volumiser) because I’m triple negative and, as the chart I’ve seen says, it’s trial and error (that didn’t inspire confidence  but it is fact with TN). So, going back to your original question, yes there are many alternative drugs, tho I can’t name any, Describe your dilemma and the oncologist may think again but it strikes me they want to get in there with a drug they know can work. 

Like I said, wigs are very good and can be styled to your own style, concealing some hair loss. It will be harder with eyebrows and lashes but, again, Macmillan offer support (maybe stopped because of the pandemic) but there are specialist beauticians around. It will take a lot of effort to conceal the extent of your illness from someone who knows you so well. Tbh, there are times when I need my mum so much but I am so glad she died the year before this all started.

I’m so sorry this has happened to you. As I said, apply to joint the Secondary private group and you’ll probably get lots of answers.

All the best,

Jan x 

alreadytaken
Member

Re: Paclitaxol question

I dont want my mum to see my hair gone , she is not well and even if she were she wouldnt be able to cope with my diagnosis, so thats the main reason really.

Jaybro
Member

Re: Paclitaxol question

Hi

Once you get into the flow of chemo, hair loss, which is only a temporary thing, may seem less significant. I know for some women it’s a huge thing and some people do manage with the cold cap. Remember it adds hours to your treatment (paclitaxel is a relatively quick one, maybe an hour in total - then add 2-3 hours for cold-capping) and it may seem less worth it. It’s also not guaranteed to work, so please don’t put all your hope into it. But if it works, that’s great for you. 

All hospitals have links to a Macmillan wig service. Although I didn’t wear mine much, it really was indistinguishable from my own original hair. I’d already opted for a number 6 buzzcut which I loved and wore beanies in the winter (I treated myself to cashmere ones which I doubled up). I didn’t lose all my hair on paclitaxel, well, my head hair - my pubic hair and nose hair disappeared rapidly and it’s amazing how important they actually are but you take them for granted till you start peeing every which way! And the biggest blow for me was losing my eyelashes. I don’t know why. 

The only other treatment I had was EC - that was when I started losing hair so that’s no use. It also wasn’t an alternative but the main treatment. You will need to ask your oncologist about alternatives because every cancer is unique and only s/he will know what will work most effectively. I’m on oral chemo now and there’s been no hair loss but the drug is very strong and reserved for secondary breast cancers. EC and Paclitaxel are the most common treatment for primary breast cancer so you may have no choice. Personally I’d choose effective treatment over hair loss any day but we’re all different.

I hope your oncologist can help or reassure you xx

alreadytaken
Member

Paclitaxol question

hi, Im set to have  this treatment and was told it could cause hair loss. ( I will try the cap)

I have also read there are treatments that dont cause hair loss, do you know what names those ones go by, the ones that dont cause hair loss ? and can I ask that they use one of those instead of the Paclitaxol ?